For Informed People Using Alternative Treatments
Comments
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my friend now cancer free from lung cancer 30 years or so with the gerson therapy, no liver stuff, said that the coffee enemas which I think he did himself withorganic coffee, said it opens the bile ducts. when eventually he began hemmorahging he got surgery
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Abigail, which end hemorraghed?
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I guess you're talking about richard, I think his lungs from his mouth. that's the way alexandra david neel spied on a pair of tibetan monks in the forest attempting to bring that on
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jojo,
Me too. He said that's the way to do it.
He got back to me about tamoxifen, he said I MUST take it but he didn't say more about what happen after I stop taking it. Sign....
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Juneping :you are brave to drink those teas out of the bag
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Srh,
I am Chinese, and I had something worse than this. Don't get me wrong I don't like the taste but def not the worst the most bitter ones I've had.
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juneping - Thanks for sharing that with us. I see my oncologist in February sometime, so I will ask about what happens if one stops.
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Abigail, thanks.
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Hi - seaweed versus chlorella algaepwder, which is richest in iodine - jod?
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or kelp?
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just googled pioneer07. he seems to be a pharmacy student or a pharmacist
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Does anyone take Ashwagandha?
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Juneping....so weird that Wong said you MUST take Tamoxifen and he says I don't have to take it, not worth the side effects and that his herbs are just as powerful? I must say, sometimes his inconsistencies worry me.
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Light, I had promised to attend the nutrition webinar and report back. At the last minute I had a meeting at the same time that I could not cancel. However, I got an email from them, and by the 23rd, you can listen to it online:
"If you were unable to listen today or would like to hear the webinar again, you may listen to a recording online in our MP3 Library starting on January 23. If your computer does not have a media player installed, you may download a free copy at the website of Adobe Flash Player or Windows Media Player."
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jojo,
Do you mind telling me what's your % of your ER/PR??
It also might have to do with our health status...he said I am weak...
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Hi June, My ER+ was 88 and my Pr+ was 80...so, still pretty high. He did not say I was weak, though. Maybe also has something to do with the energy test and tongue test he does?
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He was concerned, though, because my WBC was extremely low...he thought I had chemo and didn't believe me at first when I said no. I did lose a lot of blood after my two surgeries. Who knows. I am very happy with his treatment, nonetheless, my menstrual cycles are very light now (HEAVY b4) and my rosacea is gone which he says is all because he has balanced my hormones.
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Also, forgot to mention that Dr. Wong said that if I decide to go the Tamoxifen route that I would need to take a Tamoxifen responsiveness test...I didn't know that existed?
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Cool Momine, thanks!
Peacestrength- I take ashwaghanda, just not consistently.
Glorianna, regarding seaweed, I think Jojo had mentioned but I had read a warning too that much of the seaweed in markets is from near Japan, and some had been found to have dangerous levels of radiation. I don't know though. If I were going the seaweed route, I would look at the source, just to be on the safe side.
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I believe ashwaghanda is one of the herbs in my tea?
I wouldn't go near any seaweed now...
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oh I see. Mine is 90% on both and may be that's high for him.
He also asked about my cycles and I was seeing some other Chinese doc who didn't help but worsen my cycle. He frowned and said it's not good. After taking his herbs and my cycle didn't come early and It should be tomorrow. We will see.
Few months before I felt the lump I was drinking the other docs herbs and stopped after three months. Then started drinking soy milk (I made them)...I had my blood work done back in march and my hormone was okay I wasn't menopausal and I am only 41. those could be the reasons the lump got huge. I could feel it got bigger after just a month.
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Just a personal note. I took Tamoxifen for 5 years the first time I had BC 12 years ago (so stopped about 7 years ago) and then I got BC in my other breast (diagnosed 2013). I am not sure if it would have helped to take the Tamoxifen for 10 years but I did ask my Oncologist that when I saw him the first time for this diagnosis and he said the research about the 10 years vs. 5 years is new but didn't disagree that it may have helped me to take it 10 years since I was so young the first time (29). Who knows! I am trying not to focus on what might have been - just moving forward.
