Flying cause lymphedema?

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peacestrength
peacestrength Member Posts: 690
edited May 2018 in Lymphedema

I need advice - I will be flying for the first time since my dx.  I don't have lymphedema currently and I'm concerned about it happening on this flight.  I have had a total of 32 lymph nodes removed - 29 on right side and 3 on left.  I have two lymphedema sleeves to wear on the plane but do you recommend more compression? Such as a compression bra and/or a breast swell spot?

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  • carol57
    carol57 Member Posts: 3,567
    edited March 2014

    One tactic lots of us use is to wear a compression T shirt, short sleeved, so its sleeve meets the top of the compression sleeve or overlaps slightly without constricting.  I wear this without a bra, and I like the T shirt because it applies compression to the axilla, which isn't possible with a cami or a bra.  At this time of year, it's easy enough to wear something over the T shirt so you're not parading through TSA security in a skin-tight compression shirt--you'd be using it as an undergarment.  Choose one that's a size smaller than your usual size, so it's really compressive, and wear it inside out so the seams don't chafe.  Many of us wear UnderArmour men's sizes, because the women's sizes have cap sleeves that cut into the axilla.  Be sure to look for 'compression fit.'  You should be able to find these and try them on at many sporting goods stores.  UA also has outlet stores, if you are near an outlet mall.

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    Carol- this is brilliant! Thank you very much!

  • carol57
    carol57 Member Posts: 3,567
    edited March 2014

    I wish I could take credit for the idea, but no...this forum is the source of so much helpful information, and I'm just passing along what I learned here!  Good luck with your flying!

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2018

    Drink tons of water, no salt, (there will be plenty in your meal,) skip salty snacks, get up and move a lot, stick arms straight up in the air and pump fists slowly 25 times, do a few times. If embarrassed just do it in the bathroom or back of plane.With all that water you will make many trips. I wouldn't suggest alcohol on your ride because it dehydrates which in not good. This is what people do with LE when they fly.

    You need a glove or gauntlet or the fluid will get pushed into your hand if you do swell. Be fitted for one and practice wearing your garments well before the trip. Start off with one hour and increase to get use to garments.

    Don't take off until a hour or two after landing if you must.

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    Hugz - Thanks! Where can I purchase a glove quickly?

  • carol57
    carol57 Member Posts: 3,567
    edited March 2014

    peacestrength, a good source is brightlifedirect.  Here's a link, and in case it doesn't work, find brightlifedirect.com, then lymphedema products, then gloves and gauntlets.  

    http://www.brightlifedirect.com/lymphedema-product...

    The gloves are horribly expensive. Gauntlets are what most people use when wearing them preventatively while flying and they are a lot less expensive.  If you need it truly asap, call Brightlife and ask for help on that.  They'll give expedited shipping rates to you.  Be sure to check the measurement charts available on their site.  If you're not sure, call and ask them for sizing help, and/or to order in two sizes, knowing that you'll return one.  Brightlife is amazingly accommodating on their return policy, and I think if you are uncertain of your measures but don't have time before your flight to buy one, try it and then exchange for a different size, they will understand.  

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    I just ordered - I really appreciate all your help.

  • carol57
    carol57 Member Posts: 3,567
    edited March 2014

    Are you wearing the sleeves for any reason other than flying?  Because if not, I hope you have some time before the flights, to wear the sleeves a few hours at a time for several days (including gauntlets). That will give you time to get used to them.  Lots of us have problems with the thumbs on the gauntlets being a bit too tight, and making the thumb go tingly.  If you have to wear it permanently, that often means ordering a custom fit.  But for periodic ware, another strategy is to get the thumb wet and let it dry over a marker or something similar that will make it stay a bit bigger than its knit size.  You'd need to have worn your gauntlets a few times for a while to know if you need to make that adjustment.  

