October 2013 Chemotherapy

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  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    glad to hear that you are home Wrenn. I have been thinking of you. I agree with headeast, you have to weigh your risk vs benefit for you!

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    glad to hear from you Wrenn!!! We are all warriors regardless of the choices and decisions we make. We all have the "gift" of confronting our mortality in a real way and making hard decisions.


    Whatever you decide, you can still hang out here. We are all in this together ( hmm might start singing some High School Musical here).


    Sloy if they are not covering the bill the oncotype company have a financial assistance program that is income based. Please call and see if they can help.


    Pam. I had my husband come to my second chemo as well. My mom usually comes.


    Glad everyone is checking in.

  • Jianchi
    Jianchi Member Posts: 352
    edited December 2013


    wrenn - good that you are home. Whatever you decide will be the best choice for you. Cancer does not have a rule and we all do the best we can.


    Rest up!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    who can help me finding information about soy and cancer? I ws eating a Hershey chocolate and reading the ingredients and it has soy. My MO told me no to soy protein shakes...

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    Wrenn - I don't think you should say you are quitting....I would replace the word quit with choice.... I think you are making serious informed choices about your treatment and your life. They are very personal choices and only you know what is best for you. I agree with SchoolCounselor - you can still hang out with us!

  • SuckitBC
    SuckitBC Member Posts: 34
    edited December 2013


    wrenn-it always hardest to make big decisions when you feel crappy mentally and physically, but you will make the right choice for you. Keep us posted.


    Pam-i start my 1st weekly Taxol on wed. & am starting to get anxious as well. Because the steroids really made me feel awful & wired during my first 2 tx of AC (slept 1 hr in 72hr period) MO has me taking only 8mg night before & morning, but i believe we get some in the infusion as well. I also asked if i dont have an allergic reaction from tx #1 can we continue to decrease steroids because a reaction would most likely happen during the 1st tx & he said yes. Did you or anyone get any tips about weekly Taxol?

  • sloyd66
    sloyd66 Member Posts: 202
    edited December 2013


    Hi schoolcounselor yes they told me and I was eligible for it. thank god

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    Yeah!!! Slo, I cannot believe insurance is allowed to make health decisions for us!!!!

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    Wrenn -- I agree with the others -- you are not quitting, just making a different choice now that you have more information about how chemo will affect you. I remember thinking as you were battling the slow healing after your surgery that you are such a strong woman -- I still think that!! Colon cancer killed my father in the late 1960's, and as a teen I watched him battle through a colostomy and debilitating results of losing part of his colon. Breasts are lovely, and they serve great purpose as we nourish our children, but they are not part of our daily bodily functions. With your doctors' input and the help of your loved ones, you are making the best decision for you. Have peace. And, as others have said, keep hanging with the OctoChemos -- we love you!!

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    Thank you Kim, I get the feeling from my sisters that they think I am giving up because I don't like the side effects in general. They know people who have gone through chemo and say they managed. I have a friend with stage 4 colon cancer and although the colon surgery was difficult his chemo was a breeze he said. He had no pain, nausea or hair loss so it is different depending on the drugs used.


    It figures that the women here have the most compassionate attitude about it and by far the most realistic. I did a google search for diverticulitis and chemo and there are a few cases with just a short search that make me more committed to stopping. One mentioned that she thought it was the taxotere.


    I want to stay with this group not only because it is informative but because I have grown so fond of you and want to keep up with how it is going for all of you. I feel blessed and you are the silver lining in this journey. Saying thank you doesn't cut it.

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    I agree with you Wrenn, saying thank you to all these wonderful ladies doesn't cut it!!! I also feel quite blesses by everyone.

  • Macy187833
    Macy187833 Member Posts: 182
    edited December 2013


    Hi ladies, I don't post all that often because my regimen is different than most of yours but I do follow this thread and I am amazed by all the strength you all show.


    Wrenn, don't listen to well-meaning people who say, "well, my blah-blah's friend had chemo and they got through it just fine." They are not you! As for your friend who had colon cancer, the chemo protocols for colon cancer are very different and often don't cause hair loss. I wish our BC protocols could also include no hair loss. I think that would make everything a lot easier for many of us. Sigh.


