TRIPLE POSITIVE GROUP

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  • NickyJ
    NickyJ Member Posts: 722
    edited December 2013


    Yay Pbrain!!🎊


    Nicky

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  • Bren58
    Bren58 Member Posts: 1,048
    edited December 2013


    Awesome news Pbrain! Hopefully your GI tract will settle down.

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    PBrin Wonderful

    LIZa I would think u'r eyebrows would come back soon--but who knows it's all different, I had the thickest hair. brow, and lashes before all this now forgetaboutit. But don't worry u'r brows should be coming back.

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  • momx2
    momx2 Member Posts: 109
    edited December 2013


    YAY ! PBrain


    Moonflower , you look great!

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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    anyone else following the news from the San Antonio Breast Cancer Symposium? Lots of interesting stuff... Especially for us her2 pos ladies.


    My most significant take is that it seems the medical community is seriously considering LESS treatments in many situations.


    This quote struck a chord with me and it is counterintuitive so I want to share. I hope I remember this if I am fortunate enough to go recurrence/ disease free for a long time.


    "Elissa Bantug (@EBantug)




    Balch-"The longer a pt goes w/o a recurrence; the more impt screening/surveillance becomes"<--importantance of survivorship care #SABCS13 (http://twitter.com/EBantug/status/410960922903982080)



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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    congrats PBrain!

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  • LindaKR
    LindaKR Member Posts: 1,577
    edited December 2013


    my eyebrows and lashes were the last to fall out and the last to come back, 3 years PFC and they're still thin.


    3 yrs post rads and my ribs and clavicle are still painful to the touch, and movement, and deep breathing. I've been told that is it's normal! Go figure;-)

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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    predict you will be seeing lots of headlines like this in the next few days..


    Use of Aromatase inhibitors prevents breast cancer....

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    Ashla, but creates what?????

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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    camillegal


    You are right! It is very misleading . Apparently there is a small subset of women who can benefit in prevention but the side effects as we know are very significant !

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  • lago
    lago Member Posts: 17,186
    edited December 2013


    LizA some people do come back slowly but I would ask your on about taxotere induced alopecia. It's not common but it does happen. My eyebrows and lashes are much thinner but I know that's due to Anastrozole. I think I've manage to keep most of my eyebrows because I started painting Minoxidil on them.

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  • ang7894
    ang7894 Member Posts: 540
    edited December 2013

    Pbrain yay!!!



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  • ang7894
    ang7894 Member Posts: 540
    edited December 2013

    OK a really big thank you to all of you that wrote a couple months ago on the pills situation. And a big one to my mother. I have since been very well and very busy , it turns out the only thing I ever knew was being a wife and a mother I really never worked.  I raised all 4 of my children. Anyway in this time frame my grandson was taken away from my one son and his girl friend went in to a foster home I was shocked and for once in a long time I realized he the grandson needed me as much as I needed him well today I was just told by the case worker that I will be having the little one in my home right after the first of the year.... 

    On a different note the spotting that I was starting to get,  my doctor thinks after almost 2 years that my female organs are waking up from chemo  WOW Almost  2 years later.... Today I am 2 years cancer survivor... I   had an vaginal ultra sound today we will see... sorry about the TMI... 

    AND a big thank you to all of you and this site...

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    Ang u sound good, I know there are some things going on, but u saved the day I certainly wish u all the best and u;r grandson is very lucky to have u, and now u;ll have him. And good luck being a teenager again with u'r period. LOL

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  • Pbrain
    Pbrain Member Posts: 863
    edited December 2013


    Thanks Ang, and congratulations on the 2 years and the little one coming to you! I'm so glad you are doing better, but never be ashamed of the tough times. We all go through them and all need to be better at asking for help when we do.


    Latisse Ladies! I promise. I have brows better than before chemo, and my lashes are very long and getting a bit thicker. During radiation I had NO lashes. It was bizarre!


    Ashla, can you add more twitter people we should follow for all of this information?

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  • lago
    lago Member Posts: 17,186
    edited December 2013


    ang7894 Yeah it can take 2 years or even longer for things to get back to normal. I think it took my 2 years to stop looking in the Walgreens circular to see if my brand of tampons were on sale. Hope you didn't get used to not looking

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  • naiviv
    naiviv Member Posts: 535
    edited December 2013


    There is a podcast from the symposium in a thread in Forum: Moderator Announcements, Breastcancer.org News, Blog Entries


    talking about arimedex. interesting.


    V

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  • NickyJ
    NickyJ Member Posts: 722
    edited December 2013


    Ang7894,


    Sorry that the situation had to happen, but it's great that you are there for your GS. As for ONLY being a wife and mother - there's no only about it! To raise 4kids is a big deal, and now to raise your GS as well; I lift my hat off to you.


