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  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2013


    Right there with ya juneping. But, breathe. Remember that stressing won't change a thing. Now if only I could remember that.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    pipers dream,


    thank you!!


    i hope this new r/s will work out. even though it's very hard but it also shows the true nature of the man. if he loves you, he'll stay with you thru the thick and thin.

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  • RobinLK
    RobinLK Member Posts: 840
    edited November 2013


    RedReading - I had the wires for my lumpectomy and ALND. However, the dye for the SNB was injected after I was under anesthethia for the surgery. Much better for me as I am also a needle-phobe!


    In Arizona many cancer patients receive a "Bag It" bag. I sooo love mine. It can be ordered by those out if state, but sharing the info with your doctors could also help make it more available nationwide!


    Here is the link: Bag It

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  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    Oh juneping, I am so sorry that this is happening to you.


    It sounds like you have a very proactive Doctor who is doing everything right to find exactly what's going on and seeing you get the tests and treatments you need.


    Of course you are exhausted, there is so much to process and lots of decisions to be made. No one ever expects to be in this position. I know it is hard, but you need to really look after yourself, eat as well as you can, and rest so you're ready for the surgery and the treatment.


    Please come here often, you can vent anytime, there will always be someone around to help and support you.


    Wishing you all the best!

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  • sandra4611
    sandra4611 Member Posts: 2,913
    edited November 2013


    Juneping,


    I'm so sorry. This is such a horrible disease. What a shock to find it in your other breast. I know what you mean about the mental burden. I had a BMX for that reason almost 3 months ago and I don't regret it one bit. It's hard to stay strong when everyone is giving you their opinion and most of those go against what your gut is telling you. Vent away...we are here for you and UNDERSTAND what you are going through. Doctors know about medicine...we are the experts in living with this disease.

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  • TrinityMorning
    TrinityMorning Member Posts: 54
    edited November 2013


    Hi all,


    I'm new around here. I was diagnosed with multi-focal DCIS on November 7th. I have a BMX with sentinel node biopsy scheduled December 11th. I noticed that Piper dream and Judi are teachers - me too. I teach kindergarten through 2nd grade. I'm on leave now, though, and it feels so weird - I don't know what to do with myself except fret.


    I'm so sorry you all have reason to be here, but soooooo grateful to find such a supportive place. I have a great support network, but nobody that I know actually really gets what its like to wait for biopsy results and to be so anxious for the path report after surgery.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    Ariom, Sandra,


    thank you for your kind words.


    and yes, we are the experts in living with this disease. this is so wise...


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  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2013


    I think the numbness wore off today. I had a really bad day and it started when one of the girls said something sympathetic. It's like, if someone else says something that makes it real. Most of my students are boys so they mainly show their love by taking it easier on me than usual and I can handle that but sympathy will send me for the tissues every time. Barely got thru the day, but thankfully I have some busy days coming up and we're going to make a big pan of rolls in life skills tomorrow for a dinner we're all giving. There will be no time to think and I'm grateful for that.


    But I'm reading what you guys are going thru already and I still haven't even had the MRI the doc ordered--insurance is dragging their feet. I called Siteman in StL today and will try to get my surgery up there--it's 2-1/2 hours away and I'm trying to balance getting the best care against trying really hard to not take too much time off and I feel that things are moving too slow down here but it's my insurance co that's holding it up. I was thinking of maybe having the surgery over the xmas holidays but can this wait that long? Esp with hoping for a lumpectomy? So, taking my own advice--go with the flow. Breathe. Hard. Going shopping now for that Thanksgiving dinner for school.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    piper -


    yes, the MRI seems like a big ticket item. my primary doc called the insurance for me (also warned me it's a huge bill) to get the approval #. after getting the number, i made the schedule. and when i went to the radiology center, the insurance company needed to speak to me. funny thing was the MRI technicians were ready for me, while the insurance still holding the process.


    can you call the insurance yourself?

