Ketogenic Diet anyone?

2

Comments

  • zogo
    zogo Member Posts: 20,329
    edited October 2013

    Oh Vivian, so sorry you are feeling crappy from the chemo. I hope you can bounce back quickly and feel better soon.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013

    Thank you, zogo. I really believe in the keto approach and am trying to do everything I can, but I have been having trouble keeping food down for days (also taking Zofran), so I started eating plain saltine crackers with broth, dry toast, and a little applesauce for the last couple days.



    If anyone has any suggestions for what to eat (not carbs) let me know. Something super easy to cook. I am really weak and not up to cooking (and I love to cook usually!)

  • Heidihill
    Heidihill Member Posts: 5,476
    edited October 2013

    Vivian,  talk with your doctor about more meds for nausea and vomiting if what you're taking is not enough.  I lived on cottage cheese as it was what my mouth could tolerate best along with ice cream. Hope you feel better soon.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013

    Heidi, That is a good idea I was just thinking about that myself. It seems like the last time I got a drug called Emmend, or something like that.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013

    Vivian I hope you are feeling better. I also find cottage cheese to work well for me when my stomach is a mess. I also like egg drop soup. I keep the box of broth and heat as much as I want. Stir in an egg. If you are slighty more ambitious add small pieces of carrot and chicken breast.



    I'm going to order the book you recommended. Thanks for mentioning it.

  • zogo
    zogo Member Posts: 20,329
    edited October 2013

    Vivian, do you have your own ketone meter to test your levels?

  • VivianS
    VivianS Member Posts: 159
    edited October 2013


    Hi! I'm back and getting on track again with the keto diet /lifestyle. It was a tough chemo week, and in the future I think I will have to come off the diet during that time, though it is interesting that some docs recommend fasting the day before chemo. I don't know if the nausea was due to my diet, the drugs, a combo, or even something else. This is my 5th cycle with Temodor and Veliparib. We'll see. My MRI, CT and bone scan are due Oct 10 and I'm anxiously looking to see if my strict cutting of carbs (~35g/day give or take) has shrunk or stabilized my tumor (along with chemo, of course). In the previous 9 weeks, my last scan, they discovered my tumor had grown 11% with chemo alone, so I figure it can't hurt to try! This Stage 4 stuff is another world.


    Zogo, yes I do have a blood meter believe it or not! I got one free with the purchase of 10 keto sticks. It costs about 26 dollars total. It came with 2 keto sticks, 10 glucose sticks, and a little lancet poker with a dozen lancets. You can purchase one online. Just Google 'Nova Max Plus. Free meter'. Sorry I don't have the site -but that is how I found it. I wanted to see if I was really doing the diet right because I am taking this "experiment" of mine very seriously. My ketones were between 1.9 and 3,2 during the diet, but I never was able to get my glucose below 72 (desired range was supposed to be 45-65) in the morning before breakfast.


    Maybe I seem crazy, but serious times call for serious measures. I was never like this before cancer. I was always like " whatever" when it came to my diet. I always felt like I should take better dare of myself, exercise more, get more sleep, etc., and once in a while, I would, but then the hurriedness of everyday life would take over, and I would slack off. ( I have been fat. I have been thin.) In retrospect (a dangerous place!) I could have been on top of it and actually prevented cancer- not trying to kill it like I am know. Reaching a desired weight is not my goal, but just the same, I am happy to see I have now lost 13 lbs easy since last I weighed, before my nausea problem.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013


    Tthanks for the food suggestions and the egg drop soup ideas, TwoHobbies!

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    Vivian I am wishing you luck with your scans. I think we are alike. I wished I had seen the keto diet when this second tumor appeared. I would have liked to do my own experiment.


    I did fast before chemo and after but I was doing every three weeks. If I was doing weekly or every other week I'm not sure I could do that.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013


    I loved hearing you say "we are alike"! (I think that's a good thing, right? Lol) My chemo is every 4 weeks. You speak of your chemo in past tense. Are you getting any treatment at this time?

