Starting Chemo, November 2013 Group

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  • Phebe38
    Phebe38 Member Posts: 197
    edited December 2013


    journaling is helping me and posting here.


    Amazon: hugs we do go through emotional roller coaster rides. Yes, our hair falling in chunks can be very emotional time. Hope and pray that your head doesn't hurt as much. Take care of yourself the lump will go away


    Loneymom: hope your rash on your hip goes away


    Ellischestnutgirl: yes I finally decide to join in journaling. It helps. Initial diagnosis, I'm glad you have an excellent radiologist. I just met mine and he seems so helpful and explain everything. After my chemo infusions I'm having MRI


    Specialk: hugs we have different symptoms but just coming here and journaling it's good for the soul.


    Veronica: Happy belated birthday lol


    Audra: yes chemo is the way to go. My sister died cuz she didn't go for help. Yes, some people told me to go towards holistic ways but I'm combining them together . I'm eating healthy and drink like an elephant diluted water (3/4) and (1/4) canned green tea


    Wallymama:I like it we can just do what needs to be done today.


    PayAtlanta: it's great you have chemo after Christmas. I'm getting mine on Christmas Eve. What a Christmas present! Lol. But I will go along with the flow 3rd chemo infusion. My life depends on it. What's MO? My chemo treatment is done the end of February/14 so don't abandoned - Inpo and Wally


    Pat? I noticed you're HER2+. You don't eat red meat? I am diagnosed stage 2 or 3; Grade 3


    BigT16: Dec. 3/13 round #2 for me so I'm behind you in chemo treatment


    Quickgirl: yes I choose to exercise even going up and down stairs to wash laundry. I get someone to bring clothes up for me. I also choose to do stretches on my arms gently. My oncologist said by this time I should have my arm all the way up. No swelling on my arms. When I go for next treatment my goal is to be able to raise my arm all the way up.

  • Phebe38
    Phebe38 Member Posts: 197
    edited December 2013


    journaling is helping me and posting here.


    Amazon: hugs we do go through emotional roller coaster rides. Yes, our falling in chunks can be very emotional time. Hope and pray that your head doesn't hurt as much. Take care of yourself the lump will go away


    Loneymom: hope your rash on your hip goes away


    Ellischestnutgirl: yes I finally decide to join in journaling. It helps. Initial diagnosis, I'm glad you have an excellent radiologist. I just met mine and he seems so helpful and explain everything. After my chemo infusions I'm having MRI


    Specially: hugs we have different symptoms but just coming here and journaling it's good for the soul


    Veronica: Happy belated birthday lol


    Audra: yes chemo is the way to go. My sister died cuz she didn't go for help. Yes, some people told me to go towards holistic ways but I'm combining them together . I eating healthy and drink like an elephant diluted water (3/4) and (1/4) canned green tea


    Wallymama:I like it we can just do what needs to be done today.


    PayAtlanta: it's great you have chemo after Christmas. I'm getting mine on Christmas Eve. What a Christmas present! Lol. But I will go along with the flow 3rd chemo infusion. My life depends on it. What's MO? My chemo treatment is done the end of February/14 so don't abandoned - Inpo and Wally


    Pat? I noticed you're HER2+. You don't eat red meat? I am diagnosed stage 2 or 3; Grade 3


    BigT16: Dec. 3/13 round #2 for me so I'm behind you in chemo treatment


    Quickgirl: yes I choose to exercise even going up and down stairs to wash laundry. I get someone to bring clothes up for me. I also choose to do stretches on my arms gently. My oncologist said told me by this time I should have my arm all the way up. No swelling on my arms. When I go for next treatment my goal is to be able to raise my arm all the way up

  • ellischestnutgirl
    ellischestnutgirl Member Posts: 28
    edited December 2013


    Who would have thought we would be stuffing our bras at this age? Stuffed as a teenager but never had to do it after I had kids...My tissue expanders aren't even so I don't even wear a bra now. These D..n tissue expanders only move when I move my pectoralis muscles, so there is no way to get them even. One sits right under my collar bone and the other closer to my arm pit.. One is flatter than the other too. Boobs of steel... better than buns.


