What type of reconstruction would you do if .....
you have extremely dense breast, have fibroadenomas, past biopsies, family history, BRCA1/2 unknown (pending) and are 44 years old? Would you ladies please share your experiences, thoughts & if you had any complications. I just need a little bit of reassurance that I'm not over looking or over analyzing any options. Thanks in advance.
Comments
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personally? flat... i would not do reconstruction. i'm flat, and i had a pretty easy recovery. i'm have an athletic build, and flat works well for me. so, i thought i would just weigh in with the "no recon" option.... in case you've not considered that as a possibility. it's such a personal decision, one that each of us has to find peace around.
i did not have the option of a prophy... as i was diagnosed... knowing now what i do, if i had been able to choose prophy instead of treatment... i definitely would have!
good luck! i hope you are able to find the RIGHT plan for you.
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chicahunter-- as you've probably read on these boards, the reconstruction option is a very personal one. Have you seen a plastic surgeon yet to see what the options are? Some individuals lean towards implants (and there are so many types to go with) for their personal reasons, while others go for a "flap" reconstruction. I personally went for a DIEP flap (using my tummy fat) as my reconstruction option. I'm 34 and didn't envision wanting to go have to go in every 15 years or so to replace implants. I also liked that it was my own tissue (and had more than enough to spare in the midsection) for the surgery. However, it's a very long surgery not a short recovery period; most of the time, there's a second surgery to "tweak" things as the first surgery is to make sure the flaps are viable--then really focus on the other stuff later.
There are positives and negatives for each type of option, and of course each individual's experience. Whatever you choose, best of luck!
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I had extremely dense breasts, multiple benign masses, multiple biopsies, and family history. My sister was BRCA negative - I was not tested.
The only option my PS gave me was expanders + implants. He said I didn't have enough tissue for a flap, and we never discussed direct to implant. I guess at the time, I didn't think to question him on it - and I did the majority of my research about reconstruction after I had mine done. But I'm happy with my results and I wouldn't change anything I did. I had a lot of confidence in my team (both my BS & my PS) and went along with the recommendations they made.
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dont forget the third alternative ....fat grafting. the patients whose pictures i have seen have beautiful natural breasts. i think fg is ideal for prophy patients especially if you can do skin sparing mx . you can start fg during the mx surgery if you line up the right docs.
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I am exploring my options for PBM and from what I have seen and read, for me, and yes, this is a very personal decision, I would go with DTI surgery. One and done as some like to describe it. None of these surgeries are easy by any means, but for me I want the easiest and fastest surgery. If you decide you want to lean towards PBM, please take your time, if you can, and research! Talk to others who have had PBM and see what option best fits you. Then interview PSs...I am going to see 3 PSs and BSs before I make my final decision.
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eileenj...
Great recommendation about taking one's time, researching, talking to others, and interviewing more than one PS and BS if possible. Prophylactic surgery does give you that advantage many do not have, and it is well worth using it.
It really is a very personal decision. I don't think any "one" method is better than any other from an objective standpoint, it is more like what is better for that one person based on their options and own subjective preferences, etc.
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I've seen 2 PS officially & 1 excellent but conservative BS, I have a 2nd opinion with a female BS on Monday. My goals are 1) significantly reduce my risks for CA, 2) the least amount of surgeries/complications 3) surgery requiring the least recovery/down time off work, 4) best aesthetically pleasing outcome. I've been at this since January so yes I believe taking my time & researching has been achieved. Again, I know the type of reconstruction is very personal & individual however, I was asking for women's experiences & thoughts/regrets as insight. To me, it carries weight when the information is moving from experience. I never said anything about any one method being better than others & I'm sorry if that's how i came across I just want to know experiences so I can make my own decision better informed. Thank you all for sharing with me.
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You say that your number one goal is to reduce your risk of breast cancer.
Have you seen a genetic counsellor and/or an oncologist to discuss what your risk is?
Extremely dense breasts (at the age of 44), fibroadenomas and past biopsies (if they are benign and didn't uncover any high risk conditions such as LCIS, ADH or ALH), don't likely put you into the high risk category. Family history might, if you are BRCA positive. Do you know if the family members who've had breast cancer are BRCA positive?
I have extremely dense breasts, a history of fibroadenomas and more cysts than I can count, I've had benign biopsies for calcifications and fatty necrosis, I have almost every fibrocystic condition under the sun, and I have family history of breast cancer (mother (post-menopausal), aunt (pre-menopausal), and on my dad's side, lots of prostate cancer, which is linked to breast cancer risk). I've had breast cancer. I am BRCA negative, although it's an uninformed negative (i.e. we don't know if the presence of a BRCA mutation caused all the other cancers in my family). With all that, my oncologist assessed my risk to be diagnosed again to be about double that of the average woman my age. That puts me at most at the very low end of the high risk category. Although I needed to have a MX on the cancer side, neither my oncologist, nor my surgeon nor my genetic counsellor ever suggested that I even consider a prophylactic MX for the other side. My oncologist didn't even think that my risk level warranted taking Tamoxifen.
