ADH and FEA

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Sallywag
Sallywag Member Posts: 10


Hi guys,


I'm sad :)


Routine mammogram resulted on abnormal cluster of microcalcification. Mammogram led biopsy. Received report which advised ADA and FEA din1b


Dr is referring me to a surgeon.


On my own I did a ABUS 3d ultrasound which showed no malignancy and thermography which simply showed fibricystic breast. This is all right breast.


Any thoughts guys to keep me positive

Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2013


    A biopsy is more accurate than any imaging. And no imaging can determine if there is any malignancy present - the appearance of the breast tissue on the imaging simply provides an estimate of the risk that a malignancy might be present.


    Ultrasounds don't usually show calcifications so no surprise there. Thermography has a lot of history and has not been found to be a trusted technology when it comes to breast cancer diagnosis.


    Where there is ADH, there is approx. a 20% - 25% risk that some cancer might also be present. Diagnostic screening is not precise enough to make this determination, which is why an excisional (surgical) biopsy is usually recommended when ADH has been found in a needle biopsy. In my case after my stereotactic biopsy found ADH, my excisional biopsy uncovered lots of high grade DCIS and a tiny amount of invasive cancer. Of course that's not what happens in most cases - usually only ADH is found - but if you don't have the excisional biopsy you do risk leaving an early stage cancer undiagnosed, allowing it to possibly develop into something more serious.


    Sorry, that's probably not what you want to hear. Hopefully this will turn out to be just ADH, but taking the extra steps to be certain is usually what's recommended.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    They will want to do an excisional biopsy to rule out anything worse lurking around the ADH. If that comes back with nothing worse you can just be more closely followed or they may offer you tamoxifen or an AI to reduce your risk.


    Don't waste your money on thermograms. They are contraindicated for the diagnosis of cancer. The FDA has issued warnings about this and I believe Canada forbids them for this purpose.


    Ultrasounds don't see calcifications like mammograms and calcifications are your area of concern.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    Obviously Beesie and I were posting at the same time:)

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    thank you for the information. So it's the ADH that would be of concern. I just hope we get a "benign get on with your life" or conclusive diagnosis as the "investigating" is very stressful.


    Nice to know the naturopath who prescribed both is full of it. Tried to tell me that with those two tests we have an accurate diagnosis.


    Any chance the excision can be done with just local as I do not like the idea of being put under

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    @ Melissa what's an AI?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    Aromatase Inhibitor. Tamoxifen is for premenopausal. AI's are for menopausal women. They both (in different ways) block estrogen from feeding estrogen-positive receptor cells.

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    @ beesie naturopath insists the ABUS takes mitul level pictures that then composes 3-d images. So it should show dcis. So confused, scared and sad. Have two gorgeous little kids and a wonderful hubby so I have to put on my strong face and spend time with them. Thank you for posting to me, thank all for their wishes of good health and support. Tomorrow I will be strong today I will cry

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    Sally, did you know there are virtually no standards for being a naturopath? Pretty much anyone can decide they are going to call themselves a naturopath.

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    one more thought....sorry guys. What if on excision they just see more ADH and FEA no dcis or lcis. Then what?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    that's when they'll just put you on more frequent monitoring and maybe offer one of the drugs, and that goes for if they find LCIS too. LCIS is just a high risk condition. It isn't cancer.

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    Melissa at that point can't you just say take the breast?

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    sallywag is the nickname my sister gave me as kids. My name is Salima :)

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    I'm certainly not planning on it and I have LCIS.


    Having these conditions and being "high risk" does not necessarily translate to much higher risk than normal. Especially ADH. ADH is lower risk than LCIS.


    With no other risk factors every woman has around a 12% lifetime risk of getting breast cancer. They estimate LCIS raises that to about 20%, so only an absolute risk increase of 8%. ADH would be less than that, so what, maybe a 5% actual risk increase?


    Most doctors only recommend a lumpectomy for small or low stage cancers, so it seems to me that removing the breast would be a big over reaction to atypical cells at this point. The odds are that any atypical condition will never progress to anything worse.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    Salima is a beautiful name.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2013


    "beesie naturopath insists the ABUS takes mitul level pictures that then composes 3-d images. So it should show dcis."


    Salima, sorry, no. Not if the DCIS presents as calcifcations, as happens in about 90% of cases.


    "ABUS screenings do not replace mammograms. Mammograms find calcifications in the ducts that can indicate cancer.


    ABUS screenings do not show calcifications, but reveal other abnormalities hidden by dense breast tissue. That's why it's important to always have a mammogram first."


    http://www.nch.org/medical-services/breast-center/abus/better-detection.php


    The simple fact is that no screening in the world can tell you if something suspicious in your breast - be it calcifications or an area of thickening or an actual lump - is benign or DCIS or invasive cancer. The screening just shows something suspicious, and the radiologist assesses the risk level based on how the image looks. The radiologist might assess that something has an appearance that suggests only a 10% risk of being cancer, but the biopsy might find cancer. Or the radiologist might assess that something looks highly likely to be cancer, a 95% chance that it's cancer, and yet whatever it is turns out to be benign. No screening in the world can tell you if an area of suspicious calcifications is totally benign, is ADH, includes some DCIS, or includes some invasive cancer. It just can't be done. Impossible based on current technology.


    The other thing to understand is that each type of screening - mammogram, ultrasound (including ABUS) and MRI - uses a different technology, and therefore each "sees" something different. A mammogram cannot spot the difference between a solid mass and a fluid-filled mass (a cyst) but usually an ultrasound can "see" this difference clearly. On the other hand, mammograms are best at seeing calcifications. MRIs don't see calcs, but may see the cancer that is associated with calcifications (if the calcs are a sign of high grade DCIS or invasive cancer). Ultrasounds usually don't see any of that. That's why as part of the diagnostic process usually more than one type of test is done. It gives the surgeon a more complete perspective.


