Time frame for bilateral masectomy with immediate reconstruction
Hi. I am scheduled to have a bilateral masectomy in January. Can anyone explain what I should expect for Pre surgery, during surgery and post surgery? What are normal time frames for everything to occur such as appointments, fills, permanents etc? How will breast surgeon monitor for no reoccurrence? They wouldn't do mammograms I'm assuming....
Comments
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Hello Mommyathome,
I had BMX surgery about 2 months after diagnosis. Pre-surgery, I had a MRI and blood work (CBC) so not too bad. Surgery day.....I had a spinal block pre-surgery, higher up than during childbirth...LOL but it was supposed to help recovery by lessening the pain signals your brain receives during surgery. You will have general anesthesia. During surgery I had a SNB, the pathologist was their to look at the SLN to determine if axillary lymph node dissection is necessary. Mine was neg so no more nodes taken. I had immediate reconstruction with TE placements with one drain on each side. The two surgeons worked together and the surgery was over in about 3 hours. After surgery, I was kept in the surgery center overnight. Nurses monitored BP, emptied the drains, and gave pain meds. I really did not have too much pain, more soreness, but I will tell you that the drains are literally a pain. Mine came out of me near the bottom of each arm pit, so the tubes rubbed against my skin, But this is temporary. My PS took out the first drain within 5 days and the second on day 7. You will not be allowed to lift after surgery for a month, but you will be up an around after a week or two. Appointments: get ready there are alot! I had appointments with the BS, MO and PS about a week after BMX, but I did spend most of my time at the PS. He was the one who monitored me for infection etc after surgery. My first fill was done in surgery. The second when the drains were removed, and then about every two weeks until we reached the correct size for my body. Once we achieved the correct size we stopped. For me, I started chemo in May. I had four treatments and finished in early July. They wanted to let me recover from chemo for 8 weeks before the exchange surgery. I had my exchange at the end of August, I received high profile silicone implants, they go in through the same incision from BMX and swap the TE for the implant. It was such a relief for me. The perm. implants are much much more comfortable. My BS surgeon sees me every 6 months to check for any recurrence. Its just a simple breast exam or implant exam or chest wall exam...LOL, really no big deal. The best part about BMX is NO MORE MAMMOSI hope this helps.
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Gully,
Yes your response did help me get a better sense of what to expect. Thank you!!! -
Hi, Mommyathome-
I was dx'd in September 2011 but thanks to some scheduling issues, didn't have my BMX until December 2011. I checked into the hospital that morning, went down to Radiology for my radioactive isotope shot in my breast (truthfully - nowhere near as bad as some of the stories I'd read here, more bee-stingish), and then went down to Pre-Op where a gazillion people took information from me.
I got to meet my Anesthesiologist, and explained that I wanted NO nausea after surgery ( I didn't) , as well as my whole medical team including my Nurse Navigator.
I got hooked up to a bunch of IVs and just waited. DH, and my BFF took turns keeping me company. Worst part was not getting any lunch.
After surgery, which took 3 or 4 hours, woke up briefly in Post-Op, had minor discomfort (and some nice pain meds) and went up to my room. Surgery had been delayed, so I got no dinner, either! I remember DH feeding me ice chips, then I sent him home.
I did have some pain, but had a PCA (patient controlled anesthesia) machine by my bed so I could press the button whenever I needed to. I do remember being VERY chatty with all the nurses who checked on me all night.
The next day I went home at noon. Bring a pillow to put under your seatbelt. I had my little nest set up in the bedroom, and for the next few days I slept a lot. I also learned to take my pain meds around the clock at first. Many women don't even need them at all. I am retired with no kids at home so my recovery was quiet.
I didn't mind the drains at all, and felt nothing when they were removed two weeks later. I kept clean with Baby Wipes and warm washcloths.
I got 180ccs of fills during my BMX, and a month later started getting fills every two weeks. My PS usually waits three months after the last fill for exchange but I waited a bit longer.
I got my permanent implants in August 2012. The thing that surprised me about this whole thing was how completely disabled I thought I 'd be after surgery, when the opposite was true. Both DH and I were amazed at how soon I became independent.
As far as monitoring, I had no rads and no chemo. I am on Femara for the next four years, and I see my Oncologist every three months. (I'm in a clinical study, or else it wouldn't be that often.)
Sometimes I can't believe how quickly the time has gone.
Wishing you the very best on your surgery in January! -
Blessings20,
Thanks for your response. I see the plastic surgeon tomorrow. I plan to take time later on tonight once the kids go to bed and make my list of questions. -
Ask what his plan is generally for the fills- some seem to fill alot during the surgery and do alot during each fill (maybe 100cc). Ladies seem to often have a harder time with that pace- its too much at a time. I had 100 during surgery and then my first after about 3-4 weeks, 50cc a week til I was overfilled by 100cc, which Im at now. He has his patients wait 8 weeks after last fill for exchange. Some will do it sooner, some longer. Are you having nipple sparing mastectomy, or skin sparing? That will make a difference in outcome also. I was unable to, ask Id just had an lx 10 days prior (path rept then showed invasives), so couldnt save the nipples or more skin.
