In shock

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  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    morwenna.....I second benny's thoughts. Be kind to yourself, recognize the energy (though happy) the recent trip consumed. Don't discount the underlying stress of RTW, either. Huge change in your recent "normal".....can't just blow it off....stress is a huge factor in how we feel physically. I bet, if you didn't "know" that tomorrow was the day that work starts again...you'd be feeling a whole lot different right now!!!!


    benny....that would be awesome to get a copy of the sleep info....Please let me know if there is any cost involved.....I defo don't want you paying for material for me or sbe. It'll be a great "reason" to plan another get together! After the horrible drive yesterday....there is no way I would want to sign up for a night "group" at Foothills, at this time of year. How is your sleep, by the way...??? Better??? Those chickens are a hoot....can't wait to hear how the pasta night with the mechanic goes!

  • momof2doxies
    momof2doxies Member Posts: 342
    edited November 2013


    Okay for chicken poop...try some of the following, if available in Calgary


    1. Simple Solution...a pet spray that always works for my dogs. Available a WalMart and other pet stores


    2. Awesome...very cheap product that is only found at our Dollar Store. Google it and see if you can find it. It takes out everything. Just a good thing to have around..even takes out ink.


    3. I also have random cleaners that are from Fuller Brush company (has 3% hydrogen peroxide, the stuff you get at the drug store, mixed with water)


    4. The Honest Company.com has great organic cleaners, but only available by online order.


    Hope one of these helps :)


    I will post a picture of my little purple Christmas tree...later


    Jenifer

  • caitlin61
    caitlin61 Member Posts: 214
    edited November 2013


    Hey ladies - guess what I bought yesterday - that's right, a turkey baster, and I used it too! Minds out of the gutter please. I guess the combination of the discussion on here and watching Julie and Julia inspired me to roast a chicken for the first time in my life - hence the turkey baster. Have told DH that I'm going to try my hand at French cuisine on Sundays. Anyway, Poulet Poele a l'Estragon and lemon soufflé were hits - Brussel sprouts and roasted potatoes were just a tad under done. Why has a 52-year old woman never roasted a chicken in her life - well, because I've been a vegetarian for 38 years (although reintroduced fish to my diet 4 years ago). Anyway, DH seemed appreciative of my efforts, and I enjoyed the cooking.


    Liefie, won't be long now until you're on your way - I hope you have a wonderful time in SA. Kind of divine providence that your DH 'a gall bladder issues were picked up during his training, rather than his official test.


    Websister, Christmas crafting on a wintry afternoon sounds like a lot of fun. DH and I are also receiving updates on each new milestone grandson hits - definitely something to bring a smile and a reason to celebrate!


    Edi, shared with you that I had this fantasy that BC would propel DH and me into our own Shades of Grey - a romantic and sexual rebirth - but alas, NOTHING could be further from the truth! Still, I haven't given up hope - I often think that if DH and I could get our acts together sufficiently to have even one perfect day, I could leave this world in peace.


    Momo, sorry to hear that the tree did not pan out. Have to say my ideal is still a real tree. Cheating a bit this year - spending Christmas in Nova Scotia with my brother and family and he always has a 10 ft+ real tree that they go out and pick from a tree farm and chop down themselves. I hope your purple tree will fill you with joy. You know, I find once the lights are on, it doesn't much matter what's underneath!


    Traii, hope your DS has a great farm visit - something amusing about heading to a farm on a double decker bus!


    Benny, good luck re: finding advice re: how to get chicken poop out of a white carpet - think those are two things that don't usually go together! It's wonderful that your chickens roam free in your house!


    Does anybody watch Duck Dynasty? Said to DH over dinner tonight, "I have to confess that you sound a whole lot and look a little bit like Phil Robertson". DH's response? "I've noticed that myself -although I actually think I'm more like Jase". Ah, southern men - gotta love 'em.


    Time to Skype with my sisters, then put in a call to my MIl.


    Have a wonderful week!

