Here's what cheezed me off today

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  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Sas- I dropped off the Insomniacs thread, not here enough to keep up, with it but heard you had your surgery and were recovering on the Hermit thread from Teka. I have had friends who have had some or all their thyroid out and it does a major change to your hormone scene so no surprise to me you are having reactions. I hope you can find out if the meds or hormone changes or all of it are affecting you. Anything that comes out that affects our hormonal balance will reek havoc for a bit. 

    I was not sure why you were having the thyroid out. Was there a concern of cancer there or just something else going on? I hope you are doing better and feeling better every day. 

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    SAS, Things will be up and down until they get the thyroid dose regulated. Once regulated, it's smooth sailing. I hope your sore throat is feeling a little better. Hugs.

  • Rockym
    Rockym Member Posts: 1,261
    edited March 2014

    sas, my family has a history of thyroid issues.  I actually had hyperthyroid after the birth of my first kid.  It was quite the ride since I didn't want to take beta blockers at the time.  I was nursing and determined to let the illness (which was temporary) run it's course.  I recall nursing him on one breast/arm  and running around cleaning, etc. with the other arm.  

    Anyway, as for the Wellbutrin, I don't know how long you've been taking it, but I do know that antidepressants can cause irritability in some people.  They can also make moods worse... hence the black box warning :-).  Feel better.

  • Rockym
    Rockym Member Posts: 1,261
    edited March 2014

    To anyone interested... like we didn't know.  I found this newly published article on my science website.   Chemo Changes Our DNA

  • MaryFox
    MaryFox Member Posts: 121
    edited March 2014

    Thanks for the link, Rockym.  Somehow it is satisfying to know that someone has found actual evidence for what we all know,


  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    Sas, I didn't know about your surgery! We've been iced in for about 4 days and our power has been sporadic so I've been absent. I'm glad to hear your recovery is going well. And don't worry about garbled messages, we all do them from time to time. I find them refreshing!

    Rocky, thanks for the link. Just as I suspected! Now when people say, "You've changed since your BC." I can say "No shit. Read this!"

    MaryFox, I wish I was in Florida with you! It's been brutal here. We lost 4 pine trees due to ice. I'm not used to this kind of weather in the deep south so, maybe I need to get a little more "souther". 

    Everyone stay warm!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Hi ladies- thanks for that thread. Even though I did not go through chemo, between two major surgeries at the end of 2012 (one for bc and the other for a ruptured appendix), plus radiation treatment and the AIs, it is not the same for me either. 

    I ended up loosing one friend over this exact issue. She just never got it, and is terrified of cancer stuff and was very unkind, dismissive and even judgmental about my fatigue as I went through everything. Then I remembered the summer before I got diagnosed, she was very freaked out by several people who died from advanced melanoma. It is her inability to accept what was happening to me. I refused to let her make it about her. She has finally stopped staying in touch, and I realized am relieved. 

    Like everything else in life, people seem to get it or they don't. Some people who have their own belief systems about things (including cancer) will anchor to those beliefs vs. seek to understand you.

  • Rockym
    Rockym Member Posts: 1,261
    edited March 2014

    Someone on another thread said that the next time someone tells her that her fatigue is related to getting
    older, she is going to ask them if their DNA has also been methylated.  Way funny!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited March 2014

    Hi, All. The thyroid issue started last may 2013. It was picked up as a goiter-enlargement in my yearly exam. Followed up by ultrasound, then ultrasound biopsy.The bx showed follicular cells, but not in an abnormal state. It was a concern though. Last US was Dec. Both ENT & Endocrinologist wanted another bx this Jan.

    I have been on thyroid meds since 07. The Tsh done 2-3 times a year. Endoc doc kept the TSH tight.

    Jan., I said we had all jumped om the cancer train concern and that no basic bloodwork was done. A T3 Free T4 an Autoantibodies and Thyroglobulin (Tg)was done. Tg was abnormal,  Antibodies were normal. This combo can be associated with cancer. Both docs jumped right away on removal. I went along when I saw how fast each turned around.  The Tg is used as the tumor marker post known thyroid cancer post op.

    So far the dx indicates a rare form of Hashimoto's.. There are four subtypes of hashi's. The pathologist sent it out for a second opinion. I thought based on the way it was written, he was doing it for my benefit. The ENT doc pointed the phrase out---To him it indicated the pathologist wanted a 2nd opinion. So until the 2nd opinion is in I'm still in limbo. BUT oh so happy the buggers out. Either way it was sick.