Plan to be in the hospital a day or two. Take advantage of the good meds in the hospital! Youll need help at home for minimum a few days, probably longer. Wont be driving for a few weeks.
Join on the January 2014 surgery thread! and read thru the threads from August, Sept, etc-- theres tons of info and thoughts and experiences from people who have been thru it. Theres also a before,during and after surgery thread on the treatment board-- very helpful! -
Hi Mommyathome
Of course every situation is different and complications come up....
I had bi lat mastectomy 4/16. This was my first surgical procedure EVER. Go big or go home! Had very little pain, took few narcotics and felt great. You do need to take it easy since I overdid it, gave myself a hematoma (which was the most painful part as they opened me up again and took out hematoma, all while I was awake.) Had drains in for probably three weeks which is likely the most disruptive part. Started expansion at end of May and had I think 4 visits and then had impants swapped in 8/2013, which was a piece of cake. Have one more surgery this week to fill in some ripples and close up capsule.
Ask your surgeon to use an OncQ pump. It is a ball that is hooked up to two tubes that are left in below the breast that spray lidocaine (or some topical medication) over the mastectomy site and that lasts for about 3-5 days post surgery. I am convinced that is why I had little to no pain (honestly)
I am 45, very fit, 5' 6" about 119 lbs. Think that due to my fitness level and condition in advance lead to quick recovery. I would not be consumed with other people's experiences since everyone is different. Reading stuff on line while valuable, can also create fear, anxiety and question why something is not similar for you. Here is what I would say to prepare:
-- get comfy pajamas that button in front as well as lots of wide neck t shirts, sweatshirts, etc so you can step into them vs pull over head.
-- have a recliner ready, you will have drains so sleeping while those are is generally a challenge
-- hydrate! Also keep some of your favorite treats around since you will deserve that as you recover (candies, beverages, etc)
-- get a lanyard (badge holder you wear around neck) When you shower you can safety pin the drains through the tab onto the lanyard so the drains are not hanging down. Also get someone ready to wash hair in sink since you should not lift arms over head, even though you can shower soon after
-- take throat drops to hospital for sore throat post intubation
-- if you get motion sick at all ask for a scapolomine patch (anti nausea worn behind ear and kept on for several days) Breast surgery tends to exaggerate symptoms of motion sickness so from an anesthesia perspective I would encourage that. Other than dry mouth and blurred vision, it was better than sickness from anesthesia.
All in all, the past 9 months for me have been a hassle--no significant pain, had to change a few vacations, etc. With the exception of a few close friends and family, no one actually even was aware of what I had done (a few girlfriends wondered why they could not see a bra strap!) But in general I am a lucky one--after 1 0 years of biopsies, mammograms, ultra sounds, exams every six months, I sleep well now knowing my risk is minimal. No more mammos only physical exams. I had no chemo, rads, or anything so I truly feel blessed to almost have this behind me and consider myself fortunate compared with many on this site--good luck and god bless...
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Jlmpep
Thanks for your response!! -
hello Mommyathome, my story is similar to those already stated but a bit more rapid overall. I was diagnosed April 29, 2011 and had my BMX with sentinel node biopsy and expander insertion May 13, 2013.I was filled with 300cc's at surgery then waited 6 weeks before resuming fills. I had a total of 2 fills , 60 cc's each for a total of 420ccs. My exchange took place August 19, 2013 3 months after my BMX.I saw my PS twice post op before the fills and then 2 or 3 times after the exchange. I saw my BS every 6 weeks x's3 then every 4 months till this past November and now I'll see her in a year. I see my MO every 3-4 months and on my last visit in November she said she'll see me in 6 months. Both BS and MO do manual breast exams and I just had an MRI. To check the integrity of the implants and to check for any signs of disease in back of the implants. That's the whole bag for me.
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Thanks Docbabs! I wish my bilateral masectomy was tomorrow!!! This wait is awful. I don't have it until January 29! I know the bs is confident she got all the dcis and lcis etc when she performed the lumpectomy but im just soo worried that while I wait something could advance! I'm pretty emotional about having to have the surgery, but feel blessed that it was caught early by a routine mammogram. There were calcifications that were clustered and my bs was concerned and did stereotactic biopsy which found ADH. Then we did the lumpectomy which found dcis, more ADH, lcis etc. it seems every time I get a procedure down they find more! I am extremely worried that with the bilateral masectomy they'll find invasive!!! I am not prepared for that!!! I was able to prepare for the possibility of the dcis diagnosis but can't except invasive, chemo etc!!! I am very worried about the results, more so than the actual surgery if that makes sense. My mom and her sister were diagnosed within 2 months of each other. My aunt passed and my moms a 6 year survivor. This disease is so scary and unpredictable!!! I just can't wait for January 29 to come already!!!
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