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  • Siniberry
    Siniberry Member Posts: 14
    edited November 2013


    I had the lumpectomy with needle and wire going thru, it burned but wasn't to bad. Had my surgery Tuesday. Feel like crap, was sick all day yesterday. All I know so far is that he took a softball size out and the tumor was about dime size. He said I would be on hormon (sp) therapy for 5yrs. Won't know anything till Dec 5 when I go back to him. I have had a headache every day since the surgery. Just wanted to update everyone.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    came back from my second opinion and decided to go with doc A. She's very nice and personable...she felt my breast first and had the nurse brief her my reports. And she talked to me a bit. She's laid back enough to let me let me ask questions and didn't throw radiation chemo in my face. I sort of appreciate that. She did say I would need a mastectomy which she always try to avoid. Her nurse is a god sent and she actually told me I am estrogen and p....positive and waiting for the HER come back. She also told me my cancer is the slow growing kind. I feel i am handled by a very good team. Already scheduled for the surgery on 12/19.....can't wait to get it over with


    Btw, she told me bilateral is not changing much for survival rate. Since mastectomy only removing 97% breast tissue. She seems to be conservative to remove both. That I also appreciate. She sees me as a person not a cancer container

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    Juneping, so sorry to hear about your new dx. I guess I'd be leaning towards a bMX too. Sigh. Sorry. I hoped for a better, softer dx for you.

    Siniberry, awww. Boy i really sympathize. I hope you improve rapidly from here on out. I have the same dx as juneping, but am having the same op as you. Strange how much all our drs differ in their advice isn't it. 

    Piper, maybe its a good thing you aren't numb anymore. When you aren't numb, life can go on right? You can get into those things like thanksgiving dinner. Your sad day may have been really good for you. I hope so.

    Jodi, whats happening?  I know you had your op, but haven't heard from you since. I hope you are ok.

    Robin, thanks for the advice. I'll look it up. Bag It. Got it. Lol

    Welcome Trinity, well not really since i'm sure you would rather never to have needed to find us. But the girls here are great. They are honest about their feelings and informative about their experiences. The mods help out when you are unsure about something and the reading library is super. Come whenever you get nervous or need info or just want to chat/rant/complain whatever. We're here for you.

    So, my doctor gave me something to help me sleep again as i haven't done much of that in the last 10 days. I'm so tired. Better still, he also gave me something to take on the morning of my op, so i wouldn't run screaming from the needles. Lol. My work is being super supportive and im finding it easier to tell people now. They were actually joking about Debbie Goes Amazon at lunch today. I said i had told my mom that i was thinking of taking up archery. The table cracked up so i think they are all hoping for the best for me and trying to keep my spirits up.

    But gosh, its sometimes really hard to stay positive. Other than the needle fear i'm still numb. I don't like it. I'm a pretty emotional person and this is sooo not me. Maybe my new nickname should be limbo lady. Cuz I'm living there now. :-(

      

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    oh I forgot to say, my surgeons nurse followed up with the MRI report and apparently there's some mistake about my left boob which doesn't have abnormality so my doc is not removing my good breast. So I am pretty sure I will be a uniboober.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    red,


    I hope your sleep will improve....


    I thought I took it okay but sometimes I just weep, mourning my breast. Sigh still not sure how to tell my parents, I am supposed to fly home to see them and now it's not possible.

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  • Ariom
    Ariom Member Posts: 6,197
    edited November 2013


    Hello juneping! Just read your updates and wanted to wish you all the very best.


    I became a Uniboober on the 19th December last year. I can't believe it is almost a year!


    I just wanted to tell you that you'll likely surprise yourself with how well you will do. It is nowhere near as bad as you will probably conjure up in your mind. In fact, for me, it was not at all painful, I call it the Surgery of strange sensations.


    I had a few hiccups along the way, but I can't believe how well I have done. Although I'll never be the same as before I went into this, I don't regret any of my decisions, and have become very comfortable in myself.


    I wish you all the very best for an uneventful surgery, and speedy recovery!


    Feel free to ask anything!

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  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2013


    I called my insurance company today to find out why they haven't approved my MRI yet and they told me that the doc didn't even submit the order until Wed and he told me on Monday that we need this ASAP. Then he didn't submit a request and tell why it is needed, though he told me on Monday that he planned to do that in order to move things forward faster. And now he's out till Monday. I will def be going to StL for my surgery.

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    oh piper,


    That's just not very professional. I hope he will push for it next week and you'll have it done soon. Call next Monday....


    I am so sorry....

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    Heck Piper, whats up with that eh? Hopefully it will all go smoothly now but what a distressingly awful behavior from your doctor. I know they are super busy, so not everything happens as it should but gee whiz. Get on it son! 

