October 2013 Chemotherapy

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  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Furfriend - what was your allergic reaction? Rash?

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Team,


    hands/finger extreme itchy with blisters. ..ecema/dermatitis perhaps? I took Benedryl for a few nights & I feel better but now my hands/fingers are cracked , bleeding , peeling and sore.

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    SchoolCounselor, thank you! I love my dogs, they are elves for the Holidays!

  • lovewins
    lovewins Member Posts: 881
    edited December 2013

    not sure if I am right furfriend do you put your hands in hot water a lot?  I have problem with feet and hands because I was taking a lot of hot showers.  I am also on different chemo but it is a side effect of mine.  just wanted to make suggestion incase it helps.  it is called foot and hand disease.  take care...m 

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2013


    Ok, so I am on day 3 of Taxol #2 and I feel terrible. I have some bone pain and had terrible abdominal cramps today. WTH I did well with A/C with hardly no side effects and now this was supposed to be easier and it sucks. Anyone have cramping on Taxol? I hope I feel better tomorrow, I'm off of work but back on Tues. I am wondering if they didn't give me the dexamethasone this time since I asked to cut it down. I will have to ask my once.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Hi Gram,


    I am sorry about your Se's. I have my 2nd Taxol tomorrow & not looking forward to it as usual. I am going to take an Ativan this time. Thanks to the lovely ladies here telling me it should help with my anxiety. I too noticed the bone pain with my 1st tx. I hope your pain subsides Grams. Take care.

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    Sorry about the pains ladies!! I have a new SE thrush!!! Any suggestions? I use the biotene mouthwash and probably should start eating yogurt. Is this a precursor to something else. Boy this is tough stuff.

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Furfriend -- does sound like hand and foot disease, which is a SE of the taxanes. -- Keeping you hands out of very hot or very cold water/ice, and using a good moisturizer (Aquaphor, Eucerin Calming Creme, etc) may give some relief. When I had hives for Taxotere! the Benedryl every 4 hours seemed to control the itching. Be sure to go over this with MO -- you may need steroids or other interventions to help.

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    Gram - I had abdominal cramping after my 1st taxol, also muscle and joint aches and pain. The majority of it lasted 3 days and then started to subside. I think the cramping just lasted a couple of days. I will be having my 2nd treatment on Wednesday (neulasta on Thur), not looking forward to Fri - Sun. There were more days with some pain but it didn't feel like I had been hit by a truck like those first three days.

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    hi everyone- need to catch up on posts but wondering if anyone else has had Chest tightening and slight wheezing. I have been struggling for a few days with this on and off. I try to calm myself down thinking i am overreacting but past 2 nights have had it. I thought perhaps was trying to fight off something like slight cold but it seems like cold air helps. It dawned on me tonight that it might be asthma. I have never had asthma before. It is scary of course which makes it worse. Wondering if anyone else is dealing with this. I think I will be calling MO tomorrow.

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    lgk, chemo brings lots of SE. I don't know of that one but I would think it has to do with the chemo. Let us know what your MO says.

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    thanks headeast I will. I have sarcoidosis in my lungs which complicates matters fore which is why MO puts on AC rather than TC. She told TC has chance of pu issues and with sarcoid she didn't want to risk it. Wondering if this is asthma or just me trying to fight off cold. I have been congested as well.


    I will keep u posted it is scary. One minute I feel ok and next I don't.

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    I would call now, lg -- that sounds like something you shouldn't mess with. My son had asthma as a child, and nothing really helped except albuterol. Given your complications, don't take a chance ( and the anxiety it provokes will be eased by getting some treatment as well).

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    lg - I hope you find answers, that does sound scary.

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Fatigue hit me BIG time with this Cytoxan-only tx -- spent 15 hours sleeping out of the last 24!!! But feeling much better today.... Good thing, since I have Christmas prep stuff to do!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    ok so I didn't call...slept with window open last night. Seemed to be ok once I feel asleep. I am going to see how I do tonight and if same thing then I will call.

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2013


    lg, I hope you are feeling better today!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2013

    schoolcounselor - you need Nystatin mouthwash for the thrush - it is a Rx so call your onc.  This is a very common SE, so don't be worried, but it may happen each tx.

    lg - I had very mild asthma associated with hay fever, mainly in the spring or when something is blooming, prior to breast cancer.  I rarely used an inhaler, but it did flare with chemo and I had a more difficult time with it.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    Good morning ladies. I saw my oncologist and he said that continuing chemo could kill me. He said that taxotere is known to cause bowel perforation and if I had positive nodes he would consider lowering my dosage but with negative nodes he thinks it is time to stop chemo. He said I will follow up with him every 3 months and referred me to a nutrition group. I am relieved to have that over with and will now deal with getting healthy in general and not focus on possible outcomes.


    Still watching and sending positive healthy peaceful hugs to those of you still dealing with SE. xo

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2013


    Wrenn, it sounds like your gut instinct was spot on, and it is nice at your MO agrees. It sounds like you will be watched carefully, and the referral to the nutritionist is nice. You'll have to share what he/she has to say. i hope you feel better and better each day.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    thanks Kbeee, he seemed really relieved that i was ok with stopping. He said he didn't want to kill me with the treatment and that some have died. He commended me for trying.


    About the nutrition he did say to avoid fat. I asked about sugar and he said there was no proof it did harm. Whew. It is hard for me to avoid sugar completely but i will tone it down. I will keep you posted on any information i,get.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    Oh my I hope all this improves & goes well with you Wrenn!


    BTW have you considered eliminating gluten (flour pasta breads crackers cereal cookies etc) from your diet? It made a HUGE difference for me. I have an intolerance & have been GF for 3 years. Just a thought....

  • Viji
    Viji Member Posts: 195
    edited December 2013


    Wrenn, glad you have some definite answers from your Onc. Wishing you all the best with your follow on treatment.

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013

    Vintagegal, I am going to try everything. Nutrition and exercise is my treatment now so I will be sure to do tons of research. I am also going to work on weaning from Nexium. It is really hard to do but it does interfere with absorption and has been known to cause diverticulitis too. I was just too comfortable with it all before but new year means new lifestyle. thanks everyone.

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013

    Wrenn - glad to hear both you and the MO are on the same page about how to proceed. I bet that makes your previous decision a bit easier since he is in agreement. Although, none of it is easy.

  • Macy187833
    Macy187833 Member Posts: 182
    edited December 2013

    wrenn, you are always so sweet and upbeat! Thank you to all you wonderful ladies for the help and support you have provided. I haven't been on here much lately but I hold all of you in my heart. 

  • Macy187833
    Macy187833 Member Posts: 182
    edited December 2013

    wrenn, you are always so sweet and upbeat! Thank you to all you wonderful ladies for the help and support you have provided. I haven't been on here much lately but I hold all of you in my heart. 

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013

    Wrenn -- Glad to hear you reached an agreement with your MO and that you have a proactive plan going forward -- (((hugs)))

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013

    Since I am allergic to T, I am supposed to get Gemzar instead on Thursday.  Anybody have any experience or info on "Gem?"

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013

    kbee-  doing much better haven't had an attack.  Was even able to shovel some.  I do have slight wheezing.  I have appt with MO on Friday for bloodwork and tamoxifen script.  I don't want to start...finally starting to feel like myself and  I don't want another drug into system.  Ok I will stop whining....

    Specialk-  I started biotin supplement thanks for suggestion. 

    Wren-  glad that you and MO are on same page.  I have been thinking of you as we all know how tough this road is.

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