Did anyone make it through radiation with their skin okay?

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  • PamelaK
    PamelaK Member Posts: 11
    edited September 2013

    Hi Sciencegal,

    Everyone's experience is different. 

    Tomorrow I am finishing my 7.5 week daily radiation treatment - with the last 1.5 weeks doing "cone down" or "scar boost" treatments.  My skin has darkened and a rash has developed mostly in my armpit area and a little under my breast and there have been a few days where I couldn't wear a bra but other than that no major issues.  I have been really diligent with the directions my doctor and staff have given me during treatments:  no shaving under the armpit, no antiperspirants under the effected armpit, using Basis soap while bathing, using Aloe Vera gel, Calendula lotion, Aquaphor and Nature's Earth Vitamin E cream - and making sure that the area is washed of all these things prior to treatment.  It's important that no lotions or anything are used on the area before the treatment.  I always carry my calendula lotion and put it on in the dressing room directly after the treatment.  Oh and cortisone cream to help with the itchies.

    But no blisters or anything like that.  I have a tiny mole in the "scar boost" area and the doctor told me that it would probably fall off during treatment.  So far it hasn't and I haven't had any peeling.  Maybe that is still to come ?  Anyways, I have not had too bad of issues with my skin - now fatigue is a different story. :)

  • cordelia
    cordelia Member Posts: 23
    edited September 2013

    I just finished 28 rounds to 4 fields. My skin is a little pink, but otherwise fine. My r.o. Instructed me to brew strong green tea every night and spray it on my skin 4 times per day.

  • proudtospin
    proudtospin Member Posts: 5,972
    edited September 2013

    interesting on the green tea, never heard that one but it would be worth a try to me!

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    Thanks everyone for the input! It is great to collect success stories.



    Happy Sunday to all!!

  • sherry67
    sherry67 Member Posts: 556
    edited September 2013

    I used pure Aloe after each tx than Aquaphor at bedtime and my skin just got a little pink..my skin did darken a little like I had a suntan...

  • Annie54
    Annie54 Member Posts: 247
    edited September 2013

    Hi all,

    Funny about the green tea....I was a short order cook one summer during college and learned a trick about treating burns. Wet a tea bag (regular tea, not herbal) and lay it on the burn - amazing how quickly it takes the pain away! Have been using tea bags for burns ever since. I've been told it's the tannin in the tea that does the trick.

    Annie

  • sciencegal
    sciencegal Member Posts: 1,120
    edited September 2013

    I wanted to weigh in that, two months after finishing rads, my skin is fine, no discolorations, scar is looking minimal, implant is fine.



    No contraction, no pain, no infections. Supple skin, no scars from the peeling.



    For anyone else who is so worried, as I was, about getting radiation AFTER exchange surgery. I am really glad now that I had decided to do it that way.



    Good luck to EVERYONE facing radiation. It is really scary but we have had a lot of feedback here that things CAN be okay.



    Big hugs

  • sciencegal
    sciencegal Member Posts: 1,120
    edited December 2013

    Bumping for Tori

    Happy Holidays to all!

  • Cuculi
    Cuculi Member Posts: 148
    edited January 2014

    I am on my 18/37 rads, and like some of you quite nervous. I am fair skinned. Doing quite fine until know, although I am feeling more that area, kind of "stretched" ... I am using a lotion called Biafine my doc recommended to use 3 times a day. However the emu oil sounds vey helpful ... I will look for it to use it everyday. 

    Thanks for the info!

  • renygirl
    renygirl Member Posts: 2
    edited January 2014

    I took a 2 week (I think) break at the midway point of radiation and it was beneficial  for my skin. I never had any problems with my skin although I have a long chronic history of ezcema. I think the break was a good thing because my skin was starting to burn and it had time to heal.

  • FTell001
    FTell001 Member Posts: 13
    edited January 2014

    This board is such an anxiety reliever. I start rads soon. Reading all these positive posts have been a great help!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited January 2014

    yeap, just be alert to burns and YELL loud if you think you are burning!  docs are good at giving you stuff, best of luck and may the 35 or so sessions, go fast

  • sciencegal
    sciencegal Member Posts: 1,120
    edited January 2014

    Good luck ladies!

    I loved the emu oil and am still using it. my skin has healed completely, with no bad effects 4 months later, but still feels tight at times. I slather that stuff on and then it is all good.

    You will be through it in no time- hang in there!!

    Cheers

  • Shalimar630
    Shalimar630 Member Posts: 100
    edited January 2014

    Today is my last day of rads (Yea!) and I haven't had much discomfort. I agree with Pamela, no shaving, no deodorant. I washed off with dove before treatments and only used Calendula cream. I turned a bit red, but no open sores, blisters or anything. Skin does feel tight and rough. I have some swelling which the RO says will be there for awhile. She recommended massage lightly to try to move the fluid around. My follicles are more prominent due to swelling. I looked like I've been walked over with cleats...

