Too early for April 2012 mastectomy?

Options
1…454647484951»

Comments

  • ndroby
    ndroby Member Posts: 104
    edited March 2013

    Hey All,

    Work and health issues have kept me off the boards. Sorry I have been negligent in posting.

    It has been a year. Wow, how time flies. Life has been crazy for me. I had a hysterectomy in September, pneumonia in January, and now thought I was finally having the exchange surgery but...I have to have another set of expanders. I just found out that my skin was soooo thin at mastectomy time that I had to have serratus muscle used to hold in the expanders. The serratus muscle pushed everything to the sides, and now the PS wants to dissect the muscle away from the skin, place tear drop shaped expanders, fill them pretty full, and then do a fill schedule. 6 weeks after the last fill, we can plan exchange surgery. I will have drains this time as well...this really sucks! If this does not work, they are talking a muscle flap...I hope not.

    longislandmom--no worries--you'll be all clear.

    Lisamarie---I'm glad you like you new "girls".

    I wish I felt like celebrating, but I feel like I'm starting all over again.

    Take care,

    Nancy

    · Share on FacebookShare on Twitter
  • Lorili
    Lorili Member Posts: 14
    edited April 2013

    April 12th and scared!

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited April 2013

    awww lorili , I was scared too .. if ya like to pm me u can anytime ... Hugs 

    · Share on FacebookShare on Twitter
  • longislandmom
    longislandmom Member Posts: 248
    edited April 2013

    April Ladies--  what a difference a year makes!  i remember last year when each tick of the calender marked another BMX!  hope all of you are feeling strong and healthy. xxoooo

    · Share on FacebookShare on Twitter
  • rtnyc
    rtnyc Member Posts: 155
    edited May 2013

    longislandmom....any update on you? I do hope this finds you well

    · Share on FacebookShare on Twitter
  • Dianarose
    Dianarose Member Posts: 2,407
    edited May 2013

    I am going Tuesday for a consult on my Oophorectomy. I will get that at the same time as my exchange next month. Starting to get nervous all over again about another surgery. Can anyone who has had an Oophorectomy tell me how it was? I am not as nervous about the pain from the exchange because she said no dam drain tubes this time. I am a little nervous about how they will look though. I have had the dam TE's for over a yr and I am used to them and I know she has to go a little smaller.

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited May 2013

    Diana Rose , all I can say is the exchange is very easy . I had no pain really the first time , I however did have pain the second time . and no drains at all :) best of wishes for you . I hope everything goes well .. Big Hugs ! you got this girl . you have come so far .. xoxoxoxo

    · Share on FacebookShare on Twitter
  • ndroby
    ndroby Member Posts: 104
    edited June 2013

    Dianarose,

    No worries about the oophorectomy. They should be doing it laparoscopically....the biggest issue for me was gas pain with my laparoscopic hysterectomy. Make sure you get up and walk ASAP after the surgery and take a suppository so that you can get the plumbing working again.

    Don't feel badly about still having your TEs. I'm on my 2nd set, and now I have an infection. Taking antibiotics, but to no avail.

    In my next life, I'm coming back as a man...no uterus, no boobs, no childbearing, and I won't be carrying a purse!!!

    · Share on FacebookShare on Twitter
  • Dianarose
    Dianarose Member Posts: 2,407
    edited June 2013

    ndroby- I am packing some gas-X when I go to the hospital. Why are you on your 2nd set of TE's? I haven't had any issues with them other than they totally suck to sleep with and pull at my skin. I am with you as coming back as a man. They have it made. Women find them attractive even when they are bald. Doesn't quite work that way for a woman. Even when men have the salt and pepper hair it works for them. NO periods EVER, no Menopause, no hot flashes, instead a sports car. Even their shoes are designed for comfort. Jerks.....

    Well Wednesday will be here before I know it. Feel free to hop in my pocket. Surgery is at 8:15. I am glad it's early. I will miss my morning coffee. Dam.... They said not even water. How the hell am I supposed to swallow a Xanax without water???

    · Share on FacebookShare on Twitter
  • ndroby
    ndroby Member Posts: 104
    edited June 2013

    Dianarose,

    I was supposed to have exchange surgery in April, but...the original expanders were held in by chest wall muscle b/c my skin is so thin. This pushed everything to the side as it healed, and cosmetically they were unattractive. I had armpit boobies. Those expanders were removed and replaced with a teardrop shaped expander that will allow me to have the new 410 gummies. I have no idea when that will happen.

    Timeline for me has been:

    PBMX 4/2012

    Lap hysterectomy with oophorectomy 9/2012

    left lung pneumonia 1/2013

    had to wait 3 months to have anesthesia after that

    Revision of tissue expanders 4/2013

    Infection now....

    Who knows what will happen. This really bites.

    I just want to know how Angelina Jolie had her surgery so fast and she's done??? my husband says "$1,000,000.00 cash paid to the surgeon".

    Be ready for flash menopause. Hot flashes suck. I am using a Vivelle Dot estrogen patch. No uterus, no breasts, no problem! Some of the low dose antidepressants work on making them less of a bother---Effexor and one other that I cannot think of right now. I LOVE the patch!

    You can take the Xanax with a sip of water. You are in my thoughts and prayers. Post on the boards when you are up to it.

    Nancy

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited June 2013

    I miss all you ladies :) just sayin 

    · Share on FacebookShare on Twitter
  • Dianarose
    Dianarose Member Posts: 2,407
    edited June 2013

    ndroby- wow, you have had a tough time. I hope the infection gets better soon. I was put into menopause by 3rd week of chemo. If my hot flashes get any worse I will burst out in flames. I can't take anything with estrogen as my cancer was highly dependent on the stuff. I am going to have that sip of water or maybe black coffee to was the xanax down. I'm not doing this cold turkey. I am old and have absolutely nothing to prove.

