October 2013 Chemotherapy

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  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    SMRLVR,

    Thanks ladies for your response.  I did see a Lymphedema PT.  My swelling is minimal and my PT did give me the lowdown on the massage as well.  My PT & rads oncologist said the swelling can get worse during Rads. My sleeve was just delivered in the mail and says I owe $33? So does that mean my insurance is not covering the cost?

    I have  had 3 rounds of Rads & my back/underarm always feels... well annoying and uncomfortable. I actally bought a new bra but when I wore it for the day it hurt so much that I will have to buy a size up to feel comfortable & I think this is from my back swelling??? The bra does not have an underwire either so I was surprised by my discomfort level.

    Hangs in there gals

    Furfriend

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    Grams,

    congrats with being done with Chemo Whoop Whoop & Happy Dance for youThumbsUpThumbsUp

    Wow your hair is already growing in?  Mine is starting but it has been 6 weeks since my chemo & mini eyelashes are starting to grow, yea!!

    All the best on your surgery and Vintage also. What all are you having done?

    Funny thing is I have not considered reconstuction on my breast cause all I can do is try to get through the chemo & rads.  My breast looks horrible to me like it was in a war!!! LOL.  So hard for me to fit into bras now.  Oh well, one thing at a time.

    On a bright note the weather was beautiful yesterday & is today so snow melt is in overdrive.  Just in time for more snow Tuesday, ye gads.

    have a great day BCO ladies

    Fur

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    MsJean,

    congrats on being done with Chemo.Happy 

     I do have neuropathy in my fingers/toes did DD chemo plan.  My chemo treat is post 6weeks.  I just started RADS got a late start. 2 weeks behind schedule. 

    I was not offered a clinical trial but am on Tamoxefin now. My hot flashes are in high gearWinking. Doing the clinical trial is such a personal choice. Certainly talk with you MO in detail & is there a clinical trial nurse you could chat with also at your cancer center?

    Fur

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    Hi Roar,

    how are you feeling?  I had blood work 2 weeks ago and am going to check my levels as well. My counts are slightly low- WBC is still low as well. I had an issue with pottasium levels dropping 2x. 

    I still am sluggish but feel better than I did 2-3 weeks ago.  Let us know what is going on with your counts/ALP.

    thanks and have a good day,

    Furfriend

  • cascam12
    cascam12 Member Posts: 14
    edited February 2014

    Pam. Wondering if you are still on here and how everything has been for you. We have similar a similar diagnosis except that I want a mastectomy after this lumpectpmy

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    Hi FurFriend

     I will be having a BMX, NO recon. March 13.

    My PS wouldn't do an expander on the cancer side because I will be having radiation. He suggested the dorsi flap but it was out of the blue for me & I wasn't ready to make that decision. I may want to have the procedure at a later time, though I know it will be more involved & more surgeries.....at this time I am fine with knowing I will be a flat sister. I am naturally flat chested so I really won't be losing much. 

    Hope you get past that discomfort with the Rads.  

    VintageGal

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2014

    Congrats to those done with chemo and moving on to rads or surgery - or both.

    gram - I did recon at 55, no worries - you will do fine.  What kind of recon are you considering?

    furfriend - a sleeve/gauntlet set runs about $125, so maybe this is the percentage not covered by your insurance?

    msjean - what is the drug in the clinical trial you are being offered?

  • ROAREUS
    ROAREUS Member Posts: 51
    edited February 2014

    Furfriend-

    I feel pretty good.  I called my MO's office and they said the elevated ALP level is from chemo.  So that's that. My other blood work was ok.

    Hope everyone is doing well.

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Cascam - yes, I am still on here. I'm doing pretty well. Still have some annoying side effects, I have had my port out and tomorrow I will have my radiation simulation.  I'm hoping not to start rads for a couple of weeks, but we'll see what my RO says tomorrow. Just trying to avoid a few more days of travelling in the winter.  I know I will still have winter weather potential during most of my rads but trying to lessen it a bit. How are you doing?  When will your surgery be?

  • Orogache
    Orogache Member Posts: 4
    edited February 2014

    Hi Ladies,
    I am a graduate student in California completing my dissertation for my doctorate degree. I am studying the impact of chemotherapy induced hair loss on quality of life, body image, coping and self-esteem in women of different cultures. If you are a women who has at any point lost hair as a result of chemo. please consider taking my study. If you are interested in participating in my 10-15 minute anonymous online survey, your input would be much appreciated and would help fill in gaps in cancer literature. If interested, please take a few moments to go to the following website and answer a few multiple choice questions about your experience. Again, thank you!

    www.tinyurl/com/laguzvq (please replace the first "/" with a ".") thank you

    Thank you,

    Olga

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited February 2014

    Special K- I am considering a GAP flap, I have had 3 c-sections and an appendectomy so not enough tissue for DIEP. So the PS recommended taking from my hips/butt(lol). I live in New Orleans so I'm going to the NOLA docs, Dr Trahan, they do about 800 cases a year. I feel pretty confident with them just worried about length of surgery time. I will have a few months to think about it, need to finish my rads first. It just makes me nervous.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2014

    gram - I have a friend going through neo chemo now, she is from NOLA and has a family house there to recuperate in, and will go see Dr. D for a DIEP in the fall.  I know the member bdavis had a similar recon at NOLA, you might PM her, I think she did GAP also.  I know the long surgery time is worrisome - I am concerned for my friend as well.