    Amazon, I hope your infection is getting better each day. Just remember that we are thinking and praying for you.


    I hope this weather clears soon. We were supposed to get less that an inch of snow and we now have 6 and it is sleeting now. i do not want to miss my first chemo again. It has been delayed by 3 weeks already. We need to get this started. I will be thinking of you all as I sit in the Big Girl chair tomorrow. I agree about the fear of the chemo. The fear adds to the anxiety which adds to the se.


    I am taking as many meds as possible to avoid side effects of the chemo, so I will probably have side effects from the anti nausea/anxiety/pain meds. Good thoughts for all tomorrow.


    Gayle

  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Lisa, i am with you about the hair. Mine was so think and started coming out in clumps. It was falling everywhere and I had to keep vacuuming and sweeping. I cried all day Friday because I knew this was coming, but today when my friend buzzed it I knew it was the right time and I am ok with it. I look like Gi jane. The other thing about my hair was that my scalp actually hurt.


    So my friend said she was impressed by how strong I am. I do not feel strong at all. I do not feel brave. Like all of us, I am doing what I have to do to win this fight.


    I have some fleece caps and scarves. I do have a wig which I will wear maybe on Christmas or other rare occasions.


    Atlbrave, I also had a huge headache after my first AC. They slowed down the cytoxin drip of the second infusion and the headache was not as bad. I do have a mild sinus like headache every day. Ibuprofen and Advil do not work.


    Do any of you know what a hot flash feels like? I have heard some people sweat. I just feel,hot like I have been working out. I don't know if it is a hot flash or just a reaction to chemo.


    My head feels wired and so do my eyes. I can't wait to feel good again.


    Lisa, my Westie has been by my side every day since this all began. He knows something is going on with me and is very protective. dogs are special.

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013


    So nice to catch up with everyone after a splendid last day before chemo. My sister and I toured the Civil War ship, ate tapas and watch it snow. and Christmas shopped for hours. Now I'm ready to drink fluids like a sailor for tomorrow.


    Gayle - I'd love to meet you sometime!


    Audra - so glad you're going to get the shot.


    Thank you all for your good wishes for tommorow! Sounds like today's SE haven't been too bad for y'all today. :D


    image

  • Amazonwarrior
    Amazonwarrior Member Posts: 485
    edited December 2013


    Finally I decided to buzz my head off ....oops my HAIR off. I did it with my husband's help. I could't have done it alone, since I wouldn't have been able to reach the areas at the back of my head. There was surprisingly still a lot of hair that had to come off. Now that's done I'm feeling better about it.


    The decision to cut my hair even shorter came all of a sudden because I just simply couldn't stand the buried zombie look (that Pat was talking about) that scared me every time I looked at myself in the mirror. Shocked Aaaahhh


    I have a stubble (app. 1'') now, and will deal with it until ... my next decision or my hair's next decision. At least I won't need to use my hairdryer for some time.


    Today my family and I went to buy a real Christmas tree and a wreath. I decorated the front door with it. It's a little something for my son to get a feeling that Christmas is coming. BTW I went shopping with a sock pinned to my undershirt since I still can't wear a bra due to the swollen lump.


    I am scheduled to see my MO tomorrow. She wants to see how I'm doing with the swelling and pain. Well, we'll see what she has to say. I'll keep you posted.

  • ellenkc
    ellenkc Member Posts: 173
    edited December 2013


    smlvr and others who have asked: As a veteran of hot flashes both from menopause and from 4+ years of hormone treatments on my previous cancer, I can assure folks that hot flashes often occur without sweating, even the ones that wake you up during the night. Mine rarely involved sweating, but could range from annoying to overwhelming nonetheless. It's those waves of heat when you are suddenly too hot. Sometimes I could feel them moving over parts of my body, other times it was an all-over feeling.


