To All My Stage III Friends
Comments
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Linda Lou,
I'm sorry to hear about the progression but I'm also very hopeful for you. You were a tremendous help to me early in my post diagnosis life and I think also when I began to have some problems with lymphedema. Love to you. Paige
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LL So sorry to hear what's going on. I'm praying that it's something inflammatory!!! Fingers and toes crossed!!
Stay strong and let us know
Babs
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Linda, sending you prayers and warm wishes for the biopsy.
You may want to make a quick call to your onc about the AI; mine had me stop the tamoxifen a few weeks ago and wants it to clear my system before starting what will probably be Faslodex (but may be anastrozole). I have absolutely no idea if it would be the same for an AI instead of tamoxifen, or even if it's required or just a preference, but I'd hate to see something like that delay your next steps.
Wishing you an easy biopsy and great response to treatment!
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LindaLou,
Ive been thinking about you a lot since I read these recent posts, and I just wanted to send big hugs and prayers your way. It still feels like there is a possibility here that something else is going on. I hope that ends up being the case, and if not, know that we all love you and are here for you.
Hugs
Bobbie
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Love and prayers Linda:) I am so sorry you have to deal with this again. But if you do we are all here for you! Prayers and blessings!
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Thank you everyone for all the prayers and good thoughts! I had the excisional biopsy of the neck node early this morning. I have minimal discomfort at the surgical site, but have been experiencing unusual right flank pain, low back pain and cramping similar to a bad period. I guess that may be related to the general anesthesia and possible positioning on the the table?? I should have pathology results by mid next week. I followup with the surgeon next Thursday and my oncologist next Friday. Going to bed early tonight and hope the acheyness is gone by tomorrow!
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thank you for the update. I hope the biopsy is benign. I hope you feel better in the morning.
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Rest well tonight, Linda. You'll be in my prayers.
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LL
Prayers for you!!!
Babs
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Lindalou53...thank you for keeping us up-dated! Also hope last night was a restful sleep and today is sunny where you are and maybe some planting of spring flowers! I see we both have grade 1 cancers...cancer is cancer and does as it wills, but I have been repeatedly told grade 1 is slow and if I do have a recurrence it would be treatable for years! So IF your biopsy shows cancer ...I would hope this is true and you have lots of years to sew and enjoy life!! Don't feel alone..we're all here wanting the best for you!!
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Thinking of you and sending you big hugs, Linda. I hope that you get some good news soon!
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My oncologist's office just called. The neck node biopsy reveals metastatic breast cancer...ER+ / PR- ...same as my 2005 ILC Dx. I don't have the formal report in my hands yet, should get that tomorrow when I see the neck surgeon. I guess I am glad the Dx seems definitive and we can get started right away on treatment. Will see my Onc on Friday for more in depth discussion and treatment plan.
I was driving my husband to his own doctor's appointment when we got the call. I think he is taking it harder than me right now. We will both feel better when we get some questions answered and feel that we are doing all we can. I feel a sense of urgency now for so many things that will need to be done, but am trying to resist that knee-jerk response. Hoping my oncologist can alleviate some of my current concerns.
I will keep you all updated. Thanks for listening and supporting me.
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LL
I wish the news had been different. Keep us posted on what the oncologist says.Just remember we're all there with you!!!
Babs
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Damn***** I am so sorry Linda, I was so hoping this would not be the case.
In any event, hold tight to the reality that when you have long periods of remission this is indicative of long periods of NED with tx.
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Big hugs, LindaLou. Sending you and your husband our support.
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Linda,
I am so sorry. That is not the news I was hoping for. I am also wishing long periods of NED with a minimum of side effects
Elizabeth
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Linda...praying for peace and direction. We are all in your pocket.
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Linda, crap! I was really rooting for something benign. I know you can deal with this, I just wish you didn't have to.
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Oh S&iT Linda, so sorry to hear this!! Just want you to know you are in my heart today!
