October 2013 Chemotherapy

Options
1585961636479

Comments

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Grrrr-- now the MO has decided I get Gemzar instead. Has anyone had that in their cocktail? The nurses tell me it is usually fairly well tolerated, but does lower WBC counts.

  • uds17
    uds17 Member Posts: 183
    edited December 2013


    Thanks so much wrenn, schoolcounselor, vintagegal, kbeee, viji, pam358, smrlvr, and teamkim for your responses. My apologies if I left anyone off this list! It is comforting to know that I'm not alone in having these thoughts/feelings.


    schoolcounselor- I have been very fortunate in my work arrangements. I am in solo practice, which has it's pros and cons. I had to pay for a colleague to cover my patients for emergencies when I took off time after surgery (3 weeks). I have been working since then, but have cut back to 3 days/week (2 days the week following chemo). I do a lot of stuff via phone when things crop up on the days I'm not in the office. Honestly, if I didn't have the flexibility of being able to control my own schedule, I don't think I could work through chemo.


    I had TC #3 today. Am tired, but otherwise doing okay.


    I hope all of you are handling your side effects well!


    xoxo

  • kcat2013
    kcat2013 Member Posts: 391
    edited December 2013


    I have a question for all of you. How much do you go out in public, crowded places? Like Target, etc? I feel awful the first week after treatment so I don't mind being home all day but the 2nd week after treatment I'm itching to get out and do things for myself. My husband is super concerned about me catching a cold/flu while being out in crowds so he thinks I should wear a mask while out. (And in his defense I have somehow managed to pick up 2 colds in just 3 treatments so far and that's with leaving the house minimally). But, I already feel like a hairless, pale, red-eyed, puffy-faced freak without adding a mask to it....

  • KBeee
    KBeee Member Posts: 5,109
    edited December 2013


    kcat, I would go crazy if I did not leave the house! I have been to the store a bunch, to church, to my kids' school events and swim meets, etc. My counts dropped very, very low for a couple rounds which we did not know until i spiked a temp...even with that, I never had an infection...temp was because of low counts. i do not wear a mask. What i did was always have tissues, etc inc ase i needed to wipe nose, eyes, etc...never wanted to touch with my hands. I always, always have hand cleaner with me. I use it a lot. I also use Lysol on all of the cabinet handles, railings, etc weekly at home (basically anything that anyone touches), and I also wipe the steering wheel of my car with Clorox wipes pretty frequently. Keeping hands clean seems pretty important. If anyone is coughing, hacking, etc when I am out, I simply stay away from them. I am happiest when I am out and about somewhere, because I am living life and forget I have cancer for a few hours, which is really nice.

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    kcat, I am worried too, especially the second week after chemo. I go to places, but try to stay far from people. You would need to touch them or they sneeze in front of you. Three feet is the distance I use. I also carry the mini bottles of sanitizer everywhere and don't hug or kiss friends. That is a problem for me because I am a hugger, but so far so good. Go out, just keep your distance and use sanitizers after you touch things.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    kcat2013


    ooohh I know how you feel! I had a couple friends say I should wear a mask. Here I am feeling & looking like cr*p, eyes tearing, nose running, sometimes bleeding, & a mask too? I blow my nose constantly when going from outside into a store. I feel I scare people, but it is a side effect (3 months) not a cold.


    I do go out when I can, to stores, to the shop I sell out of, to auctions. Not as much as I'd like but when I feel ok and so far no germs have got me.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    Headeast


    yep I carry sanitizer too! And use it. I guess we need to pay attention, like you're doing, we can't stay in all the time!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Vintage, yes. Especially the days we feel stronger. It is good for our minds!

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    I have been going out, and since I am a professor! I am around lots of college students all the time. Various flues and colds have gone through my classes, but so far I haven't gotten anything (could be the flu shot I got a month before starting chemo is helping). I use hand sanitizer too, and antibacterial soap wear ever it is available.

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    kcat - I'm not out too much because we live in a rural area and it would involve winter driving and distance - but when I am I use hand sanitizer like the others. I've cleaned off cart handles, sometimes the store has sanitizing wipes otherwise a tissue would work with your own sanitizer. I watch things like railings too and try not to touch them too much or have my gloves on. I watched a little girl in front of us in church have her hands all over her runny nose and then slide her hand up and down a railing. It was a big reminder to me.

  • Headeast
    Headeast Member Posts: 619
    edited December 2013
  • naiviv
    naiviv Member Posts: 535
    edited December 2013


    Headeast, They are so cute!!!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    thank you, Vivian! It is so easy to take pictures of them when I put their costumes. They don't move! Lol! I guess theyvare not too happy but still pose for the pics!


    How ate you doung? I finished chemo and am so happy!

