October 2013 Chemotherapy

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  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    relocatedtarheel  I am with you on the greatness of a clear mind--I had my first taxol a week ago.  The bone pain was pretty crazy and lasted a full week, but I have loved actually thinking clearly.  After each A/C I was always asking my husband to remind me what day of the week it was, I couldn't even keep track of that!  I'm exhausted with this Taxol #1 but I think that has to do with my hemoglobin is really low.  I'm pretty sure that my next chemo will be held and I'll get a blood infusion instead, but I hope not.

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    paloverde  I did have emend and think it helped alot.  But, I'm not sure if I would pay out of pocket unless I knew I really needed it.  You might want to see how your first round goes without it.  I had zofran, phenergan, decadron and ativan for nausea as my at home meds.  The ativan I got after my first treatment and it was the magic bullet added to my drugs that tipped the nausea from horrendous to yucky but manageable.  Good luck!  I think one of the most important things is staying in touch with your MO, so if you aren't doing well they can keep trying things until you get things to a manageable level.

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    furfriend   Yay for heading towards your last chemo!! 

  • smrlvr
    smrlvr Member Posts: 422
    edited January 2014

    heading into taxol #1 tomorrow.  Can you ladies tell me if they give you and meds for SEs while on taxol?  If they did, what did they prescribe?  Thanks.  I am anxious.  I have to take the dexamethasone tonight as a premed and I am afraid no sleep for me!

  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited January 2014

    smrlvr...taxol is a dream compared to A/C... I had the same nausea meds but never needed one. I do have a painkiller to help me sleep the 3 nights the bone/joint pain kept me awake after the first treatment.  All WAY better.

  • kcat2013
    kcat2013 Member Posts: 391
    edited January 2014

    smrlvr   My premeds and at home meds were the same for Taxol.  Although my MO said they often don't give emend with Taxol because it generally doesn't cause as much nausea as A/C.  But I had such bad nausea with the A/C that MO suggested we go ahead and keep the emend for me.  My nausea was way less with my first Taxol.  I still took nausea meds, but not all and not near as often.  

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited January 2014

    smrlvr

     I get the same pre meds with Taxol as I got with A&C. Anti nausea, Pepcid, Benadryl & steroid. The decadron I asked to be cut way back a few weeks ago. Just didn't feel I needed that amount of steroid.

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited January 2014

    Hey Ladies!  Hope everyone is doing well.  I miss you all!!!  

    I am on the after-chemo side now....fatigue has improved dramatically and I am back to work.   I started tamoxifen and these hot flashes are no joke.  I am not complaining though b/c they seem easy compared to chemo.  I think of everyone on this board often and how much support you all gave me as well as advice!!  I have a little bit of hair coming in too.

    So, had Chest CT done last week and guess what...sarcoidosis worsened and appears I have some other chemo-induced pulmonary toxicities. Remember me complaining of wheezing, shortness of breath etc..?  well not surprising to me that lungs have stuff going on in them.  MO doesn't think new nodes are "cancerous" nodes but waiting to have pulm doctor's impression.  I see him tomorrow.  Keep fingers crossed for me.  Regardless, I am going for 2nd opinion on this sarcoidosis but it is not fun :)

    On a brighter note, I get my new "boob" on Monday with lift on other side. 

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    lg -- welcome back!   Yay for hair coming in and fatigue going bye bye!  ThumbsDown  Boo for sarcoidosis and toxicities -- BC just keeps on giving, doesn't it?  I hope pulm dr has the right answers for you.  Fingers and toes crossed.....  ((((( hugs))))))

  • smrlvr
    smrlvr Member Posts: 422
    edited January 2014

    lgk, I will be thinking about you.

    I had my first taxol today and don't feel as crummy As I used to on AC.

    I still have the sinus pressure that I have had since the first AC treatment.  Did any of you experience the same thing?  I mentioned it to the nurse today and she told the MO who suggested I get an MRI. I am not so sure it won't go away as the AC leaves my system, but I don't know. I also have had blood when I blow my nose, which makes me think sinus infection?  Just checking to see if this is a common SE.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited January 2014

    Hi Gals

    Last Chemo today with Mom image

    1/13/2014 Happy

  • ROAREUS
    ROAREUS Member Posts: 51
    edited January 2014

    Hello...  I hope everyone is doing well.

    Pain....  Thursday is my 3rd taxol treatment.  I have pain pain everywhere....  wrists, ankles, legs etc...  It feels like every joint hurts.  My question however is this.  I seems to have discomfort, not necessarily pain in both of my armpits as well.  Anyone have the same experience?

