Starting Chemo July 2013

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  • m1970
    m1970 Member Posts: 337
    edited November 2013


    Lynn, you ARE strong and beautiful! I'm sorry you lost a friend. It makes this all too real.


    The end of treatment is hard. You are never prepared for it. You think you should be done, relieved, ready to move on and in a way you are. But when you are finished actively fighting it is when fear can start setting in. And everything you haven't dealt with on this journey, your emotions, your relationships, dark scary thoughts, they come into focus now.


    Cancer has made me more aware of how I spend my time. I make more time for quality time, life experiences, things that bring me joy. I spend less time on petty stuff, fear, hate, guilt, things I don't enjoy like yard work.

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Rambo so sorry to hear about your "support angel".  This is such a scary desease.  I dont understand, some women with liver met live for years n some are not :(.  Hang in there firecrackers!!! Hugs to All.

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  • Nocompromises2013
    Nocompromises2013 Member Posts: 292
    edited November 2013


    OMG Lyn .... That is way too close to home and soooo quick - do you know what her initial Dx and Tx were nodes etc?


    That is REALLY very sobering and scary !! We are ALL strong and beautiful as I m sure she was . Very very sad.


    By the way ...Facial hair ....Just to put it out there.


    I only have 3-4 pesky ones that keep coming back in the same place - incase u all think I am a Neanderthal :)))))

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  • 2bluestars
    2bluestars Member Posts: 89
    edited November 2013


    Oh Lynn, so sorry to hear about your friend/angel.

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  • angelanature
    angelanature Member Posts: 179
    edited November 2013


    Hi Lynn,so sorry about your angel,this disease takes too many,I pray for her family and friends(especially you).:) Angela

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  • Rambo50
    Rambo50 Member Posts: 140
    edited November 2013


    Thanks for all the sweet thoughts. It IS so hard to believe... She had inflammatory BC, indeterminate stage 2b or 3a, chemo, then double mx and rads, so a bit more than me. She had some lymph node involvement on one side, but not the other - I'm not sure how many positive. Her chemo was AC/T. Can't get over that we spoke face-to-face 6 weeks before she passed, and emailed 19 days - I know she was keeping it from me since I was still in treatment.


    My biggest fears, again, are that we didn't do scans beyond my breast area before treatment, and I've had bone pain for years :(. MO said we'll wait for post-treatment pain before running any - my initial path indicated lymphovascular invasion. Ok - enough worrying for a Monday morning!


    I'm attempting to get more active this week - on my treadmill as I type ;).


    Hugs Firecrackers,


    Lynn

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  • Hannariggs
    Hannariggs Member Posts: 137
    edited November 2013


    Happy Monday Firecrackers!


    Angela-I too had a lumpectomy. Can't say I regret it at this point. I cant even tell any surgery was done. I guess time will tell. So many others have had a mastectomy and are still having to have radiation. I would have been pissed to have lost my breast and still need radiation. My cancer was not hereditary, and I figure if it does come back I would rather have it take up residency in my breast than other vital organ. But its not coming back(positive thinking).


    I am feeling much better now that the chemo has finished and its only been a week. I still have alot of neuropothy though. Had to shave last night. I really detest body hair(except for on my head). I let the hair get long, as it was a welcomed sight. I have about an inch of hair on my head too, but no eyebrows and eyelashes. Strange how that poison works and how long it stays in your body. My onco told me at least 4-5 weeks after the last infusion. Ugh.....


    Praying for all of you still receiving treatment. We are getting there everyone!!! God Bless you all...

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  • Mellie289
    Mellie289 Member Posts: 156
    edited November 2013


    My sympathies to you too, Lynn. That is so sad to hear about your friend.


    I hope your neuropathy goes away soon, Hannariggs. Mine was going strong a week after infusion, but went away eventually this second week. I've got only barely noticeable twinges after two weeks.

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  • angelanature
    angelanature Member Posts: 179
    edited November 2013


    Hi All,A dumb thing to be upset about but my hair is coming in white! I've never had a gray hair on my head in my life,wtf? Anyone else?Angela

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  • JeriGrace
    JeriGrace Member Posts: 128
    edited November 2013


    Angela, mine is coming in almost all white but I've been coloring it for many years so I really wasn't surprised.


    Rambo, thinking about you. . .


    Hannariggs, so glad you're feeling better. : )


    Celebrating being half way through rads - 15/30 today!


    I went to Look Good Feel Better today and got bag full of great makeup and some good tips on how to apply it. Also some cute ideas on tying scarves. There were 8 of us in various stages of treatment. One woman had just buzzed her hair the night before and was in tears. Another who came in a wheelchair still hooked up to her chemo IV. Sarcoma, bile duct cancer, stomach cancer, recurrences - these we're some brave warriors. Feeling very thankful tonight.

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  • Nocompromises2013
    Nocompromises2013 Member Posts: 292
    edited November 2013


    Lyn. Thank you for sharing your friends Dx and Tx.


    IBC is a whole different ball game !!! Still tragic for her and her family thou


    JeriG. Can't believe you are Half way thru rads - well done. Has gone so fast ( seems to me)


    KBee. Do keep us informed re the 6 or 4 debate.

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  • m1970
    m1970 Member Posts: 337
    edited November 2013


    angels, jerigrace, the first hair will come in transparent and really fine like a baby chick. Coarser darker hairs will come in next. I dyed my hair when it was a half inch long and it looked more full. When it really started to fill in after 2-3 months it looked exactly the same with very little gray. Don't fret because this may not be a permanent look for you.