Oceana
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LindaLou....this must be hard to adjust to, but it is not without hope! I truly believe you'll respond well to treatment and will maintain an active life. I grieve you have to deal with this, but trust you'll find your new treatment doable!! Please keep hanging out with us and up-date us as you get more info!! Hugs
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Oh shoot, not we wanted. You will have a treatment plan in place soon, and we'll all be hoping NED comes to stay soon.
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LindaLou....thinking of you and sending positive thoughts your way.
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Not the news we wanted to hear, that's for sure. Keep us posted on the treatment plan. Big hugs, honey.
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LindaLou,
The beast is relentless, hoping your MO has a plan quickly & you can get the treatment you need to dance with NED...so sorry...
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Thank you again ladies! It has been a crazy few days since learning my biopsy results. I got the formal bx path report on Thurs from my surgeon, I spent the rest of Thurs evening and night holding and saying goodbye to my 21 year old kitty Socks. She has been fragile for some time with kidney disease but had taken a dramatic turn for the worse this past week. Friday morning I held her while she was put to sleep. Friday afternoon I met with my oncologist to determine my treatment plan. You can read the treatment plan details if you choose at this link on the Just Diagnosed with a Recurrence or Metastasis forum:
http://community.breastcancer.org/forum/106/topic/818888?page=2#post_3961682
The bottom line is my onc is concerned my cancer has become more aggressive. She wants to get me started on treatment asap, however, we also are trying to see if I am eligible for the Paloma-3 clinical trial which is available at my cancer center. This week will be full of gathering medical records, signing consents, having a bone scan, echocardiogram and any other tests required by the study. Hopefully, if I meet the eligibility criteria I can get started on their treatment protocol by the following week. If it turns out I am not eligible, my onc will start me on Faslodex injections as soon as we know the study will not work out.
I have also been in communication with my former oncologist who managed my cancer care from 2000 - 2011. She encourages me that the trial would be a good opportunity if I am eligible. SO...I will try my best to complete the application process and at that point I will accept whatever happens.
I mentioned on my post on the Just Diagnosed forum and I will also state here, that I am planning to formally introduce myself to the Stage IV forums probably today. I certainly plan to continue to follow the Stage III forum and post here when I can, but I feel as my life gets more involved in these new treatment protocols it is best for me to move those discussions to the Stage IV group. Anyone is welcome to read the Stage IV posts as they choose, and I will continue to answer questions or provide my input here on the Stage III forum as appropriate.
I truly hope everyone here can see the positive side of my 8 years NED after a very locally advanced dx. I know there are many more women here with much longer periods of NED than me who are STILL NED! There is ALWAYS reason to hold out hope for a long and quality filled life! I had just turned 47 at my first BC dx in 2000. I will turn 61 this year and these last 14 years have been full of a great and wonderful LIFE in spite of the periods of cancer treatment. Don't forget to LIVE while you are fighting your cancer!
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Dear Linda,
There are no words other than to say we're all praying and fighting for you and hoping you get into the trial ASAP. Sorry about your kitty Socks, but maybe it happened now so you can concentrate on you. Please stay the strong and amazing person that you are in the next part of your battle!!!!!
Hugs
Babs
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Linda, I am sending huge HUGGZZ to you today and don't forget, you have so many friends on this forum!! But we do understand that you will post things on the forum for stage IV, and I know you will find many there who continue NED for many years, if not decades. Let's hope, if you decide, that you want to do it, that you can do the trial Paloma. Luv & more 0000's --Shelly
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UPDATE: Just wanted to let you all know that I am now officially
enrolled in the Paloma-3 trial! I received my first injections today of
Faslodex and took my first oral study pill (either Palbociclib or
Placebo). The shots were not bad at all, time will tell if SE's develop later. I am just glad a treatment plan is
finally in place!So for now I am
just happy the news is relatively good considering all the
possibilities and am hopeful this new treatment will be effective. No
matter the eventual outcome.....it is still just one day at a time as it has always been! I plan to keep counting my blessings every day!
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