I appreciate that everyone's risk tolerance is different; I have a pretty high risk tolerance and I realize that someone else in my position who is less risk tolerant might have chosen a different option. But I also had an awareness that a MX is life-changing and particularly when coupled with reconstruction, is wrought with risks and possible long-term physical side effects. I say this as someone who is now 8 years out from my single MX, and who, for the most part, had an easy time of it. But the changes to my body are permanent and are there every day of my life. Most women, thinking about this surgery, consider the risk reduction, worry about the surgery and recovery, and aim for good cosmetic results. What they don't tend to consider are the implications of living the rest of their lives without breast or nipple sensation, with numbness, and with the possibility of a whole new set of aches and pains that might arise develop as a result of these major changes to your body.
For someone who is high risk - BRCA positive, or BRCA uninformed negative with a strong immediate family history, or who has a personal history of BC and has high risk conditions in the other breast - I certainly understand why a PBMX is worth those risks. So I'm not trying to discourage you - or anyone - from having this surgery if it's the right thing for them to do. However, before making such a life changing decision, I think it's important to understand your risk level, consider the other risk reduction options available, and to truly understand what's involved with a PBMX.
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Beesie yes I've seen a genetic counselor & my BRCA1/2 is pending. My cousins (3) all tested negative for BRCA1/2 had dense breasts with fibroadenomas & negative biopsies only to discover during lumpectomy the biopsies (12) were wrong (2) had breast cancer stage II & III. My point is that nothing is 100% and statistics are just that STATISTICS. There are many different mutations that can cause breast CA & having had colon & cervical CA already I'm taking a proactive stance. I completely understand the "life altering" decision but for me the key word is life. I can deal with surgeries, numb nipples, scars, etc what I can't deal with is rounds of chemo, being sick for days on end from tx, watching my kids/husband/grand kids suffer, or being stressed out holding my breathe every 3-4 months for MRI & biopsy results, having my family watch me spiral in & out of depression, not do any of the things that I enjoy basically not living. Everyone needs to do whatever is right for them isn't that what is constantly said on these forums? It sounds as though there's some confusion on this post I was asking what type of reconstruction you would do & what complications you had that's it. Thank you for understanding this is my decisions & being in the healthcare field I know better than to ignore my intuition & blindly trust human error.
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DiveCat, for me, I think mentally, it would be better for me to wake up with breasts already in place. I have seen what other surgeries look like, i.e., extenders, diep, and I just dont want to see it. I really want to see breasts when I wake...so I will consult my surgeons and see what their opinions for the best recon would be for me. Then I'll have to make my decision. But in my mind, my decision for PBM is made...Im moving towards it and towards an end. Ive already talked to 4 other women who have had DTI, and with the same surgical team, and they had little to no complications. Im hoping and praying the same for me.
Peace Love Light to all xoxoxo
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chicahunter....I can give you 3 different scenarios on the type(s) of recon that I had. Keep in mind, I started on this "quest" in the early 1990's, and options/techniques, etc. have progressed over time.
Right out of the gate, I had a uni-mx. At that time, I don't think immediate recon was very widely done...it certainly was not offered to me. So...first option of "going flat"....did that. During that time, I tried no prosthesis, foam prosthesis and silicone prosthesis. Didn't like any scenario so then opted for surgical recon.
At that time, the best option for me was expander, then implant. Saline implants were the only option, given the silicone "scares" of that time. First implant ruptured after a couple years, so went "under" again, to have another one inserted.
Fast forward to several years ago....second implant had developed grade 4 capsular contracture. By this time, I wanted nothing more to do with the "cycle" of implants, but knew I didn't want to return to flat, so opted for flap recon.
I had a Tram free muscle sparing flap done almost 1 year ago, and have felt more "whole and restored" than I have since my mx. For me, a normal tissue reconstructed breast has come as close as possible to a natural breast and I have not one regret for choosing such a complex surgery and recovery. I was 62 at time of flap surgery....very active with outdoor/leisure activities such as hiking, skiing, golf, yoga and have been able to return to pre-surgery level of activity with no outstanding issues. I will be doing nipple recon in the near future.
Best wishes for you on your own journey, I hope you find the path that is right for you.
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eileenj,
I absolutely understand feeling strongly about what will work for you. I was not worried about tissue expanders, if I needed them and they would provide a better outcome (indeed, I expected to have to use them because of my larger breast size and because of my location), but I knew I absolutely did not want to take tissue from anywhere else (muscle sparing or not) even if I had enough tissue to spare (I don't)! So I knew I wanted implants from all my research, reading, and observing/hearing personal experiences of others, but was not set on TEs or DTI. I ended up having the option of both but am going DTI, which is also strongly based on the fact I have such great trust in the surgical team that will provide that surgery. I am scheduled for a month from now (yikes).
The good news is, compared to even 4-5 years ago, many more surgeons are doing direct-to-implant....way easier to find surgeons these days who offer it! Just know that when you wake up, they still might not quite look like breasts quite yet, in many women they can still appear quite flattened out/awkward and need time to settle...but you will at least not need to expand them!).
Good luck!
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