    Thanks for your wishes for good sleep for me. I appreciate it. I hope you're grieving period ends soon, but i know everyone is different so just go with what feels best for you.


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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    Ariom - oh, i'll be a uniboober on the same day as you. i hope it's a smooth sailing...


    siniberry - i hope your headache goes away


    red - i hope you feel better soon..

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    Piper, juneping, what's up girls. It's been 3 days. What's happening with you? I go in in two days. Hugs to you both!


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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    hi red,


    not much. kind of depressed. work has been busy. today was calling my insurance to make sure i won't get surprise bills from the hospital and or imaging centers. so called to the doc office and imaging center to confirm i was within the network. cancelled my tix to fly home.


    so you're seeing your doc tomorrow?

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    Not till Thursday - have my op then. Kinda nervous - been on the humour sites a bunch. Writing haiku s believe it or not!

    Good luck to you my friend. Kinda mellow and not worried about anything right now. How you doing?


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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    red - oh good luck!! i'll be praying for you. pls keep us posted when you can type...

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  • Jodi040812
    Jodi040812 Member Posts: 383
    edited November 2013


    I as told today- stage 3 7 out of 9 nodes.


    Dr referring to md Anderson ASAP. As son as I get my drains out from double mastectomy i should be Houston bound'


    I keep wondering how long have it? Did it grow that fast after I had Eloise last December or was it already there!??

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    Jodi,


    How are you recovering? Hope you have a speedy recovery. I wonder the same thing too. (((Hugs)))

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    O god Jodi. My heart is weeping. You must be terrified. I hope and pray for the best for you. Might sound silly but my DD sends healing every night to those in need. I'm not sure that I believe but I did sleep the night through on Saturday. And every little bit helps. Can I add your name to her list? In the mean time I will add your whole family to my prayers.

    Juneping I think depression is a natural reaction to what each of us is going thru. And there are no degrees of depression that is acceptable either. Each of us is an individual and there are absolutely no way to predict how we will react. If you feel bad, treat yourself well. Eat your favourite comfort food. Have a glass of wine or a beer if you like, take a bubble bath with smelly candles. Whatever works! 

    piper, any news on the insurance / idiot doctor front? I hope things are going well.

    I go in 36 hrs from now. I've got good support and a bunch of fools who think they know what is good for me. Lol

    Sorry if I missed someone.

    Love to you all. (((((hugs)))))


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  • pipers_dream
    pipers_dream Member Posts: 618
    edited November 2013


    I go for an MRI on Monday, a full 2 wks after the doc said that we need to hurry up and get one and then they submitted to the insurance co all wrong so I had to make a bunch of phone calls. Got my path report yesterday and it's no wonder I have BC--I'm positive for all of the hormone stuff and I've had my period since I was 11 and it shows no sign of wanting to stop at 54. Fibroids and all periods 21-24 days apart so permanently on iron pills. Uh, the bright spot is I won't have to worry about that anymore. Allred score is 8 so I'll have to look that up. Also looked up the terms "focally of the pleomorphic type." This sounds bad I think but will keep searching. Why did they wait so long to put thru my MRI?

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    O my, that's a lot to take in.  Well my prayers will be with you.

    Keep doing the research on trusted sites so you will know what to expect. 

    I'll be in the doctors pocket in Monday to make sure everything goes well. Lol hugs

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  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    piper,


    i hope you get the MRI done soon.

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  • RedReading
    RedReading Member Posts: 2,143
    edited November 2013

    Juneping, how are you doing? Haven't heard how you are doing in a few days. I did see your post to piper so I know you are still looking in on us. 

    Jodi, same to you girl. How are you holding up? That was a lot of news to take in at once. Are you okay?

    Hi Ariom, my surgery is done now. Told my doctors before they put me out that I was going to see P!NK and they had better do a really good job, cuz didn't want to have to sell my tickets! Not too bad on the pain scale, but ice packs are now my new best friends. Lol

    Piper, I still don't know what to say about that mix up with doctors and insurance, it makes me really angry. I guess there's nothing to be done about it now, but geez. I hope ll goes well on Monday, I'll be there with you in spirit.

    Siniberry, havent found out how your headaches have been. It's almost a week since you hoped they would go away. Have you told your doctor about them?

    Best wishes to all of you. One step at a time, right? Hugs

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