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    I finished chemo about six weeks ago and I'm half way through rads now. Then onto ovary suppression and aromatase inhibitor.


    When you said "I might sound crazy" I thought of myself!! LOL we will call it good. I do get obsessed but I think it keeps me positive. Makes me feeli like I'm doing something. Although I have to confess I'm sure I broke my diet today eating Mexican food with my son but I've been really good generally.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    Vivian are you getting steroids before and with chemo? Steroids can raise your glucose and it could be why you have not achieved your desired glucose level. In the discussion of the fasting with chemo they talk about discontinuing them but obviously you'd have to discuss with your dr.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013


    You are probably right! I take a low dose of medrol daily. I was actually aware that it might effect it, so I kept my carbs as low as possible to try and make up for it. I have been having trouble moving back to being as strict as I was on the keto diet. (I understand the Mexican dinner with your son!) My scan are tomorrow, so let's hope for the best. I think I will be able to go back once I can relax.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013


    I'll. be thinking of you Vivian as you await the results of your scan. I'm praying you'll see improvement or stabilization. I too am having some trouble getting back to consistency after my fall off the wagon.

  • VivianS
    VivianS Member Posts: 159
    edited October 2013


    I appreciate your concern, Two Hobbies. I don't have another Dr. Appt. until Oct 24, so I don't know anything. I did not know they would make me wait so long this time. I went to visit my sister in Kentucky (from Florida) and just got back. The trip was hard on me physically (more pain than usual and still having post-chemo nausea a good deal of the time). I am wondering if the increase in pain has anything to do with putting the sugar back in my diet, as they correlate. Having just returned home, I have not had a chance to restock my cupboards and need to get back to the keto plan. I think you should start back, too, with me, after the w/e!

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited October 2013

    I'm back on the plan, Vivian.  I managed to be good the last two days.  Whenever I need motivation I pull out my books and that seems to do it.  I was really wanting to eat a certain sweet in my house last night, but I put it out of sight and refrained.  Usually if I can stay "good" for 3 or 4 days then its so much easier going forward. 

    I hope you enjoyed your trip despite it being a little taxing.

  • zogo
    zogo Member Posts: 20,329
    edited January 2014

    Hi Ladies, I made it through the holidays w/o feeling too tempted. I made a brownie crust cheesecake to have while the family ate the usual sugary red cake and cookies. It was really yummy. As it is sub zero here, I was hoping to put something in the crockpot to cook for hours. Looking for some ideas and recipes...

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited January 2014

    Zogo, there are two things I love in the crockpot.  I do pork tenderloin and cover it with a barbacoa spice mix I got at Target (their house brand).  The other thing I love in the crockpot is chicken covered with jerk spice.  Super easy and better yet, everyone likes it. 

  • zogo
    zogo Member Posts: 20,329
    edited January 2014

    ooo, I have chicken and jerk spice in the house. I will have to try that this weekend. Thanks TwoHobbies!

    Keep the ideas coming...

  • zogo
    zogo Member Posts: 20,329
    edited February 2014

    Check out this article...more confirmation for all the keto reasons

    keto article

  • MaryJC
    MaryJC Member Posts: 350
    edited October 2014

    Hello, I'm a ketosis believer! How is everyone doing? I'm newly dx'd with bc and trying to kick into ketosis now. i have the strips but have not checked my urine yet. I'm also on prednisone for another issue so my sugars are up I know for sure. Otherwise thru diet and a gallon of water a day- literally, the predisone doesnt bother me at all- and its an embarrassingly high dose. I pray you all are well!

