Tampa area BCO sisters get togethers

I should be able to do the 22nd of Feb.  Typically, we've done 11:30 so that we sort of beat the lunch crowd.  Personally, I like that time if it is good for everyone else on a Saturday.   If we did a Sunday, I could still do close to that time, but might be a little late due to church.  

Jenny, I live in Temple Terrace; so, we could always carpool if needed or whatever.

I'm just a lazy slug. I don't function much before 11.  But I do have OnStar, so might not get lost. 

Coming from Fort Myers may be a little late if meeting at 11:30.  Whatever works for everyone else..... I am flexible!!!  

Should we plan for Noon then? 

noon works for me. Are we agreed on Feb 22?

Kira that sounds good.  I would luv to carpool. The only thing I have some friends coming down from up north and staying in Orlando so I maybe going over to see them after the get together in Tampa.  I should know for sure in a few weeks when they will be down for sure. Will keep you posted!!

int plaza

Mary, at the top of this thread.  It has a blue-ish background.  Nancy has nicely updated it for the date/time/location and those who have so far indicated they will attend.

At the moment, Sundays are my only day off. If I can get my new hire up to speed in a month or so I will be able to take off Wednesday or Thursday as well. The first time my employer offered me the store manager position, I had completed chemo number 3 of 8 & I wisely turned it down. I am feeling fortunate that I am able to carry the workload now.

darn! I saw the date and thought " I'm going to go this time!" And then realized its the weekend of the C4YW ( YOung Survival Coaltion annual conference) in Orlando.. I've already committed to attend.

    BTW any other Florida gals into Pink Dragonboating?? Tampas got a team ( the Pink Dragon Ladies"and I'm on the newly formed Sarasota team "Survivors in Sync"... Fabulous sport for us BC gals.

   I'll check back for future gatherings

Have fun!

Marcia

Hey SpecialK - I was going to ask if any have heard from you, and will you be joining us on Feb 22?

I have just realized several hours ago that I have lymphedema, perhaps in my entire left arm and hand. There have been subtle symptoms that have come and gone over the past few weeks. I haven't seen obvious swelling but my forearm has had some soreness on the inner side, which I especially noticed at yoga class today when reaching over my head -- it felt like it was stretching underneath the skin. Later in the evening I noticed some pitting edema inside the elbow joint -- totally new development, and I hope yoga didn't cause it or aggravate it. Yikes. Also my ring is tighter even though I can't see obvious swelling. I know I need to get this looked at ASAP.

So...I want to ask you all this. I know a couple of you have lymphedema. Do you have (or know of) a good lymphedema therapist? I was sent to a PT at Watson Clinic in Lakeland for prevention 2 years ago and arm PT last year, but her name doesn't come up on the searches at NLN or LANA, although she said she was "certified" somehow. I couldn't find any certified lymphedema therapist very near me. Ideas?

Ann, I went to a therapist in Largo. Is that close to you? My RO recommended her. Maybe you could check with your doctor.

ann - I got a prescription from my MO to be seen at Moffitt - that was all they needed, they procured the insurance info on their own.

ann - Moffitt dictated the compression level, but I went to West Coast Brace and Limb for the sleeve ordering and fitting.  I am not sure whether most rehab locations actually supply the sleeves and glove/gauntlets themselves, or order them.  I did the same procedure, obtained a prescription, took the compression info from Moffitt, and made an appointment with West Coast.  It took about two weeks to get the sleeve/gauntlets - I paid up front for the first bi-lat set, but then determined the correct code for insurance reimbursement and West Coast billed for my second set and received full payment.  Here is a link to their site:

http://www.wcbl.com/