Chemo Brain - Experiences? Ideas?

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paloverde
paloverde Member Posts: 179

Chemo veterans,  

Spoke to my bosses today about my upcoming AC-T beginning on Jan 16.  Obviously they are very concerned, primarily for my well-being but, being bosses, also about whether I can keep covering my areas of responsibility effectively.  

Chemo brain is one of the top 3 things I was terrified about, starting the minute I was diagnosed and chemo was a possibility.  In my career - which I dearly hope is far from over - my clear sharp thinking and knowledge base have been my biggest strong suit.  Anything that would mess with that - even if it's temporary, but especially if it's not - would be devastating, at least from where I'm sitting at the moment.  

So what's the real story about chemo brain?  I've read that Ask-the-Expert online conference content from Oct 2008, here on the BC.org site.  But how about individual experiences?  And not just from career sisters but from everyone?  Were you able to find ways to mitigate it? 

Anything you can share would be SO appreciated.  Many thanks. 

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2014

    Hi Paloverde,

    We're so happy the Ask-the-Expert Conference was helpful. While you wait for others to weigh in with their experiences and tips, you may be interested in checking out the main Breastcancer.org site's page on Memory Loss for some tips to keep your memory sharp, as it relates to chemo brain.

    We hope this helps!

    --The Mods

  • Zillsnot4me
    Zillsnot4me Member Posts: 2,687
    edited January 2014

    I've had some instances but I never wavered on my children's allergies and kept up with their school stuff. They are my priority. 

     I do a lot of post it notes, try to pay bills with no children around, even put alarms on my phone. Not sure how much was chemo or is just plain fatigue. 

    I'm not currently working. Didn't want to take away from my children. 

    Not sure how helpful that is. 

  • Kicks
    Kicks Member Posts: 4,131
    edited January 2014

    I'm ADD (not only young males are ADD - some women are and have been their entire life)  so I have issues similar to what many say 'chemo brain' is all the time.  During TX, I did not take my ADD meds at all and did not notice any real difference in concentration/staying on track than my off med times.  Hubby said I was the same as I usually am when I decide to totally go off meds.  There are techniques used by ADDers to handle/cope that might help IF you have 'chemo brain'.   

  • Annie54
    Annie54 Member Posts: 247
    edited January 2014

    I was lucky and able to work all the way through chemo. My job entails lots of math and analysis so I was worried about being able to think straight enough to do my job well. I won't lie, my brain did get "fuzzy" and my short term memory was shot (still is 4 months pfc :() but I was able to maintain my work load - without making a lot of mistakes! I did have to go over the math several times to insure the results were correct but I haven't had any of my clients, bank reviewers, come back with any concerns....so I must of done OK!

  • lisa137
    lisa137 Member Posts: 569
    edited January 2014

    I am finding that during the 1st week after chemo (AC) -- specifically, days 4-7, I have an extremely difficult time concentrating, and I get very easily irritated and agitated if I MUST concentrate on anything for more than a few minutes. I'm an avid reader, but on those days, something about the way a paragraph of text looks reminds me of a mountain that I'd just rather not climb. I spend those days watching a lot of tv and sleeping. Whether it's the chemo or whether it's the combination of chemo and steroids...doesn't matter. It is what it is.

    Other than that though, no real big problems. I forget things, but that's attributable to the fact that I'm on .5 mg of klonipin twice a day plus have ativan occasionally for nausea. Any other concentration or forgetfulness or mind problems in general, I attribute to the fact that in the past 6 months I've had MRIs, biopsies, met a zillion doctors, techs and nurses, been diagnosed with cancer, had two teeth pulled,  had surgery to have both breasts and all nodes on one side removed, been through 3 cycles of chemo so far with more chemo and rads to come, lost my hair, and have been most likely thrown into sudden menopause: I've got a LOT on my mind!

  • paloverde
    paloverde Member Posts: 179
    edited January 2014

    Great thoughts all, thank you! 

  • ziggypop
    ziggypop Member Posts: 1,071
    edited January 2014

    I could not have possibly worked through chemo after the second treatment - couldn't stand up long enough to make a can of soup. No way I could have driven a car, walked from a parking lot into a building, etc.. My chemo brain was bad enough that I called my friend one night and talked to her for 45 minutes & then called her the next night - was about 20 minutes into the call when I realized that she was saying things that indicated that we had talked the day before. Landed in the hospital after the 5th treatment & they had to delay & cut the dosage of the last treatment in 1/2.

    On the other hand, my SIL worked through most of Chemo. 

    I was on TAC - neoadjuvant & I think it may be one of the tougher treatments but everybody's different.

  • DeliriumPie
    DeliriumPie Member Posts: 1,370
    edited January 2014

    my chemo brain experiences mostly involved routine and instinctual things. Like turning in the shower then stepping in with my underwear on, silly but true. Or doing things out of normal order, like putting shampoo in my hair first before shaving my legs, which I have done for a couple of decades.  One day I couldn't think of my work zip code for the life of me. But as far as work went, I was always able to focus and make quick decisions, write sensible emails and complete reports. It actually seemed like on the days that work would be impossibly busy, that I would perform best and forget about treatment and SEs. The fatigue was far worse on my brain than the chemo though, I am sure. And the irritability is a factor too. My team has learned not to bother me too much on treatment days, because I become very blunt with them. We have named it "chemo rage". Good luck to you with whatever you decide is best. If you can, try it out before making a decision one way or another. Many of my cycles resulted in different outcomes and taxol was a lot easier to function through than AC. 

  • paloverde
    paloverde Member Posts: 179
    edited January 2014

    DeliriumPie, your impossibly-busy work days sentence is exactly what I'm hoping for!!!  Thanks.

  • ProudMom_Wife
    ProudMom_Wife Member Posts: 634
    edited January 2014

    Hi paloverde,

    I did ddAC + ddT. My job requires logical thinking (software designer) and lots of computer work. I had a really tough time with the ddAC portion of the regimen and had to go out on medical leave, I think mainly because I didn't get enough sleep/rest (if lucky about 4 hours a day). Once I stopped working and started taking meds to help me sleep life improved and I thought I could go back to work during the Taxol portion, but my MO wanted me to stay out, so I did. I had issues related to concentration, couldn't remember words when communicating with others, forgot things easily, got irritable because I knew I was wasn't communicating like I should be. What I think helped me was playing lots of brain games, even if I lost or they took my longer to do (scrabble, suduko, chess, etc...), reading (even if I had to take notes to remember what I just read), keeping a journal, leaving post-its all over and setting my alarm so I would not forget things, and exercise/yoga. Things improved over time and when I went back to work I still wasn't back to where I was before but could function and produce good work, although it took me longer than before. Now I am 2.5 years out from finishing chemo and I don't see any impact on my work (and neither does my employer - good reviews). I still think I experience minor effects from chemo, but only my DH notices them now, then again maybe it is just because I am getting older and I just want to blame it on chemo brain.  

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