Monday club lol

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  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    Jodi, I love it. Thanks for posting...

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    June- I just posted it on the emotional section here too.  I hope it gives someone a smile.  

    Today already has been rough.  I didn't sleep well- of course. And I got all three girls to school.  On the way home, I just started crying.  Crying because I miss my pre cancer life.  I think I am mourning that life now.  Realizing that is over.  I liked my life a lot.  I wish I could snap my fingers and it was a year ago.  I was off work then too, but I was holding a month old brand new baby girl in my arms.  I hate cancer:(

    I still am having a hard time wrapping my brain around the fact that I have it.  Surgery done, four rounds of chemo done, weekly 12 hour road trips to MD Anderson- yet I surprised myself this morning realizing what all that meant.  I am terrified that it will come back somewhere else.  I am terrified of mets.  Maybe it is because of the awful 48 hours when they thought it was in my femur.  I guess I haven't gotten over that.  No sure I will.  I heard a doctor already say to me we think it moved.  Not in those words, but still.  I guess I am now so scared next time it will be true!  

    What should I do?  Is this normal?  My reaction to all this?  Do I need help or maybe some form of anxiety med?  Is anyone else taking anything?  I am now alone in a house where the rest of the family is doing wha they did before I got sick.  But I am here.  I think I need to get into a yoga class or something!  

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    Jodi,

    Yoga is good and it will give you serenity.

    I think most of us afraid the cancer met to somewhere else and I am a firm believer have a positive attitude -- have a happy mental state and eat right. I have been drinking raw milk dairy products and organic and farmers markets produce. That just makes me feel so much better. If you are ER PR positive try no cow diet unless you know the cow was grass fed his/her life time 

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    Jodi it's time to throw it all to the wind. What will be will be. Have your girls ever been to Disney? Good time to take em. You can find a window of time, after chemo maybe, when you can make dreams come true. I am revisiting my bucket list. I thought I had way more time, but there really was a list of things I wished to do. 

    So I'm taking a vacay between this and more knife work to spend time on the beach, eat exotic food, dance all night. I feel really good about it - yes next month's mortgage will be a bit of a challenge (just spent it) but without some fun, what are we doing? I'm taking the advice of an old sage:  life is for living!

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Red, that's terrible news about them not getting all the tumors--you sound so calm.  I'm afraid I'd be on a cussing spree right now. Please let us know how this all turns out.  If I weren't having both removed I'd take a sharpie and write "This boob!" on the one that goes.  Surgery this Thursday and I'm way last out of this group.  

    Jodi, you're at a very rough point in your treatment I imagine. It has just got to get so discouraging and I'm glad you still have your hair.  I'm still not sure about a wig--I hope I'll like my hats just fine.  May I add another one to your list--June made me think of it, though I'm not getting at her--we can say this stuff.  It's people telling me to stay positive.  And the first word that goes thru my mind is "Right!"  Said in my best Bill Cosby tone of voice of course.  I mean, I am positive most of the time, but there are moments. . . and I know you all know what i"m talking about.  

    June, how are you feeling?  I would love to find some raw dairy products around here.  I think I've located a source of grassfed beef so going to look into that.  Have you been reading Weston Price stuff?  He was an amazing man and the research he did could never be duplicated.  I"m on the ketogenic diet right now and don't use dairy so it's quite restrictive.  

    I've been up at school all weekend laying things out for two weeks lesson plans for the sub.  She's an experienced teacher so I'm feeling the pressure to be impressive.  Ugh, enough stress already.  Last night I went to my last dance for awhile and flirted with the handsomest man there--he never talks to me at all, though he does to everyone else and I just had a lightbulb moment last night--he's acting the exact same way that I do when I have a crush on someone, so I put on the pressure.  I choose to believe that anyway--I know I sound like a teenager but dammit, life doesn't stop here and it keeps me positive, lol.  I sure hope I can get back to it, and quickly, but Jodi, I was thinking as I read your note that we will never be the same--life will never be the same life at all.  And that might be a good thing.  

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    piper,

    Oh good luck with the surgery....is someone going to take care of you? The first couple of days can be quite tough. 

    Keep us posted....

    Oh you are on ketogenic diet, how long they put you on? I read it can be done in three to five days to stave off the cancer cells. I want to do it. It's very restrictive for sure. If i do it, I'll probably just do it for a week but not going to consult a professional. 

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    OK ladies, what's a ketogenic diet?

    I'll write more later, but what is it?

