Here's what cheezed me off today

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  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    Spookie, LOL we have an epidemic of low VitaD all over the USA. Low Vita D in Florida is very high. The conclusion is that we have been trained to stay out of the sun during the high uv and______(forget)--time of 10-5 pm. Plus, we wear sunscreen. It's not surprising were low at all when you think of it in those terms. 

    When I was dx'd, I was working 12 hour shifts. Went to work in the dark, came home in the dark. A couple of bed days b/c of pain. Then no outdoors between 10-5. Wasn't surprised when I came in low.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited January 2014

    Hi ladies- saw one of the ladies on my other threads post this, and thought I would check it out. I am almost a year beyond my radiation treatment now, and preparing for my second six month follow up that begins in February. I feel like I am moving beyond in some ways, and looking around to see different things going on in my life (the moving away of some people, new friends and experiences coming in). All part of the new normal, I think?

    I see a discussion here about Vitamin D. Mine has been on the lower side for awhile, despite living in the southwest and spending time outdoors. I think it is the same thing Sas talks about, we have been encouraged to stay out of the sun because of skin cancer risks. There is a lot of literature about how low Vit D may contribute to a lot diseases we are dealing with. I am now taking 5000 units a day along with my calcium to help with bone health, and will be curious to see how things come up next time we do bloodwork.

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2014

    Hi Jazz.   Waving!!!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    OH friggen ------------I had this explanation------------thenit just ftriggen disappeared-----------it was so good---now nit's gone. ------------Oh well

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    Spookie---Thyroidectomy  scheduled for FEB 28th.. Lovely exchange of thoughts with ENT doc today. BTW he has last count 25,000 patients. The other guy in town ---everyone went out of town. Major referrals to my doc from all over central florida and beyond. Got home and the voicemail from the endocrinoligist reporter of tests, suggested I should contact ENT  re: Throgloblulin and thyroid removal based on hx. Said it was done------------Feb28th

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    Jazzy. Hi, Vita D is a life savior---------studying the sucker sucks. My last value--yesterday came in at 30..The very nice reporting person has no comprehresion of values. His office is excellent about calling with lab results, but she has a hard time saying the name. Her response to what the means would be "talk with the doc". I had already picked up everything at Med Records. I knew this am , she called me this afternoon............................

    But I knew  that I was seeing the ENT today, The stuff that the Endocrinoligist---overlapped the ENT----------I made sure all was available at the same time...................FOXY..............

    ENT RESULT: ...... ENT WITH INFORMED CONSENT SCHEDULED A THYROIDECTOMY.    

    Call from endocrine doc asked to call re:thyroidectomy. SO, BOTH docs agree------not to be brazen--------but the askin for the basics--------made the change in both their minds-------the Thyrogloblunin did it---------------------------in Retorospect, what would have it meant 6 months ago

    My hope is I'm not screwed or dead

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    Okay - I'm a bitch- ---In all of my scnenarios........I had BC, brain tumor, Colin resection, Hyster /bso/ If i hadn't been my own advocate, things would have turned out differently. Bc was a prohy approach b/c of family hx---BC was found on the 2nd stage of prohy evaluation

    I"ve had a craiontomy-brain sx b/c the tumor was growing, What pisses me off great time, is  whether or not Apple was offered the same sx. She told me that they couldn't reach her tumor. I found the sx for mine after it was supposedly to far along for Apple.

    I have no idea if Apple received good info. 

    We both had base of the brain tumors.

    Have no idea if she knew there was something.................different

    as we miss Veggy, I miss Apple

    I wonder

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2014

    Sas saw your dx somewhere else. I'm fried tonight

    Feb 22, 12:00 Cheesecake Factory, international Plaza, Tampa. Can you make it?

    Met with new MO today. I like her. Details later. 

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited January 2014

    Hi Spookie! Hi Sas!

    I wish I could go to the cheesecake factory with you!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2014

    Wish you could. This will be a meet up for the Tampa BCO sisters. It's 5 min from airport, come on over!

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited January 2014

    Jazzy, welcome again, Had busy two days---exhausted. too much to worry about

    Spookie I'll try, sounds good in timing though.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited January 2014

    Sas- I wanted to say that based on all you shared above, you have been through much. I know you are worried and commend you for being your own advocate despite all the illness. I had to do the same a few years back when my world started falling apart. It is good to question everything. We have to live with the outcomes of these surgeries, treatments, drugs, you name it. An informed decision is the best decision.

    Wish you peace tonight.