    Also, someone at work asked me if my chemo is working.  I didn't know how to answer that.....  How do they know if adjuvent chemo is working?  Of course my mind is going nuts thinking that it isn't working.... 

  • Pam358
    Pam358 Member Posts: 294
    edited January 2014

    Lg - sorry to hear that your Sarcoidosis has worsened and that there are some additional pulmonary issues.  I hope the Pulmonary Dr has some answers and that they don't involve any additional cancer.

    Furfriend - great photo!  Congratulations on being finished with Chemo!

    Roareus - When I've had pain following my Taxol treatments I too have had pain in my armpit areas, shoulders and upper arms on both sides.

    Spent some time in the ER on Sunday night and ended with a UTI diagnosis and an antibiotic. I'm hoping that I can still have chemo on Thursday as it is my last one!! I will meet with my MO on Thursday before my scheduled chemo.  I met with my RO yesterday and my simulation is scheduled for February 26th. I will be having 26 "regular" radiation treatments and 7 boosts. He would have started treatments earlier if I wanted him too but I wanted a little extra time so that I wouldn't have so many treatments in the middle of our lovely winter weather as I have about 1hr and 10 minutes to travel each way to radiation treatment.  The RO would prefer to have my port out as it is on my treatment side but did say he would work around it if my MO really thought I needed to keep it in.  Guess I'll find out that answer on Thursday.  

  • lonnie713
    lonnie713 Member Posts: 236
    edited January 2014

     I need to have my ovaries and uterus removed and wanted to get that done before starting radiation.  How soon after chemo can I get that done? Also, does anyone know how long you can wait to get radiation after chemo is completed? Is there a standard length if time?  

  • Pam358
    Pam358 Member Posts: 294
    edited January 2014

    I had my last chemotherapy today!!! :-))  I am feeling blessed that I was able to complete all 8 dose dense treatments on schedule without any major events or issues in between. I was also blessed to have a great medical team and to have all of you to help me get through!

    I did think I might feel a little more elated than I am, but I'm thinking that my brain knows that there are days of pain ahead and it won't let me celebrate just yet..lol

    Radiation simulation on 2/26 and radiation will start in March about a week later. Current treatment plan is for 33 sessions. Tamoxifen will start after radiation is complete. 

  • TeamKim
    TeamKim Member Posts: 568
    edited January 2014

    Pam -- Yippee!!!!  Congrats on being D-O-N-E!!!!!  Doing the happy dance with you!  I know you are expecting some SEs and holding the celebration until you get through those, but you might find they pass more quickly because you know this is the LAST TIME!!!!  You made it -- be proud, courageous warrior!

  • wrenn
    wrenn Member Posts: 2,707
    edited January 2014

    WTG Pam.  Seems like not that long ago you were just starting.  I'm sure it feels like forever to you.  Hoping for an easy time of it the next few days.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited January 2014

    Congrats Pam! So happy you are finished! I'm on Taxol #7 tomorrow! So I will have 5 to go. Everyone seems to be moving along. I am going to do BRCA testing tomorrow, They started offering the test at my office so I get a huge discount on it even if my insurance doesn't pay for it. I want to get it done for my daughter, so she can have some answers and to give me a definite decision on surgery options. Hopefully it will be negative. Hope everyone has a good weekend!!

  • 2timer
    2timer Member Posts: 590
    edited January 2014

    Had DD Taxol #3 yesterday.  The easiest one so far, only one stick to get the iv in my hand (the lady who does this is a pro and head of the blood draw (or whatever they call it dept) and she'd been called in a few times when they couldn't get an iv in.  So I request her now.  I find that taxol is much worse for me than AC.  I didn't have any real problems with AC except a bit of fatigue and hair loss -- and constipation.  I am having intense muscle/bone pain along with periodic diarrhea that is causing me serious problems.  I'm also having some mild neuropathy in my feet that is completely managable.  I hope it stays that way and disappears completey once I'm finished.  I'm on disability so I can manage.  I worked through AC but near the end I was getting tired.  Anyway, one more to go and I'll be finished with chemo and on to discussions about AI's. 