    My husband was on Lupron for stage IV prostate cancer for 18 months. It removes all of a guy's testosterone, so he got to learn the joys of hot flashes and developed a deep empathy for women in menopause. The big competition in our house was to see who controlled the remote control for the ceiling fan in the family room where we spent most of our time! Smile


    Ellen

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013


    Amazon darling, won't you be needing your head? LOL

  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    hi all! sorry having a time getting back to yall! Rough week...chemo tues...nulasta wed... been running temp for me last 24 hrs or so.I normally am 96.5...soo 99. is temp on my end. going between 99-99.9....real odd symptoms too...feel heart beating all over..even teeth. normallyhave tachycardia. ...but this is booming. plus dull headace and fatigue. feel icky....hope yall are great! keep me in ur prayers!

  • Veronica37
    Veronica37 Member Posts: 71
    edited December 2013


    Thanks to all for the birthday wishes! It was nice to celebrate my birthday and not have chemo that day instead but bummed that I had to postpone it, I really just want to get it over with!. Still feeling great even though liver enzymes are up. The Dr said he's sure its from the chemo but in the same sentence said that if I get another uti he wont give me levaquin. I have been drinking sooo much water, I normally drink alot of water any ways so I feel like I'm floating, just trying to flush my liver and keepin my fingers crossed that my liver is not damaged! I go for bloodwork on Wednesday and scheduled for chemo Friday (13th) if all goes well.


    Paulette glad u are ok.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited December 2013

    Paulette- That rapid heartbeat and pulse rate may be one of the chemo side effects.  My internist got so unnerved by this rapid heart and pulse rates that he ordered a blood panel to see if my thyroid was behaving properly.  Fortunately, the blood panel came back normal.  I talked to my onco about the rapid heart rate and feeling so fatigued and out of breathe from just walking a short distance.  She said it was the chemo.  Hoping that things get better for you...... Love all of your upbeat and entertaining posts here.

  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Paulette - I had the rapid heartbeat. It lasted 3 or 4 days. My teeth hurt too. I hope you feel better soon.

  • lisa137
    lisa137 Member Posts: 569
    edited December 2013


    I'm down to one sore tooth, one larger-than-normal tastebud, my head doesn't feel fuzzy, I'm not queasy, I shopped for half the day then came home and cleaned house and did laundry for hours, I haven't been moody or weepy, and I actually remember most of the conversations I've participated in today.


    This can only mean one thing: Chemo tomorrow! Woohoo!

  • Bluegrassharp
    Bluegrassharp Member Posts: 96
    edited December 2013


    Love the wry humor in this thread! Only the strong can laugh at themselves, so we obviously are SuperWomen (or perhaps ever so slightly crazy -- nah!)

  • Pompom21
    Pompom21 Member Posts: 15
    edited December 2013


    Hi All!


    Audra: thanks for shouting out to me. We are on the same schedule and am happy to report that I've been too busy to get online the last few days. I am feeling better this time around too. A big part of that is due to the preventative measures I'm taking to avoid the yeast infections that got me the 1st round. I am also working less this time knowing that it doesn't help in the long run. I'm down to stubble for hair as well and using a lint brush a few times a day.


    I received my Neulasta shot on Friday. Now I'm wondering when the bone pain will start and if it doesn't, does that mean it isn't working? My vision has also been affected but no migraines or major headaches.


    The biggest problem I have is staying hydrated and eating. Everything tastes terrible and has the consistency of saw dust.


    Lisa: your husband deserves a big hug. What a great guy! Love the lotion.


    Paulette: praying you'll feel better quickly.


    Good luck everyone! Hope your roads are clear and the SE's mild.

  • ellischestnutgirl
    ellischestnutgirl Member Posts: 28
    edited December 2013


    There is a really cute male nurse at my chemo center so my heart will probable go pitter patter anyway. Hot flashes ...just what I need is more hot flashes, don't want any more of those. I walked into a patients room one night at work and this sweet little lay asked me if I felt O K.. I told her I was fine and she told me I was glistening. I apologized and told her that I had been sweating all night. I looke in the mirror and my face with all red and I had beads of sweat in my hair and on my face. I was also in an isolation gown, which always makes me sweat. She then stated. "Honey, we women never sweat, we only glisten and glow." She made my night. and gave me a hug and a kiss. Patients like that always made me know I was meant to be a nurse.


