dealing w people

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cathycteach
cathycteach Member Posts: 14
edited June 2014 in Just Diagnosed

Another day another post.   I see my doc for more details of my report. I just know 4 masses...2 were biopsies stage 2 idc.   Trying not to panic...thinking about several masses make lumpectomy unlikely from my reading.   Thinking about radiation and chemo.   I know it is possible to make it through but it will be difficult.   The boyfriend is doing ok...let's hope he does not know what a rough ride he is in for.  My ex husband new wife has been very supportive.   Kinda weird though bc he left me for her.  I actually like her and some what relieved I am no longer married to him.  But a good friend of mine is minimizing my treatment.   She said it wont be bad and you will be fine.   Really. ...how does she know what cancer treatment is like...she doesn't.  So I am mad at her and nnervous about tom

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  • geekyknitter
    geekyknitter Member Posts: 187
    edited February 2014

    Hugs!

    People are "weird" about cancer.  I learned this pretty quickly growing up as a sibling of someone with cancer and with many relatives with cancer.  Perfectly normal, kind, sane people often act in completely bizarre ways when you or someone you are close to get a cancer diagnosis.  You really can't predict who will step up and become your biggest support (and often it's someone you never would have thought you'd be close to!) and who simply won't be able to handle it.

    The way I've come to handle it is by maybe being a little bit selfish in some ways.  When it happens, I focus my energy on the people who are there and can be there and I prioritize spending time with them because I need that support.  Those who simply aren't comfortable or can't really grasp what I'm going through...I let them drift off as they need to or simply prioritize time with them lower for now.  I try to understand that their reaction to what's going on usually is a lot more about where they are.  Maybe the diagnosis has sparked fear in them.  Maybe they just don't know how to respond and are doing their best.  There are all kinds of reasons people say or do stupid or hurtful things when cancer is involved and almost all of them have to do with how that person handles these things and nothing at all to do with the patient or their family or how that person feels about them.

    After things have calmed down, some of those relationships have come back and some haven't.  Sometimes they evolve into a different kind of friendship and the friendships that I gained during the "crisis" time have grown in other directions.  I even have some friends who seem to only want to be there when there is a crisis.  I find if I'm just open to letting those things change as they will, it's a lot easier.

    Sorry for droning on!  You also might want to look into local support groups where you could make new friends who would better understand exactly what you're going through.  Your bf may also benefit from a group where he could talk with other family and partners of people since he has a lot to adjust to and may also feel like his current friends might not understand.

    Again, big hugs to you!

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Cathy, 

    When I was first diagnosed I had not a clue how much of an issue this would be. Being naive, sometimes is a good thing. 

    The phone would not stop ringing, people bringing food over, after my surgery. Hubby did not like the intrusion, having to visit. People trying to be nice, but sometimes making our day more stressful.

    I have tried to explain to some,  when they say its all about attitude, you make the cancer patient feel worse. If I had a good attitude this would not have happen....

    I even have several friends that had bc, total response is no big deal...posting here, has been my saving grace. No ones knows what chemo will be like until they are getting those chemicals. Each treatment can differ also. Basically, for most of us it sucks. Someone that has not gone there should not comment on what it will be like. Hope your surgery date gets scheduled soon. Getting started helps mentally. Keep us posted...

  • cathycteach
    cathycteach Member Posts: 14
    edited February 2014

    Does surgery usually happen first?  I am hoping my breast can be spared...but not holding out hopes. Do I just tell the friend who made those remarks nothing or do I leave it alone.  I pretty much just want to be left alone to be honest....I don't want to.talk to people. ..go out or do much of anything.   Makes it hard on my kids. ...

  • encyclias
    encyclias Member Posts: 302
    edited February 2014

    Cathy, I had chemo first (and saved my breast although that wasn't the main reason).  My oncologist said it was best for me to proceed this way since my cancer was very aggressive and, for reasons he gave, I agreed.

    See both a surgeon and an oncologist before committing to a specific protocol.  They both have much to offer pro and con.

