Starting Chemo July 2012
Comments
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Today I am celebrating my 1 year PFC. I know my friends and family are happy for me, but don't understand why I celebrate each milestone. All I can think about is "Last year at this time....." and I'm sure you gals can understand that feeling.
I'm looking forward to tomorrow. I'm going for a reduction and lift on the non BC side and he will also put some fat into the depression left behind from the lumpectomy. The fat is going to be taken from the belly, not the reduction and I told him to take as much as he could even if he didn't use it all. I've got plenty to spare. After healing from this, I am going to get serious about getting myself into shape. My daughter gets married in less than a year and I want to look good for the wedding pictures! -
PAEagles, doesn't it feel good to be further and further away from chemo? I mostly try to forget the details of it. I can't believe I was bald and going through AC-T this time last year. It seems unreal.
Wishing you well in your next phase of reconstruction.
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It does Ann and I think after the first year all of those milestones will pass with much less notice.
The surgery went well and my girls certainly look different right now. Looking forward to the swelling going down and the bruising to heal so I can see what they're really going to look like.
Today I got a get well card from all of the nurses who cared for me that day. I thought that was really sweet. -
It's a year ago this week that I had my last chemo and I'm happy to report that this week I realized that my bangs had grown out enough to be below the tops of my eyebrows. I have had a few haircuts in the interim, to tidy things up, but it was nice to see my usual past sign that it was time for a haircut: the long bangs. This evening I got a cut.
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Hi Ladies- been away on the Greek Isles and had a lovely holiday!!! Was great to see some sea and sunshine. It has given me another boost, as I was feeling really worn down again before I left. I definitely feel better now i have finished the herceptin. I only had one of those really bad days when I was away when you have absolutely NO energy. Otherwise I was fine.
I know what you mean about milestones. Sitting on the beach at Zakynthos I thought how happy I was that it wasn't this time last year!!!! We went to Rhodes, as a treat after my chemo, but it was really difficult trying to keep out of the sun, and not show my bald head when I went swimming. I had bright pink bathing cap that I wore, but it was so hard trying to put it on and take it off when I went into the sea without making a spectacle of myself. We have always loved snorkeling, and I am not afraid in the water, but the first time I went in at Rhodes I was so nervous - like I didn't know how to swim. That really upset me for a while, but I got over the fear quickly after the first 2 swims. Dare I say it - my hair is now long enough to blow in the wind!!! feelingthe magic - you said your hair growth speeded up post herceptin, and mine has also done so.
Virginiab- bet you look gorgeous!!!. Will have to go for a slight trim myself soon.
PaEaglesfan- So glad to hear you had the girls matched up- I know you wanted to. Tell your PS I will lend some fat as well!!!Let us know how they turned out now the swelling has gone down. I didn't realise you had a lumpectomy- thought you had a mastectomy like me. I am sure they will match perfectly and it will all be worth it. I thought about it, but I have had a unilateral mastectomy, and nothing is going to match these boobs!!! They look so different. My DH didn't want me to have any more surgery, and if I had gone that route I would have had to have a nipple reconstruction as well, and as I said I doubt it would have made any difference.
Susan HG123 - how are you? Are you back on the Herceptin? Thinking of you.
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Ann- I know what you mean about it feeling so unreal - like some horrible nightmare!!! I am just so grateful it is over. I met patient whose hair was the same length as mine. She had cancer but not BC. Unfortunately she had a recurrence and had to start chemo all over again with a bone marrow transplant at the end. She said it was so much harder this time, as she knew what it involved. I just gave her the biggest hug!!!
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Hi Ladies! Back to work since Monday and I'm tired but happy! Surgery went well and the girls are starting to resemble each other again. The non-bc side was reduced and is starting to relax and not resemble a torpedo so much and the lump-e side is still bruised from the fat graft but it is filled out nicely.
I'm ready to say I am DONE with all this BC related crap and get on with my lifeThis weekend a friend and I are hosting a bowling fundraiser (her hubby was dx'd a month after me) and I am looking forward to it. We called it Bowling for Boobies. Not very original, but my daughter designed a really cute logo for us and we have signs all over and had some t-shirts made up and it's going to be FUN! (I bowled in a few leagues in the past).
Greek Isles??? Ahhhh that sounds like heaven.
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Hi Ladies,
Have I mentioned my lack of fondness for cancer? But--we would not have met Maddie-and I am thinking a trip to the Greek Isles should be in our future.
20 or 21 weeks of herceptin and I am done. My Ejection Fraction dropped from a lovely level of 53 to 35. My MO and the clinical pharmacist, research assistant, and clinical trial person at the Herceptin company all said no more Herceptin. Am searching for a clinical trial, new drug, old drug that might work, anything. Will start back with a cardiologist next week and have another ECHO. I am so so tired. I actually stayed home Wednesday and slept all day. AS I did today. Just slept. Her2 is so darn aggressive. Need that special drug to kill it in its tracks. I tell my self I have had a nice life. Then, I learned yesterday my first grandchild is due in April. I need new drugs.