    Now, back to the cute chemo nurse.....I tell my husband I only have eyes for him but I am not dead. There is beauty in the world and I can't help but notice it...


    Cannot sleep tonight despite taking the neurontin for my tissue expander pain, 75 mg of benadryl and melatonin. I had to take the decadron pre chemo last night and think that the steroids are keeping me up. I feel a little wired. I think I am going to aske for a sleeping aid today. I give them all the time, but does anyone take anything that works well while you are on a chemo program? O don't find ambien a good med for patients, and don;t really want to try that.


    I don't feel anxious about today. It helps to know what the reality is from hearing about it from those in current therapy, instead of reading about it from the handouts they give you at diagnosis.


    AS an aside, my port isn't painful at the insertion site, but I have pain running from my clavicle up to my ear. Anyone else experience this?


    Please be safe today ladies as you venture out for lab work, chemo or Christmas shopping. Only good news for all today. I am praying for travel mercies and for God to hold you all in his care.


    Gayle

  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    Helloooooo Ladies! I miss yall.... I haven't even had the strength to log on and read what has been going on with everyone. I do keep you in my prayers...even when I can't see yall! Apparently yall been real busy! I have PAGES AND PAGES to read. I started to tonight...but finally decided I will finish catching up with everyone(hopefully) tomorrow and will just JUMP back in fingers first now!


    Almost didnt have chemo this week. I am HIGHLY allergic to the tegederm and adheasives on bandaids. When I went in to have my port checked (it seemed to have a kink in it) the area around was red and inflammed. They thought it may be infected...so they cancelled my appt! Boo! Then the radiologist and the MO talked and said go ahead...BRAIN ZOMBIE me right now...didnt even think to say the redness was from the adheasive! End of story....went ahead on time~!


    I've been feeling sooooo WAKOSICKIE since running the round two marathon! Looks like I'm up tonite for awhile...tis 4am here...haven't slept tonite yet. Exhausted and very Tired but find myself whimpering like a little puppy dog under the covers. This round seems like a whole new animal! I guess each "blessed event" is like being pregnant. NONE are ever quite alike...they have simular attributes but NEVER quite the same!


    This "BE" has been like I have a combination of sea-sickness, morning-sickness and waves of what at times feels like labor pains awaiting the birth of a litter of puppies. Then there is the rollercoaster headaches, mixed with dizziness and vertigo accompanied by the drum core constantly droning inside my body to the rhythm of my heartbeat. At least I THINK it is only mine! I am beginning to feel the multiple heartbeats of the multiple puppies attempting to explode out of my abdomen...like a scene from "Alien"! My teeth each have a beat, my head, my hears, my innerds....and so on~ I normally have tachycardia (rapid HB) with thump-d-dumps here and there...but this is I swear ALMOST audible to others around!


    The fatigue this go round seems to be even more overpowering. It does seem to go hand in hand with the drum corp and temperature. I have drug my feet going into the ER or calling my MO...taking motrin and praying it will not rise more. I normally have a sub body temp due to autonomic dysfunction and run VERY LOW....like 95-97....they said if I get to 99 call...but after the 74 day hospitalization in 2005 I have RADICAL PTSD! ARRRRGGHHH!!!! At least as of the past 8 hours....it hasnt gone over 99...hopefully its gonna b ok. I am on antibiotics and have been hoping they would kick in! OOOPPssss...I just remembered...I forgot them tonite!...hmmm...hold on....


    O..K...Gee I wonder what else I forgot to take today! Man...is my brain...SLUDGE!!! Not like half of it wasn't sludge from lupus...now the other half has decided to fly to Taiwan for the winter! And it sent a text message....it doesnt ever want to COME BACK!


    Back to the whimmpering puppy....For whatever cosmic reason...I was attempting to sleep tonite and thinking of NOTHING~but all of a sudden got an overwhelming flood of what my husband calls the boo boo kitties~I just want to ball like a beebee. (As tears well up) I know we have ALL been there. These sucky hormones! And it figures...the holidays. I want sooo much to do things...but dont have the strength.


