September 2013 Chemo Group

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  • knightzoo
    knightzoo Member Posts: 171
    edited February 2014

    Great news Betterday!  My RO also say radiation for 5cm or larger or node involvement.  I had 2 positive nodes by PET scan at the start (2cm or larger each, so probably more) so I'm in line for rads. 

    Hockeymommy, best wishes tomorrow.  I think clickchick is also up for surgery.  You girls got this, and we are with you!

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    7 down, 23 to go!  They fixed the table.  :-)

    Icing My Radiated Ta-Ta's...  (former Ta-Ta's?)

    Art,
    So glad you were able to get the surgery moved up.  Your wife is fortunate to have such a strong and capable advocate.  I hope she de-lurks soon too.  :-)

    Betterday,
    Amused by your musings about entertaining yourself. 

    Simplelife,
    Did you get your drains out?  That would be really quick, if you did.  One of mine was in for almost 4 weeks.

    Kbee,
    Glad you had little hair to acquire new friends at the hoarders.  Uggh.


  • knightzoo
    knightzoo Member Posts: 171
    edited February 2014

    stupid question - what does the I in IMRT stand for?

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    Intensity, Knightzoo.

    Intensity Modulated Radiation Treatment

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    With IMRT, they can shape the radiation treatment to hit harder where it needs to hit and low-dose or no-dose where it needs to avoid (heart and lungs, in my case).

    Here is a really good explanation link...

    http://www.cancerpartnersuk.org/radiotherapy/intensity-modulated-radiotherapy

  • knightzoo
    knightzoo Member Posts: 171
    edited February 2014

    gotcha. My best friend has worked in radiation therapy for over 20 years. She would be shaking her head at me! She was a radiation therapist, then a dosemetrist (they do the computer programming for the therapy) and now she works for a radiation software company Raysearch. 

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    I am glad they chose to do the IMRT because it helps me be confident that they are avoiding the heart and lungs.  Apparently my left lung stuck up too high for them to do the conventional plan with confidence.

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    KBee,

    Strongly suggest seeing a lymphedema physical therapist.  Mine is fantastic!  While my left arm isn't swollen, it has had some 'cording' issues and limited my range of motion with pain.  Over the past three weeks, she has been able to fix that and finally was able to snap (literally) three or four of the cords today.  What a relief!  Feel 1000% better.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    KJ - I'm so jealous that she snapped your cords.  

    We spent the evening watching the Harlem Globetrotters.  So much fun.  My son's friend's mom won VIP tickets where the boys got to meet one of the players, they each got an autographed shirt and baskeball and they got to sit on the bench with the team during the game.  Awesome!!!  Hubby and Kelsie went, too, but their seats weren't with ours.  Such a fun, NON-CANCER evening!  

    Back to the real world tomorrow.... 3 hour trip to Dallas to get another fill (hopefully) and see the lymphadema OT.  

    Hockeymommy - Keeping you in my thoughts tomorrow for your surgery.  {{hugs}}

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Great news, Better Day. I'm so glad your results were better than you expected!

    Thanks, KnightZoo. I'm scheduled for Friday and it is fast approaching, whether I like it or not.

    Good luck tomorrow, hockeymommy. I had a complete hysterectomy several years ago and the recuperation was quite easy. Of course, at the time, I was having heavy periods every two weeks for several months (tmi, I'm sure), so I was ready to rip the equipment out myself, if I had to ;)

  • BabyRuth
    BabyRuth Member Posts: 264
    edited February 2014

    Art-so glad you were able to get Nat's surgery moved up.  Way to fight for your wife!  She is so lucky to have you by her side!

    LHL- sounds like a fun evening!  It is always great to get away from all the cancer issues and try to have a somewhat normal life.   Good luck with your fills.  I can't remember how much you were planning on filling to.  

    KJ- who broke the table?  They had a fire drill(false alarm) when I was waiting for a rads appointment.  All of us had to go outside in our lovely gowns. The people in the middle of their rads finished up before they came out.   