    As for what to do if the final diagnosis is ADH and FEA, I agree with Melissa. Just "taking the breast" is major surgery that changes your body for the rest of your life (I know!). It's not nearly as simple as it sounds. And with ADH, your risk level might range from 16% to 30%, depending on what other risk factors you might have. So your risk level might not be much higher than average, even after a diagnosis of ADH.


    Take it one step at a time - don't jump to any conclusions or decisions. Have the excisonal biopsy and see what it finds. Then take it from there.

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    thank you beesie and thank you Melissa for taking the time to write to me, to help inform me, to help alleviate my anxiety. That two people who I have never met care means a lot.


    Will do my best to think positive and take this one day at a time.


    Last question.....sorry. As it is the holiday season my dr did advise it might be hard to see surgeon before the new year. I know there are private clinics who do MRI for a fee. Would this show dcis? And perhaps help me wait out the long journey to the surgeon, surgery and results?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited December 2013


    No, wait to see what the surgeon says. MRIs are expensive and a surgeon may not think one will be helpful.


    I know you are anxious, but going and getting a lot of tests to try to diagnose yourself somehow isn't going to help or give you any definitive answer. The biopsy is what you need, but waiting isn't going to make any differerence in the outcome. Even if there were some DCIS the best guess is that it has already been there for 8-10 years before it is detectable, so an extra few weeks won't change anything.


    Also, as a friend here pointed out, I generalized about Tamoxifen being the drug for premenopausal women. Sometimes it is also used in postmenopause.


    She also pointed out that the definition of how to define LCIS is also very controversial, but you haven't been diagnosed with ALH or LCIS so I won't go into all that right now.

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2013


    Salima, I agree with MelissaDallas. At this point, an MRI would not be of value. You know you have ADH; what you need to find out is if you also have DCIS. The MRI would not be specific enough to show this. Sometimes MRIs show a suspicious area where there is ADH and low grade DCIS; other times they don't show anything at all. MRIs tend be better when it comes to high grade DCIS, but even at that, what the MRI shows is some activity, or as my surgeon described it, it shows "stuff", and it's impossible to know if the "stuff" is DCIS or possibly invasive cancer or possibly totally benign. It's back to what I said in my earlier post, "The simple fact is that no screening in the world can tell you if something suspicious in your breast - be it calcifications or an area of thickening or an actual lump - is benign or DCIS or invasive cancer. The screening just shows something suspicious, and the radiologist assesses the risk level based on how the image looks." So no screening, not a mammogram, not an ultrasound, not an MRI, will tell you that you have DCIS - or don't have DCIS.


    The only way to get the answer is through the excisional biopsy. If the biopsy does show DCIS - and hopefully it won't - at that point an MRI might be recommended. But at this point, an MRI won't tell you anymore than you already know. In fact it will tell you less that what you already know from the biopsy you've already had.


    As for waiting to see the surgeon, don't worry about that. ADH is not an emergency, and neither is DCIS. Waiting a few weeks, or even a month or two, is not a problem.

  • Sallywag
    Sallywag Member Posts: 10
    edited December 2013


    Melissa and Bessie you guys are angels sent to help us through this stressful time. Your info and support had helped me so much. Thank you!


    Today is better. I can finally look at this as 75-80% chance they find nothing instead of concentrating on the 20-25% chance of finding something.


    I was proud of myself as my dr office was very slow on getting things moving so I ordered all my films from three different locations and phoned very reputable breast clinic to have them look at my file. The coordinator knows my name and was awesome.


    So this has helped.


    Concentrate on the good, count my blessings and take one step at a time . If I falter I will be back for some good advice and information from the two of you.


    Happy holidays.


    Xoxox

  • Sallywag
    Sallywag Member Posts: 10
    edited January 2014

    hi guys,

    Found out from surgeon.  No cancer and all abnormal cells are gone!! No ADH no FEA.  I want to thank Bessie and Melissa for their kindness and support during such a difficult time.  You are angels.  I want to write to that person who has been told they have ADH or any other atypical cell changes and know it doesn't necessarily mean cancer.  Keep faith in the happy ending and if it is cancer have faith in yourself and those around you to love and support you.  I will be going to mosque to thank god for the boringly beautiful benign result.  Hugs to all xoxo

  • Michelle_Quest
    Michelle_Quest Member Posts: 5
    edited April 2016

    I was just diagnosed with ADH and FEA. It was kind of funny when the doctor was so upbeat telling me I didn't have cancer and just as upbeat told me I had to have surgery. My doctor wants to do surgery also, they want to remove quite a bit of tissue. I am worried and afraid too, but I watched my sister die because she had a doctor tell her she didn't need to do anything about it.

    ADH is a non cancerous growth that should be removed because there is an increased risk of breast cancer. ADH does not mean you have breast cancer at worst case it would be pre-pre-cancer, (yes I put two pre's on purpose), keep your spirits up. If you allow yourself to go down in the dumps you could weaken your body and it won't be able to fight as hard as you need it to.

    Another good thing, or a group of things to help. Keep your immune system up by eating fresh raw garlic, (not garlic already minced), because it is a natural antibiotic, take vitamin D it will help your body fight off cancer if you have it and if you don't have cancer vitamin D is still a good idea, but you have to have your doctor check your D levels before you take it, you don't want to overdose on vitamin D. Drinking freshly squeezed juice is a great idea, but you have to drink it quick. The treatment for cancer these days is great it's not like it was even 10 years ago. Stay happy and find reasons to laugh no matter how strange it seems to others. Good luck and may God be with you.

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