  • LymphActivist
    LymphActivist Member Posts: 64
    edited March 2014

    There is very much controversy and very little hard data on this subject, so I will make some suggestions based on my knowledge of lymphedema pathology and my wife Pearl's experiences over the last 20 years. We favor non-elastic containment over elastic for flying. In plain language that means that short-stretch bandaging or non- or low- elastic garments (e.g. Solaris Tribute, JoviPac, MedAssist, etc) are more effective than circular-knit elastic sleeves. Flat-knit custom sleeves are in between. This is for the same reason that you do not usually sleep in an elastic sleeve (too high a resting pressure, too low a working pressure) when your arm/leg is inactive for many hours. If you MUST wear an elastic sleeve when flying, then take along a stress ball, a sponge rubber ball that you squeeze periodically, to use your arm muscle pump to keep the lymph flowing.

  • victoriasecret
    victoriasecret Member Posts: 333
    edited March 2014

    I had 25 nodes removed ...I have been flying extensively for 5 years ...long flights short flights ,no sign of Lymphedema .

    I remember I freaked after surgery for about a year maybe less lifting etc.

    I am still cautious don't try to haul extra heavy loads ...but think it is a crap shoot as to who will develop Lymph.

    I excercised a lot after surgery using my arms ...still numb though on my affected side not as bad ...do not think I will ever regain full sensation under the arm and upper arm inside !

    I have never worn a sleeve thought about it at first...

    Love n light

    Cheryl

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    Each of you have been very helpful.  Thanks for sharing your experiences and suggestions.

  • carol57
    carol57 Member Posts: 3,567
    edited March 2014

    cheryl, it is indeed a crapshoot.  My mother had all her nodes removed 40 years ago, with more rads to the axilla than would ever be given today, and she never got LE.  I had 5 nodes out and no rads, and here I am. That's why the decision on whether and what kinds of precautions to take after BC treatment is so controversial, and so hard for the individual.  We just don't know. It's so hard to plan a strategy against a threat that's so hard to quantify. 

  • vlnrph
    vlnrph Member Posts: 1,632
    edited March 2014

    Cheryl/Victoriasecret & Carol's mom might have been blessed with an especially "robust" lymph system: able to manage challenges like flying without any problem. Perhaps OP peacestrength will find herself in that group. BON VOYAGE!

    We just returned from another trip and again, walking around the airport, I'm surprised that I don't see more women in compression garments. I always have my wrapping supplies & Solaris Tribute with me (never in a checked bag) in case of a flare but have been OK with sleeve/glove even at higher altitudes.

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    Well, I made it to my destination with few LE problems.  Thank you for the t-shirt and glove recommendations.  I wore a t-shirt, 2 sleeves and 2 gloves - my small patch near arm pit flared some but not too bad.

    Thanks again everyone!

  • juneping
    juneping Member Posts: 1,594
    edited March 2014

    peace, how many hours was your flight?

    I am flying next week 16 hour flight. I am bit scared....

  • peacestrength
    peacestrength Member Posts: 690
    edited March 2014

    Juneping -  Mine was a 3 hour flight.  I should mention I used a compression t-shirt - I only mention t-shirt above.

  • juneping
    juneping Member Posts: 1,594
    edited March 2014

    peace - thanks....i'll try to get the T-shirt this week...

  • juneping
    juneping Member Posts: 1,594
    edited April 2014

    hi. Just want to throw the info out there in case ppl are looking for flying and LE. 

    I don't have LE and wear sleeve for preventative purpose. I ran out of time couldnt find a compression tshirt. The flight was 16 hours and I had the sleeve and the gauntlet on and I was okay. Side note, bc of flight delay and cancellation I had the sleeve on for over 12 hour before flying. Not sure that helped or not. My sis did some research for me that wearing it longer before and after long flight is crucial but I am sure not 12 hours long like I did. I was very relieved no swelling after the long flight.

  • hugz4u
    hugz4u Member Posts: 2,781
    edited May 2018

    bumping flying thread. It's travel season and we are all wondering about preparing for flights with LE!

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