Radiation on Left Breast vs. Mastectomy for IDC?
My main question:
For those of you who had breast cancer in the left breast and went forward with radiation, can you tell me how you came to that decision? It would also be great to know how long ago it was, if you have had any complications, and if you were considered young to be getting BC. Thanks!
Some context:
I'm having surgery this week. I've gone back and forth when trying to decide between lumpectomy + radiation and a bilateral mastectomy. The concern I have about radiation is the risk to my heart and lungs. Studies estimate heart disease risk to be between 0.5% and 3.5% with the higher end associated with those who have radiation on the left breast. Those percentages do not include less serious heart-related issues that may not endanger life so much, but may affect quality of life. It's a small risk, but if it happens, would have a lot of implications. I do not have any health issues at this time other than breast cancer.
If I want to avoid that, I could have a mastectomy and reconstruction. While I could avoid radiation (it's not likely with the size and location of my tumor), removing my breasts (I would most likely choose bilateral) feels very permanent / there would be no going back. While I'm willing to do it if the benefit is worth it, it's hard to choose between a small chance of heart issues which would likely greatly impact life vs. removing breasts that while doesn't pose the same kind of health risk, does mean removing body parts permanently.
The other factor is that I'm young for BC at 34 so there is a higher chance of a new occurrence of BC, between 15-25% if I take tamoxifen which would be prescribed for either scenario. I do not have a family history of BC.
The other question:
If you had the option of a lumpectomy, but decided to have a mastectomy, are you happy with your decision or do you have any regrets? Is there anything someone should know before taking this path?
Comments
-
I had a lumpectomy and left side radiation in the summer of 2007. I had no problems related to the radiation then or later. The technology today really minimizes the chance of problems.
Having a mastectomy is not a guarantee that you won't need radiation, so don't have one if avoiding radiation that is your sole purpose. Also, a mastectomy is a major surgery with huge potential negative SEs of its own, as is the reconstruction process. Some people have no choice but to have a mastectomy, others feel in their heart that it is the right choice for them. But if you have doubts, then I would definitely go with the lumpectomy.
-
I had left sided lumpectomy and radiation. My RO called to tell me (after cat scan of chest done before radiation to see where heart sits etc) that my heart was a bit close to the field for radiation and I was given ABC (active breathing control) to push my heart away from the radiation rays. It was basically like a scuba dive tube for your mouth and the technicians tell you to hold your breath for the breif seconds the radiation occurs. I was given a quick overview before this started and had no problems through the entire process. I suggest you google "breath holding during breast cancer radiation" and you can learn more about this and then consult your Dr. regarding your concerns. I really have no issues over a year out from radiation and just met with RO this week for checkup and all is good...no appt till next year. Given my experience, I would do it the same way again. Hope this helps inform you as you decide what is best for you. -
This article is on the home page of BCO right now:
Modern Radiation Therapy Less Risky for Heart
Published on December 9, 2013 at 4:18 am
For women diagnosed with early-stage breast cancer, lumpectomy followed by radiation therapy has been shown to be as effective as mastectomy without radiation for removing the cancer AND minimizing the risk of the cancer coming back (recurrence). Radiation therapy after lumpectomy can destroy any cancer cells that may have been left behind after surgery, making recurrence less likely. Some women who have mastectomy may also have radiation after surgery. Experts agree that radiation therapy improves the overall prognosis for many women diagnosed with early-stage breast cancer.
Still, studies have found a link between radiation therapy for breast cancer and a higher risk of heart and lung problems, especially if the cancer is in the left breast, the same side as the heart.
In encouraging news, a research letter estimates that modern radiation therapy techniques are less likely to cause heart problems than radiation therapy techniques used 20 or more years ago.
The research letter was published online on Oct. 28, 2013 by JAMA Internal Medicine. Read the abstract of “Risk and Risk Reduction of Major Coronary Events Association With Contemporary Breast Radiotherapy.”
The research letter looked at the radiation therapy treatment plans of 48 women diagnosed with stage 0 to stage IIA breast cancer who were treated after 2005 at the New York University Department of Radiation Oncology.
Taking into account factors such as:
- radiation dose
- side of the body being treated
- position of the woman during radiation treatment (lying face up or face down)
- a woman’s baseline risk for heart problems before radiation treatment
the researchers estimated the future risk of heart problems for the women.
