October 2013 Chemotherapy

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    DebDylan, I am sorry about your divorce but I guess we have to 'chemo' stuff that hurts us!


    Have a wonderful day!

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  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    today is 5 days after AC and there is no way I could sit for 8 hrs. Deb is there anyway u could move it?

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    im in hospital with diverticulitis. Bad diarrhea. Will post later. Inthink i am done with chemo. Not worth losing part of colon. Love you guys

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  • lgkgde13
    lgkgde13 Member Posts: 164
    edited December 2013


    oh no wrenn, keep us posted and we will be thinking of you. Stay strong

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  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2013

    wren - oh no!  Have they checked you for c-diff from all of the long term antibiotics?

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  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Wren - so sorry you are so sick. Thinking of you !

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    Oh Wrenn, please hang in there. Try not to make any decisions about chemo right now. Just focus on getting better......

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  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    Wrenn - so sorry to hear you are so sick you need to be in the hospital. Sending support and healing thoughts your way.......

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Wrenn, I am praying for you

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  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited December 2013


    wrenn so sorry...I will oray for you

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  • Jianchi
    Jianchi Member Posts: 352
    edited December 2013


    wrenn - hope you are feeling better now.

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  • denise4603
    denise4603 Member Posts: 132
    edited December 2013


    Good luck Wrenn, so sorry to read your news. It's just one thing after another with this evil cancer. I will keep you in my prayers,


    Denise4603

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  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited December 2013


    Wrenn, so sorry you are having problems. I think that is one of the possible SEs too! Your doc should be able to tweak your meds to prevent that from happening again. Rest and discuss it with the docs before you make any decisions.

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  • Furfriend2
    Furfriend2 Member Posts: 299
    edited December 2013


    Wrenn, sorry to hear this. Are you ok emotionally? All the damn side effects. I hope your Dr and team can make you comfortable and give you options. You are in my thoughts Wrenn. (((hugs)))

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  • SuckitBC
    SuckitBC Member Posts: 34
    edited December 2013


    Thinking of you Wrenn...


    Kbee-thanks for your response, it always makes me feel better when someone else has the same uncommon SE! I noticed we had our surgeries within days of each other so that makes me feel even better. And yes, it's that iron bra feeling, hating it!

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  • Annecy
    Annecy Member Posts: 54
    edited December 2013


    Wrenn- so sorry to hear that you are in hospital! Are you at the VGH ? I will be at the cancer clinic tomorrow for TX # 3 , let me know if can get you anything...... Just send me a note, I will have my IPAD with me. My thoughts are with you this evening . Hugs

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  • Annecy
    Annecy Member Posts: 54
    edited December 2013


    Wrenn- I'm sorry to hear that you are in hospital ! Are you at VGH or in Richmond hospital ? I will be at the Cancer Clinic tomorrow for my TX . Pls let me know if you need anything... just send e-mail , I will have my IPAD with me. My thoughts & prayers are with you. Hugs

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  • Viji
    Viji Member Posts: 195
    edited December 2013


    Thinking of you Wrenn...

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    I have my TC #4 on Wednesday, anybody else this week? This is my last one! I can't get over it! A milestone!

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  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited December 2013


    Nicole were you able to touch base with Wrenn? Just thinking about her.


    I hope your treatment went well.

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    You guys are the best ever. I could read on my stupid iphone 4 but had a hard time to post. I am home but might have to go back. Hgb went from 122 to 109 so they are not sure if still bleeding or diluted from IV fluids. I will have it checked in 2 days and go back for scan if still low.


    Fatique has set in and neutrofils quite low. I am taking flagyl and cypro now so that hurts the gut too.


    My theory on chem right now is that for a 10% chance of kicking cancer (that I might not have) it really isn't worth it to ruin my colon. I have had diverticulitis before and because I have diverticulosis am more susceptible. I really think that life would be better with colon in place and gamble on the breast cancer. I am 66. Will discuss with onc but that is where I am right now.


    I cannot tell you how much it meant to me to read your posts. I wish I had a better phone so I could have responded but reading was very comforting.