    Good luck on all the upcoming surgeries and those going through rads.  It is hard to keep up with everyone but I am always thinking of you all.  

    We are supposed to get in the 70's here today and I finally feel like spring is around the corner.  I love spring because I always feel like it is a new beginning and a fresh start.  

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    I am a little bummer. Saw the PS surgeon yesterday & he says he can't/won't do a TE on the cancer side because of future rads. My surgeon seemed to think it was a possibility so I was happy but now...I am disappointed. Yet not surprised.

    So I went in there yesterday (in another snow storm) with one plan in my head and came out with it all changed. Which has been how this entire journey has gone. Always a glitch, always some news that is a bit unnerving or discouraging. Another bump in the road!

    Looks like BMX with TE in *good* side. Then after healing & rads etc he will do a Dorsi Flap. And exchange with gummie. So I will be lopsided for about 3 months. :(  Still no surgery date, but likely March15-20)

    Please any one of you gals who's had this Flap procedure, or are going to have it, tell me more!? Thanks.

  • simplelife4real
    simplelife4real Member Posts: 563
    edited February 2014

    Good Thursday morning!

    I still have 3 drains, 8 days post op, but 2 of them are ready to come out.  I called the PS office first thing this morning to see when I can get them yanked.  Still waiting to hear from them. [they just called while I was writing this...I'm getting two drains out this morning!!]

    My BS called yesterday afternoon with my path results.  I still had a small amount of cancer in two lymph nodes.  The largest one was 2mm so it is very little, but it was hard for me to hear this news since I am triple negative.  The odd thing is that my original tumor (2.3 cm) was completely wiped out by chemo.  I don't understand how some remained in the lymph nodes when the chemo was able to kill off the primary tumor.  

    Betterday....that is awesome news on your path...

    Gotta run!!

  • PeacockGirl
    PeacockGirl Member Posts: 162
    edited February 2014

    today is final full breast rad tomorrow begins the five boosts. I'm so glad because my armpit finally decided to get red and rashy this week, until now my skin has been flawless. Thank you Josgirl for saying boosts are easier...man they really need to get off the armpit spot, it's right where my node scar is and where my arm rubs back and forth. Rads have been nothing compared to chemo. Just getting annoyed at the 50 mile drive every day. In other news hair growing like crazy and enough I colored it last Friday with a light brown temporary 12 shampoo out kinda product ..looks much better than pure white. Also have enough eyelashes to wear mascara again, geeepus I sound so vain with all you girls still recovering from surgery. Hang in there tough September sisters. 

  • mercedes60
    mercedes60 Member Posts: 171
    edited February 2014

    I,M DONE WITH CHEMO!!!!!!! first half of my journey done, onto the next  surgery and rads do not have dates yet or what type of surgery, but you can bet I will have a lot of questions for you gals that havegone thru it or are just recovering and I hope all is going well with you,my best wishes. here are some pics from,m yesterday. 

    image

    image

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    YAY!!! Congrats Mercedes! You look great!

     I kinda feel let down, my last was 2 weeks ago & it was just another infusion since I will still be there through Nov for Herceptin.

     I don't have a surgery date yet either but they say in about a month. So we may be surgery sisters! And rad sisters!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Congrats to you, Mercedes! It's such a great feeling to be done with chemo! Onward.

  • Art123
    Art123 Member Posts: 115
    edited February 2014

    great news better day. Just out of curiosity, what was your MRI? Nat's post chemo MRI showed 4.6cm even though no doctors can feel a lump.

  • warrior70
    warrior70 Member Posts: 144
    edited February 2014

    Hi all, checking in after being done with chemo for 3 weeks!  I had my first rads appointment today and it went fine.  I'm doing 25, so 24 out of 25 to go.  

    Some of my hair grew back during Taxol, so I've colored it red and have been topless the last 3 days.  Loving the freedom it gives me!  I'll see if I can get a pic up later.

