DIEP 2013
Comments
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Katski, my hospital had me sitting in a chair first morning after surgery. Doesn't sound hard but when you have a 12 hour surgery that gone done at midnight, moving to a chair at 8 am is like climbing Mt. Everest. But pain meds and moving slowly works. Then by day two I had to start walking. Luckily they had tall walkers that you could just lean on and push yourself around. Day three I was doing laps around the hospital floor. As Pat said, luckily it's not timed. And on at least one occasion due to the stupid hospital gown I'm sure my big behind was probably flapping in the wind.
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As time gets closer, I am wanting to run the other way. I decided Dec. 2012 that this is the surgery I wanted. I waited to give my skin time to heal after the radiation cause it to weep. I have researched, consulted, and read all I could read. I love the ladies in here because I can just come in to read, comment or tell my fears to you. All of the small trivial things that concern me all add up to one huge concern. Perhaps it is just that the surgery is getting closer and going out of state is so different from home. It is so odd to be communicating this way by sending pictures with descriptions and trusting opinions on what to do. And doing a pre-op by phone is just plain strange. I looked at the check-off sheet of what risks are with this surgery and every little blank I initial relieves the doctor any issues of the surgery. With all of the reading I have done, this shouldn't concern me either but seeing it in black and white, signing it without future discussion from the doctor is unsettling. I know this is probably the jitters but since I am seeing him on the 18th why can't that wait until then. Why am I questioning all of this? I questioned everything even when I was in grade school which drove my parents batty. I wish I didn't have to make all of these crappy-cancer-related decisions. I still want to run but that is not going to get me to where I want to be. So, I stay the course and just show up like you all tell me.(I turn 61 on Feb. 12th and my own mother tells me I am crazy to do this at my age. I see myself as a 36 year old not 61. I know I can live another 30!) I am glad I have the support of my husband, my daughters, and myself.
Sorry this was so long but somehow it makes me move forward. Everyone have a great day!! Kat
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Thanks ladies for all of your words of encouragement!! And your candid experiences are deeply appreciated because they give me the strength to do this!!
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kat-ski, I am 9 days post-op & have no regrets of having this surgery! I am sure that this past week would have been my time for regrets, if I was going to have them. I also did lots of research & heard many people's stories. The general consensus that I have found is - the surgery is a tough one to recover from, but just about everyone is happy that they made the choice to have it done.
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I hope I am more productive today. AMC had 1939 Oscar Movie Day yesterday. I should never had put on the TV. At 1am I was watching the end of Gone with the Wind, still praying it would end differently than it always does. Sniff!
Katski, you are going to do fine. You have done all the right things, done all your research, it's all good. I can't imagine anything daring to go wrong. You have everything covered.
Bluebird, you gave me a visual with your last post that I am sure is way off base, but you had me giggling.
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Talk to me about range of motion post surgery. What should my expectations be at 2 weeks post op? I had major issues after my 1st mastectomy and had to do 2 months of PT to get my ROM back. If I am sitting I can go straight above my head but not standing.
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Jenjen, You shouldn't be having the same ROM problems as mx. Just looked at your history. You had two separate mx's. So, you had ROM on one side, or the other at a time, which helps a lot in that you didn't have both arms restricted at one time. Even though you shouldn't be having as drastic ROM issues as when you had mx, with both sides being effected at the same time you might feel a little bit more restricted this time, but it shouldn't last as long, or be as painful. Did your surgeon tell you what to expect, and when you were allowed to do certain things?
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Sharon, love the pic!
Kat-ski, take that list with you if you are nervous about it, and talk with your PS on the 18th if you have concerns. Of course you should be nervous, it's a big deal!
Here's my new red pumps, on clearance for $40 at Dillards. I love the last week of January, so much clearance at the department stores! I had no luck finding a gray A-line skirt though; ended up getting one off of Ebay last night.
OH and I got my hair done - I just wanted my roots done and keep the same color - well I am definitely about two shades blonder than when I walked in. !!! It doesn't look bad, I just did not want a big change right now. I liked the color I was, although I'm sure I would have wanted to go blonder once the weather warms up. I hope it fades a bit.
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Goldie - Thanks for the feedback. I remember at discharge he said do everything normal (I.e. Wash hair). I thought my range of motion was okay 1 week post op however at 2 weeks post op I am realizing that it may be hindered especially at the point where there is scar tissue. my next appointment is next Tuesday and will discuss what I need to do. Until then I will begin the exercises I did before.