    Big hug,

    Carol

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    Cathy,

    I am not as knowledgeable as a lot of the women on these boards. So, this is not fact. It seems like the majority of us gets surgery first. Some women with very large tumors, or inflammator cancer will have chemo first. I have read that some will have chemo, surgery & then more chemo.

    My surgeon ( who is fantastic ) really pushes for the lumpectomy, also my personal Dr. But it was still my choice. Mascetomy is a good choice for some, the reconstruction part sounds barbaric to me, but that's me. Lumpectomy was pretty easy, the incision where they take the nodes out is the worst part. You might not have to do that..also the drains are a hassle but they come out in 5 days, sometimes 10. 

    Being left alone has become my mantra. I am, or was a very active person. When the eyebrows & eyelashes fell out, it took me over the edge. Seriously, I am doing ok. Just finished radiation. It's ok to be selfish right now. You have to put yourself first, the stress & anxiety is really hard.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited February 2014

    cathy, Depending on what your pathology report says, you may or may not have chemo first. I empathize with you. Although our friends usually mean well, they do not have any idea what you will be going through. Upon my DX, one friend told me "all will be well!" We are on such an emotional roller coaster right now, it's hard not to take things the wrong way. But, we can chose if, when and how to tell our friends.  Hang in there. This is about YOU and you can do this. You will find this forum full of great people that will support you! Best of luck with your treatments.

  • ziggypop
    ziggypop Member Posts: 1,071
    edited February 2014

    Hi Cathy, 

    Surgery usually does happen first, but sometimes not. I had a very large tumor and they knew that multiple nodes were positive so knew that I would need chemo - that being the case they gave me chemo first in hopes that it would shrink the tumor enough to allow for a lumpectomy, it did shrink it but not enough. I believe also that if your cancer is HER2+ they do some chemo first and some after. Some people don't have chemo at all. 

    The responses that you get from people can be all over the place and sometimes very unexpected. I actually know many women who become very good friends with their ex's new wife (even if they became involved during the marriage) and it often happens during a time of trauma. Maybe the new wives feel like they 'owe' support to the previous wife - don't know but it happens. Anyway - it's good that she's being supportive. As to your friend - sometimes people want to help & they think that being 'positive' and minimizing it is the best way to do that. There's a whole thread here about stupid things that people say to you when you have cancer. When I called my brother to tell him that I had BC the first thing he said was: "Well, I have things too, you know, " - he has never been too socially adept, he has actually been very sweet through the whole thing. Help will come from strange places & sometime you will just be dumbfounded at the things people say.

    Try to have somebody go with you to your appointment, there will be a lot of information and it can be really hard to take note, and think and respond all at once. Also having somebody else there tends to slow the appointment down a little & help make sure that more of your questions get answered. ((hugs))

  • geekyknitter
    geekyknitter Member Posts: 187
    edited February 2014

    For me, it was easiest to let remarks like that go.  Like others have mentioned, it could be that she had really good intentions and was trying to say the right thing or it could be that she needs to be in denial that something like this can happen to someone this close to her because, by extension, that means it can happen to her as well.  Either way, unless you really know how she'll take it, bringing it up is likely to cause you more stress that you don't need.

    I also find I prefer sometimes to kind of retreat into myself when I'm dealing with something difficult and I try to balance that with not isolating myself.  I think sometimes it's healthy to pull back a little and it definitely helps to avoid those awkward conversations.  I have found that trying to find ways to be around people where there is some kind of organized activity going on helps.  That way, the focus is on what we are DOING and I feel less alone or self-conscious.  I also knit and bringing a project with me can be a good distraction.  Above all, though, I find if I can make myself get outdoors and spend some time even just walking by myself, I feel so much better than if I give in to my instinct to hole up in my house.

    I'm sure you'll find what works best for you.  As far as the kids go, I think it is important that they not feel too isolated.  I remember being the "kid from the cancer family" and mostly, I just wanted to feel normal and doing "normal" things that I usually did helped with that.  If you don't feel up to it, you might consider seeing if someone else can take them to the things they would normally go to.  I also felt better when I knew what was going on, but that can depend a lot on the age of the kids.  There are groups now for kids with family members with cancer that might help them also find friends that will understand what they are going through.

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