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    red,

    here is the link 

    http://www.canceractive.com/cancer-active-page-lin...

    i talked to an alternative doctor who told me even food is important but our mentality, contentedness in life, stress level (more on an emotional, personal life way, or work stress that cause you emotional) that's the biggest factor. 

    i also want to mention the article mentioned no dairy products, but i would have to say if you can get your hands on the grass fed raw milk and grass fed beef, you can still consume those. in case you don't know the source of the cows, if you are doing chemo, may be skip the raw milk. 

    EU already banned the hormone injected to their cows but the FDA still think it's okay for human consumption. i don't know how it's done in Canada though but i have a gut feeling it might be the same. that's why more and more ppl have breast cancer and prostate cancer. doctors believe it's the technology that can detect cancer earlier....may be but if you talk to ppl, everyone got a family/friend had cancer. it wasn't this common before. 


  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    check out this link for your local farmers market...where you can get veggi/fruits have no pesticides, meat have no grown hormones and were pastured fed, led a happy life. 

    http://www.farmersmarket.com/

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Yes June, I went on this on my own and started the day after Christmas.  I am in full ketosis according to the strips but once I took off that first five pounds, I'm having a hard time getting any more off.  I decided to do this for a couple of reasons:  1.  It really can kick back cancer cells.  I can't tell any diff but I don't have a lump either, and 2.  I'm prediabetic as well and even now my fasting glucose is reading 106--it hasn't gone down at all.   I'm afraid that the shock of surgery will tip me over into full blown diabetes--have heard that it can, and I only want to deal with one health problem at a time.  Also have heard that if you're diabetic they won't do recon b/c of healing and infection issues.  I'm too vain to not have it done!  This whole thing about my BS staying high and not losing any pounds is kind of concerning me--is that even possible? I do exercise.   

    Red, the best way to explain it is that it's like the Atkins induction program--no carbs, or only the ones you get from some nuts and leafy vegetables and stuff like broccoli. They say the reason it works is that you starve the sugar hungry cancer cells.  It's stricter than Atkins induction b/c you're not allowed dairy.  I heard that Atkins had been experimenting with his diet for cancer and wasn't getting consistent results and so the latest is to leave out dairy.  No matter--I think it causes me problems anyway. I don't really think dairy caused my cancer b/c I don't use that much anyway--I would if I could get it raw.  If I feel well enough this summer I'm going to grow a garden.  Maybe I can have my students come over and weed.  LOL.  I have 2 acres here--could even get chickens and a cow.  Better wait and see how I feel though.  

    And yes June, I think stress was the biggest contributor to my cancer--it has been one hellaciously stressful last 5 years and just about the time I thought things were calming down and I could coast, I looked in the bathroom mirror as I was putting on my deodorant. . .  And now tonight I just had a horrendous fight with my 19 yo daughter which ended with us falling into each other's arms sobbing.  At least we resolved it before bed--it's been going on for days.  She was acting so insensitive and uncaring, which was really hurting me, and turned out she was just as scared as me.  And yes my aunt is coming to stay with me--she is a retired RN and long time cancer survivor herself.  

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    piper,

    That's nice you made up with you daughter. And your aunt is coming. I'll pray for you. 

    It might take a while for the diet to kick in. Give it some time....

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Oooh, last night was a perfect storm and I am a mess this morning and wish I had something to take to relax me.  I was up from 4:30 am after getting to bed at 12:30 due to the fight.  I started my period (again!) 2 weeks after the last and thought that maybe it would be light due to being so soon again, but no!  It's another one from hell--bled all over the bathroom floor waiting for my shower.  Scared to death of surgery b/c I react to anesthesia, which they didn't take seriously, and now I have to go to work! And I can't stop crying. 

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    pipers - how did your day go? hope it's alight...

    red - how are you?

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Kinda sucked June, but I'm grateful I got thru it without crying after I got to school.  A thought occurred to me this afternoon.  My blood count always runs low, and a couple of months ago the doc told me to get back on my iron pills, which I have done and haven't got my results back from pre-op testing yet but if it was borderline, they'll probably have to cancel the surgery or give a blood transfusion.  Yikes, I've had 3 really heavy periods since the first blood test and can't seem to put the iron in as fast as it goes out.  

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    piper...

    Oh that's a bump in the road. Hope your blood came out fine.

    Regarding the diet, may be add detox into your regimen. I heard aloe is good for detoxing. Drink one empty stomach in the morning. Or google about detox....

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    June I'm fine. Still in the limbo holding pattern till they finish the medical investigation and get my oncotype score. Nothing really new. But....

    Pipers, June and Jodi, I have a problem with all these diets so I just have been staying out of the convos a bit. I did research the ones yiu mentioned tho.

