Many unanswered questions, my sister has breast cancer

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Hi everyone,  my sister was diagnosed in late Nov 2013.  She has had a lumpectomy just last week.  They took a couple of nodes closest to the site while operating, which they tested whilst she was under and they came back positive, so they removed the rest/or more I am not completely sure.  It will take 2 weeks for results in my understanding...why so long when they could test the others so quickly?  Would they already know what type of cancer she has and at what stage she would be or will this depend on these results? There are other concerns that I have for her, as a sister and someone who has known her for 36 years, but I don't like to be an alarmist or panic merchant.  It is hard to find someone to confide in as a supporter/caregiver...there are so many questions I have, yet I am not the person affected and I feel selfish to pursue this.  My sister should be the angry one, yet she isnt :-(

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  • Beesie
    Beesie Member Posts: 12,240
    edited February 2014

    blistasista,

    I'm sorry about your sister's diagnosis.

    The test that was done on the first two nodes while your sister was in surgery was just a preliminary test.  Even if those nodes had tested to be negative, they would have been analysed again in much more detail by the pathologist after the surgery was done.   Sometimes a negative result on the nodes based on the assessment that's done during the surgery actually turns into a positive result once the more thorough pathological assessment is done after surgery; sometimes the amount of cancer in the nodes is very small and isn't found during that first quick assessment.  This is the same reason why a quick test of the other removed nodes isn't being done. With the surgery complete, there is no reason to rush the assessment - what your sister's doctors want is a very thorough, detailed assessment to make sure that nothing is missed. 

    Would they already know what type of cancer she has and at what stage she would be or will this depend on these results?  Usually the type of cancer is known from the biopsy results.  But the staging won't be known until the final pathology report from the surgery is available, detailing the size of the area of cancer, and the number of positive nodes.  If she has not already had these tests, the oncologist may send your sister for other tests, perhaps a PET scan or CT scan, as final information to complete the staging.

    As someone who has had breast cancer, and who has dealt with several family members with cancer, I know what it's like to be on both sides of that line. In many ways it is more difficult being the family member, because you have to take the lead from the patient - you can gently offer advice and make suggestions but they get to choose what questions they ask and what treatments they opt for.  And that is the case here.  This is your sister's diagnosis and it is her decision on how she wants to deal with her medical team, how shedeals with the diagnosis, and how she wants to deal with other people as she goes through this.  If she's not angry, that's good - but that might change tomorrow.  We all go through a wide range of emotions through this process.  Take your lead from her; let her know that you are there and provide her with the support she needs based on what she asks for, how she is feeling and how she is dealing with things.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

     It is hard to find someone to confide in as a supporter/caregiver...there are so many questions I have, yet I am not the person affected and I feel selfish to pursue this. My sister should be the angry one, yet she isnt :-(

    blista sista - ask any questions you like. You don't sound selfish to me. These words Ive quoted you above are very close to mine, so I thought Id chime in.

     The caregiver roll is a very tough and sometimes an EXTREMELY lonely road. Just like those of us having faced a BC dx, and that those diagnosis' are extremely varied and different, so is the caregiver/supporter roll. There are so many variants that can pop up, like family relationships, day to day responsibilities that life brings and financial issues, medical team competency or the lack thereof,  just to name a few. In a practical sense in living and dealing with a BC dx, the only certainty is nothing is really certain. A lot of it is "rolling with the punches" as the next unknown comes up....things that no one can predict. In my case for example, my sister asked my angle on a certain treatment and I didn't feel it was right for me to give that advice because I didn't know enough, even though we were extremely close and hold the same Christian beliefs. I had to gently tell her ultimately it was her decision and I would never violate that and that I would support her decision whatever it was. If I had have known more, then for our situation, I would have gently offered some input, because of our closeness. 

  • blistasista
    blistasista Member Posts: 4
    edited February 2014

    Thank you for your response Beesie and Musical, it is greatly appreciated

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