IORT & Insurance

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I met with my surgeon today and she said I am an excellent candidate for IORT during my lumpectomy.  I was really happy to hear that because 33 radiation treatments would be almost impossible with my work schedule.

The IORT is part of a clinical trial at St. Joseph's Hospital in Orange, California.  I understand that it has been ongoing for 2 1/2 years.

My question is, for those of you who have had IORT, did your insurance approve it since it was a clinical trial?  Are there any insurance companies you know of who will not approve it?  I'm with Tricare Prime.

Thanks for any input you have.

Debbie

Comments

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    pokemom - I also have Tricare Prime and have been involved with two clinical trials, but did not have IORT, or conventional rads. It is also offered here in Tampa at Moffitt Cancer Center. Both of the trials I have participated in have not involved my insurance - generally clinical trials are gathering information on unproven modalities so the trial costs are borne by whoever is conducting the trial. Are they telling you that Tricare needs to pay for the IORT rads? The only danger I see with Tricare is that they sometimes will not pay for anything termed "experimental" - even if FDA approved. Tricare denied payment for Mammaprint testing for me for this reason, so if they are solicited for payment for IORT they may deny simply because it is in a trial setting.

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited November 2013

    Well, I didn't ask about the costs of the clinical trial being absorbed by St. Josephs or the NCI ... I've been doing a little research since I posted and found these two sites:

    Tricare will cover NCI sponsored clinical trials for breast cancer:

    http://tricare.mil//cancertrials/

    And, I searched for the IORT clinical trial on the NCI site and it looks like it is sponsored by the NCI:

    http://www.cancer.gov/clinicaltrials/search/view?cdrid=740478&version=HealthProfessional&protocolsearchid=12167991

    Am I reading that correctly?  Is this clinical trial sponsored by the NCI?  This is all so confusing.

    Debbie

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    pokemom - the info from Tricare sounds promising, but I couldn't get the second link to work - it is giving me an error. When I searched NCI with IORT I did not get the institution you referred to in your original post. The easiest thing to do it talk to both St. Joseph's and ask if they are billing insurance for IORT or is that already covered by trial monies, then talk to Tricare and ask specifically if they approve IORT. All moving parts of your treatment require advance referral with Tricare Prime so you will know beforehand if they will pay for it, and it should be part of your surgical referral since it is part of the lumpectomy surgery. I would also ask your BS to seek the referral auth ASAP so you can get these questions answered well in advance.

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited November 2013

    Thank you - they are already asking for the referral for the RO, but I think the request for the IORT has to come from the RO, who I don't see until 12/4.  When I looked again, it looked like the St. Joseph's IORT study is sponsored by St. Joseph's not NIC - it's just a clinical trial that is listed on the NIC website.  I will confirm everything with both St. Joseph's and Tricare ... I wonder how much the IORT would cost if the clinical trial doesn't cover it and Tricare won't pay.  Very frustrating.

  • savgigi
    savgigi Member Posts: 376
    edited November 2013


    Pokemom, I had IORT in Feb. My RO said it cost about 1/3 of conventional radiation and he had never had a problem getting it approved with my insurance, United Healthcare. They paid with no problem except for the portion that was applied to my deductible.

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited November 2013

    Thanks for your replies ladies.  You know how people say that they just know when a treatment is right for them?  Well, I know this is the right rads treatment for me. I'm praying hard that my insurance approves it.  My breast surgeon said that the cost of the IORT is about $2,000 and the cost of the conventional rads (33 treatments) would be about $20,000.  It seems that it would be such a cost savings to the carrier that they would approve it.

    If anyone else has any experiences with IORT and insurance, I'd love to hear them.

    Debbie

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013

    pokemom - when you find out the insurance answer please come back and post.  The information will be helpful to others with the same questions.  I hope this works out for you!

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited November 2013

    I definitely will ... I'll either be in here cheering or pouting and trying to figure out where I'll get the cash to pay for it myself!  LOL

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013

    Insurance and doctors - two of THE most frustrating things.

    Still don't have an answer about the IORT and Tricare.  I think the IORT may be covered, BUT, the radiation oncologist who does the IORT is not a Tricare provider ... so that's mucking up the works.  I just want to draft the freaking referral request myself so I can explain everything to Tricare and they can just approve it and we can get this over with!

    I've spent the entire day today (when I should have been working), dealing with 3 doctors' offices and 2 different Tricare customer service people - ended up having to cancel my appointment for tomorrow with the IORT RO because I don't have the approval (yet).

    Grrrrrrr.  Venting helps.  :)

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013

    Small update - when the surgeon's office submitted the request for the IORT and the RO at the same time and explained why I needed this particular RO (he is the only one who does the IORT as a part of this clinical study), they approved a consultation with him (he's out of network) and several follow up visits.

    My understanding is after I see the RO (appointment is on Monday) and he determines I am an appropriate candidate for the IORT (which my surgeon said I am), the RO will submit the request for the IORT and his services during the IORT.

    I am cautiously optimistic that since Tricare has approved the IORT consultation with the out of network RO, they will approve the IORT when he submits for it.  If they don't I'm going to pay out of pocket for it (hopefully with a substantial cash discount) because I truly believe this is the best treatment option for me with the rads.  Fingers crossed!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2013

    pokemom - hopefully you can make this work!  I had a skin/nipple sparing BMX and my BS, to whom I was referred through Tricare, requested an out-of-network PS because that is who he uses for that particular surgery.  Tricare approved the out-of-network PS, even though there were available in-network PS, because of the BS request.  I have had 7 out of my 8 surgeries with this PS, long after the interaction with the BS, and Tricare has paid for every one of them with no questions asked.  Good luck!

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013

    Tricare is really very good about approvals and authorizations.  In all the years we have them, I think they've only flat out refused one procedure and we really didn't push it with them.  It's fabulous coverage.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2013

    I have been very happy with Tricare - they refused one item, the Mammaprint test, which although FDA approved, it considered experimental by Tricare.  It is a $5,000 test so that bill was a shock when it came in the mail.  The BS office had failed to obtain an auth in advance of sending the test though (they would have known that Tricare would not pay if they did!) and I did not sign anything saying I would be responsible for any unpaid balance.  Tricare paid the shipping cost for the test to go to Agendia Labs in California, so I requested an AOB (Assignment of Benefits) form which states they will accept what insurance pays - so they got $61, and that was it! 

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013


    I saw the IORT RO today. He said I am perfect for the trial, so I will definitely have it whether Tricare pays or I do. He will submit the authorization to Tricare tomorrow and hopefully we will have an answer by Friday. Surgery will be scheduled in January. I'll let you know if Tricare approves.

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013


    Good news today - the surgery and the IORT have been approved by Tricare!!! I'm so excited (well, relatively speaking). :)

  • SpecialK
    SpecialK Member Posts: 16,486
    edited December 2013

    pokemom - so glad that you get the treatment you really want and it is covered, I am happy that it worked out!

  • Pokemom1959
    Pokemom1959 Member Posts: 198
    edited December 2013

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