I hope the other members of the group are well.
Love to each -
Hi Susan - Congratulations - how wonderful!!! Thanks for the kind words - if not for this threadI wouldn't have met all you wonderful courageous ladies either. I can definitely see The Greek Isles in your future.
Susan the lack of herceptin is only a problem if the the cancer has spread. The ladies on our thread are sending you such positive thoughts and vibes that I know all those suckers were taken out with your lymph nodes. They are outta there!!! Put it out of your mind and concentrate on getting better physically. Much as I am so grateful my heart managed to tolerate the stuff -the rest of my body didn't like it one bit! I have been off it for about 3 months now, and I am feeling so much better. The down -on -my -knees fatigue has improved in leaps and bounds, the burning rash has gone and the woolly/light head has almost gone. In a few months you may feel up to taking on those pirates!! A lot of ladies have complained about the joint pain on Femara. One survey said 42% stop the drug early due to the unpleasant SE's. Look on the threads to see if they have any advice about the joint pains you get. One lady said Glucosamine and Chondroitin helped a lot but she had to take a high dose before she saw any improvement.
Sleep well Lion Heart
PA eagles -hope you are getting on okay at work and it is not tiring you out too much -
Hi Ladies.
Last year @ this time I recommended we meet in July someplace with hot and cold running maid service and cabana boys. Now-I am thinking the Greek Isles! We need to hunt our missing members and make a plan.
I have connected with a new cardiologist and am most pleased. Had ANOTHER ECHO and he thinks I am crawling back towards an EF of 40%. Started 3 cardiac meds last week and am looking forward to breathing normally again. Will have a 2-part cardiac stress test in a couple weeks to get a clearer look and go from there. I see my oncologist this week. Am hopeful he has a plan to discuss a clinical trial option. I do not want ot overlook anything and want to take advantage of every option. We will also discuss which oral chemo to start or restart. I want some numbers from him-if the drugs really improve years fine. But-if only a short time-would rather have quality. I hate not having the advantage of Herceptin. Although it will be nice to have the fatigue go away. Really nice.
Taking on a pirate. Hmmm. My visual is Johnny Depp in full costume -
Hi my friends- just checking in on you all. I now have a real mop of hair. Seems to be growing faster now I have finished the herceptin - or maybe it is just my imagination. I went Christmas shopping yesterday, and was grumbling to myself, as I couldn't find anything I went to buy. I was thwarted at every turn- shop closed down etc. Then I thought to myself - hang on - you are so lucky to be here with enough energy to be able to shop. Quit grumbling!!! Hope you are all well -
Yeah, Maddie, when you said you have a real mop of hair, I thought that my hair is very mop-like! I feel a little like a Raggedy Ann doll with yarn hair--if Raggedy Ann was partially gray....
Had my 18-month mammogram and all is well. -
Hi Virginia- bet you make a cute Raggedy Ann! Have your curls stayed then? Thrilled to hear your mammo was all clear. It's always a relief to get that out of the way! -
My hair is not mop like-mor sticking up like a mohawk! Last herceptin sometime ago so ready for the mop!
Next appointment with MO is Christmas week. I think I am on his "back burner" unless someone calls with a clinical trial. I know I am not an emergency-unless there is a recurrance. The orals-am back on Femara-continue to be full of nasty SEs.
Christmas-that is very soon. All I know is I will gather with all of my children in Texas. My third child (the only one married) is pregnant. Cora Jean is due in April! Most excited about a baby. It has been several years all 4 children have been together. They planned it-even better. I need to start meking a Christmas list. And make copies of the list. Because I will lose it.
Love to all -
So happy to see everyone posting about normal life stuff again
Your comments made me think of last Christmas. We always went to hubby's gramma's house after all of the festivities were over at other homes. Last year she was getting forgetful and confused (She was 92!) and she asked me if I had gotten everything I wanted for Christmas. Told her "Yep, my hair is growing back nicely now." She said...."Didn't you like having it cut that short?" God love her, she forgot all about my chemo. I was quick to assure her that I most certainly did not ever want to have my hair that short again! -
I actually had a bit of a "real" hair cut today! My hairdresser pointed out I now actually had a shape to my hair-despite it still being very short. Looking forward to this burst of growth!
Made reservations to fly to Dallas in January for Anne's baby shower. It is about a 7 plus hour drive-which I have done several times pre-cancer. I still get so darn tired am a bit afraid to do it alone. And the DFW traffic is awful at best.
She wants me to make a baby quilt in shades of---get ready---pale pink, off white, and grey. Seriously. The walls in her room will be grey, the dresser white, and her bumper pad and crib skirt a pale pink. I am open to suggestions. I told her I need 16-20 fabrics to work with--
Am much pleased with the cardiac drugs I am taking. So nice to be able to breath and walk at the same time!