    I told my MO today that I didn't want my ovaries removed (if possible).  I have spent so much time in these forums getting all the info I can about chemo and how to deal with it and now I have to switch gears and learn about hormonals.  I have to admit, I'm nervous about taking them since I got bc while taking tamoxifen.  Plus they discussed seeing a dietary specialist and a physical therapist.  I need to start ramping up my excercise to rebound from chemo better.  Plus, I need to lose about 100 pounds to be at a normal weight.  This is more important than ever since fat produces estrogen.  I've tried for years to lose but couldn't stay on the wagon.  I understand that it's a lifestyle change and that is what makes it so hard.  But I need to give my self every chance of making sure I won't have to deal with this beast again and lowering my estrogen levels looks like the only way I can do this.  Glad to see everyone doing well.

  • travlmom
    travlmom Member Posts: 90
    edited January 2014

    Congrats Pam !!!!  

    I am getting very anxious to finish this part of the journey.  I had my herceptin infusion yesterday and they checked my magnesium and potassium levels again.  I am going back in today for another 4 gram bag of magnesium.  It is lower this week than last week.  I am taking 1200 mg of it a day already and eating nuts, dark green raw veggies and bananas as well.  My potassium was up a little bit but I am just barely over the low point.

    I asked my nurse yesterday about how things usually go after the final chemo and she told me that they usually switch from weekly herceptin to every 3-4 weeks. ???  Anyone know about this.  I do not see my MO until next week.  She also said they may even give a 3 week break before starting that regimen?  This seems a little odd to me.

    I hope everyone has a great weekend and think SPRING!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited January 2014

    travelmom - common to switch from weekly Herceptin to every 21 days.  Since they are not giving you any other meds with you can most likely tolerate the higher dose.  You are still getting the same amount of Herceptin over the course of the year, so don't worry.  I did not have weekly H, I had all three drugs together every 21 days, so I just continued on the same schedule, but others on the triple pos and TCH threads made the switch from weekly to every 3 weeks.

    pam - yay!

  • smrlvr
    smrlvr Member Posts: 422
    edited January 2014

    I just got a call from my PCP.  My MO sent my bloodwork results over and it seems my glucose is very high.  This has never happened to me, but diabetes does run in my family.  Can chemo drugs or the other meds cause this?  Now I need to have more bloodwork to,check my glucose in 2 weeks.  I am very worried about this.

  • Pam358
    Pam358 Member Posts: 294
    edited January 2014

    Thanks for all the congratulations!

    Wrenn - great new photo!

    Gram - good luck with your BRCA test - hoping it's negative!

    2 timer - it seems like I've had similar Taxol side effects but I like the mental clarity I have that I didn't think I had with all the medications and side effects I had with my A&C.  I too struggle with my weight and need to take off some more pounds -it's a difficult task.  Ironically, I was doing really well for a couple of months, (eating really well,  lost weight-30lbs) then I got my diagnosis and it set life into a tailspin. I knew I wouldn't be able to keep my focus on that journey but promised myself to try hard not to go backwards and gain it back since I worked so hard.  I'm happy to report that I was at least able to maintain. I'm hoping to lose a few more in the next month before I start radiation as I've been told I need to maintain the best I can during radiation.

    Travlmom - sorry to hear they still can't get a handle on your magnesium levels.

    Smrlvr - my glucose levels have been running high as well and I too have diabetes in my family.  I will need to follow up with my PCP.  I do know that steroids can effect blood sugar levels not sure what else may effect them.  My chemo nurse said that at the levels I was testing my PCP would most likely not treat me during chemo so I just needed to wait.  Actually my MO never even brought it up to me but we didn't go over my blood work at all - they gave me copies and said that I was OK for chemo and some of the numbers that were listed as high or low were normal for chemo patients and were nothing to worry about.  

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited January 2014

    congrats Pam!!

    Love the new pic Wrenn!

    Have hip pain now post chemo that won't go away. So tired all the time !

  • Malakies
    Malakies Member Posts: 40
    edited January 2014

    Hello everyone!

    Hope everyone is well. Just a little update on my progress. I've been doing weekly Taxol, and finished #4 this past Monday. Eight more to go! I honestly can't wait to get to the 12th one!! UGH No unbearable SE so far. Just really tired... but I managed to go to work for a few hours today!

    Other than that... life  moves along... soooo slowly lately!! UGH!

  • lonnie713
    lonnie713 Member Posts: 236
    edited January 2014

    Malakies,

    I had my 3rd Taxol on Friday, saying "I have 9 more to go" sounds better than saying "I'll be done on March 21st", which happens to be the day after my birthday.  The month and day just sounds so much longer to me. I have little to no SE's at all.   Very mild joint pain and that's it. Keeping fingers crossed that SE's don't come mid treatment.  Good luck with the next 8. 

