Lung nodules....anyone else?
Hello - I was diagnosed 3/13 and just completed neoadjuvant chemo. During my dx, tiny lung nodules were found on CT. Onc and 2nd opinion said nodules too small to biopsy.
I'm seeing a pulmonary specialist after my surgery in 2 weeks.
Anyone else have lung nodules during your orignal dx?
Comments
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Peace,
I haven't had that, but others here have. I would ask your oncologist if it would be prudent to scan again in six months to see what's going on. I'm not sure what seeing a Pulmonologist would accomplish right now since the spots are too small to biopsy. I've heard a lot of stories here about others with benign lung nodules. Hopefully they can help you sort through it. I hope it all turns out okay for you.
Hugs
Bobbie -
Thanks for your reply, Bobbie. It's so good to see another stage 3'er out many years!
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I have had one. Never lit up on a PET but was seen on other tests and mine was too small to biopsy also. As a BC pt we get scanned and tested more than the average person so, things are found more often. It's a good thing but also causes fear and worry when it might be nothing. Mine have never turned out to be anything and we just watch them. Congrats on moving on with tx and let us know how it goes.
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I had a ground glass nodule (don't ask me what that is!) on my CT scan at diagnosis. They thought it looked benign and didn't pursue it. It was my ticket back into the scanner after treatment was over because there was a note to follow up on it in future scans. It had not changed in any way, i.e., had not gotten larger. Therefore, they believe it to be nothing. My MO said he even has one and lots of people do. It's sort of like a scar from a bad bronchial infection or pneumonia, or so I'm told.
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I had several small nodules show up on my CT scan before my surgery. I was referred to a Pulmonologist and had a bronchoscopy. They found that I had a form of bacteria that can be caused by the environment. They will continue to ck it every 3 mos.
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Thank you, ladies for responding. These nodules are driving me crazy.
Sharon1953 - did the brochoscopy biopsy one of your nodules? -
I have 2 very small ones that were seen on my original scans before I started Chemo and after chemo they ran more scans that showed the nodules unchanged... I had a PCR to chemo so the thought is the nodules would have also went away... The plan is to get them scanned yearly now but my MO is confident that its not cancer but scar tissue from a virus. Still worrisome..but I have so much trust and respect for my team of Dr's... That I choose to put the worry behind me (for now)
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Ladies, I appreciate your input about these darn nodules.
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Peacestrength, I posted already my nodule story a few months ago but I will repeat it, because it may help you to stop worrying.
I also had a couple "non-concerning" lung nodules at dx in May/2012; they didn't disappear after chemo, and another small cluster showed up in Dec/2012 in the same lung. Two radiologists and a lung specialist said they looked inflammatory in nature and will scan again in April. In April they were still there, but did not change in size. Again I was told they were most likely nothing! But I was freaking out! I never had pneumonia or any lung disease to leave any scars. My quality of life was affected by this constant fear, so I was referred to a thoracic surgeon. He couldn't do a biopsy because my nodules were to tiny, also PET wouldn't be reliable - they were to small. The option was to simply "watch" them over the next a few years or have them removed via open lung surgery. Since I was paranoid - I chose the second, although dr warned me that we may be doing a big surgery for "no reason". But he couldn't be sure either...
Anyway, I had 8 small wedges removed with everything that was suspicious and looked different then a healthy lung tissue.
Waiting for a path report was a torture in addition to tremendous post surgery rib/nerve pain, which even narcotic pain killers wouldn't touch!
All negative! Nodules were described as inactive pneumonitis (?)and granulomas.
My paranoia and fear forced me to insist on having a very serious and painful surgery which wasn't necessary.
So, please, don't freak out. Your dr is most likely right. There can be so many non-cancer related reasons for lung nodules.
Regular monitoring will certainly be wise, but don't stress to much.
Take care,
Maggs -
I had a couple lung nodules show up on my CT after my MX. They said it looked like post infection stuff and I will be rechecked in a couple of months. I have had upper respiratory issues since childhood. I am hoping none of it is related to the BC and is just me being me. My ONC does not seem concerned so I am just trying to follow her lead.