    I started Wellbutrin 2 weeks before sx. b/c i was wacko worried. Noticed pretty quick I was a bit weird. Feeling very angry and wanting to yell at folks. Very unlike me. Stopped it Sun the 2nd. Each day my head feels better. Today I'm very close to normal. Not sure I've ever have known normal LOL. I do know the seething has stopped.

    I found out the same week I started Wellbutrin that my drug metabolism for 3A4 &3A5 are abnormal. Wellbutrin is metabolized through 3A4.What that means is I need a lower dose than the standard dosing and I metabolize it slower. I did start at a lower dose. I have always done that with drugs b/c I knew I didn't handle drugs the  same as other. Know ing the genetics confirmed it.

    So, having a malfunctioning thyroid and two malfunctioning drug pathways. Bummer

    To all ro, rocky, jazzy wren :). Your words did help fill in holes in my understanding. That's why I love BCO and the friends we find here. We take care of each other. We never know what one phrase becomes the AH-HAH moment for someone, that all our research and talk with our docs didn't answer. :) HUGS sheila

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    This will piss anybody off. IDK whose it is, seen in front of Saks, Naples Fl yesterday

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    oops forgot the pic! It's a Bentley. 

    image

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    When I was a travel agent, our office went to New York over a long weekend. One batch left Friday and came back Sunday; the second batch left Saturday and came back Monday. There were so many of us that we hired a limo from the airport to the hotel. It was fun watching people trying to peer into the window to see what kind of celebrities we were.

  • chabba
    chabba Member Posts: 5,065
    edited March 2014

    When DH retired some of his co-workers hired a limo and rented tux's, including one for him.  They drove around town stopping for a drink at the crummiest taverns and bars.  Cars slowed down ro stare aas they drove by and many stoped to take pictures.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Spookie- pepto bismol pink limo?

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    Probably belongs to that Komen person. It's the right color. What a WASTE of money

    Think of what that money spent on that car could do. Homeless and hungry people and pets just to start. Help ca patients pay for treatment, or other needs. FIND THE CURE!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Spookie- agreed. Or a fund for women who need breast cancer treatment that is not covered by insurance. 

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    Oh, now I'm REALLY CHEEZED!!!!!!!

    I just found out there was a ca walk in Ft Meyers today. A sister from another forum posted that pic there. I did a screen shot and put it here. She said she would have done the walk, but she was doing a juried art show in the area. She's not from Fl. 

    I'm not real sorry to say I went off on her on SM. 

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    Lets see. A Bentley costs 3-400k? IDK. Then to have it stretched, how much?

    Wow 

    Mind boggling 

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Spookie- I can understand your frustration. I have a very hard time understanding others priorities in the world sometimes. Going through bc has really made so much clearly about others and their priorities. Sometimes I just have to turn off the world because I just don't view things the same way as many do. 

    First day of DLS today. Enjoy the evening light!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    Spookie, Kris and I will be going to the dog park after dinner now. When it's hot here, the park is in shade and is cooler for them. We stay till dark, or the Mosquitos try to take us away. It's the only upside to DST. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    OK, the pink limo did piss me off. But just about anything that seems to try to make BC pretty pisses me off. Spend that money on women who can't afford their treatments. Never keyed a car, but would key the hell out of that one! Would probably write " Your shitty pink car didn't help fund research! It just made you feel important. Ego much?"

    It's interesting, to say the least, which people turn out to be real friends when you're dx'ed. Most of my so called friends, co-workers and even the people at my church headed for the hills after they found out. Like I was contagious! So I dumped them and found new friends who are in the same boat as me. Didn't need the phony lip service or fake empathy. Much less the stupid things they would say when you could tell they were thinking "Thank God it's you and not me."

    And I am more grateful than I can say for BCO and the people on this thread. You've given me a place to come to where I can cry, rave, bitch, laugh, be comforted and be informed. Without you, I don't know where I'd be and I love you all! It's not a club we wanted to be in but, DAMN if we don't have the best members! 

    Chabba, your DH is a pip! What an awesome use for a limo! Bet the driver was scared spitless!

    Sas, glad to hear that things are settling down for you. Some of our meds just don't make sense. When my onc switched my antidepressant, I wanted to kill someone and jump in front of a bus. I quickly changed back to my old one. At least with it, I don't sit on the couch and cry all day. I think we could all write a BC how-to book.