    I got soooo ticked at what I call the "NAZI NURSE "this week. She is such a control whore! No reason for it! We all have had someone who...makes our FURR stand up~!Not that anything initially was ever said or done. Apparently...I make her FURRR stand up...From day one she has been condescending to both my RN hubby and I.It seems EVERYTHING...is a bother for her...even the simplist request!


    I had asked about seeing if my insurance would cover my neulasta shot at home. She said...NOOOO. I checked w/my insurance...they said YESS...if the MO prescribed it! (she did~)Then I asked if I could get the toradol IV shot w/my IV fluids when the pain increased 2...she said..."weeeeelllllll...apparently you can get the neulasta shot..but do you really want to since you cant get the toradol?" Again...this was totally ridiculous~! ARRGGHH! I got them both prescribed...of course ticking her off more~YAHOOO...no day two ride for 45 min each way for a shot!!


    Ok...I think I've sufficiently made myself sleepy...I think I should at least TRY to sleep alittle! My RN hubbys alarm just went off!!! Goodness...it is already that time!


    I am sure I have bored you as well! I will continue this saga later about the tales of the NAZI NURSE!! If you're interested!!


    One last little tid-bit! I am really getting used to the chrome dome. What a FREEDOM! It is soooo easy to go anywhere! I find myself twittling my thumbs in the shower feeling like Im forgetting something! I actually...on the few occasions I've gone out...not worn anything yet! I almost feel like an imposter if I put on a wig or something! And it is rather interesting seeing the looks people give! LOL!!!!


    Huggs and prayers for all those going in today~


    T're!!

  • ellischestnutgirl
    ellischestnutgirl Member Posts: 28
    edited December 2013


    Oh Paulette,


    I would hope that everyone going thru anything requiring any medical care would have kind, compassionate and empathetic care. I would thing people working in health care, especially oncology would have an understanding of the stress involved with the anxiety and fear associated with treatment. Your husband is a nurse and probable would never treat anyone the way you are being treated by this nurse.


    I would request not to have her care for me. Our hospital and most of our medical offices have office managers or what we call the Care Line. We give patients and families information on admission about how to report poor care, poor attitudes and compliments too., Patients are given a booklet with phone numbers and the admitting nurse goes over the booklet. Patients use it.


    I have used something similar myself while on this journey. Why is this nurse being such a putz? Just be your pleasant self, continue to advocate for yourself and if necessary, ask her if she is having a bad day. Ask for someone else to care for you. The rumor that you will be labeled a complainer isn't always true. She probably has a reputation among staff at your cancer center as a b....ch.


    You deserve to be pampered and guided thru this with TLC. Get rid of her. I am getting the weepies just knowing she is being so unkind. Some peole just go into nursing for the fabulous pay. She must be one of them.


    We also have nurse navigators to help use thru this whole darn thing. Most cancer centers do. Call yours and let her do her job. She can advocate for you too.


    Hope all is better for you today.


    Gayle

  • Paulette23
    Paulette23 Member Posts: 499
    edited December 2013


    Gayle! morning! still haven't slept. ... oh well! ! I know the system well and plan on doing just that! ive given her two treatments. .. yet she persists in being a b***h. I've killed her w kindness but she's getting worse. I don't think she likes when pts know their care and are knowledgeable. she's a control freak. my rn hubby is a FANTASTIC nurse and is put off w her as well! Sad that there are some like this. .. hope ur day goes GREAT!

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013


    glad you're back on and updating us, Paulette. Wrenn, how are you doing? I'm only ever on this using my phone so no two tabs for me or I'd do better about mentioning everyone by name! Good luck to everyone having treatment today and minimal SE to the rest of you wonderful.women. After the long exhausting back to get to this day, I'm so relaxed and peaceful. My MO and dermatologist have already proven to be very supportive and responsive. I'm in their hands on this and can finally relax. No longer will I have to fight the establishment to get my problems treated.

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited December 2013

    Safe travels to those out and about today and especially those who are heading in for chemo.  Wishing for easy times in the BGC and minimal side effects.

    Quirkygirl- Keep having those peaceful and calm thoughts.  Those will help carry through today.