  • momof2doxies
    momof2doxies Member Posts: 342
    edited November 2013


    Caitlin...I am envious of having a real tree in the home. We did that for several years, a long story as to why we switched. But if I am NED next year, we will not be spending Christmas in the South. Hopefully by that time, I will have my passport and we will be somewhere in Canada, searching for the Northern Lights.


    Funny how TV programs give areas a stereotype. I have never watched Duck Dynasty, or Here Comes Honey Boo Boo (that one is actually filmed in GA). No, my idea of the South is a more educated gentile version. My favorite movie was filmed in my hometown, "Midnight in the Garden of Good and Evil"....I can recite almost every line. And Paula Deen does not define Southern dialect or cuisine.


    Benny... the episode of Carol Burnett, where she comes down the stairs in the velvet green drapes avec the drapery rod is from the Southern classic "Gone With the Wind." That is still my favorite comedy piece of hers.


    Well, tomorrow I go for more saline fills. So far, so good. If that was all I had to look forward to this week, life would be easy street. But I am going to be okay. I will follow all the rules and I will take plenty of liquids, probiotics, and nourishing food. My BP will behave and my veins will too!


    Liefie...have an absolute fabulous time in SA. I am overjoyed that things worked out for your DS and future DDIL. Remember, I want to see your dress.


    So good night to all from the East Coast. Love to all,


    Jenifer

  • scouser47
    scouser47 Member Posts: 963
    edited November 2013

    Hi gorgeous girls Nerdy.
    Going to get specs unmangled today. DH out playing guitar with his friend all day. Edi mooching around the shops.Bliss.

    Liefie, so glad DH has found cause of pain.Fifty shades a load of rubbish, admit to reading first book quite amusing really.HappyFace book sent it viral, shops here sold out.Just wish I had written the freakin thing, she has made a fortune !!
    You have a wonderful safe trip on Wednesday. How lovely to be spending extra time with the family. Don't you forget we need lots of pics. Sure family will help you put at least one on here.
    Like you, have been back on messages from Carla and as you say there was no inkling of what was to come.
    Her daughter had pics of her funeral on f/b, Amazing pictures on stands in the church of Carla and the sun was shining outside for the burial. Her family paid tribute to her and the community are now fund raising for the family.
    Her faith meant so much to her, someone said she faced her fate with a smile. That is the Carla we all knew and loved.I have promised she will never be forgotten by us all.

    Adagio, My church has a healing session just before the service and qualified healers take you o the front and place their hands on or over you. Really feel the need to go again at the moment.
    How did your silent retreat go. ?
    Mexico sounds amazing, my ED went there for her honeymoon when she married DH no 1 many years ago.
    Each day is a gift and we SHOULD remember that X

    Momof, Xmas tress can be such a pain !! Last year as I felt like sxxt due to starting chemo I just decorated a 6ft silk plant I have in the living room. Got lots of complimentsWinking Might move my ass this year and get green one out of the loft.
    Had a real one years ago, looked and smelled fab, just a pain to get out after xmas, needles everywhere DH didn't think of wrapping anything around it.
    Purple is a fab colour, my DD had a black one the other year,Scaredto match lounge decor.

    Nihahi, how did day in class go ? Hope you behaved LOL.You lifted our spirits and we know you are a good girl reallyWinking.
    Whiteout sounds soooo scarey. Keep safe. X

    Caitlin, DH and I have been together over 50 years, very few shades of anything ha ha.Roast chicken yum. Basters are handy for that as they stop you burning fingers. I always roast spuds for a good hour, even when par boiled. Try scratching tops with a fork as you put them in roasting tin, and they get a lovely crispy ridged surface.X

    Websister, Baby's laughter is a tonic,looking at recipes for xmas cookies to take to my ED's ,sugar free, as two of us are diabetic. Found a tin of cutters in back of cupboard so should be fun in a few weeks.Happy crafting to you X