  • Headeast
    Headeast Member Posts: 619
    edited January 2014

    Sorry I kind of dissapear the last weeks? Here is an update about me. I posted the same in the TC thread.

    I started on Tamoxifen on Dec 25 and no SE other than feeling extremely tired. I also started working on Jan 2.

    I feel tired, mainly from work driving to meetings back and forth and catching up after four months of being on medical leave. Lots to do and somewhat stressed for being so behind.

    My hair: they are growing but I don't see a full coverage yet, they started to grow a week or so ago but again, thin and not the full head. They must be now a quarter of an inch long. I am wearing the cutest wigs and they look so real and always perfect I love them. They are synthetic.

    My nails: they were dark after chemo 2, like a black shade. I had them cut very small. Now I am leaving them longer and with dark nail polish. A friend who owns a spa gave me organic nail polish and I am using that. They are growing long and healthy! Still not going for manis or pedis. I just got too scared of getting germs from places and my DH actually got Mrsa from one pedi place! That hapenned two years ago, but after that and now my BC I am doing them myself, at least for now until my strength come back. As I said, I still feel tired.

    My weight: I gained 30 lbs total, between getting the bad news of BC (10lbs), BMX (5-10lbs) and TC (10-15lbs). During the BMX I gained lbs mainly because I wasn't moving, the pain is indescriptible, you ladies know what I mean. Fluid retention is also an issue with the chemo and steroids. During TC I was earing mashed potatoes for breakfast, lots of carbs (noodles, potatoes, bread) that helped with the stomach cramps. I took Nexium and still do, but because of the past ulcers my stomach suffered. Now I am on a diet, only vegetables and fruits with small portions of meats. Nothing fried, no carbs, no sugars. I have lost 7lbs without starving myself. I am still swollen but that might take more weeks? Who knows...

    My skin: I had dry skin during chemo and for that I used Neutrogena sesame oil after my showers on damp skin. It worked very good plus the smell is very nice. On my face I was washing it and right after I used any face cream I had, still do the same. I still have to ask my MO about Botox but I will see him in two months so I don't have nothing to report on that topic. Oh! I shaved my legs for the first time! Those little suckers grow faster in my legs than in my head! I am using an electric shaver and won't use a razor anymore. I read somewhere that shaving the armpits and using deodorant right after is not good. I am using a deodorant I found that doesn't have aluminum chlorohydrate. The brand is Crystal Essence and has a pink ribbon on the cap.

    Look Good Feel Better: I went there this past Tuesday and the ladies were great. Lots of freebies and some good make up and tips. I still have my lashes, but they are thinning out. Same with my eyebrows. I am not sure if i will lose them all at week 8 like somebody mentioned, but at least I know now how to do them in case I lose them.

    TE: I have my exchange scheduled for January 31st. and I am thrilled about that. It is so uncomfortable to sleep with the TE and can't sleep on my side, the muscles hurt. Some people say with the implants I will be able to move freely!

    Well, that is all for now. I will keep reading all your posts and keep us up to date aith your progress!

  • Malakies
    Malakies Member Posts: 40
    edited January 2014

    Thanks Lonnie! You too! Good Luck! My last one (if all goes as planned without any hiccups) will be March 10. My birthday is March 3 and originally that is when the end of Taxol was supposed to be, but I had a week off where my blood count was low. I will be 50 and fabulous! UGH!! After chemo is done I will have surgery. I am not quite sure what I will chose to do.... a UMX or a BMX ... etc etc. My lump has completely disappeared, and that made my surgeon happy, she is hoping for skin sparing mastectomy. As time gets nearer, I will meet with plastic surgeon and breast surgeon and make decisions.

    Hope all is well with all the ladies!

  • Pam358
    Pam358 Member Posts: 294
    edited January 2014

    Headeast - thanks for the update!

    As predicted, the pain as a SE from Taxol on Thursday has kicked in. Usually I don't go out on these days, but I toughed it out and went to church and breakfast....then took a nap...lol  Taste buds are still missing in action, it seems worse this time around.  The whole meal I cooked last night seemed off but my family assured me it was just me!! They are not opting for frozen dinners yet....lol

  • lonnie713
    lonnie713 Member Posts: 236
    edited January 2014

    Malakies,

    How crazy is this, but I too had to skip one Taxol.  My count was low again on Friday but instead of skipping my oncologist decreased the dosage.  I was supposed to be done the week before my birthday.  You go miss 50 and fabulous!  I'll be 46.  Praying for both of us that there are no more hiccups and the rest of our treatments are smooth sailing.

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