Overall, the average radiation dose for the 48 women in this study was 1.37 gray compared to 4.9 gray reported in a study looking at women treated with radiation therapy from 1958 to 2001.
The researchers found that women treated for cancer in the left breast who had a high baseline risk of heart problems before radiation therapy started had the highest risk of future heart problems. Women treated for cancer in the right breast with a low baseline risk of heart problems had the lowest risk of future heart problems.
The estimated risk of future heart problems for specific groups of women were:
- 0.22% for women with a low baseline risk of heart problems treated for cancer in the left breast lying face up
- 0.42% for women with a medium baseline risk of heart problems treated for cancer in the left breast lying face up
- 3.5% for women with a high baseline risk of heart problems treated for cancer in the left breast lying face up
- 0.09% for women with a low baseline risk of heart problems treated for cancer in the left breast lying face down
- 0.17% for women with a medium baseline risk of heart problems treated for cancer in the left breast lying face down
- 1.3% for women with a high baseline risk of heart problems treated for cancer in the left breast lying face down
- 0.05% for women with a low baseline risk of heart problems treated for cancer in the right breast lying face up
- 0.10% for women with a medium baseline risk of heart problems treated for cancer in the right breast lying face up
- 0.79% for women with a high baseline risk of heart problems treated for cancer in the right breast lying face up
- 0.06% for women with a low baseline risk of heart problems treated for cancer in the right breast lying face down
- 0.11% for women with a medium baseline risk of heart problems treated for cancer in the right breast lying face down
- 0.84% for women with a high baseline risk of heart problems treated for cancer in the right breast lying face down
So while there is still some risk to the heart from radiation therapy to treat breast cancer, it’s encouraging to know that advances in radiation therapy have greatly reduced the amount of radiation exposure to the heart, lungs, and other healthy tissue. This is because:
- Doctors now use computers to plan radiation therapy that is extremely precise in dose and delivery.
- A type of radiation therapy equipment used today (called respiratory gating) tracks heartbeats and lung movement and effectively blocks those tissues from radiation exposure.
- Other tools, such as intensity modulated radiation therapy, allow the radiation oncologist to change the intensity of the radiation during treatment to ensure the tissue at risk receives an even dose and to avoid healthy tissue.
- Doctors may have some women lie face down to receive radiation therapy to reduce the amount of radiation that unintentionally reaches the heart and lungs.
- Some radiation treatment fields, such as the internal mammary lymph node treatment field, which is right in front of the heart, are more likely to expose the heart to radiation. It’s a good idea to ask your doctor which treatment fields will be included as part of your radiation therapy. If the internal mammary lymph node treatment field is included, you may want to ask if that treatment field is necessary.
If you’ve been diagnosed with breast cancer, you and your doctor will consider the characteristics of the cancer, your unique situation, your surgical options, and your treatment options after surgery when creating your treatment plan. If you choose lumpectomy, it’s very likely that radiation will be recommended after surgery. If you choose mastectomy, radiation after surgery may or may not be recommended for you. Talk to your radiation therapy treatment team about how they’ll make sure that you get only the radiation therapy required to effectively treat the cancer. Together, you can plan your treatment to minimize any risks.
-
I also had lumpectomy with radiation (2005 for rads). No problems then or now. Well, except a few skin "burns" towards the end of treatment, in areas where bone was close to skin (collarbone).
Heart is fine & strong with no problems (I'm 66 now). -
Thanks so much for your responses, Ruthbru, Aruba, and Optimistictraveler! And, thank you, Ruthbru for sharing that article! Great to see what the risks are for each position (lying face up or down) combined with heart risk based on personal history.
Were you guys lying face up or down when you received radiation? Did they use a TomoTherapy machine? I just met someone who is getting radiation on her left breast at the place that I'm considering. She said that they have her lying face up and using a TomoTherapy machine. I'm a little concerned about the body positioning because the risk is higher when lying face up. I have an appointment with the RO later this week so I'll ask about that then as well as try to learn more about the machine. -
I had lumpectomies and radiation on both breasts a year apart. I hate surgery of any kind and I talked my bs into doing a lumpectomy the second time. Rads was a piece of cake compared to chemo.
-
I asked about the prone position, lying face down. My RO (head of dept) explained that the she wants perfection and techs here could not be as precise without breast in view. She said if i wanted that done precisely only few places are that skilled and said I think it may have been Sloan. I am in ohio so not feasible for me and I have total respect for her opinion.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team