October 2013 Chemotherapy

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  • uds17
    uds17 Member Posts: 183
    edited January 2014

    Hi ladies!

    It's been a while since I've been on the boards, but I've been thinking about you.

    Pam- congrats on being finished! I understand what you're saying about not feeling elated- I'm the same way. I think it's because I'm still bothered by side effects.

    school counselor (my chemo twin)- I, too, have been so tired over the past two weeks. I am also retaining a lot of fluid, which I feel makes it even harder to move my legs. Do you have that experience, too??

    Take care!

    xoxo

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    yeah Pam!!! Congrats on being done 

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    GOOD for YOU! FurFriend2! And cute pic, I really like your hat!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    travelmom

     I will be asking my MO on Chemo Tuesday about my Herceptin schedule. I will have Taxol #10 this week. It has been weekly H with the Taxol but I think it will change to every 3 weeks after. That will go on til October.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    YAY Pam, good for you! I have to continue Herception for 9 months after my Taxol is done so I don't think I will feel any big elation either, since i will still be in the chemo chair. But it is a step forward, & something we've conquered & can put behind us!

  • Headeast
    Headeast Member Posts: 619
    edited January 2014

    My MO answered my email regarding my fatigue and told me to stop Tamoxifen for one week and to start taking vitamin supplements. 

    I am scared of stopping Tamoxifen for a week. 

  • travlmom
    travlmom Member Posts: 90
    edited January 2014

    Tomorrow is my last round of chemo and I am so anxious about this that I could not sleep last night.  I was dreaming about every SE that I have not had all showed up this last time. I am meeting with my MO prior to treatment and last time he said we would discuss my future mammo's, and treatment plan going forward.  I know I am not starting Rads until the end of March.  What questions did you ask your MO's....   I feel somewhat unprepared for my appointment. 

    On a positive note my hair seems to be growing a little bit.  I think I will go out this weekend and by that Nioxin and start using it after I make it through Hell week next week. 

    #kickcancer #bringonspring

  • 70charger
    70charger Member Posts: 963
    edited January 2014

    High 5 travelmom.

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    Last treatment cheers trvlmom!!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    great news travlmom!! 

    Hope everyone is doing ok.  Think about you all often.

    I had my exchange surgery on Monday.  Doing good. Implant side doesn't even really hurt.  The other side where I had lift/reduction is the sore side.  Seems like a walk in the park compared to mastectomy.  Can't wait to go to postop appt to actually get to see them tomorrow. 

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2014

    2 months out from one (and only) chemo infusion and i have peripheral neuropathy. It seems like side effects never end.  This makes me more impressed with how you women handle this stuff since my treatment was only a quarter what you endured.  I salute you.

  • smrlvr
    smrlvr Member Posts: 422
    edited January 2014

    Wrenn, we miss you on the November board,  how are you?

    Travelmom, congrats on,last chemo !

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2014

    Smrlvr, I think I am too old to keep up with all the action on the November board.  I read but by time I get to the bottom I forget what I wanted to say.  I also feel a bit guilty for avoiding many of the side effects that you guys are suffering. I actually don't feel like a "chemo" person sometimes until I see that even with one treatment you know you've been poisoned and just hope that the poison got some of the bad guys. :-)

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    lgkgde, that's great that your feeling good after your exchange!  I'm nervous  when I have mine that the surgery recovery will be rough like the BMX was, but hopefully not!  Can you tell a  difference in comfort yet between TE's vs implants?  I hate my TEs!

  • 70charger
    70charger Member Posts: 963
    edited January 2014

    lgkgde  congrats, bet u r glad to get that over with & move forward!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    kcat- I still have that terrible bra on but I am tell it's soft and not hard.  I hated the Expander and really had minimal pain on implant side after surgery.  I imagine if I was getting implants on both I would hardly have any pain!!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    70charger- yes this was the happy surgery ;)

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    I had Taxol #10 yesterday. Last one will be Feb 4 so I got an appointment with the surgeon for Feb 7 (who did my lumpectomy & nodes) We will discuss my surgery options but I am 99% sure I want a BMX with expanders. Hope he & my insurance co agree.

    My questions are about the expanders. I assume my surgeon does them immediately after BMX & I go back to him weekly for fills? Or do I see a breast surgeon around that time also? (for exchange later) Those of you who have had the expanders, they are uncomfortable huh? I am worried because I am sooooo flat chested, & no extra skin or saggy to speak of. Will that make it tighter & tougher to deal with? I wouldn't mind slightly bigger breasts but don't want to look like a 60 year old pole dancer! (sorry LOL) They over fill? I swear I am so small that I would only need ONE fill!!!!!

    I also am quite sure radiation is still planned. I am confused over this & will of course have all these questions for him but honestly what you gals explain sure is easier to understand, specially since you've been there/done that!

    Thanks

    VintageGal

  • Headeast
    Headeast Member Posts: 619
    edited January 2014

    trvlmom, my questions to my MO after chemo were more about vitamins and suplements allowed so I could be back to normal with my strength and energy. Turmeric, zinc and magnesium, etc.