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hipz - thanks for chiming in about the tamxo.
really appreciate it. i like that attitude. i made my decision and now i just need to have faith in myself and God that if my times is up, my time is up.
btw, my onco score came back. 22. thank god not a 50+ score.
i have been reading around this board...boy so many stories.
in this alternative sub category, i felt some pro conventional posters just came in and tried to paint a dark image but clearly i've read some positive stories. i just guess, may be chemo is such a hell to go thru so it must be worth it for ppl who went thru it. so it must be the golden gate to good health. how dare some of us not going thru that golden gate and live.
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I totally understand other survivors who underwent chemo being thrown off to discover there are others out there who chose not to do it. Who would want to have to even consider that you might not have had to do that?? I wouldn't want to be in that position. To be honest, the first time around for me it really didn't feel like a choice because I had three doctors telling me to do it or I could die (for a stage 1 tumor - I think not). Anyway, had I not had the personal experiences with my mothers hell of treatments and my increadibly stubborn nature I am not sure I wouldn't have done chemo too. A lot of time doctors don't really present treatments as a choice - more like a next step. It makes me sad.
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On a totally different note. Is there anything out there that you ladies would recommend for scars? I have been lathering on lotions with A,C & E vitamins as well as coconut butter on my mastectomy scars but they don't seem to be helping. I am going to have the scars re-opened anyway when I have my real implants put in in a month or two so I wanted to try something new after that surgery. Thoughts??
p.s. My PS said all the info about Vitamin E serum/cream being some miracle for your skin is a myth but I did see a poster at his office for something called Vitamin B serum -- anyone heard of that? I saw it on Amazon and it gets awesome reviews but I am cheap so don't want to buy it unless someone I know likes it!
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Contrarily - those of us who chose chemo are sometimes vilified by the alternative people about how could we put such poison into our system? For someone who is Her2neu +, Herceptin is truly a miracle - "the golden gate to health" - and is a monoclonal antibody, not a toxic drug, specifically targeting the type of cancer that we have. studies have shown that it is even more effective when combined with those "toxic poisons" - like Taxotere and Carboplatin - so that is what I chose to do. Herceptin has changed the outcome for people like me from our cancer being a death sentence to being a diagnosis we can live with. Sometimes western medicine is wonderful.
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Juneping and Flaviarose. I think you are both right. I also think that there is no need to judge anyone for their choices made to address their own health. It's a personal matter, and each person needs to be respected for that. I have been guilty a few times of jumping in on and defending the alternative side of the argument, defending those who have already decided to use them for whatever reasons. People using alternatives have been so consistently criticized, ridiculed, and bullied on this site, I had defended alternatives, because I believed that those who use them deserve respect and compassion here too. We posted our reasons and a ton of research and studies to back them up, and the ridicule continued. I, myself, lashed out, giving those doing the criticizing a taste of their own medicine, because they had never had to defend themselves like those using alternatives on these boards. So sorry, Flaviarose. Everyone here needs and deserves respect for the own individual choices no matter what they are. No need to defend them. Please be mindful ladies, and I apologize for setting a bad example in the heat of the debating and struggling to find a place for us here. Let's remember to have compassion for one another despite differences in individual health choices.
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lightandwind,
Totally agreed. It's kind of meaningless to come here and proclaim how wonderful chemo is. We all know that and we made another choice.
There's a lady went to the conventional thread and trash conventional treatment, she was not welcome at all, and that's an understatement. At least here most women (for the ones I read) are respectful. Wonder why ppl are into chemo and coming in here, for what??
we don't go into conventional treatment thread and tell them how wonderful alternative treatment is......it's so odd. i don't have that much time to wonder why ppl made their choice, i want to spend the time to do things made me happy (not causing other agony..lol)
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My mammograms missed both my cancers too. I was never offered an ultrasound and did not even know I had dense breasts until my last result came in the mail last week. The letter said I should speak to my physician regarding further tests----
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