  • Bec65
    Bec65 Member Posts: 312
    edited December 2013


    Re sleep aids...(backstory...feel free to skip to next paragraph!) After I was diagnosed, I switched my primary care doctor for two reasons. First, I was (possibly unfairly) mad that he didn't detect ANYTHING when I had my check up four months before I found a weird thickness. Second, I had asked him about something to help me sleep with my nighttime anxiety. I've had issues at night for years where I can fall asleep easily but not get back to sleep after I wake up to go to the bathroom after 3 or 4 hours. My mind would race on the most stupid issues. After my diagnosis, the issues became obviously serious, and I knew I needed something or I would go crazy. No matter how much I said I did not want Ambien, he insisted we "try that first." Not feeling like I had time to "try" anything, I switched doctors.


    My new primary met with me for over an hour (love him!), and said that he thought Remeron (mirtazapine) would be a good fit for my nighttime anxiety that was affecting my sleep. Apparently when taken in very low doses (7.5 mg) , its SEs include sleepiness and increased appetite, both of which he thought would be good for me undergoing chemo. I haven't noticed any change in my appetite (or maybe this is helping to keep it normal), but I definitely have had a dramatic change in my sleep issues. I still wake up in the middle of the night, but I'm able to get right back to sleep. It's really nothing short of a miracle, as far as I'm concerned! Before this fabulous little pill, I hadn't slept more that 3 or 4 hours continuously for years.


    Today is my big prep day...lab work, MO appt., pick up medications. I have my last AC Wednesday, then onto Taxol...almost halfway done!

  • audra67
    audra67 Member Posts: 521
    edited December 2013

    Good luck today Quirkygirl and glad you are back Paulette.!

    I have the rash by port from tape too, itching horribly, what are you using to fix it? 

    pompom- LUCKY, I'm hoping no side effects from neulasta too!  Yay for you!  When you get blood tested you will know if it's working or not right?

    love to you all!

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013


    VICTORY!!!! I'm in the BGC (bed actually - there was more room/nurses in that unit). At last I can relax... :)

  • tonilee2
    tonilee2 Member Posts: 91
    edited December 2013

    Trying to catch up with everyone...been reading through posts!  Seems like most of us are hanging in there, best as possible.  Glad to see so many are on the mend from infections & set backs. WoW...this is tough.  I'm 13 days out from my first chemotherapy but I'm still having hard days.  Have experienced loads of GI symptoms and (believe it or not) NEUROLOGICAL symptoms.  My handwriting is gone, boo-hoo-hooed 'cause I couldn't manage simple crochet stitches yesterday (crocheting helps me cope), concentration is poor, mixing up dates, names, situations...it's frightening. So many pills, I cannot keep them straight.  Ugggggghhhhhh.  CANNOT BELIEVE WHAT AN EMOTIONAL ROLLER COASTER I AM ON!

    Writing notes in a journal is helping me keep track of things.  Helping me to anticipate what's in store for next chemo.

    Next pre-chemo check on Monday, December 16 with (hopefully) second round of chemo on Tuesday the 17th and Neulasta on the 18th.

    Forgive me 'cause my concentration is poor but someone asked about mouth problems from chemo.  My entire mouth felt raw almost immediately during chemo...Biotene, Oasis...it all hurt to swish & gargle...salt water and baking soda helped.  Mouth is JUST feeling better at 13 days out.  Taste buds were way off for some stuff (like ice milk)  :0)

    Oddly, I buzzed my hair waaaaaaaaaay down but I'm still not seeing much loss...not yet...anticipating it over the next few days  :0(

    Cannot believe how I've been crying this weekend.  Feel like my life is on hold.  Wondering if I will ever feel happy again.

    Even if I'm not "up" for posting, I've been following you ladies whenever I can.  I appreciate all the insights and posts...they help so much!

    Keep me in your thoughts, everyone (even if I'm not posting much), as you are always in mine!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited December 2013

    Tonilee2- I know it feels like the rest of world is moving on without you but it really isn't.  You can continue to forge ahead and push through this time in chemoland.  Sorry some of the side effects are hitting you and the tears and emotions seem to be following.  Right now, you are not in one of the best times after a chemo round.  There will be better days ahead and days that give you a glimpse of those better days to come.   You have made it to the first resting stop after the first round of chemo.   Hang in there!!!!

