October 2013 Chemotherapy

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  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    Schholcounselor, so sorry to hear about your infection.  I hope it clears up on its own without the hospital.  Sorry to hear about your uncle...things can only get better, right?

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  • uds17
    uds17 Member Posts: 183
    edited February 2014

    schoolcounselor- are you feeling any better?? I'm so sorry you've had to deal with so many losses recently. (((hugs)))

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited February 2014

    Hi ladies,

    I just got the call to go to the hospital to be admitted for the infection. Sigh......

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  • kcat2013
    kcat2013 Member Posts: 391
    edited February 2014

    school counselor  sorry about your infection and having to be admitted to the hospital! 

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  • Headeast
    Headeast Member Posts: 619
    edited February 2014

    SchoolCouselor, wish you a speedy recovery and to get back home really soon!

    We are thinking of you!

    Hugs, Headeast

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  • naiviv
    naiviv Member Posts: 535
    edited February 2014

    School,

    I wish you the best. Try and rest and heal quickly.

    Vivian

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  • uds17
    uds17 Member Posts: 183
    edited February 2014

    SC- sending lots of healing thoughts your way! Hope you feel better quickly!! 

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  • lgkgde13
    lgkgde13 Member Posts: 164
    edited February 2014

    SC - thinking about you and hoping infection is clearing.  I will keep you in my prayers.  I am so sorry to hear about your uncle.  

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited February 2014

    Thanks ladies. They are pumping me with antibiotics. Running a whole bunch of tests. I'll know more tomorrow. This too shall pass. 

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  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014

    Had my 10th of 12 taxol today.  MO said that it could be my last because 10 is usually enough.  My side effects have been minimal,  so I don't see why I shouldn't finish the last two treatments.  I did scrape the snow off my car on  Monday, had gloves on and I don't think I was out more than 30 minutes.  I came back in because of severe pain in my hands, felt like frost bite.  My MO said don't do that again.  

    My sister in law was diagnosed with stage III tongue cancer on Monday and is scheduled for surgery in two weeks.  I moved my rads fitting up a week, so I can go with my GF to her appointment with a urologist because she will be getting results from tests to see if she has bladder cancer.

    What is this world coming too?

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited February 2014

    be careful msjean. I sometimes feel like chicken little... The sky is falling!!!!

    How is everyone else doing?

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  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    I had my port out yesterday. I was anxious, but it all went well. It wasn't bothering me but my RO had a preference to have it out since rads are going to be on that side and my MO said we didn't need it anymore so he was fine with it coming out. It's a little painful, but just ibuprofen painful. 

    Three weeks PFC and still dealing with side effects - I know, I know, it hasn't been that long, but I'm impatient. :-)

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  • kittykate78
    kittykate78 Member Posts: 23
    edited February 2014

    hey ladies! Sorry I've been MIA, but things were rough and I haven't been up to sharing. But reading all your updates has kept me going :)

    Had my 'last' AC treatment the day after Christmas (it was so rough...so so rough...that damn AC ) only to see my MO three weeks later and have him tell me I needed more chemo. Ugh. I was so relieved to be done with chemo and had been meeting surgeons in prep for my mastectomy. I was even starting to taste food again and feel like me. Needless to say, it was a blow. 

    The good news is that my lump is completely gone - onc can't even feel where it was. But because it grew on the Taxol, I'd technically only had the 4 AC tx. So he asked colleagues and such and they all agreed on more chemo, esp since I'm only 35 and am BRACA 1. Sigh.

    So, he started me on Carboplatin and Gemzar since they are great for TNBC and BRACA. He didn't want to risk the heart damage with more AC. I also think he knew I might have refused if he recommended more AC. That last one almost broke me. 

    Anyone have experience with Carbo? I find it easier than AC but still pretty rough. The nausea lasts for a week :( The Carbo also devastates my counts, so I had to get a Neulasta on Monday and the bone pain just hit me today along with the head cold my son, my fiancé, and his mom have been suffering from all week. Double sigh. I'm on one week Carbo and Gemzar, second week just Gemzar, and third week off. Rinse and repeat. 2 maybe 3 more times.