    Nicole, I thought of you this morning knowing you were just down the street and I hoped you were doing ok. One more to go for you. I hope this one is an easy ride for me. Check in when you are up to it and thank you so much for your kindness.


    Huge hugs to everyone here....xoxoxoxoxo

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  • Milane
    Milane Member Posts: 34
    edited December 2013

    Hi Ladies

    Last Tuesday I had my 3 round of AC. So far I have not had really bad side effects. This last round I had flu like symptoms after the Neulasta shot, but by Friday I was better. I told my Onc that I would like some type of scan to see if my tumors are responding. Today I had a Ultrasound on both sides. My left 2 tumors (2.3cm/9mm) TN have shrunk. The 2.3 about 40% to 1.4 and the 9mm about 1/3. My right tumors HER2+(9mm/1cm)  cannot be found anymore on the Ultrasound! My last AC is on 10 Dec and then I go on to 12 rounds of Taxol weekly. I hope it all continues like this :-)


    Milane

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  • Pam358
    Pam358 Member Posts: 294
    edited December 2013


    Wrenn - so glad to hear that you are home! Thinking about you and your difficult decision with chemo.


    Headeast - I will be joining you on Wednesday. I have my 1st Taxol on Wednesday.


    I'm a little anxious about it since it's the first. The whole speech I got about how they will watch me closely for a reaction and what they do to prevent it, etc made me nervous. I asked my husband to take a day off from school to take me (a friend usually goes with me) - not sure what he can do to help, but it will make me feel better. Part of it is that I got used to the AC routine and knew what to expect, so now it's more wait and see. My MO said 99% of his patients said T is easier than A&C so that was good to hear. I'm also not looking forward to the high doses of Dex (steroid) that I have to take before I get there - 20 mg at 12:30am and another 20mg at 6:30 am. I don't like how I feel on it or the side effects. But, this too shall pass.......

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  • smrlvr
    smrlvr Member Posts: 422
    edited December 2013


    Wrenn - I am so glad you are home. I hope you are feeling better. I understand completely your logic regarding the chemo.

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Wrenn, are you feeling better? This is a hard decision to make. Will they give you options?

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  • sloyd66
    sloyd66 Member Posts: 202
    edited December 2013


    I know how the AC is worked, but with the taxol is the schedule the same as AC once a week or everyday? AC is once a week right? lol.. Sorry y'all I'm still awaiting to get my oncotype score. Just found out that my insurance is not covering that bill, but they told me I was eligible at a 100% and didn't have to pay, thank God. I just want to get this thing going and stop waiting.

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    pam i took clonazepam or ativan on days i took the steroids and a sleeping pill (zopiclone) on those days as well. Those were my best days.


    I still have a lot of stomach pain but i think it is part of the side effects and is not that bad. Maxeran helps.


    I will talk to onc but am pretty sure i am quitting. I feel guilty for that since you are all so strong with much worse time of it.


    One funny thing was when i told my daughter i might quit and then said to her "oh crap i shaved my head for nothing" but then remembered that hair loss happens with first treatment.

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Wrenn, your daughter is hilarious! Hair falls on days 14-15 not all the way but enough to make her happy, lol!


    For the stomach pain I took GasX, Motrin. It helped.


    Whatever you decide will be the best. Your surgery removed all of it and chemo 1 removed whatever was left, plus your hair.

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  • wrenn
    wrenn Member Posts: 2,707
    edited December 2013


    headeast i hesitated even mentioning giving up with a group of soldiers that i have met here. There is more courage on this forum than i have come across in my 66 years. I include the ones who have pity parties because that kind of trust is a special kind of courage.


    I should have known i would only get compassion here...and hope. Xoxoxoxoxo

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  • Headeast
    Headeast Member Posts: 619
    edited December 2013


    Wrenn, you are not giving up. We all have to measure our risks vs benefits. Your risk has changed immensely and like you said, you can not risk your colon.


    My question about the options was more for your MO.


    Yes, the ladies in this site ate true warriors! Women always stick together!

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