  • zogo
    zogo Member Posts: 20,329
    edited November 2014

    Hi Mary, How it the keto going for you? I've made low carb dishes for Thanksgiving, but I think I tasted a bit too much yesterday and didn't move around more than in the kitchen! I found an article on fasting and carb restriction regarding cancer. I'll post it here and maybe put it in a thread. It is so healthy, I hope we can get the word out!

    http://www.myhealthwire.com/news/breakthroughs/924

  • labelle
    labelle Member Posts: 721
    edited November 2014

    I eat a pretty strict Paleo diet and have for about 8 months, rather similar to a keto diet, biggest difference is I don't limit my fruit consumption. I thought about switching to keto when I was diagnosed w BC in Sept., but in the end decided fruits contain way too much good stuff to give them up and I like them too much, LOL.

    Both diets involve tasty, healthy foods and exclude non-foods (processed/sugar laden). Paleo is low carb, not no carb and I've done well on it and feel really good. I suspect mostly due to cutting out gluten and dairy which seemed to be the keys to getting relief from some of my autoimmune disease's nastier effects. Because both Paleo and Keto exclude most processed foods, many people find these diets hard to stay on due to meal prep times (fortunately I like to cook) and due to how hard it is to dine out and still follow your diet (close to impossible).

    Anyway, good luck with the Ketogenic diet. I think it's a good one, I just can't do it. Paleo is the best I can do and even that is challenging some days.

    BTW a Paleo diet is high in good fats. Several friends thought my cholesterol would go crazy w a Paleo diet. Just the opposite happened and I get to eat stuff fried in lard from time to time. More and more info/studies are showing it's our high carb and sugar diets, not fats that are causing heart disease, high cholesterol.

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited November 2014

    Hi, labelle. I am doing Paleo too, well most of the time, and then I've mixed that with doing periods of fasting and periods of keto diet. There's evidence that fasting not only helps during chemo and now radiation, but just to periodically re-boot the immune system. Fasting is quite difficult so I hope doing a little keto now and again has some good effect.

  • zogo
    zogo Member Posts: 20,329
    edited December 2014

    Check out this info from Dr. Gerry Krystal. This is cutting edge research and shouldn't be ignored. Another reason for keto!! Especially regarding cancer.

    "My lab has two main areas of interest right now. The first is how we can eradicate cancer cells by changing our diet. Cancer cells take up and need much more sugar (we researchers call it glucose) to grow and survive than normal cells. Carbohydrates are the most common source for glucose in our diet. So, we have found that a low carbohydrate, high protein diet not only significantly slows tumour growth in the lab, but reduces the incidence of cancer as well.



    It does this by lowering the level of glucose in the blood. One of the great things about this diet is that it prevents obesity, which also is connected to cancer incidence rates.



    In fact I am on this diet myself, eating lots of nuts, seeds and whey powder, while avoiding bread, potatoes and white rice. I have never felt better! Another area of interest we have is encouraging immune cells within a tumor to become more aggressive and attack the cancer cells. Currently, my lab is combining our low carbohydrate, high protein diet with drugs that enhance the immune cells within tumors, in order to completely eradicate the cancer cells. We are very encouraged by our preliminary findings. We are also encouraged that BC Cancer Foundation donors have shown interest in this project and are supporting our studies."



    Dr. Gerry KrystalRaymund Edwards's photo.

    http://life.nationalpost.com/2014/02/01/jane-macdougall-what-does-cancer-eat-sugar-mostly-and-other-lessons-from-my-dinner-with-a-professor-of-pathology/

  • zogo
    zogo Member Posts: 20,329
    edited December 2014

    More scientific evidence that a ketogenic diet helps resist cancer cell growth.


    http://carcin.oxfordjournals.org/content/35/3/515.full

  • PeggySull
    PeggySull Member Posts: 686
    edited February 2015

    I'm new to this topic but really need support. I think low carb non- processed foods and no sugar is the way to go. The problem is I'm a real sugar addict. Has anyone with this addiction. Been successful in giving up sugar.

    My daughter lost 55 pounds over a year on the Paleo and looks and feels great but she was never that interested in sweets.

    I lost 20 pounds I needed to lose to help prevent recurrence after I finished treatment but got complacent after the first year and have gained it all back and some all due to eating sugar.