    Pipers, the ketogenic diet calls for flax seed and a number of other things that are really high in estrogen. My advice from the dietician was to steer clear of those things. My MO even gave me the max amounts of flax, primrose, Oregano oil, etc, that I'm allowed to take. And it wasn't much.

    Free range chickens are great but are the grains they are eating hormone free or was it bought as disease resistant strain? Those have hormones. Cows the same question and the same inquiry.

    I am all for us ladies trying to be as healthy as we can be under the circumstances. Fasting scares me cuz I figure my poor body needs as much help as it can get to fight against this RB. I want my immune system at the top of its game not wondering where it's nourishment has gone.

    I'm not very hungry right now, so I guess it's not even appropriate for me to talk about diets. But, please think it through from one end to the other before embarking on a diet. 

    OK lecture over. Aren't I a bundle of laughs? Sorry, ladies, now you know why I have been reticent with my replies. Kinda feels good to tell u though, like I can talk about other stuff again. 

    So, my hubby bought me a Ho! Came home last week and he said he was on the Shopping Channel. My cue to say how much and what did you buy me? He said two hundred mumble mumble dollars and he bought me a Ho. I said she better be good for that kind of cash. 

    It's actually an electrical stimulation unit that massages you for 15 second the zaps you with unbelievably intense electricity for 5. 

    I'm thinking of putting parental controls on the Shopping Channel.

    Lubs to everyone. Have a great evening!!!!


  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    red,

    re the chicken and beef....as long as they don't have antibiotics and hormone in them, i think they are good to go. but those pastured fed are the best, the way God intended. those grain fed can be categorized as organic. i read this book by Nina Planck - REAL FOOD, What to eat and Why. it is mind opening. i use it as a guideline. it really shows the evolution of food or the food industry. and i am reading this book called What your Doctors MIGHT NOT tell you about breast cancer. i am reading it now, it tells readers about hormones and what to do to avoid cancer or recurrent and why we got cancer at the first place. 

    one thing we all cannot control is our predisposition that some are born stronger and some are not. but there're things we can do to avoid. not gonna lie, it's intriguing and mind blowing. someone recommended it on another thread. it helps to opt for your treatment plan.

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    OK, good for you for researching. But what are the cows and chickens eating?

    Before you make a decision, do me the favor of looking at the complete opposite side of the story too. Look at those doctors who debunk that theory too. Not just those who think it's great. That info is out there toi.

    You know I love your girls more than my luggage. Please don't be mad at me for disagreeing.

    {{{{{{huggles}}}}}}}}

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    red...

    don't worry...not mad at you at all. it's healthy eating, not really a way to cure cancer (for me...). but i want to use the diet to build a strong body, immune system.

    both cows and the chicken roaming around, eating traditional food...lol

    cows eat grass and hay and chicken eat anything like grains, worms, left over, grass...

    if you read the book (real food), it'll tell you how awful the foods are in those regular supermarkets.

    oh, what theory did the doctors debunk?? diet?

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Not mad at all Red.  I hear you and I know what I'm eating is not ideal down here in Walmart-land, but I just decided that my biggest priority right now is getting my sugar down and nature doc is in complete agreement--I mean, there's other ways that might be better, like juicing maybe, but keto is like emergency blood sugar lowering.  I'm not sure that I expect it to cure my cancer, though it has for some--I just want it to not feed the cancer.  

  • RedReading
    RedReading Member Posts: 2,143
    edited January 2014

    Hi, all. Nope. No criticism meant - glad none was taken. 

    Well I'm off in 9 hours for a week in the sun. I will miss you all and I promise to write again as soon as I can. 

    Hugs'n'kisses to you all.

    Muah

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    red, have a great trip!!

    One more week I'll be on a break. I just submitted my disability application. I need some time to heal recover....

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    jodi,

    how are you doing?? haven't seen you for a few days....hope you are feeling alright.

  • KLJ
    KLJ Member Posts: 284
    edited January 2014

    Wow! Just read almost every post on this thread and I seriously could have written a lot of them. Had my first melt down today. I think the closer I get to my appt. on Weds. with the surgeon the worse it will get. Seems like this has been going on forever. Diagnosed on Dec. 12th. Movers came to our house in FL and packed us up and we headed out to CO for Christmas with my oldest daughter. She was diagnosed 2 years ago with Triple Negative BC at the age of 31. 2 rounds of chemo and a dbl mast. I thought we were done with BC and then wham, here I am with it.