  • naiviv
    naiviv Member Posts: 535
    edited December 2013


    Headeast....


    Congrats on finishing !!!! I finished 3 of 6 TCH's , halfway through the TC. I had chemo Thursday, not feeling too good today...mostly stomache related. ( I just want to get back in bed and curl up) But am getting ready to bake. I promised the kids gingerbread cookies and they love to decorate them and I bought enough to attempt a gingerbread house. Let's see how it goes.


    V

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Vivian, it sounds like a lot of fun! I had the same problem with the stomach and the Taxotere. Something that helped is yogurt with probiotics and the L Glutamine in my soy free dairy free protein shakes. I actually felt it soothing while drinking them.


    Tonight we have the boat parade in Fort Lauderdale and is beautiful! Somlooking forward to it!

  • naiviv
    naiviv Member Posts: 535
    edited December 2013


    Enjoy the parade, I have gone many times and it is beautiful!!! You should have beautiful weather tonight a bit on the cool side.


    My Activia helps to sooth when I feel like eating it. I also put it in shakes.


    V

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Teamkim,


    How did everything go with your changed reg was is taxol? Did you post and I missed it? I am very behind...as usual!

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Headeast,


    Love your warriors!!!! Cute green coats to bootLoopy

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Lonnie,


    Congrats on last AC!!!!!!!!!!!ThumbsUp

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    TeamKim, What is Gemzar? I am not familiar? Is this in another class of drugs?

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Are any of you gals taking Tumeric on a regular basis? Raw or the capsules? Do you notice the health benefits? Curious...

  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    My nurse navigator told me turmeric would be good for neuropathy from taxol. The Anticancer book also recommends it for anti cancer properties.

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Furfriend, thank you for the comment about my warriors!

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    I am not familiar with Gemzar either, but I guess I am about to be, lol. It is not in the Taxane family. From my reading, it is used in uterine and pancreatic cancer as well as BC -- mainly for cancer with mets. My cancer hadn't spread, IDC with clear nodes, but I guess since my sensitivity to the Taxotere makes the taxanes off limits, this is another option to finish me off. The onc nurses tell me it generally doesn't have too bad SEs.


    I was kind of hoping my MO would just say "Well, you had 3 tx of T and 4 tx of C, and that should do it." But I am not to get off so lucky. One thing, though, with getting just the Cytoxan in Thursday's infusion, my side effects are just about nil. Also didn't get Neulasta! since my WBC count was still up from 5 days of steroids trying to control the hives from last tx. I feel much more with it since I don't have zillions of drugs in my system.


    So I worked yesterday (first time I worked the day after an infusion) and gave my last two final exams to my classes. On the way to work, though, I got rear-ended on the freeway. My beloved SUV is pretty mangled, and will be in the shop for at least a couple of weeks. NOT what I needed just now! Made me think right away of all you gals enduring the winter storms with long commutes to treatment -- please be careful and stay safe!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Teamkim, I am sorry for the accident. Like we dont have enough!

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2013


    Well, Taxol #2 in the books, I haven't had any SEs so far. My onc said Tumeric was good but to wait until I finish chemo to start taking it. My youngest son graduated from college today, I'm so glad I was able to attend. We went to lunch after and I had shrimp remoulade salad and fried catfish! It was yummy, love seafood. We had a great day. Hope everyone has a great weekend with minimal problems! We are having family over tomorrow and cooking gumbo and watching our Saints play!

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Gram -- Congrats to you and your son on the commencement! So glad you could enjoy the occasion with minimal SEs and taste buds able to enjoy the yummy food!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Gramof2, congratulations! And Gumbo sounds delicious!

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    Oh team, I'm so sorry!!! Hang in there!! Gram congrats! Head cute elves!


    Hoping today I have more energy. See my therapist today and looking forward to it!!!


    I just find it hard to believe that our bodies can be so beat up. It finally occurred to me that the exhaustion is in part due to being anaemic. So I am not pushing myself. I will return to all my prior activities with time.


    Stress, lack of exercise and alcohol are the known contributors to breast cancer so I will be managing those. I never had a problem with the two latter. I have to wotk on the stress piece. I work in a VERY stressful environment.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Teamkim, ugh sorry to hear about your accident. Stay strong.


    Grams, congrats on your sons graduation & be able to eat great food. ThumbsUp


    I have my 2nd Taxol tomorrow-worried since I have a virus and had a cold as well. My taste buds are coming back but I unlike you am have Se's from Taxol-fatigue & bone pain. Also I think I had an allergic reaction to the drug. Not looking forward to tomorrow but only 3 more treatments to go!


    School, you hang in there & definitely don't push yourself.


    What is everyone's plans for the holiday?

Categories