  • Rockym
    Rockym Member Posts: 1,261
    edited January 2014

    Jazzygirl, I'm with you.  Although I'm not happy about everything I had to go though and the various treatments, every decision was an informed one.  Heck, I had the BS, RO and MO, but knew that when all was said and done I had to live with each treatment choice.  I can't tell you how many times (after all the dust settled) that I feel very good and fortunate with my choices.  There is "standard care," but we have to go with our gut sometimes to know what is best for us.  I've never been a sheep and hope that more women will inform themselves.

  • lovewins
    lovewins Member Posts: 881
    edited February 2014

    Hi Sas...thanks for thinking of me. Happy After all I went thru trying to stop taking sleeping pills my MO said if anything work on getting off Xanax first.  I went over a week and could not sleep...I had my yearly physical Monday and my family DR said she would write me a prescription for sleeping pills....the main reason I was trying to get off them was I return to work next week and was concerned about getting up at 6 am.  Come to find out I have a new boss and he is willing to let me work part time while I go thru rads.  I fought it but last night at 2 am I broke down and took sleeping pill!  It felt good to get some sleep!  Hope everyone is doing well....

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Lovewins- glad to hear you are going to work PT while you got through rad treatments. I did too (30 hours a week) and it really helped me to have some normalcy in my life (with working) but time to rest too. You will find you will be tired.

  • lovewins
    lovewins Member Posts: 881
    edited February 2014

    Hello Jazzygirl...Thanks for sharing.  I am going back 30 a week except when I have Herceptin.  I read the hermit thread while you were going thru your Go live I think it was.  You work VERY hard!  I work in a call center and take escalated calls where everyone is angry from the get go.  I am just starting to get a rash after 8 zaps...32 to go!!!!

  • Wren44
    Wren44 Member Posts: 8,585
    edited February 2014

    Lovewins, Did you mean 24 to go? 50 would be an awful lot of zaps. I worked for Pan Am and our cargo dept supervisor got all those escalated calls. She would speak softer and softer until the person on the other end had to listen so hard it distracted them. I love hearing about understanding bosses. Someone here has a lawsuit against her boss for firing her as soon as he learned she had stage 3 cancer. I hope she wins.

  • lovewins
    lovewins Member Posts: 881
    edited February 2014

    Wrenn...you are correct!  Good catch.  I changed it.  I never thought about that...I never want to lose my cool, but that is quite clever because they would have to calm down to listen!  Ha-ha I am gonna try that!  So far I am very pleased...we will see what happens when I go back.  My company has been very good to me I have been off work 5 months now.  I hope she wins too, having issues on top of fighting cancer is too much to have to deal with.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014

    Lovewins- I had internal radiation which is shorter in duration, but still was very tired from the whole thing. I had to go out of town for it too, so I worked remote and my client never knew anything about it (still don't). Your work sounds like they have been understanding and that is good to hear. Some ladies here have had the opposite experience. As I am a self employed consultant, I chose to keep my diagnosis private because I did not want to give people a reason not to select me for projects. 

    Yes, that was me doing the go live. I work on a very demanding project with a very demanding client. I have to keep up boundaries with them as they tend to have a sweatshop mentality. My contract with them says "30 hours a week" or more if agreed to. I had someone trying to get me to work 80 hours a week during go live and JUST SAID NO! I am done with this contract in June and will not do any more work with them. They just need to much. Going to find better work with better people next!

  • lovewins
    lovewins Member Posts: 881
    edited February 2014

    I am sure you will find something much better...you are a very capable person from what I see.  Yes my employer has been great, I had one boss who didn't work with me...but I ended up with new boss I haven't even met yet and he has been awesome.  It really takes the pressure off.  I think maybe my old boss was too young and didn't realize how devastating serious illness can be.  Take care Jazzy.

  • Jazzygirl
    Jazzygirl Member Posts: 12,533
    edited February 2014
  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    OK, third week on Femera and my acid reflux is through the roof! Anyone else having this problem? This is my third AI and I'm getting really discouraged. I have 2 more years to go on AI's and I just don't know what to do. I know some people have stopped taking them but I don't know if I have the courage. I see my onc in 6 weeks and I almost dread telling him that I'm having problems with this one too, &%#+*%@!!!!!

  • Rockym
    Rockym Member Posts: 1,261
    edited February 2014

    rohanna, sorry to hear the Femera is causing SEs :-(.  Quality of life is important.  I'd rather have 10 years of feeling good as opposed to 10 years of feeling like crap, but thinking that I'm protecting myself.  That's just me.  I did the surgery, chemo and rads, but the Tamoxifen was just too much.  I didn't even try another Al, but for whatever reason my fear of cancer is kinda minimal.  Heck, I even had the positive nodes, but if chemo didn't wipe it out...