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  • JeriGrace
    JeriGrace Member Posts: 128
    edited November 2013


    Marsha, I was wondering when I could put some color on it. Did you do it yourself or go to a salon?

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Had MRI done this morning, I hate that metallic taste made me sick in my stomach a little.  Fingers crossed hopefully im clear on my boobs, no more lumps, if there are lumps pls let those be Bnigns or cysts.

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  • Girlstrong
    Girlstrong Member Posts: 438
    edited November 2013


    Soriya123....sending prayers your way and wishing you the best.

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  • m1970
    m1970 Member Posts: 337
    edited November 2013


    jerigrace, I used a semipermanent color OTC but in retrospect I wish I had consulted with my hairdresser because the red was a bit more harsh than my normal color and never washed out completely so was hard to cover. I had about a half inch of hair when I first colored it. It seemed silly at the time to go to a salon to color so little hair.


    I dyed my hair brown 4 weeks before this chemo to match my roots, but I was red for 25 years.

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  • Rambo50
    Rambo50 Member Posts: 140
    edited November 2013


    Soriya, praying you get the "all clear" with your MRI!

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    i am so down right now, feel like i am starting all over again.  MRI results showing a 8mm mass on the same breast but at 11 a clock position.  Will have biopsy done to confirm.  :(

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  • angelanature
    angelanature Member Posts: 179
    edited November 2013


    Hi Soriya,no way! After everything you've gone through! I will seriously pray so hard for you. Let's hope it's a cyst or benign growth. Try not to despair until you know. Though I know I would be freaking out too,and mad as hell! When is the biopsy? I know i speak for all of us here,we are with you and will support you as best we can. Oh Soriya,this is soooo not fair,but I will stay hopeful for you it's not anything serious. Hugs Angela

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  • Rambo50
    Rambo50 Member Posts: 140
    edited November 2013


    Soriya, I'm praying for you!!! Hopefully it's simply something benign (fingers and toes double crossed!!!).


    Lots of hugs,


    Lynn

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Angel, my biopsy will be on Nov 25.  I kno I couldnt stop crying.  The last  time they told I had a mass turned out to be cancer.  so of course I think of the worst right now.  I had MRI done on July n Pet scan done in Aug did not see this lump at all...maybe too small to see at that time.  

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  • angelanature
    angelanature Member Posts: 179
    edited November 2013


    Soriya,I'll be thinking of you everyday until you get the news,hopefully good,I can't imagine waiting,worrying until then.Talk to us,your friends and family,when you feel scared or sad.Hugs Angela xo

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  • 2bluestars
    2bluestars Member Posts: 89
    edited November 2013


    Soriya, sending hugs and prayers your way!

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  • Girlstrong
    Girlstrong Member Posts: 438
    edited November 2013


    soriya123: is his an MRI because a new lump was detected or is this an MRI to see if the chemo shrunk your original tumor? Now that your done with chemo I know some docs like to measure progress with ultrasounds, MRI etc.

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  • Nocompromises2013
    Nocompromises2013 Member Posts: 292
    edited November 2013


    soriya - so sorry if they have detected a new mass - hopefully it won't change anything if you are due for Mx anyway in dec then this other mass too has been subjected to chemo and like your current tumour will SOON be GONE !!


    Shame they can't do the biopsy quicker for you .... They usually do them here same day as mammos and stuff to save the waiting


    Wishing you all the best. Xx

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Girlstrong this MRI is to detect  to see how much my original tumor  has shrunk.  I have good news on my original tumor, they dont see it there anymore.  But that 8 mm show up.  My onc felt that nw lump he said it feel like a benign so fingered crossed.....hopefully it is bnign.  

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Thanks ladies...an thank you for your prayers, i will let u guys kno once I have the results.

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  • Girlstrong
    Girlstrong Member Posts: 438
    edited November 2013


    soriya123....thanks for the clarification. Sorry you have this additional stressor. I am praying for you! Think the best. Try to not to worry. Congratulations on t he response of your original tumor. That is absolutely fantastic. I hope mine responds that well. 2 more chemos for me. One tomorrow's then I"m down to one!!!


    So I met with a surgeon today (the same surgeon who diagnosed me back in July). Anyway she says she can't feel my tumor anymore and so now she says that maybe I should re think the mastectomy option. I am seeing another surgeon on Friday for a 2nd opinion. Now I'm really confused.

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  • soriya123
    soriya123 Member Posts: 662
    edited November 2013

    Girlstrong,  MX or BMX is our choice.  If you have a choice between LX or MX.  I think my MO and BS want me to do LX but it my choice if I chose to do MX.  He said there is no right or wrong, any decision i made.  But since I keep on finding more lumps one after another I  am really lean toward MX.  With new regime n strong chemo (AC) I thin k your tumor will totally shrunk.    i am happy that you almost done.  

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  • angelanature
    angelanature Member Posts: 179
    edited November 2013


    Hi All,Soriya hope you where able to get some rest and the shock didn't stop you from sleeping.Jerigrace and Marsha thanks for the heads up on my white head.Marsha,I hear it's really hard to dye hair red,everyone said don't worry your hair will grow back but I have a feeling it will never be the same again,we'll see. Girlstrong,if I could have a do over I would have done the mastectomy.Everything was such a rush and a shock at the time and I went with the lumpectomy because that what my husband wanted and the dr recommended.I finally start radiation today,it's taken alot longer for physics to be done than they thought.The doctor wants 35 txs(7 weeks)because of the size of my breasts,it's going to be a long haul.Hang in there all my friends and warriors,I think of all of you everyday.Hugs Angela

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