    Lgk, congratulations!!! I have mine on Jan 31st (Friday), double exchange. I hope it doesn't hurt. I am planning on going to work on Monday.

    Vintage, when I had my BMX and TE both surgeons were present: OS and PS. One took C off and the other fixed whatever was needed, put TE and closed. At least this is what they explained they would be doing. For fills, I went to my PS and he did the fills every three weeks, one day before chemo infusion. He said otherwise it would be every two weeks. 

    The day of the fill I took Percocet two hours before the fill and even with that it hurt. The worse one was the third fill. After three days of the fill my back hurt, the PS told me that would happen and it is because the muscles are being pulled. 

    I was an A and I actually like it that way. They filled them to be a B and I think I will like them. I dont want to have to change all my wardrobe because of boobs.

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Wrenn -- so sorry you have neuropathy!  I do too -- toes only, no hands.  When I saw my MO, he said that they sometimes give a B-12 shot to help "make the nerves happy."  I figure if a shot works, then pills might work too.  So I got myself a bottle of B-12 supplements to take daily.  I have only been taking it for two days, but thought I would give it a two week test, and see if it helps.  MO also recommends L-Glutamine powder (you can buy this at drugstores or at places that carry protein powders, etc.  Amazon also has it).  It is tasteless, and you sprinkle it on cereal or stir it into juice.  Hope it resolves itself for you.  It is just not fair that you got this array of SEs for just one treatment!

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2014

    hi Kim, sorry this is happening to you.  I started taking B12 even though i had my levels drawn and they are high normal. I asked my internist about l glutamine and he said it wouldn't help.  I bought some alpha lipoic acid today and will start that tomorrow.  I forget where i read that it would help. I seem to be ok with it most days with only a couple of days when it hurts to walk.  That taxotere is strong stuff but  i think this will clear up.

    I actually feel pretty lucky that i escaped with minor SE compared to you guys and was surprised to develop the neuropathy. I also noted that my MO referred to my cancer as metaplastic carcinoma lately in reports and that type doesn't really respond to chemo anyway.  It was a feature on my path report but i have always thought the IDC was the official dx. 

    Anyway i think we will all be doing well in the not to distant future. Right?   ;) 

    All the best to you and the other soldiers here.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    Thanks HeadEast

     your reply is helpful to me.

    VintageGal

  • travlmom
    travlmom Member Posts: 90
    edited January 2014

    woot woot. I just finished Chemo!  I have my regular herceptin the next 2 weeks and then I start dose dense herceptin every 3 weeks after that until October.  Next step is a mammogram and radiation.  

    #overcomer  #kickcancer 

  • 70charger
    70charger Member Posts: 963
    edited January 2014

    Travlmom  Congrats!!!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    Vintagegal-  same thing here.  Breast surgeon and plastic surgeon in same OR. PS took over after breast surgeon done.  I think I read somewhere that if you are small and wanna stay that way they might go to implant.  Not sure about impact of rads on the timing of TEs and implants.  I had fills every week and was done with fills before chemo.  I think I had 8.  The first 2 were painful and after that I was ok. The TEs were uncomfortable but if I didn't have chemo could have had them out much sooner.  They seemed like a walk in the park compared to chemo!!

    Honestly the side that is sore and painful now is the non-implant side bc I had lift for symmetry.  If feels like someone rippedy nipple off and put it back on. It is swollen and sore.  Implant side I have no pain.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    travlmom

     congrats to you!!!!!!!! II bet it feels good, another light at the end of another tunnel!

    I just have 2 more Taxol (then continue with Herceptin) so not far behind.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    lgkgde13

     thanks! I appreciate hearing from you. It will be interesting to hear what the BS has to say. he was the one who twice said to me *we don't do mastectomies, we do lumpectomies*. Kinda weird when I think back on it but at the time I thought he meant just in my case but.....maybe it isn't a procedure he prefers?  I know the hospital in the next city does some procedures they don't do in Dover where the hospital & Cancer Center are. I may end up seeing another surgeon, who knows.

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    yeah my first surgeon was insisting on lumpectomy with rads and second opinion was more in favor mastectomy.  There was some ther funky areas on breast that she didn't want to mess with.  I went with 2nd opinion.  I think you are right, some places may not favor mastectomy if they feel like they can do same with lumpectomy. 

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Travlmom -- Congrats!!!!  You did it!!!!

    Wrenn -- Here is an article about l-glutamine and taxol-induced neuropathy.  Hope it clears up for you

    www.ncbi.nlm.nih.gov/pubmed/11350883

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    lgkdge

     after my lumpectomy & the nodes the BS wanted to go in again because the margins weren't good. That is when the MO & tumor board said Chemo/mastectomy/rads. In hindsight I wish I'd explored options more but I guess many of us have been there, we can only do what we feel is right at the time.

    Thanks

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