    Anyway, wrenn, you have to do what you feel is right. Sometimes, SEs can be permanent for some people, depending on their situation and that is something to definitely think about. Quality of life is something to consider. Many oncs and other well meaning people in our lives don't understand that. They see it as, "well, at least you're alive. You have permanent side effects but you're still here." That is all easy to say when it is not happening to them, but happening to you. Hang in there and make the right decision for you!

  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Wrenn - I don't know when chemotherapy first emerged as a treatment, but when my grandmother was treated for BC in 1970 , she did not have any chemo or radiation. She had a huge tumor, which she ignored for years until it broke through her skin. She was in her late 50s at the time. She had a mastectomy, that's all. I don't know why. Anyway, the cancer spread to her bones in 1984 and she died of a heart attack in the hospital. I believe The Lord spared her of treatments that I know she would have been uncomfortable with. So, my grandmother lived a long time without further treatment and she was at peace with it.


    That is just one story of one person. There may be more your MO can do for you. Get all the info before you make a decision. You need to be at peace with whatever you do. Praying for you.

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    SuckitBC - it sounds like we are going to do our Taxol differently. I'm going to be doing the dose dense version - every two weeks for 4 treatments. I haven't read any tips, just that the side effects are different. Sounds like more pain, less nausea. But, we are all different and have different side effects so we will have to wait and see.

  • kcat2013
    kcat2013 Member Posts: 391
    edited December 2013


    Wrenn, I'm sorry you ended up in the hospital! I think you are smart to weigh your risks/benefits of chemo--a functioning colon is a very important thing.


    Headeast My MO said no soy also, but did say it was most important to avoid concentrated soy, like soy protein powder, and soy products like tofu. So trace soy, like soy lecithin in breads is not as big a concern--at least from my MO's perspective.

  • kcat2013
    kcat2013 Member Posts: 391
    edited December 2013


    Pam and Headeast, I'll be sitting in the chemo chair on Wednesday also, so I'll be thinking you guys too! I'll be having AC#3

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Pam and Kcat, getting ready for tomorrow. I went today to have my expansion, 75cc on each boob and it hurts like crazy. I took two Percocets and still hurting. Will try to sleep now and hopefully it will go away.

  • kcat2013
    kcat2013 Member Posts: 391
    edited December 2013


    Headeast, yuck on the expansion pain! I'm currently at 360mls and put my fills on hold until after chemo is over because I didn't want to deal with more expander pain on top of chemo junk--I'm a wimp though!

  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    kcat, I am a wimp too when it comes to pain and needles. PS was doing expansions one day before each chemo. I am at 325cc and he wants to go to 500 or 550. I wish the pain killers would work though!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    Hey Ladies!


    Hope you're doing ok. I got through some posts but need to read more.


    I had my 3rd Taxol/Herceptin today, was there about 5.5 hours. Having it weekly I switched to have my blood draw done first so there is an hour wait at least. But driving there the day before is such a waste of time & gas & through winter not fun in snow/ice.


    Wrenn, I was thinking of you, hang in there, it's all we can do. Step by step & only you can make decisions about yourself & treatment.


    My blood counts are still low, should be back up since being of the A&C but....I am teetering on the edge of the counts being a no go for chemo. Blood builder & steak will be on the menu again the next few days.


    It seems the fatigue must be a combination of weekly Taxol & the low blood counts huh?

  • Viji
    Viji Member Posts: 195
    edited December 2013


    Wrenn, I agree. You have to weigh the pros and cons. At this point, I am sure I won't go down this path again. I was not at peace doing it and there is nothing good about it. Stupid cancer....

  • TeamKim
    TeamKim Member Posts: 568
    edited December 2013


    I have been reading along with you all, but just not-so-patiently waiting for my hives to go away. Finally, today, I didn't have to take Benedryl, and just took the prednisone this morning. A few of my taste buds are starting to wake up again today too....can't taste anything sweet, though. Tomorrow I meet with the MO and I am prepared with daily photos of my rash progression -- will ask for Atarax (thanks Special K), and make it clear this cannot be 6 days or rash/hives next time. I will also take you all along in my pockets as cheerleaders.....


    Wrenn, how are you feeling?


    VintageGal, wishing you smooth sibling this week -- hope the low BCs don't pose a problem. When my WBC was low after my first tx, I never felt so exhausted in my life -- could fall asleep at any moment. Here's hoping you perk up a bit now that AC is in the past.