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Arya
That is exactly what happened to me. I had a ct after my bmx and it showed a 6mm lung nodule. I was in bits! I could not believe the drs when they told me that these things are common. I have driven my self to the point if dispair over the last 6 months worrying about this nodule! I did not feel I could even celebrate completing treatment because if it! I finally went for my 6 month ct yesterday and today I got the call that the nodule is completely unchanged and looks like a granuloma. So not cancer! I was crying with relief. I do have a nodule on my thyroid now but I am not too concerned about that. It is so easy to allow this disease to take over your life especially as we are always under such a microscope. If you search this website you will find so many ladies that have had the lung nodule scare. The wonderful support I have received here is what really got me through this. I am sure your nodules will turn out to be the same as mine. Take care. -
I have no personal experience, since the bc diagnosis is my mothers, not mine. Still, I am a med student, with a tiiiiny bit of knowledge (and you can totally ignore my thoughts, since I could be an idiot)…anyway!...the thing that worries me with what you said is the disappearance factor, aka you said that there was a response in these lit areas during/after chemo. That is not normal when it comes to stripes or nodules made by pulmonary bronchitic diseases (or residues of them). Any way you look at it – you should monitor it all closely, since it is a risk factor.
I feel the need to stress that you should keep an eye on it. I am sorry to barge in with all these positive responses, so I will also add that – it could still be nothing. Or some kind of autoimmune problem that was taken down a notch with your chemo.
All in all – I hope all is well, and that the lumps are cancer free. *hugz*
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Thanks everyone for your input. I am recovering from surgery - drains are uncomfortable but managing ok.
As I mentioned earlier - I will be visiting a pulomonary specialist. My breast cancer team is following me close - I trust them because they are familiar with my unique health history - which could be directly correlated with my lung nodules. -
Peace. Hope you are recovering ok. The drains are really the worst part! Don't make the same mistake I did and get them out too soon!!!
Not sure if you saw my pm that I sent you on my follow up ct scan but my nodule turned out to be a begin granuloma. I still need to be followed every 6 months but it just goes to show that not every little bump and spot is cancer. Take care. -
Peacestrength- I wish you a speedy recovery and I agree w/the poster who mentiones leaving drains in longer. My surgeon did that too as there was still drainage coming out. Very uncomfortable but best way to avoid post surgery infection.
Maggs09- I too worry like Peacestrength as my lung nodule is 1cm. Again MO says no need to biopsy as he would not treat it differently. Now another chest CT ordered d/t a small swollen area mid chest after 4 out of 6 weeks of Rads for clavicular nodule. I think its lymphedema caused by Rads blocking lymph drainage. Anyway am praying for the lessor problem. -
I am now 2 1/2 years post diagnosis. The nodules on my diagnostic CT were stable, and have continued to be reported as stable, stable, stable. But I just pulled them all out and looked them over, and I am wondering at the radiologist's definition of "stable". One clump of nodules, originally measuring 8x4mm are now described as "spiculated non-calcified pulmonary nodules" the largest measuring 13x6mm. Just how can this be described as "stable"? I know my Oncologist sees only the final "stable" and hasn't noticed the increasing size or change in description. I am a bit non-plussed here, clearly to me these nodules are now growing. Where do I go from here? when are they large enough to be biopsied safely? what new challenges in treatment might I be facing? And, how soon do I need to have the sewing room cleaned up??? I am finally feeling so good, kind of disappointing to see I once again need to get in there and push to figure out where to jump next. And so much for stable, everything was fine for about 18 months.....yet if I listened to the radiologists, I would still be thinking everything is just fine, when it might not be.........You must be your own advocate, and do your own reviews.
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Linda - Your concerns are valid and you deserve an explanation regarding the change. Can you make an appointment with a pulmonary specialist? The specialist can tell you at what size a lung nodule can be biopsied. I believe it can be done at 10 mm or 1 cm - this depends on several factors though. I would encourage you to push your MO for more explanation and a PS referral.
My nodules are stable - I get a CT scan every 3 months, keep pushing my MO to stay on top of following them and I have a pulmonary specialist. At this point, I have not opted for a biopsy by bronchoscopy because mine are too small.
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LindaF- #1 leave your sewing room alone- it is so funny that I am in a similar situation and have posted 3 sewing machines on. Craigs List. Not sure why but could use the cash and get so upset when I mess up on sewing that I know used to be better. Neuropathy has taken over my right hand fingers.
My MO also does not level w/me either. He claims my treatment would be no different if a biopy is done. He blows me of when I mention seeing a pulmonary specialist. My left lung has a 1cm nodule upper and after Rads to the clavicle area finished , the repeat CT now shows irregularities on the right lung too. I am 66 so it makes me feel like they wrote me off.