    Can anyone help? If you've been addicted to sugar and went Paleo how did you do it?

    Hugs,

    Peggy

  • zogo
    zogo Member Posts: 20,329
    edited February 2015

    Hi Peggy, Sugar is definitely addictive. It affects the same part of the brain as cocaine. One of the documentaries I watched when I first researched this almost 4 years ago was by Dr Robert Lustig called Sugar: The Bitter Truth. It is very convincing and should help your resolve. https://www.youtube.com/watch?v=dBnniua6-oM

    This is a way of eating, a way of life, not just a diet. You will gain weight back if you stop. But for me, stopping is not an option I would ever choose. It not only reduces the risk of cancer, but also heart disease, diabetes and dementia. The first week is the hardest to get through. Crabby, Cravings, Lethargic, Starving, Keto Flu. By the time ketosis kicks in, you will have a burst of energy, and the cravings and appetite will be significantly diminished.

    There are safe sweeteners that can be used in place of sugar, but it is a double edged sword. Too much of a good thing is not good. Portion control can also be an issue.

    I have found many recipes that replace foods I used to eat. Spinach Lasagne, Cranberry sauce, cheesecake. I have lots of resources if you are interested.

    Good Luck, You Got This!

  • TwoHobbies
    TwoHobbies Member Posts: 2,118
    edited February 2015

    Peggysull, sweets were always my downfall and I totally understand falling off the wagon. In the past I had done South Beach and was successful, and after a few days, it was so easy. And yet when I started eating carbs again (the whole grains that South Beach allows), I also would fall off the wagon and the idea of going back to it was an obstacle. So here is what I find helped. For me, about three days of almost no carb will cause the constant hunger to go away, so that is how I started. Maybe others will need a longer period, like two weeks. I allowed myself to eat some foods that I may not consider the healthiest during the beginning so that the entire diet isn't deprivation - for example bacon! And I didn't give up cheese, because again, it seemed like a lot of deprivation to totally change your diet. Things I find very helpful for snacks are avocados, nuts, and olives. Once your appetite and sweet cravings are more in control, eat fruit as your dessert. Sometimes I put some whipped cream on it as a treat. And I occasionally eat some Lindt truffles which are pretty low sugar, 15 grams for three. I don't find these to be lethal to falling off the wagon like cake, cookies, etc.

    I've been doing this for 2 years and honestly, if I have a bite of dessert at a restaurant I think OMG that is too sweet. I don't even like pasta anymore and don't miss bread either.

    P.S. This is a ketogenic thread and I'm not claiming that the cheats will keep you in ketosis, which I'm not measuring so I have no idea how much carb you can eat and stay in Ketosis. I am more weighing in on the Paleo question, which does have an 80/20 philosophy. I do know that my fasting glucose went from 93 to 79 which makes me happy. I'm about due for my yearly test so I'm anxious to see if that has improved further.

    Cancer provided me with a motivation that I didn't have in my past, sheer and utter fear that anything I put in my mouth could help or hinder me. Use that if you can muster it!


  • VivianS
    VivianS Member Posts: 159
    edited March 2015

    Greetings to all! I'm baaaack! TwoHobbies and zogo, I don't know if you remember me but I remember you and appreciated your support once before.

    I was on a Veliparib clinical trial for 2 yrs with no growth or new tumors! But alas, my tumors are growing again and I'm being bumped from the study. My onc talks about Falsodex, or Xeloda, or Carboplatin to start soon and I'm sad and scared. Anyway, during my 2 yrs I got lazy with my diet and lulled into a false sense of security. I have always believed that the keto diet is built on sound logic and I'm in again. This time I don't feel like buying expensive keto stiks. Any advice? Should I start out with a fast? Any new simple recipes to share? My tumors are all over my bones - head to hip - and I have lots of painful days so I'm not up to scouring grocery shelves for odd food products I am not familiar with or spending too much time in the kitchen fusing.

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