    I'm just having a hard time because I was mentally done with chemo and preparing for my surgery.  I'm so sick of being sick :( Trying hard to gut check this and just get thru but some days it's hard, as I'm sure you all know. Sorry....just needed a little pity party. FU cancer !!!!!

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  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    kittykate

    oh my I cannot imagine how you felt when told you needed more chemo. I hope this all goes better for you.

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  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014

    Today I'm freaking out.  Am I really done with chemo?   I did 4 DD AC and only 10 of 12 taxol.  Yesterday my MO said I could be done if I wanted to be.  It was so out of left field it didn't hit me until today.   Has anyone had their MO tell them 10 was enough?

    Pam how many taxol did you do?  You and I had the same dates and you're done already.

    Is 4 DD taxol the same as 8 regular dose?  So technically,  did I have the equivalent of 5 DD taxol.  Where is it written that it's supposed to be 12 doses of taxol?

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  • naiviv
    naiviv Member Posts: 535
    edited February 2014

    Kitty Kate.

    So sorry, I agree this journey sucks... I have one more Carbo/taxotere/herceptin and yes it messes up my stomache for almost 10 days. Try claritin daily for neulasta bone pain, it really helped me.

    Sending you prayers

    Vivian

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  • lonnie713
    lonnie713 Member Posts: 236
    edited February 2014

    msjean63,

    I too would question why not 12.  Every thing I've seen and researched says 12, but if the doc says it's ok, then don't fret.  If it will drive you crazy, then get the last two.  I totally get how you feel and would be freaking out also.

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  • lonnie713
    lonnie713 Member Posts: 236
    edited February 2014

    schoolcounselor,

    I hope that you are home and feeling better.

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  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    Ms Jean, I did 4 DD taxol - not sure how it compares.

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  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    MsJean

     wow wonder why you wouldn't have to do the last two. I did the DD A&C then the 12 Taxol, just finished this week. Personally unless side effects were absolutely horrid I would insist on all the treatments. Best of luck!

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  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014

    The side effects are minimal.   Does anyone know what the amount of their dosage was?  I was getting 175 mg weekly taxol.  Which is equivalent to the DD dose on the study.  But I also weigh 220 lbs.  Is it the cumulative dose that is the deciding factor?

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited February 2014

    still in the hospital. Potentially until Monday....not doing well emotionally

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  • 70charger
    70charger Member Posts: 963
    edited February 2014

    School  It will get better.  You are where you should be to get the best care possible.  If you let them know your concerns I'm sure someone can ease your mind.  You will be home before you know it.

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  • Headeast
    Headeast Member Posts: 619
    edited February 2014

    SchoolCounselor, don't give up. We are all with you to support you and listen to you. Being in the hospital sucks, but you are almost done with the treatments and in two weeks it will be all different.

    Focus on killing cancer and gain strength!

    We are with you!

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  • Pam358
    Pam358 Member Posts: 294
    edited February 2014

    School Counselor - sorry to hear you have to still be in the hospital. Hope they are taking good care of you.  Hang in there - you got this!!

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  • smrlvr
    smrlvr Member Posts: 422
    edited February 2014

    Schoolcounselor, your fellow New Yorker is up here in Saratoga thinking of you.  Try to relax, you will be out of there soon!

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  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    Dear School,

    How are you doing? Concerned after reading your post as you have been through so much. Thinking of you (((Hugs))))

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  • Furfriend2
    Furfriend2 Member Posts: 299
    edited February 2014

    Vintage,

    How can you tell that you have lymphedema? Slight lymphedema? is your arm swollen or fingers?   I am going in for an evaluation next week as I am concerned about lymphedema as well.

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  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited February 2014

    Furfriend2

     My surgeon thought I may have it started back in Sept after I had the nodes & lump out. The PT lymph specialist thought not, she said the breast swelling was from the seroma. She showed me exercises, we talked about a sleeve, etc. I do occasionally have a tugging like down my arm, still after 6 months have some numbness in arm pit but no arm swelling. But I know it can happen anytime so pay attention to it. 

    If you are concerned at all, go see a specialist. Good luck!

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  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited February 2014

    schoolcounselor...how are you? I too lost a TE just after my first A/C tteatment. I was in the hospital for 4 days and then on IV antibiotics at home for 6 weeks. It seems like it will never gwt better but I promise it will. Hang in there.

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