    Morwenna, Youtube video, fantastic loved it !! Feel as if someone has sucked ALL my energy out of me too.Was feeling really good but not now. Think events recently have knocked wind out of sails. You have also had a trip and a half. Good luck with work. Wish I could go back. X

    Traii, you sound super. DS will adore double decker, my friends daughter had a big red London bus to ferry her wedding guests from one venue to another. The grown ups were in their element too. Good luck with the milking. X

    Benny, Ckicken poop !! Diapers come to mind lol. Hope one of remedies given works. They sound like such fun most of the time.
    If anyone saw one in the window hope they thought they were having a senior moment.
    Wish I had your Doc, don't think I will do the counsellor either, they will just say need to bring DH along and no thanks.
    Saw 9 1/2 weeks, or part of it at least, ghastly film !!
    Can't believe it is a year since that chemo episode for you. Mine started Halloween so this year was poignant to say the least.
    Get the sauce on and that lovely mechanic around a.s.a.p.

    Gonna run around tidying up tip of a house, DH worse than GD's.Talking of which DD's daughter was 7 last week and wanted a sleep over !!!! Imagine house with 7 little girls plus a choc fountain. = NO SLEEP for heavens sake. Everyone warned her but she never listens, very intelligent but with NO common sense.If GD wants it GD gets it. Other GD spent yesterday recovering will try and post resuling photo after this, her face is a picture.

    Love to ALL X


  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    momof2.....hope the fill goes well today....take things one day at a time re: your other appt. We'll be here with you every step. Hope the tree gets sorted out...I think we are going to buy an artificial one, for the condo. We had a real one last year....to much of a bother to get it out and clean up all the needles, even though it was wrapped....I swear I was finding needles for months afterwards. I prefer real, but, real ones are also getting too pricey, unless you go for the Charlie Brown version....!


    Edi...please give the counseling a try, PLEASE! Things will not change, unless you change them!!!!! Hope the glasses get sorted out with too much $$$. Yes, I did behave myself in class....I think I was too stressed from the drive in to get up to much mischief.


    Morwenna....thinking of you...going back to work is a huge step....care for yourself the way you would tell a patient to care for herself. No glory in overdoing things, and you'll be the one to suffer. Cooooolllllddd day to be back at it!


    Have to go back into town today. Meeting up with daughter to do some furniture "looking/shopping", then hubby and I are going to treat her to dinner. That's the good part of the day. Before that, I am meeting up for lunch....with one REALLY WONDERFUL FRIEND, and one person who has done nothing but exude negative judgement/comments about my whole recon journey, but still feels herself to be a "highly sensitive, supportive person".....yeah, right. I'm doing this as a favour to the "great friend"....if it was my choice...I'd pass. The close connection I thought the other lady and I had, just is not there anymore, and we now have such different lives and outlooks, I don't see anything bringing us back to where we were. Relationships are a not always easy!!!


    Have good days, ladies....love you.

  • liefie
    liefie Member Posts: 2,440
    edited November 2013


    Morwenna, hope you get the twitching under control soon. Must be so annoying, eh? As for the exhaustion, it is probably just a reaction after the high that you've been on for the last few weeks. I still experience a sudden fatique and breathlessness now and then where I just have to sit or lie down, and I'm 19 months PFC. It is getting fewer and farther between, and hopefully it will go away completely eventually.


    Benny, your sense of humour is soooo precious, and I always enjoy your stories. Those chickens are hilarious - did you get the poop out? Any news on the mechanic, hmmmmm?????


    Nihahi, we know you're a very good girl, don't worry. Was lovely to tease you though. To always be prim and proper is just not balanced, I find, and laughter is so good for all of us. What are you up to today? You asked about DH diet now with his gallbladder problems. I think it is mostly rich, fatty foods and alcohol that he has to avoid. Will be a real challenge in S.A though where our family always go out of their way to treat us when we visit . . . not to mention the lamb spitroast that kicks of the wedding festivities next Friday night, and the wedding itself the next day. Lovely food everywhere, and he will have to be so careful, or pay the price. He is a real foodie, and loves to try everything. That pain is not fun - had it myself 2 years ago. I will happily give birth before I endure that pain again, honestly. Interesting times ahead.