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Cute shoes, Christina. You are lucky you have patience for those big sales. I very rarely can pick through it all. It's that old ADHD rearing it's ugly head. I hope the skirt from ebay works out. If it doesn't, I hope you hardly paid anything for it. I have gotten a few clothing items off ebay, and I have had some good luck.
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jenjen...when you are sitting, your hip flexion helps you "cheat" when raising your arms. When you are standing, after recently having the flap surgery, you are already "challenging" your core muscles and back muscles, so your ability to fully raise your arms is going to suffer for awhile. If you have any pre-existing shoulder issues going into surgery, you may find you take a step or two backwards, due to the extended length of time your shoulders are positioned in the "operative position". It can be very frustrating to have worked so hard to get ROM back, to then "lose it again" due to the surgery. I know, personally, how that is hard to accept. But, you will get back the ROM you had prior to the flap surgery, and if you had certain types of pre-flap issues like scarring, contractures, etc., you may find your ROM gets even better than what you had, if your PS spent time releasing that restrictive tissue
katski....as "positive" as many of us veterans are now, believe me, we had our meltdown moments pre-surgery too. Sending you hugs....you will get through this....and...we DO understand.
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Thanks for the feedback Nihahi. I am trying to be patient and just work on it each day but going to call the PS tomorrow to further discuss the plan.
Another question-when the glue starts peeling can I help peel it off?
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sorry jenjen....I have no experience with incisions and glue....I'm sure someone who has had that will get back to you soon.
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Okay I couldn't resist this as I love kittens and snow!! I hope this gives everyone a smile or a chuckle!!
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jenjen, I had glue, and was told not to peel it. Just let it flake off naturally. It takes a while, but by the time it came off, my incisions were nicely healed. Patience, grasshopper.
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Try not to pull or pick off glue. If it's really loose and catching on things you may want to cover it with tape or a bandaid so it doesn't rip off.
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The glue usually peels off eventually. I remember when I had my hysterectomy I had it over the 3 holes they made. Weeks after my surgery I went for a follow up and my gyno said, "aren't you tired of looking at this crap?" And, she yanked it off. I wish all my scars would heal like those. You can't find them. Maybe leaving the glue on a really long time helps healing? Hmmm...wish.
So, anybody else so bored during that Super Bowl it sent you straight to cyber shopping? I found NWT items on Ebay for 1/4 of what I paid for them in the store the other day. Guess that stuff is going back.
Meltdown, not me...lmaoooooo. Daily. And, I have a long time to go. By choice, I admit, but a long way to go.
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jenjenl- don't touch that glue!
Goldie- that was a very boring Super Bowl ( happy for you Seattle fans). Liked Bruno Mars but what's with those chili peppers? They need to put their shirts on. Favorite commercial anyone? I liked Cheerios and the puppy deal!
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I'm sad today because my stage two was suppose to be tomorrow but I postponed it as I wait to see what insurance is doing about stage one.....I check everyday and it is still pending. My PS had the biggest job and is the only one that didn't get a dime yet....not right.
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red shoes and groundhog hunting kittens cheer me up!
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I'm a happy flapper today - bone scan was clear so now I can focus on getting this journey over and done with!
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Hooray Lahela!
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great news Lahela!
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lahela.........TOWANDA
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is there anything you can do to alleviate scar tissue?
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lahela, good news!! Feels good to have clean scans. Congrats!
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Kat-Ski, I had both a PT and an OT clear me to go home from the hospital by having me do movements I would have to do at home--getting up from bed, even wiping my butt! (Of course, I was wickedly constipated so didn't need that tip). I don't know if that was normal, though. It is normal to wonder if you are making the right decision re:DIEP. It is a big surgery and you are going to an unfamiliar place. I hope you feel better after your appt. on the 18th. In the end, trust your gut. When I first had my bmx, I wasn't sure I wanted recon. I'm so glad I did it.
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Catching up here....Yay, Lahela! So happy with you.
Lucy, sorry about your postponement. That must be so hard. It better get sorted out soon or we're all going to show up at that insurance co.!!!
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Oh, and the Super Bowl was anything but boring for me!!!! We're going to Wednesday's parade!!!
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lahela - woo hoo on the clean bone scan. that's great news!
kat-ski - love the kitty!
Lucy, sorry about postponing stage 2... insurance companies are so slow sometimes... very frustrating!
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