    My last chemo was march2013, and I've had no periods since it started in August 2012. I have a gynae visit on Wednesday next week, I'm wondering whether I should ask her if I'd be better off having everything taken out......any thoughts?


    Nicky

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    Hi Nicky, Personally that was no issue for me, but I know my niece, in her mid 40-s had it done right away after all the chemo was done.??? She told me she didn't think twice about it. If that helps.

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  • NickyJ
    NickyJ Member Posts: 722
    edited December 2013


    it does, thanks Camille! I'll be 43 in January, so in theory I have a few years yet where it's an issue for me. I think it'd be easier to have it all out, but it's never been suggested. Going to at least raise the possibility and I'll see what's said.


    Nicky

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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    PBrain


    Twitter follow


    @chemobrainfog,@rsm2800,@jgralow,#SABCS13

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  • Girlstrong
    Girlstrong Member Posts: 438
    edited December 2013

    Hi girls....so I finished chemo yesterday and am feeling positive about going into he next phase of my recovery. Surgery will be on the list in January etc....  glad to hear that so many of you are doing well and looking so good!!

    Pbrain...when did you start using Latisse.  I asked my MO about it a couple of months ago and she said not while on chemo.  Let me know becuase i can't wait to ask at the next appointment in january.  Not that I am a vain person, I am just trying to get a sense of normalcy back; lashes would be nice.   

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    Girlstrong Glad that's over for u---after surgery are u done with chemo then? I hope so.

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  • Pbrain
    Pbrain Member Posts: 863
    edited December 2013


    Thanks Ashla! I'm just starting to twitter and tweet and I have no idea what I'm doing. I'm following and being followed by the strangest people...


    Girlstrong, I understand why your MO is saying that. I had lashes all through chemo and they were thick and long. After chemo, when I started radiation, seriously--overnight (!) they ALL fell out! I woke up the next morning and thought my mascara must be getting too old because I couldn't see any going on. I leaned over and looked in the mirror and I had absolutely not one lash left at all. Think of all the wishes I missed,


    They grew back within a week, so all of a sudden I had them again...for oh, maybe 2 weeks and the same thing happened. What I learned is that lashes grow in a synchronized cycle after chemo, so they all fell out because new ones were ready to come in. I have no clue why they fall out again, but my boss had the same experience. So I bet your MO is just trying to save you some money. I started the latisse after radiation and use it on my brows and eyelashes. My lashes aren't as thick as they used to be, but they are seriously long and my brows are doing really well. I'm hooked.


    So maybe wait until the lashes do their death song and then start? I do understand that desire to get back some normalcy. Patience, Grasshopper.


    On the tampon topic, my best friend was having super heavy periods due to fibroids, so she had a hysterectomy. She'd buy boxes and boxes of tampons at Sam's so she asked if I needed any. I said sure, no problem especially since I knew she used the brand I liked (BFFs talk about this nonsense). So I arrive home to an enormous box on my front porch, mailed all the way from Philadelphia--a plethora of tampons! I say to myself "You'll never need to buy another tampon again..." Boy, was I right. Immediately after that arrival, I went into full-blown menopause and never had my period after that. Anyone want some ancient, but unused Playtex tampons? Har!!!

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  • ashla
    ashla Member Posts: 1,581
    edited December 2013


    BPbrain you reminded me of this letter to the brand manager of Always Maxi Pads from let's just call her a ' dissatisfied customer.


    http://wendi-aarons.blogspot.com/2007/03/as-seen-on-mcsweeneysnet.html?m=1

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  • flaviarose
    flaviarose Member Posts: 442
    edited December 2013


    Thanks for posting, Ashla, that was HILARIOUS!!!!

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  • cypher
    cypher Member Posts: 508
    edited December 2013

    Ashla, that was hilarious!  thanks for posting.  Re the twitter feeds, I can make no sense of them.  I guess I have a strain of luddite in me.  How the heck are we supposed to understand anything useful about cancer research in 15 words or whatever twitter does??  I don't understand!!

    Congrats girlstrong and Pbrain!

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  • cypher
    cypher Member Posts: 508
    edited December 2013

    Ok questions for those with a medical background-

    So in this study, it says that high levels of immune cells in tumors may help identify which women will really benefit from Herceptin etc.  Is there any way of looking at one's path report and seeing whether that applies to you or not?

    http://www.sabcs.org/PressReleases/Documents/2013/b3c6acef3fe26baa.pdf


     

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  • NickyJ
    NickyJ Member Posts: 722
    edited December 2013


    haha Ashla! I love it!! Thanks for posting


    Nicky

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  • camillegal
    camillegal Member Posts: 16,882
    edited December 2013

    Ashla--too funny.

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