    I can say that I know someone who takes 1/2 the dosage of her Al and also someone who takes it every other day.  Perhaps you could try to decrease the dose and see what happens.  I hope you're feeling better soon!

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2014

    Have you had an endoscopy to see what's going on in there? Yeah, another test. Do you sleep with your BED raised? Not on a pile of pillows, you can slide off. Do you watch your diet? Spicy, fried, caffeine can trigger it. Are you taking anything for it?

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Lovewins, Hi dropping in late. RE: your Xanax and your doc suggesting getting off that first. I would say last b/c xanax takes along time to get off of, I've written elsewhere, that of all the benzos Xanax is the most problematic. I cringe whenever I read or hear that someone's on it. So, understand changing the plan. When in the future you think about getting off of Xanax, let's have a talk.

    Jazzy, thanks, I just wish things would stop, I near the end of something and before it's even done, something new happens. Now it's polyurethane, but at least I've made the reports. I've directed that the Risk Manager take the lead on creating a poylurethane free equipment box for my thyroid sx. Not going to be easy.

    RO, oodles of drugs create a problem with gastric reflux. Talk with doc. Please try the least problem family of drugs first if prescribed. If a drug in the Proton Pump Blocker(PPB)family is prescribed, it can cause calcium loss in the bones---osteopenia/porosis----you are already subject to that with the AI's. For completeness if someone else is reading this and decides they shouldn't be on a PPB. A little known fact about these drugs is they need to be weaned over several weeks. Of course no where will you locate a weaning schedule. Drugs in the PPB family include protonix,  prevacid, acidfex, --not a complete list.

    If you are talking drugs with your doc----seriously look at calcium. It is the primary component in many acid controlling drugs. Then you get a two for one. Good for your bones and helps with acid.

    Our Dear Spookie is right on about looking at diet.  A huge culprit for all is coffee. But a big study that recently came out found that coffee was good for us. They forgot to mention though how much. LOL b/c it was a huge retrospective study. Small detail.

    In case you don't have this link. It's a drug site that is great even though it was done by the government. Why is it GREAT! 1. after putting the drug name in the search box and the list is pulled up the first drug manufacturer is the one that originated the drug. 2. importance---all the pre-approval clinical trial documentation is there 3. all post marketing data is there 4. hyperlinks throughout to connect within the report for easy referencing between topics.

    http://dailymed.nlm.nih.gov/dailymed/about.cfm?CFI...

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2014

    I have GERD. .went down that reflux road. Many many years on PPIs. Seems to have resolved on its own

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2014

    Thanks for all the responses. I've been dealing with all this GERD stuff for years. I do take calcium and D. Oh well, more crap to talk to the dr. about. One strange thing that does seem to work is 2 tsps. of honey, 2 tsps. of apple cider vinegar, and some orange juice. Weird, huh?

    Rock, it's so good to hear from you. Hope you're doing well. We're overdue for a major bitchfest. Pick a topic. I've been in a really bitchy mood lately.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Ro, I had reflux for years. Pepcid complete was my choice for years. My reflux worsened and my GI doc wanted me to take the PPi/PPB prevacid. I refused b/c a very good study on PPI's  showed that the reduction of acid in the stomach lead to a greater potential of contracting C-Diff. This study was only on the PPI/PPB's . I didn't do any further research on the other acid reduction drug classes, so, I don't know if there is this same problem with all acid reduction drugs

    About ten months after BC dx and 9 months of Arimedex I started with a new PCP.

    One of her big focuses is testing for food allergies and sensitivities. Her way of doing it was by blood test which analysed for a 150 items. My list was very long, with some very unusal sensitivities on it. When I removed or decreased the offending foods, the reflux resolved. Since my greatest period of reflux was after the evening meal. Pepcid complete was a need about an hour after dinner for many years. My biggest offender was chicken. Who ever heard of a sensitivity to chicken. I went from a multiple times per week user of PC, to a "I can't remember the last time I took it"

    My story may or may not help you. I was on the three AI's. The s.e.'s were awful with all three. Reflux was an issue with Arimedex, but I quit it about 1 1/2 months before new PCP tested me. I was only on Femara  less than a month. Aromasin , reflux wasn't an issue, but i was very careful with the offending foods. Don't know if that was a direct help with preventing Aromasin from causing reflux to be a problem.

    I've had pain med this morning------reread this a few times, hope it makes sense.

  • sas-schatzi
    sas-schatzi Member Posts: 19,603
    edited February 2014

    Spookie, still thinking about the 22nd. I'm in the mode of making myself crazy about the thyroid sx on the 28th. But I'm  supposing I can make last minute decision about coming and it will be okay. One more reservation wouldn't be a big deal would it?

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited February 2014

    That will be great if you make it. 

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