Fused Nodes

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myman
myman Member Posts: 11

My husband is 8 months post treatment stage 2 ,  node positive IDC.  Recently I have been digging a little deeper into his pathology report. His 2 positive nodes were noted as ; "The largest mass on sectioning measures 3cm in greatest dimension and appears to be two fused nodes, both of which are involved by tumor."  When I questioned his oncologist about this he said this did not equal stage 3.  However everything I have read places fused nodes regardless of number at Stage 3.  So I am wondering if the lovely stage 3 ladies with fused/matted nodes had more then just 2??

He is refusing his 6 month scans and is pretty much in denial about his recurrance risk.   I want to know if the fused nodes warrent an elevated concern for recurrance.  I am sick with worry but keep this from him.

August 2012  IDC , 2.3 cm, 2/12 positive nodes ER+ PR+ HER- Nottingham grade 2, nuclear grade 3, lymphovascular invasion

mastectomy, lymph dissection, dose dense chemotherapy ACTG, 26 rads , tamoxifen     

Comments

  • weesa
    weesa Member Posts: 707
    edited January 2014

    I am no expert in this area but did have matted and clumped together lymph nodes, and my sentinel node had a 2 cm tumor wrapped around it. I have had no recurrence. My onc never seemed particularly concerned about the fusing of the lymph nodes.I know of many other women here who have had similar lymph node situations. I have read that oncologists are lately taking a less important stance on positive nodes--the number of them etc. Your husband's pathology--especially the Nottingham grade 2-- sounds encouraging. Perhaps somebody will come along more knowledgeable than I.

  • TectonicShift
    TectonicShift Member Posts: 752
    edited August 2014

    I believe the staging criteria have changed in the last few years. So some books or doctors say one thing for stage III and others say something else. I remember being obsessed with my stage, but really it is what it is. The staging number is arbitrary, for record keeping purposes, and changes as the scientists decide to change it. I wouldn't focus on the stage too much. 

    Weesa is right. Only two nodes positive is pretty favorable. It means the cancer didn't travel very far. And the fact that the nodes got big and matted but still there were only two of them infected says to me that the cancer was not aggressive nor very interested in traveling.

  • weesa
    weesa Member Posts: 707
    edited January 2014

    One more thought-- some oncologists are still doing routine scans, others are not.This is a controversial topic currently! I have never in my 12 years been scanned, neither before, during or after. My onc thought the best indicator of my health was asking me how I was feeling. Also, scans can give you a horrendously big dose of radiation. Your husband has been through a lot, and has been diligent about treatment. Enjoy life with him, and rejoice that his diagnosis and treatment leave room for a lot of optimism.

  • Holeinone
    Holeinone Member Posts: 2,478
    edited January 2014

    Myman, 

    My oncologist tells me you are doing everything possible, which your hubby has, all the treatments. My 6 nodes were matted, larger than the tumor itself & had cancer on the outside. I am hoping that when I am done with radiation I will be able to get on with life, take the meds and not worry about scans and tumor markers. I obviously will be very proactive with mammos on both breast, as I had a lumpectomy. Sounds like your hubby is doing well. 

  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    wow, holeinone. thats sounds alot like what was happening in my armpit too1 and my tumor was smaller than the smallest clumped nodes too. but i cant help but worry, as i am having some troublesome symptoms.

  • ziggypop
    ziggypop Member Posts: 1,071
    edited January 2014

    myman, I am pretty much with the women above - generally trying to decide on stage is neither here nor there except as it pertains to treatment. I am wondering what you are referring to when you say 6 month scans - do you mean mammo or something done locally (in the region of the original tumor) or are you referring to something like bone scans?

    Many (I'd actually guess the great predominance of) docs don't do any additional testing other than routine mammograms after treatment (I'm at least a stage 3a and had a mammo at 6 months, and will have one at the 1 year mark - in the remaining breast). Other than that I see my onc every 6 months (for the first 2 years) and my BS once a year. They both do a manual examination of the reconstructed breast, the MXed breast, the armpits & neck. That's about it. 

  • YATCOMW
    YATCOMW Member Posts: 664
    edited January 2014

    I too had cancer bursting out of the nodes....and I had a business acquaintance that had all her 20+ nodes matted in a ball.  I am nearly 10 years out and she is 13 years out.

    I also don't get scans unless I have had a pain that doesn't go away within a couple of weeks.......it really isn't good to get all of these scans so I would save mine for when I have a concern.


    Just my two cents.  Hope this helps.


    Jacqueline

  • wintersocks
    wintersocks Member Posts: 922
    edited January 2014

    Jacqueline,

    I was just beginning to fret again, seeing mine and others dx in the stage iii, worrying about nodes.

    Thanks for a bright light. 

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014
  • lkc
    lkc Member Posts: 1,203
    edited February 2014

    Yep , I had 12 out of 14 nodes,  2 completedly replaced by tumor, nodes matted. That WAS the summer of 2004. I am well and thankful everyday!

  • Holeinone
    Holeinone Member Posts: 2,478
    edited February 2014

    lkc, 

    Thanks for posting here, we need/want these stories of success & survival.

    Congrats on your 10 year cancerversary coming up!

  • art133
    art133 Member Posts: 30
    edited March 2014

    wow.. so many encouraging posts in this topic. feel so happy for you all.. :)

    by the way, my mom petscan also showed a tumor on her right axilla. the size was around 3cm. but then she had neo-adjuvant chemotherapy. the pathological report after chemo showed there was no lymph node positive, however two of lymph nodes showed a change. what everybody think? does it mean that probably only two lymphnodes involved?

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