    Because of our move it has delayed me getting anything more done besides what was done in FL. I have had 2 MRI guided biopsy's done and 2 aspirations. So all I know is that I have DCIS and IDC. How much more has to happen before I can get a stage and a grade? I suppose I will find out on Weds. Trying to keep it together and get a list of questions together but really feel like I have been left in limbo. I just want this over with. And I don't do well with crying. The tears start and don't want to stop. I'm not one of those people that can cry and then just look like nothing every happened. My youngest daughter came by this morning and I am sure she knew what was up but didn't say anything. And I am sure she is worried about herself. What are the odds of 2 out of 3 getting breast cancer? My daughter was give the BRCA test and it came back negative and our cancers are completely different but it sure does make me wonder. We are both dental assistants, worked in the same office, and sterilized instruments with the same carcinogenic chemicals. Hers was determined to be environmental but mine is hormonal.

    Sorry, I could go on and on but I'll leave it at this for now! Thanks for listening!

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    KLJ,

    sorry about your diagnosis. don't worry about the stage right now...it's actually the less you know the better you'll feel later. 

    when i first found out, it's pre stage 1, then the BS examed me, she thought it's stage 1 or 2. then after surgery it's stage 3. it just kept escalating. so whatever they said pre-surgery isn't that important. i am reading a book about BC, and it's really random who gets BC and who doesn't. it seems like everything in our live can cause cancer. after BC, i just strongly suggest to my family and my friends (who i care and close to) to go all the way organic....no beef and dairy from regular supermarket. allow yourself some time to grieve and calm down but eventually you have to pick yourself up. i had a mild depression before BC and now not that i don't have it anymore but i keep telling myself that i need to do at least one activity to make my life not wasted.

    (((hugs)))

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    I am doing good y'all!  I have a Facebook page called, Cheer for Jodi, if you want to check it out.  I am just as honest on that as I am here:) 5 rounds of taxol done.  7 more to go!  I shaved my head yesterday.    I guess that was the last big thing for me to face and it is past me know.  I have a little more info on my situation.

    I have an internal lymph node that is positive (close to my lung). It will require some specialist to operate the radiation procedure.  I met that doctor and love him!  He was the first one to say I was going to beat this and was confused why I asked.  I explained about the bone scan and he said that he read about that.  I also asked if they would continue to scan to make sure it hasn't spread.  Again he said yes.  I like him more than my oncologist:).   This means I will be in Houston 5 days a week for radiation:(. We were hoping that part could be done at home.

     Of course I have to be special lol!  He did say that I was smart for coming there.  That they knew what and where to look and that this is hardly found elsewhere.  Which means- it would have spread and come back tragically.

     So scary but so happy I followed my gut and did everything so fast.  What I had In me needed to come out!  And blessed they found the node!  Remember though most cases do not require fast action.  Mine did.  

    K- I am sorry about your dx:(. We will try to help you out in anyway possible.  We are all going through this, but different paths which makes it so interesting!  

    Red- so jealous!  I will have a three weeks off between FAC and radiation.  I plan on seeing some waves then.  We are also planning a Disneyworld trip for next May.  We are huge didn't people and it has been 3 years since we went last.  I mean my daughters and I are Disney!  DH just trails along:). But now we will have a new princess to take.  All three girls will have had there first Disney trip at 2 1/2 years old.  And my middle one, Ellison, will be graduating kindergarten on her birthday that May.  We will skip the last week of school (the older daughter, Emery, and me that is) and beat the summer crowd before Memorial Day:). Something to look forward too!

    June- thinking of you too!  I just keep thinking every week is one week closer to this being over:)

    Pipers-  sending positive thoughts for a peaceful recovery!

    Hugs everyone!!!

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    red- didn't people

    Is suppose to be Disney people

  • juneping
    juneping Member Posts: 1,594
    edited January 2014

    jodi,

    just liked your page...it's great, i will go often

  • pipers_dream
    pipers_dream Member Posts: 618
    edited January 2014

    Jodi, your babies are beautiful and you look beautiful too, hair or no hair.  

    My update:  I chose to postpone surgery per the suggestion of my naturopath, who feels strongly that it will be possible to shrink this and neaten up the borders so we can get a clean lumpectomy, rather than the full bmx.  We double checked with an MO at Siteman in StL and he said we have a little time to play with.  So, 2 mo out from dx and I still have boobs and feeling positive but not sure where it's going to go from here.  I'm choosing to trust now b/c this is the decision I made and pray it's the right one.  But honestly, with cancer, any decision you make is a scary one.  

  • Jodi040812
    Jodi040812 Member Posts: 383
    edited January 2014

    pipers-  all I can tell you is that MD Anderson likes to shrink it first too.  They go chemo, but still same thing shrink first. Remember it broke their rule without knowing and got a lot of crap for it lol!  What are you using or doing to shrink it?  Thanks so much about my girls!  They are all so different it's crazy!  

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