I have such a hard time tolerating the hormone blockers I may have to quit. My next CT is not until January. I have to get my PCP for any specialist referral. If you want a brochoscopy I would push for one.
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I just went in for my follow up chest CT yesterday on the nodule. I am now waiting for the results. I had a good cry in the car last night. My DH kept telling me to be strong and put on a brave face but I just needed him to shut up and listen, you know? Anyway, I haven't heard back on the results and it is stressing me out. I am hoping that the nodule at least remained the same. This worry doesn't seem to ever end.
Anyway, reading this thread has calmed me down a little. Thanks.
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Aryas
I too had a good cry after my follow up ct scan for my. Thank goodness the Dr called me the next day to say it was exactly the same. I am sure yours will be the same, these things are so common. Let us know what happens.
Hugs
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Ok. I got the weirdest call from my surgeon. She left a message and said said the node is "a little more prominent". Great. Just great.
I am trying to get someone on the phone to clarify but my surgeon is with a patient and my ONC is out today. I talked to a nurse who said that my surgeon is trying to get more clarification herself from the Radiologist.
So now my husband and I have both cried and I am waiting by the phone. I was going to go to Target but that's out.
It is what it is, I guess. I hate that phrase but it's true.
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AryaS: You have a right to be upset. Your surgeon should have talked to you in person instead of leaving a message. I'm sure you will get a hold of your surgeon and MO soon.
Breast cancer is awful and no one understands the hell we go through quite like another survivor.
Now, nodules can be several things. Scar tissue, inflammation, a fungus, infection, radiation damage, and in my case most likely sarcoidosis.
Feel free to pm me. Hang in there.
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Arya
That was very insensitive for your doctor to leave that type if message.
If it makes you feel any better, my rad oncologist advised me that small changes are no big deal with nodules. Its when they really multiply or get much larger that they become concerned.
Hope you get some clarification soon.
Hugs.
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Hi peacestrength,
Then I'm reading my baseline 2009 CT that says "the lung parenchyma demonstrates punctate subpleural nodule in the left upper lobe. No other pulmonary nodules or infiltrates are seen".....Then on a 2010 restaging CT chest scan it mentions "there is a relatively stable indeterminate nodule involving the supeior segment of the left lower lobe, measuring 3 mm in transverse dimension."Continued follow-up is recommended. Questionable subpleural nodule is also again see involving teh left upper lobe without change."
So I my onc sent me for a follow up CT 2 weeks ago and I will be seeing him again after next week to discuss scan. I'm extremely nervous about it and don't know if there are any changes since my last 2 scans. I'm wondering if nodules remain or if they disappear.
Oceana
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Hi Oceana-it is stressful to what is going on in our lungs. There is not an easy way to dx lung nodules unless they are big enough to biopsy or surgically open the lung. Lung nodules are common but we having had bc need to be extra careful and be watched. My sister had 16 small nodules years ago and it was due to sarcoid - she is fine today. I also had sarcoid dx 12 years ago but unfortunately never had any followup lung ct scans until my bc dx - so we didn't have anything to compare it to.
My scan is coming up as well - I am being scanned every 3 months but the thing about sarcoidosis is that it can flare up and resolve anytime. It can show up on a scan and then resolve on the next. It's unsettling for me but I'm trying to cope the best I can.
Our lungs are touchy organs and have a big job of filtering the air we breathe. I'm not sure in what part of the country you live, but here in the north we have a fungus that causes lung nodules. My pulm specialist said I could have 2 things going on sarcoid and a fungus/mycobacteria since I live in the woods.
Hang in there too. Let's keep this thread going. Please let us know how things turn out.
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Well, my oncologist is gone until Monday. I saw my test results. The prexisting nodules are "stable" but there seem to be new "opacities" and it looks like some new "tiny" nodules. Cr@p!
I am already scheduled to see my oncologist next week and it looks like they referred me to a pulmonologist (sp?)as well.
I feel ok today.
But it looks like I might be in for another ride.
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AryaS- glad you are scheduled for next week. Did you have radiation?
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I finally heard from my surgeon who said she spoke with my oncologist who said that my ct scan did NOT look like metastasis.
I did have radiation so I think the new stuff might be from that. I am seeing my oncologist and my radiooncologist this week. So will hopefully find out more.
This has been a rough week. Thanks for all the support.
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So glad! Enjoy the weekend!
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