    Talk to you all soon.

    Lisamarie- how did you make out with your car??

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited June 2013

    Diana Rose, the car is still broken .I got aa rental car to go to North Carolina . My daughter is graduating and my son is having aa baby . I have a long week ahead . I hope all is well .. xoxoxoxo

    · Share on FacebookShare on Twitter
  • ndroby
    ndroby Member Posts: 104
    edited June 2013

    Dianarose,

    Have been praying that all is well with you and that you are up and about after your surgery. Let me know how you're doing.

    Lisamarie,

    Safe journey. It sounds like you have a lot happening this week and weekend! SMile and enjoy!

    Nancy

    · Share on FacebookShare on Twitter
  • Dianarose
    Dianarose Member Posts: 2,407
    edited June 2013

    Got my path report back yesterday. Lobular was found in one of the ovaries. I am a hot mess.

    · Share on FacebookShare on Twitter
  • longislandmom
    longislandmom Member Posts: 248
    edited June 2013

    i haven't checked in for a while. just saw your post, Dianarose...UGH!  so sorry about your path report.  will keep you in my prayers.  Glad you got your ovaries removed and they were able to get it out.  Praying that's the end of it for you. 

    All OK with me.  am likely going to have another surgery after the summer to fix some cosmetic issues with my implants.  I have a lot of rippling and am going to have some fat grafting and perhaps swap implants.  going for another PS consult in the next couple of weeks, when i can get my act together.

    xxoo to all.

    · Share on FacebookShare on Twitter
  • Mardibra
    Mardibra Member Posts: 1,111
    edited June 2013

    Oh Diana...so sorry about your news.  That totally sucks.  I will be thinking positive thoughts for you.

    · Share on FacebookShare on Twitter
  • rtnyc
    rtnyc Member Posts: 155
    edited October 2013

    Hey girls. It's October Breast Cancer Awareness Month..boy are we all can't build the awareness any higher in this group!  Just thinking about all of us and just wanted to say thank you to all who was there back in April 2012 and has been here and around ever since.  couldn't have done this without all of you!  xo  

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited November 2013


    Hey everyone , It's November almost thanksgiving so I am stopping by to wish you all Happy Holidays ... Hoping everyone is doing okay .. Hugs

    Lisa Marie

    · Share on FacebookShare on Twitter
  • rtnyc
    rtnyc Member Posts: 155
    edited December 2013


    Happy December to all the April 2012 girls! Just thought I would say happy holidays and happy new year to all!


    Be well! xo Robbin

    · Share on FacebookShare on Twitter
  • GmaNiki
    GmaNiki Member Posts: 42
    edited December 2013

    It has been a really long time since I have posted here, but I am feeling so healed and better lately, I wanted to update.

    I am a frustrated writer, just too lazy really. It has been almost 2 years since I began this journey, it is the end of the year and my birthday was yesterday. Made my thinking very reflect, so anyway, I thought I would put together a sound track for my journey with BC.

    Opening with being asked to come back for a 2nd mamo and then scheduling a biopsy. - Why by Annie Lennox

    On to after the biopsy waiting for results - I Need You Now by Lady Antebellum - (I did not sleep much during that time and husband and friends were woken on may occasions)

    After the diagnosis and waiting to see the surgeon - Walking on Broken Glass  by Annie Lennox

    During the discussions with the surgeons - mastectomy - The Winner Takes it All - AbbA

    The healing process following the 3 surgeries - Stronger  by Kelly Clarkson

    Now after 1 full year of healing and getting used to the new normal - Roar by Katy Perry

    I have put these songs on a playlist and play them when I am feeling a bit overwhelmed and it helps me. Makes me remember how I felt and how theln and how I feel now (both physically and mentally.)

    Coping with the new normal is probably harder than anything I have ever done and often need to be reminded of what I have been through and the new normal starts to feel better.

    It looks like I will be dealing with Lymphedema and I will see if I need to update the soundtrack but this is it for now.

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited December 2013

    Hi Gmaniki.... glad to see you .. Happy New Year all ... My birthday was Dec 29 .. it was nice . I wish I was comfortable with myself but I am not .. maybe some day .. Hugs xoxox

    LisaMarie

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited January 2014

    Has anyone noticed that the implants stay cold all the time.. I think it is a creepy feeling ..like im dead ... and I get spasms when I am cold ... anyway just thought i would ask

    · Share on FacebookShare on Twitter
  • ndroby
    ndroby Member Posts: 104
    edited January 2014

    Mine are cold all the time, but I still get erect nipples. This freaked out my PS!! We thought I lost the left nipple, but it ended up just being the skin pigment. I will have tattooing February 6!

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited January 2014

    ndroby, I did not want to take any chances so I did not do any nipple sparring at all ... so I have none ,,, just scars and cold implants ... 

    LisaMarie 

    · Share on FacebookShare on Twitter
  • ndroby
    ndroby Member Posts: 104
    edited January 2014

    Lisamarie, will you do tattoos?

    · Share on FacebookShare on Twitter
  • lisamarie68
    lisamarie68 Member Posts: 1,235
    edited January 2014

    Ndroby, I am thinking about tattoos .. just not sure what way to go .. I don't know if I want to tattoo the nipple.. or get a pretty tattoo ... like flowers or something. I am already very inked up . I love tattoos ... anyway I am still thinking ... 

    Lisamarie

    · Share on FacebookShare on Twitter
  • longislandmom
    longislandmom Member Posts: 248
    edited December 2014

    Ladies....for some reason the old gang came to my mind tonight. we are all almost 3 years out.......am hoping and praying all are healthy and wishing you the best of everything for the Holiday Season and New Year.

    · Share on FacebookShare on Twitter

Categories