    Best of luck to those just starting. Hope it treats you gently!

  • slv58
    slv58 Member Posts: 1,216
    edited January 2014

    just to chime in with my experience, finished rads aug 22, and my skin did very well. I used mostly only emu oil ( although my RO didn't want me using anything other than glaxol-I'm a bad girl;)) my skin did so well that the techs kept asking what I was using. I got a few tiny tiny blisters and itched a bit (used hydrocortisone a few times at night so I could sleep). 

    I did have a sunburn area for a couple weeks after completing rads but this gradually faded and now I'm just left with rad tats.

    One thing I've noticed is that on the bottom of my breast under nipple, I developed white stretch marks. My RO and MO were not concerned, so I guess that is what I'm left with. I did develop a sore shoulder, but not sure if this was due to surgery or rads. 

    Good luck everyone. There is a lot of good info  on the summer 2013 rads thread! Sciencegal is a wealth of good information and helped a lot of us! 

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    sciencegal, I'm so glad you started this thread. I have my simulation on Friday and I admit I'm really nervous about this whole process. I've been reading about such bad side effects, it's nice to hear about good outcomes. Thank you!

  • proudtospin
    proudtospin Member Posts: 5,972
    edited January 2014

    slow, I know I really did not have bad side effects, the time was draining but hey, this entire thing I a very exhausting time


  • lovestorun
    lovestorun Member Posts: 167
    edited January 2014

    Oh I remember being nervous.  I had no idea what to expect other than that I had only heard horror stories from people I knew who had been through radiation (they were treated at a different same health system than I was). 

    I went through radiation in Spring 2013.  For the most part I did fine - some itching and definite tenderness / mild sunburn-y feeling..  Nipple was *very* unhappy the last week and a week or so after.  (To my radiation onc's credit - she did warn me about this.)  I used RadX (given to me at the radiation center), aquaphor and a WholeFoods 365 lotion that I had approved by my radiation onc.  I tried lanolin on the nipple but it didn't seem to make a difference.  Only time seemed to help that.  I wore a lot of 100% cotton tank tops once I got home from work. 

    I was treated on my left side and did the gated breathing technique.  I only had problems when I started to think about *why* I was there and what they were doing.  If I visualized myself in a pool or at the beach snorkeling (I know!) - I was able to hold my breath just fines.  My techs were great and helped me through the one or two sessions when I had a hard time.   

    My skin has healed nicely and my scar did great (not sure if I should credit the surgeon, the radiation onc, the lotions or just good fortune).  I get the itchies every once in a random while. 

    The one thing I was unprepared for was sore pec muscles from repetitive motion months afterwards - think gardening, repainting a room kind of repetition.  Take it easy once you do feel well and remember to stretch, stretch stretch even though you are feeling fine. 

    I send positive energy and healing thoughts to those of you who are going through radiation now or who are getting ready to start.  Good luck!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    Thank you for the words of encouragement proudtospin & lovestorun. I'm so thankful for these boards.

  • MrsDarcy
    MrsDarcy Member Posts: 162
    edited January 2014

    I had my 7th of 21 treatments today.  I am getting a little more pinky-red as time goes by.  I had read somewhere on here about using pure aloe vera gel immediately after treatment (when getting dressed) and it really does help :).  

    My appointments are at 1:30 everyday so i put the aloe vera on right away then slather some Aquaphor around bed time.  I may have to adjust as time goes by but so far so good.  I am noticing little bumps (like heat rash pimples) but i usually get little bumps in the summer too so not overly concerned.  One thing the techs advised was to be sure to apply cream under the breast and i did notice that area can be a little more sensitive for me.

    It's still early in the game for me but I am hopeful things won't change too drastically.   My next hurdle is my Tamoxifen "do" or "don't" - so trying to read up on that now.

    In the meantime, I just keep focussing on my last day of rads and counting the days till then. :)

  • proudtospin
    proudtospin Member Posts: 5,972
    edited January 2014

    Juniper, yeap, start planning your end of rad celebration, sounds like you are hanging in.  And do not be shy if you think at any time that you need more help on creams.  me, I got itchie but they did have a cream for me that worked well

    good luck

  • MrsDarcy
    MrsDarcy Member Posts: 162
    edited January 2014

    Oddly enough I ditched the Aquaphor today.  I think that was causing the bumps.  I put some on last night before bed and it itched like heck !!

    Today I stuck with the aloe vera gel.  No itchies :).  