    Keep Cheezin!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Rohanna- that is awful that someone would say to you "better you than me." Well, don't worry about them, some day they may be in the same situation with bc or some other kind of cancer. Some people seem to have more problems than others but have never seen anyone escape having some sort of health problem in their life.

    I know many like to support the bc causes, especially the Susan Komen foundation and walks. If they can provide a resource for people going through treatment and recovery, probably their best help to others. I remember a couple years ago when they did that big televised "Stand up to Cancer" telethon on TV. Have you ever heard anything about that ever again? I haven't. I wondered what that was all about at the time, seemed very high profile and televised.

    I had a friend of 20 years who was very unkind to me during my diagnosed and treatment. Then she expected me to just get back to normal very quickly after I completed treatment too. I was really surprised by her behavior, given we had gone through other difficult things together, but it clearly showed me she was scared of the whole thing. She had several work colleagues who died from advanced melanoma the summer before and was freaked out by that. So she just cannot deal with it, it is her problem. She has stopped staying in touch last Fall finally, and I am relieved. I am going back east this summer for a visit and won't be contacting her. I feel very done with the whole thing and with her. Fortunately, of the few I told, she is the only one who aced that way. Everyone else has been really good.

  • Rockym
    Rockym Member Posts: 1,261
    edited March 2014

    One of my best friends pretty much bailed on me too.  She was a stage 3er who was 10 plus years out and when she went through it, I was there for her almost every day.  I couldn't tell if she didn't want to revisit cancer with me, was afraid of her own mortality or just a straight up c--t.  I never talked with her about her behavior at the time and we are speaking again, but I can say... you really find out who your friends are and who is willing to go the mile with you.  I made a lot of new friends when she wasn't there for me.  One door closes and another one opens!

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Rockym- very surprising about your friend who had bc. We can almost understand it when those who have not gone through it question and judge, because they just don't understand. But having gone through it, she should have been there for you, especially since you were there for her time. I am glad you feel okay to talk to her, but perhaps now you just know exactly the way she is. No denying things after going through this stuff!

    I did experience that same thing though when my mother became ill and we had to take over her life for her (medical, finances, etc.) I had two friends who had to do the same for their mother, but not when I was around so who knows? They acted like it should be no big deal, when in reality, it consumed our lives for well over a year until things were more settled. I don't talk to either of those women anymore.

    I live by the Maya Angelou motto "when someone shows you who they are, believe it." Some people show up for some things, not others. Some people show up for the fun stuff. And some people only want your help. 

    I am glad you have made some new friends. Me too!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    I just don't quite know what to think about a former co worker. We weren't particularly close at work, didn't hang out outside of work. I left about a year before she did. Then I heard she had lung cancer, but nobody was 100% sure. Then I was dx'd. She had chemo, I had the works. Then we started meeting for coffee about once a month. 

    We decided to keep our ports forever. 

    That was about 4 months ago. She said she'd call. Nothing. I could call her, but that's what I've always done, just to arrange coffee. 

    I guess I should forget her, that's what's so nice about BCO, I can "think out loud"

  • Wren44
    Wren44 Member Posts: 8,585
    edited March 2014

    Spookie, I would give her a call. Lung cancer can go very fast. You don't need to meet for coffee, just say you're hoping she's doing OK. Then if she is, you can forget about her if you want.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Spookie- I agree with Wren. Maybe her cancer is back, progressed, etc. If she is okay, but just not pursuing anything right now, you can just leave it at that. Maybe just a simple call to see how things are going is in order.

    I understand what you are saying though. It is hard to always be the one asking.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2014

    thanks for the input. I'll call her, see what's up, then decide. 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2014

    It makes me sad that people who have "been there" don't show more empathy. I want to think that maybe they're just emotionally spent. I guess I can kind of understand that. But it really hurt when my church decided to ignore me. Maybe I expected too much. Anyway, I don't attend there anymore. That doesn't keep them from sending me an email once in a while asking why I don't show up anymore. Really? When I told a few of them how I felt, they acted offended. Really? They're offended? I just don't have time for people like that.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited March 2014

    Rohanna- I went through a similar thing with my church 20 plus years ago around another difficult time in my life. I had a brother who was dying. All the same things you mentioned above were the same things that happened to me. I have never returned to organized religion since, although I do believe in God and Jesus Christ. I can understand how badly the whole thing made you feel.

    I admire people of strong faith and connection to their church. I think it can be a great support system for some women.

    Maybe there is a new church out there for both of us in the future.

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