    Yuck for all of the expansion pain you gals have! I am having enough trouble keeping my head above water with the chemo & SE drugs. If I had pain meds in the mix, I think I would just about lose it! You all are so strong! Xxoo

  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    Teamkim, Im glad there's a bit of a change. That is a lot to deal with. I'm glad you have solutions in hand for next time.


    I have really bad stomach pains and have no idea if it is a chemo side effect, a diverticulitis side effect or flagyl/cipro side effect. Just waiting it out.


    As far as stopping chemo. My home care nurse who came to change my dressing today said that people adapt to colostomies but it seems to me that the cancer can come back with or without chemo but the bowel problems WILL be there if I continue chemo, I just think that at 66 years old I would rather gamble on the cancer and avoid other quality of life issues. I could adapt to a colostomy if I had colon cancer but it just doesn't seem logical too me to continue given the odds.


    Chemo has been as they say "doable" until this.


    Thank you for the warm thoughts and for letting me vent. I hope everyone is doing ok. Again sooooo strong you gals. xoxoxo

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    good luck tomorrow everyone. I will be thinking of you :). Hang in there and stay strong sisters!!


    My first few fills were painful but for me they got easier as I got further out. I think I had like 8? I think I maxed out my expander lol.


    I am day 7 post last AC and still a bit tired but nothing like last week and the chemo yuckies are gone. I know my counts drop around day 10 through 14 which is the main fatigue for me will hit. My MO told me that I was anemic before last treatment so prob will be worse this time.


    Vintagegal - I hear you about eating those steaks! Good thing I have been craving it. That and egg salad lol.


    My next appt with MO is dec 20th and I should find out about tamoxifen and when I can go for my exchange.


    I will be checking in on you all and cheering for you!! You are all so strong and I am so thankful to have you all there with me each step of the way.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Wrenn,


    hang in there- you are tougher that this cancer. Do what feels right for you and your health you have some heavy choices to make. We are here for you!


    I had my first Taxol yesterday. Had some sort of reaction. Called the nurse today to discuss but they did not get back to me. Not sure what the major dizziness was from yet. It passed after 30 minutes.I don't feel half bad this evening. I had my Neulasta shot and took a Tylenol & Claritin to fight off the bone pain. Did not realize how long the Taxol takes. Ye gads was at cener for 6 hours yesterday. 3 hours for my Taxol to drain empty. Biggest bag I have seen, good Lord. I had to pee every hour, lol.


    I was originally suppose to have Taxol every week but my MO changed my tx to every other week. I think it is because all my blood counts have been getting consistently lower. Hopefully they will come back up next week. Usually Taxol is every week or every 3 weeks correct? That is what I have heard. Does anyone know why this is?


    Have a great week ladies & thank you for being here!

  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    Furfriend2 - my taxol is scheduled for every two weeks - dose dense version.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited December 2013


    FurFriend2


    I had A&C dose dense every other week. But the Taxol is every week for 3 months now. Bag takes over an hour but I am usually there 5 hours all in all. I get Herceptin after that for an hour, that is weekly & will be a full year treatment. PITA


    I am on what they call the EAST COAST treatment, been around longer & also takes longer than the West Coast. But I don't know how they determine the weekly or every other week dose. I know the onco & the tumor board discussed it, & this is what they came up with for me.


    This is where I hear of different protocols & treatments. You Gals are the ones with the info! Region, country, dr, cancer type/grade & tomor size all factor in. But sometimes I read of chemo treatments here that are really different than mine. It is all good we are here for each other!


    VintageGal

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2013


    I start my Taxol on Friday, weekly for me. My nurse said that I would probably not need Neupogen injections with the Taxol. I am to take Dexamethazone 4 mg on Thursday. Also I would probably not need nausea meds after. They do give Zofran IV premed.


    Pam please let me know how you do with it even though you are doing dose dense.


    Good luck everyone, hope this week is smooth sailing for all of us!!!

  • SuckitBC
    SuckitBC Member Posts: 34
    edited December 2013


    Starting my weekly Taxol tomorrow and I keep reading on here about taking L-glutamine and B6 for neuropathy. I am going to ask my MO about it, but is anyone starting Taxol this week taking it?

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Pam & Vintage,


    thank you for the quick response! How are you doing with the Taxol? Better than AC?


    On another note are you ladies looking forward to Santa? I am not excited this year, too many obstacles /challenges/turmoil the last two years. I am thinking next year is going to be my year! Yes, I am hopeful Loopy

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