    Proudtospin - for sure I will get your advice if the aloe decides to fail me.  :)

  • proudtospin
    proudtospin Member Posts: 5,972
    edited January 2014

    the techs at my rad center were really helpful and I am betting yours will be to you as well

    important to speak up and ask for help, that is the very best advise I can give you, good luck

  • Tomboy
    Tomboy Member Posts: 3,945
    edited January 2014

    ....i used aloe straight from my plant several times a day, and miaderm an hour before rads and immediately after! no problem at all, except for a little bit of redness, that just turned into a tan. i was encouraged by another older woman who had told me, never stop moisturising, and i try to remember. but then, i was always more concerned about what it did internally, cause i have always been a tomboy,aand not that concerned with external appearances. that has changed somewhat though, as post treatment, i will take all the help i can get to look good! good luck to all going through this, you will do fine. i was the biggest baby of em all, and i did ok. ;0

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2014

    Thanks ScienceGal and all of you.  What a treat to find a REALLY positive thread.  I had a 2nd round of chemo after surgery so my rads have been delayed until February.  This month I get to kick back & do nothing but testing.  Glad to hear such encouraging stories.

  • MrsDarcy
    MrsDarcy Member Posts: 162
    edited January 2014

    Met with my RO today and she said all looked good minus a bit of swelling. She said if the aloe works to continue. I had another CT scan for the last part of my rads (boosts) and that should be it for awhile.  2 weeks to go and then I am done :)

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited January 2014

    Hello ladies!!

    When I was preparing for radiation, I read this thread because I wanted to know what to expect and have some hope that I would be OK.  So, I thought I should post my experience here to help others.  I had 28 whole breast radiation treatments and 6 boosts.  I had my treatment at 7:40AM on the way to work and the technicians were super-efficient.  By the time we got to the 3rd treatment, I was able to be on my way no later than 8AM....20 minutes. I was tired during treatment but I was able to work full time and the fatigue was definitely not as bad as chemo.  I am fair skinned and have large breasts and was expecting to get fried!  As it turned out, my skin started getting red around treatment #14 and I was uncomfortable by the time we got to treatment  #22, but not horrible...still able to work, sleep, etc.  At treatment # 22, I was able to take a weekend flight to my grandson's birthday party and I did well.  By the time I got to the boosts, my non-boost area was starting to heal (and itch).  The boost area became redder, but didn't peel until the healing was well underway.  As a result, I did not have skin breakdown, weeping, etc.  I used Aquaphor and found Aloe Vera do be very soothing (and cooling)at night.  I bought very soft bras to wear and they worked great.  I drank a lot of water and exercised every day.   I also used a lot of Johnson&Johnson gauze pads to cover the breast and hold the aquaphor against my skin when I was dressed.....I also used the aquaphor-laden gauze under my breast in the crease to minimize skin on skin friction.  If you are having your axilla radiated, you will want to take steps to reduce the skin on skin friction there as well.

     Just sharing this so that if you are facing radiation you will know that not all patients have serious skin and fatigue problems.  Yes, it can happen and if it does, make sure your doctor is supporting you!

    I am still concerned about the long term effects and risks of radiation treatment, but chose a lumpectomy and so I resigned myself to what I had signed up for in making that decision.   

    All the best!  MsP

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2014

    MsPharoah, thank you for all of the information! It's so encouraging to hear about good results. I have my simulation tomorrow.

    Junipergirl, I bet you can't wait to be finished. It sounds like you are having minimal side effects as well.

    Thanks for sharing all of the positive stories. It makes me less nervous.

  • sciencegal
    sciencegal Member Posts: 1,120
    edited January 2014

    Juniper and Slowdeepbreaths- how are you doing?

    I am glad to see more positive stories here. Other people's feedback on this thread REALLY helped me calm down before rads- and it turned out to be okay! I sure hope you have minimal side efffects as well. The radiation is a hassle, and very tiring, but is really worth it.

    Happy Sunday to all

  • sciencegal
    sciencegal Member Posts: 1,120
    edited March 2014

    Just an update, my skin and implant are okay, even though I did things "backwards"- adjuvant chemo first, then mastectomy and tissue expander, THEN switching from TE to regular implant less than two months later, with rads started a total of four months after finishing chemo (that is the furthest out they will let you go).

    I wanted to do it this way because I was worried about having the exchange surgery after rads, I was afraid the tissue would not heal as well as it would before rads.

    It worked out FINE. All is well.

    Just some info in case anyone else is considering going this route. I still dont understand why they can't just place the impant right away, during the mastectomy surgery. Some places are starting this, so maybe it will be standard of care in future years. Things are getting better for us all the time.

    Hugs



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