  • jab
    jab Member Posts: 220
    edited December 2013


    Hey Superwomen,


    I'm so impressed with how all of you are dealing with the setbacks Chemo has presented. My heart goes out to you. It's bad enough to have the hair fall out, be nauseated and weak as a kitten all the time, but to find yourself back in the hospital due to infection - That sucks!


    I am feeling pretty lucky so far,other than a lot of nausea and tiredness I'm OK. I am expecting the 'other shoe to drop' shortly based on what others experiences are. When did you folks start to loose your hair? I am day 11 of of first round and thought I heard it started to come out about day 14.


    Also, I will have a few good days and then whammo, I HAVE TO SLEEP for a day. Does this sound familiar?


    With regards to nausea, I started taking Ativan at night. It has also helped anxiety and not being avle to sleep. I highly recommend it for those who haven't tried it. I think someone might have recommended it to me a while back - Thanks!


    To the mashed potato eaters - I have loaded up with all varieties - Mashed, potato crockettes, progies, etc. I'm ready for anything when the need arises! I'll let you know how it goes.


    For the dog lovers in the croud, this is my boy Teddy - He has been amazing through this. I feel very luck to have sucj a loyal loving friend. He is sending good thoughts to you all.....


    image

  • ellischestnutgirl
    ellischestnutgirl Member Posts: 28
    edited December 2013


    Ladies,


    I got kicked out of the BGC today. They were not comfortable with how my port was functioning. Sent me for a cat scan with dye and it looked fine. Sent me to my breast surgeon who also inserted my port and she told me that the swelling in my neck is due to an inflammed sternocolidomastoid muscle that runs along the external jugular vdin. She said it will go away soon.


    She was a little upset when she asked what the nurses said about the port and I told her. The first nurse said that they did not like how this doctor likes to place the ports in the external jugular area. I like it actually as it is very accessible and out of the way when I want to sleep on my side. I also do not think she had much choice as my TE is placed very high on my chest. I have pert and perky foobs for the time being. (not stuffed), I also had less risk of a pneumothorax with this placement and it really has been relatively painless at the insertion sites. She stated that it really isn't for them to judge placement (true) that it is up to the patient and the doctor(also true) and that this is what we agreed would work best based on history, TE placement and how long it would be placed. It does not interfere at all with movement of my pectoralis muscles which I also like. My special nurse had to calm her down.


    The doctor had a good point. She stated that if I had not understanding about why it was placed there and someone said that, it would cause fear and anxiety and make me wonder if something was indeed wrong.


    So... i go to the BGC tomorrow for another try. I am jealous, Quirky and I hope all went well for you today. First time is the most anxiety-provoking.


    Just another bump in the road.


    I am trying to get them to allow me to give my own Nulasta at home. I know it depends on the insurance., but why can't a patient give a shot to themselves if they know how, instead of driving 30 minutes on e way and signing in, waiting and then getting a shot and driving home another 30 minutes? Makes no sense. I give these shots all of the time. It would same the ins. co money and me about 1.5 hours time.


    I keep telling myself that all of the good stuff is coming up as all of the crap is happening now.....


    Gayle

  • QuirkyGirl
    QuirkyGirl Member Posts: 383
    edited December 2013


    Gayle, good stuff is coming out of it! So sorry to hear about the delay. I hope your time tomorrow is as easy as mine was today.


    Tonilee, you poor baby! Hang in there honey!


    A general question from the chemo newb: my Neulasta shot is tomorrow morning. Do I start Claritin tonight? I managed to drive on the wrong side of the road on the way back to the hotel. Good thing oncoming traffic was stopped at a light and my sister noticed!

  • Melrosemelrose
    Melrosemelrose Member Posts: 3,018
    edited December 2013

    Quirkygirl- You can take it tomorrow morning but try to take it an hour or two before you get the shot.  The other option is to take it tonight.  You just want to make sure it is in your system and take it only once a day. 

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