Normal conversation. Anyone watching Hostages? I am loving the acting. Quick story line.
Off to bed. Much love to all. -
Hi PaEagles - loved your story about your Grandmother. How cute is that! Probably better she doesn't remember it would only worry her. My dear Brother-in-Law has just had a brain tumour removed, so is bald for the moment. I said I hope it grows again quickly so we can have a family photo where everyone has hair of some sort. He is doing really well, and we are hoping it is benign, but boy it gave us all a scare.
Susan - re Christmas. I have a list too. I write down everyone's name, what I buy and how much it cost. If I didn't I would be sunk. I am hoping to finish my list soon, as I hate shopping in December when the shops are so crowded. The quilt sounds wonderful. Aren't you the useful one - first home baked bread, and now quilts! Pink and grey are quite common colours now, so you may be able to find a few different floral patterns with those colours in them. Glad to hear the hair is coming along. Apparently hair growth slows down in winter, so you may have to wait until spring for growth spurt! -
Yes, I still have moderately curly (or very wavy) hair. I'm not sure which term to use for it. The curliest is in the back, where I rarely bother to look.... I still haven't really learned to handle it, but I'm happy to have a full head of hair, so I try to be philosophical. This works most of the time.... ;-) -
Happy thanksgiving to all. To those still suffering through treatments, my hopes that they go well and are effective.
This time last year I was too sick to even go to my daughter's home for the family get-together. Chemo reaction, lymphedema, flu, ...who knows?
This year I am hosting the whole family. It's wonderful to feel strong enough to do that. I don't take my good health for granted any more. -
Hi Happy Thanksgiving to you all! Nat thrilled to hear you are feeling strong enough to host the family gathering. Are you still sporting your sophisticated hair style?
On a more sombre note- I came across Stride's post whilst looking for something on the site. She was one of our lovely chemo group, and such a sweet person. She stopped early, and had surgery as the chemo wasn't having any effect on her tumour. Unfortunately she has had massive spread. I was unsure whether to tell you all, but as we have all been through so much together, I thought you may want to send her a message of support. Hope I am not stepping out of line with this.
Sleep well chemo buddies. -
Hi Ladies - I am so sorry and shocked to tell you this, but our darling Stride has passed away. I think her real name was Cathy Lamb. I only PM'd her a while ago. -
Hi Ladies- sorry I was so shocked when I saw Stride had passed away that I wasn't looking properly. Stride's name was Celia not Cathy. -
Maddie--
Thanks for sharing the information about Stride. -
Oh gosh that's so awful that stride lived such a short time after diagnosis. I feel sad, angry and shaken up. Thank you Maddie for letting us know. -
Hi Ladies- yes it was a big shock that Stride's cancer spread so fast. She had an unusual form of breast cancer. She knew she had a high risk of occurrence, so had formulated a 5 year plan. I am happy to say she managed to cover a few items from her bucket list, and even went Kayaking with her husband the week before she received the terrible news of the widespread mets. Seems she even had a large tumour in her buttocks, and mets everywhere else. I sent a message of condolence to her husband, and he said she was gracious and a fighter to the end. RIP Stride. If anyone else would like to email him, I have his address.
On a happier note- hope you are all keeping well, and have finished your Christmas shopping before the shops get unbearable. Thinking of you all as always -
Hi my group of incredible ladies- just wanted to wish you all a wonderful, magical and healthy new year and Christmas. May all your dreams come true. Isn't it fabulous we all have hair for the usual Christmas photo!!!! -
It is Maddie. Last year there was hair there... but not like there is this year! I've always had short cuts and since my journey thru chemo ended, I've decided to let it GROW. I love that I have to 'fluff' it out of my coat collar now!
I only have one wish for Christmas and that is to see many more Christmases come and go and remain cancer free. May the blessings of the season be yours and may we all have a healthy and prosperous 2014! -
Thanks PA and to you too!!! One of the things that give me the greatest pleasure is to feel the wind ruffling my hair! Just laugh with joy when it happens.
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I had that same feeling over the summer when hubby and I were on our way home from work and had the top down on the car. My hair was whipping around and I just laughed! He thought I was losing it lol
My trees (4 of them???) are up and decorated, gifts are ordered and I'm waiting for delivery and tomorrow is cookie day. Mom and daughter are coming to my house and we are doing Pecan Tassies and peanut blossoms and choc chip and sugar cookies. (The last one is my mom's idea, we don't usually do them).
Cancer seems like it was another lifetime ago and I pray it stays that way. -
Gee whizz Pa - 4 trees - I hardly had the energy to do one this year. It sounds gorgeous!! Any snow your side? We haven't had any yet, but it is cold and overcast- the Christmas lights do tend to cheer it all up. Think I'll pop in for a few of your homemade cookies - they sound delicious!
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