  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014

    The research nurse already called to discuss it.  Got the feeling I'm one of the first guinea pigs. Trial was only approved July 24, 2013.

    Phase 3, placebo controlled evaluating use of adjuvant endocrine therapy, one year of Everolimus in high risk, hormone receptor positive, her2 negative.

  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    I had my radiation mapping appointment yesterday and will start rads on 3/10. The tattoos hurt a bit but then it was over. I was glad I've been doing some range of motion exercises, I think it would have been more difficult for me without them to keep my arm above my head. I had issues with two toenails during the end of chemo but now, 6 weeks PFC, I am having nail lifting issues on my fingernails. Augh!!  At least the fuzz keeps growing on my head!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2014

    msjean - it is interesting to me that your doc is offering this study to you - my understanding of this study is that it is for women who recurred while taking an aromatase inhibitor.  Has that been mentioned?  Also, the trial was recently approved, but the drug has already been studied - that is why it is a phase III study - it has already been looked at in phases I and II.  Here is some additional info:

    http://www.medicalnewstoday.com/articles/248144.php



  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    Good Pam, another milestone!

    I have some nasty looking nails (3 wks pfc) & really wonder about my thumb nail lifting or worse.

    My echo came back fine so I was able to have my first dose dense Herceptin today. My next one, in 3 weeks, will be 5 days after surgery, hoping I am feeling ok for it. MO said I could easily call & switch it to a couple days later.

    I was wondering how difficult it is keeping the arm up for the rads after BMX. I still have arm some issue 6 months post lymph node removal.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited February 2014

    My nails are looking pretty nasty too! MO says they will grow out,lol, I sure hope so. I had a follow up appt today with MO since finishing my chemo one week ago She thinks everything is going great!. I will see her monthly for a while then every 3 months. She has scheduled me for a follow up PET scan for next week, before my LMX which is on March 14. I wish all these tests and crap were over. Come on summer!!

    Pam- let us know how rads go, I will probably start in April! 

  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014

    Thanks Special K I found more information on the SWOP site.  The clinical trial is not necessarily for reoccurring breast cancer as much as it is for high risk cases, which I am not.  Actually, it specifically says on the site Oncotype > 25. So, I've decided not to take part.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited March 2014

    Hi girls, I have a question. I finished Taxol on 2/21, so I am done with chemo! WooHoo! I did have some swelling in my ankles but not anymore than I would sometime have after being on my feet all day. Yesterday my left ankle was really swollen and I was retaining fluid in my lower leg. MO says it's the Taxol and should get better over time. I never had that while on the Taxol,WTH!!! Anyone retain fluid or have swollen ankles? 

  • 70charger
    70charger Member Posts: 963
    edited March 2014

    yup  I had swollen legs & ankles for about 8 weeks after my chemo.  Some other ladies in my chemo group had it a lot worse than me & were on water pills.  They found the pills did very little to help. I was on taxotere/cytoxin.  I simply cut out salt, laid around with feet elevated.  Ate lots of carrots & cucumber, they are natural diuretics.  My NP said it is normal & to just keep doing what I was doing.  But you should have one of your team look at it for sure.

  • SyrMom
    SyrMom Member Posts: 862
    edited March 2014

    gramof2boys ... yes, I had my first experience with edema in calfs and ankles about 2 weeks ago.  Came out of the blue, literally, have never had edema in 25 yr since pregnancy & it was excessive.  I was given a diuretic to use when needed.  I've been elevating my legs and it went away.  However, I know with these crazy chemo reactions, anytime, anyplace, it can/will happen again.  Very weird.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2014

    I had extensive and sudden swelling halfway through Taxotere.  I was put on Triamterene, a diuretic that does not leach potassium, but not before lymphedema was triggered in my ALND arm.  If you start to have issues with swelling talk to your MO asap.

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    yes to swollen ankles. Still now that I am three months out of TC chemo. Some days it looks ok and some others ankles are swollen. I out a pillow under my ankles and it helps.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited March 2014

    slight ankle edema here too 1 month post Taxol (but not while I was on it)

  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited March 2014

    I finished taxol on Feb 7. I never had problems with my nails during treatment but am an avid nailbiter and before diagnosis, I had my nails done (tips, gel etc) regularly. When is ir safe dor me to get some nail tips on without worrying about them lifting, hurting etc?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited March 2014

    relocated - do you have any ridges, discolored nails or peeling?  If not, I think you can go anytime.  If you have had tips and gel or acrylic previously you know what it does to your nails underneath - if you think yours are healthy enough, go for it!  I had to wait for my wedding ring fingernail to grow back, which took about six months, but if not for that I would have gone probably 2-3 months PFC.

  • Headeast
    Headeast Member Posts: 619
    edited March 2014

    Special,mI have ridges and my thumbs are dark, they look bruised, but now i can see they are growing healthy. I haven't lost any nail yet!

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited March 2014

    Well, I had my surgery on March 14, LMX with ALND, my breast surgeon called today and path report said no evidence of cancer, so I had complete response. Yeah! I'm so relieved. Now to heal, then meet again with RO to set up a plan, then on to reconstruction. Just wanted to share my news.

  • Pam358
    Pam358 Member Posts: 294
    edited March 2014

    Gram - Congratulations on the good news!

  • naiviv
    naiviv Member Posts: 535
    edited March 2014

    Gram....Great News !!!!!

    Vivian

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