    SO delighted to hear about so many of you being done with surgery/rads.  Isn't it exciting being near the end of active treatment?  Scary, but exciting too.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    OH MY!!!!!!!!!!! Hubby just admitted to me he would rather me have a BMX with NO recon.  I explained the Flap procedure to him last night after I saw the PS he knew I was confused & really unsure since I thought I was getting two expanders. And the PS telling me all this surprised & disappointed me. Then he tells me today he thinks it's all too much. He doesn't want me to go through it all. But of course it is up to me....sigh...

  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    Vintage,
    Sorry for all the ups and downs.  Sounds frustrating.  Glad you have such a supportive husband.  He just wants you happy and well.  :-) 

    SimpleLife,
    You got your drains out in record time.  I'm JEALOUS!!

    PeacockGirl,

    What is the difference between a RAD and a Boost?

    Mercedes,
    Congratulations!!  Yay!!


  • kjsimpson
    kjsimpson Member Posts: 445
    edited February 2014

    8 down, 22 to go.

    Irritating Malignancies Receiving Torture.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    VintageGal - Why won't he do a TE with rads? I have TEs and I'll have rads. Maybe it's just doctor preference? None of my doctors (surgeon, PS, MO or RO) seemed to think it was a problem. I'm sorry your plan got upheaved. {{hugs}} That's sweet (and a little surprising?) that your hubby doesn't want you to have to go through anything more. Ultimately I would say the recon decision is up to you, though, because it's your body and you need to be as comfortable as you can with it.

    Simplelife - That's awesome that your tumor was GONE! What my surgeon told me (about my NINE positive nodes...ack!) is that the nodes did their job. Any cancer cells or tumor fragments that tried to scoot to another part of my body via the lymph system were "caught" by the nodes. That sounds better to me than thinking I had cancer GROWING in all of those nodes... so I'm going with it! Yay for getting drains out!

    Peacockgirl - WOW you have enough hair to color? I'm so jealous. Mine is still only about 1/4-1/2" long, not enough to comb let alone color. LOL I have been wearing mascara, so that's nice. I'm sorry the rads finally caught up to your skin. Ouch. I hope the boosts are easier for you.

    Mercedes - You look so happy, and rightfully so! Congratulations on your chemo milestone!  

    KJ - 8 down already..... seems to be going fast (to me...LOL).  How's your skin holding up?  Notice any difference?

    Had our weekly trip to Dallas today.  Saw my PS (who was finally very pleased with my incisions - all healed up) and got a fill.  My previous two fills were 50 each, this one was 75.  Wow can I tell a difference.  All of the sudden I have FOOBS!  LOL    My TEs hold 500 but PS thinks we may stop at 400 because he doesn't want to "make me look ridiculous".  I'm at 275 right now.

    Saw the lymphedema specialist again and she worked on my cording.  It's better, but still there.  I can't see her next week because my PS appt is on Wed and she's not in the clinic then, so I'll make an appt to see her in two weeks if I'm still not better.  She told me to keep stretching and to show hubby how to do some of the massage she does.  

    I have one kid with a sore throat and a hurt hand from softball and another that just threw up in the bathtub.  Ugh.  It never ends!!!!!!!!!!!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2014

    lighthouse - one thing to keep in mind is that your implants will not look as large as your expanders.  By its nature, the expander has a hard back that allows the gradually added saline to push forward to stretch both the pectoral muscle and skin to eventually accommodate the implant.  When you have exchange surgery the soft implant will not project forward as much as the expander since it is soft all over.  I am fairly petite - 5'2" and usually about 120-125 lbs.  I was a size 4 top prior to BMX.  My TE were 550cc, but I was overfilled slightly.  I have a 600cc implant on the left (my problem side, responsible for all that surgery you see in my sig line) and 650cc on the right.  My natural breasts were a generous B, small C, and now visually I look like a full C cup, but in an underwire bra I wear a 34DD, in order for the wire to get all the way around the implant.  I still fit into most of my previous size 4 tops.  The reason I mention this is to warn you that you need to consider that your implants will look smaller than your expanders do prior to exchange.  There is a thread by whippetmom, Breast Implants 101, and if you supply her the info requested in the header, she will offer some insights about sizing.  She was spot on with her recommendation to me based on the eventual size I wanted to be.

  • lighthouselady
    lighthouselady Member Posts: 752
    edited February 2014

    Thanks for the info SpecialK.  PS did mention that he'll go bigger then I want to be so he has "room to work".  Does what you said also apply to flap procedures?  My PS is not a fan of implants, so he's planning to use my thighs and/or stomach in order to use my own tissue.  

  • SpecialK
    SpecialK Member Posts: 16,486
    edited February 2014

    lighthouse - I have far less experience with flap (autologous) procedure outcomes, only that what I have seen personally on others (yes, all of BC ladies flash each other when we get together, lol!) is that there is the possibility of slightly more ptosis, or droop, with the finished product since it is not encased in a specific rounded or anatomical shape like an implant is.  The upside it that this is often a more natural look - implants can look a bit "fake" and mine were definitely improved by fat grafting.  Using your own tissue functions the same way as an implant though in terms of not having the hard backing of the expander to achieve projection.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    Thank you LightHouseLady!

    I am up here in the middle of the night since my brain wouldn't let me sleep! Lots to think about. 

    I appreciate your input.

  • nnrbf101
    nnrbf101 Member Posts: 15
    edited February 2014

    Hi ladies, I'll try to briefly pass on a bit of my experience. I was dx in 2005, had bilat mx, TEs, followed by implants.  Unfortunately had a recurrence in 2012 and had to have radiation.  What I learned through that experience is that radiation often causes capsular contracture when you have implants(body trying to fight foreign object).  That is currently where I am in my process and let me tell you it can become painful.  My guess is rads over TE isn't concerning for a physician if he plans for flaps to be done. Any contracture would be removed with the TE removal. Therefore, it doesn't surprise me at all that a doctor would suggest flaps rather than implants for someone planning on having rads.  

  • KBeee
    KBeee Member Posts: 5,109
    edited February 2014

    Whew; just got off a busy 24 hour work shift (we do get to sleep a bit there) and now headed out for a swim meet and a gymnastics meet.  Crazy busy week!

    My friend here had the DIEP flap procedure done in December.  It went well and the results have been good, but it was a long surgery with a longer recovery time than BMX  or exchange surgery.  She is very happy with the results though.  My PS overfilled too so that he had room to work.

    Hockeymom, I hope the surgery went well and that you are recovering nicely.  I hope everyone else who has had surgeries lately is feeling better too.  I can't "back page" on the computer I am on, so it's hard to respond individually!

    It's Friday, so that means it's picture day.  I am glad that I've been taking selfies every week, because when my hair seems like it's not growing, I can scroll back to see that it is!  Have a great weekend all!

  • BetterDay
    BetterDay Member Posts: 116
    edited February 2014

    Art, my post chemo MRI showed a 2.3 cm mass and I could definitely feel it. My original MRI measured 3.6. Also, I've had three false positives from MRIs for other suspicious areas. Not a big fan of MRIs. I hope that Nat's is similarly deceiving.  Very happy to read that you got her an earlier surgery date.  

    Simplelife, congrats on getting drains out and for destroying that tumor. Clickchick, good luck today. LHL, hope the kids are on the mend soon.  VintageGal, good luck on your decision.  Through this whole process I was surprised at how many decisions are left to us. I often wished someone would just tell me what to do.  I know you'll make the right one for you, and good on your hubby for being so supportive. Kbeee, I didn't see your new hair pic. Did you post it already?  KJ, I love your IMRT posts. You have a great sense of humor, which I'm sure has served you well throughout this process. Knightzoo, how is your recovery going? Mercedes, congrats on finishing chemo!

    As for me, I am officially done with treatment, for better or worse.  My surgeon called last night after they discussed my case in conference. It was unanimous. No rads (which I knew from my SLNB results) and no more chemo.  It is going to take some time to wrap my head around that. For now, I will just focus on recovering from surgery. 

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