    Movie, why so quiet? We miss you!


    Caitlin, love your posts, especially your food adventures. That Julie and Julia movie was such fun to watch. I have not been cooking anything spectacular for a long time now since DH and I are eating way more simpler/healthier than before with veggies preferably raw. Had to smile at your romantic dream for you and DH, Yes, bc really does a number on that part of our lives. It is so hard to feel sexy/pretty after what our bodies have been put through, isn't it? Mangled or no boobs, estrogen depleted . . . but we can always have hope, right? LOL.


    Edi and Jenifer, will honestly try to get some photos on here with the help of my other DS. He has a good digital camera, and is really computer savvy. I am pretty useless, unfortunately. Real Xmas tree always such a treat, but yes, the needles is a pain.


    Websister, have been reading your blog. I was so deeply moved by your beautiful description of how you sat with your mom, holding her hand till she was gone, and then gently and consciously relinguishing her to God. I've not read anything in a long time that touched me quite like that . . . tearing up just thinking of that picture. Also read a piece on Joy in your blog that I will copy, and give to my kids on their wedding day. It is too priceless.


    Adagio, back from Mexico yet?


    Have to go. DH is dragging me off on a quick early morning walk. It is so cold . . . LOL. Laters!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited November 2013


    Hi everyone,


    Thanks for your kind comments.


    Well I guess twitching was a product of fatigue +/- stress. I went back to bed shortly after my post, and slept all afternoon! Then I got up for the evening and was back in bed normal time.


    I slept well (mostly), and made it into work this morning. They have accepted my RTW plan, and it turns out they are mostly concerned about me not "taking it easy" enough! There is currently a lot of sickness absence! :(


    Anyhoo, I have to do some reorientation, having been away one year, and spent most of the morning on the PC, leaving me with a bit of a headache! On leaving, I went to the gym for a workout, feeling that it'd be hard to motivate myself to go out again, and it actually made me feel much better.


    As for the twitch ....... What twitch??!!! :)

  • websister
    websister Member Posts: 1,092
    edited November 2013


    quick check-in for me


    Morwenna - so good to read that your first day back went well, in spite of the computer headache, and that all is working out re: RTW plan


    Liefie - I am thinking of you and DH as you travel, hope there are no gallbladder issues to diminish your joy in DS's wedding; can't wait for the pictures. Thanks for the lovely words re: my blog, it's my therapy for myself :)


    Edi - looking forward to pictures of GD's birthday sleepover, hope you do go for the counselling, even if you can't change DH, maybe there are things that you can do for you that you will learn.


    Nihahi - hope that your lunch went better than anticipated and that you enjoyed your furniture expedition with DD


    Benny - I was very amused by the chicken antics; hope the carpet survives them; loved the word picture you painted of Benny and chicken standing together to greet you when you arrived home. When Edi mentioned the senior moment re: what neighbours might think if they saw chicken in your window it reminded me of Mrs. Kravitz on the old Bewitched series ;). Hope the dinner with mechanic is booked?


    Traii- field trip to farm with DS sounds wonderful


    Dakota - muah!


    Adagio - silent retreat sounds very interesting


    Caitlin - your roast chicken sounds delicious - I may have to investigate turkey basters ;)


    Momof2 - too bad re: Christmas tree. We have a smaller artificial tree that has it's own lights, it was a lifesaver last year as takes no time to set up and decorate; was at Costco today though and they had fresh evergreen wreaths and nothing beats the smell of real


    I worked this a.m., then went to Michael's craft store for a few more supplies and items for goodie bags for all the kiddies at church for Christmas celebration, then met DH at Costco. The fatigue hit me at Costco, can't wait for that to be a thing of the past. I see the Dr. again tomorrow to see how fatigue issue is going - nowhere is going to have to be the answer for now. I get to see GD tomorrow after the appt, looking forward to that :)


    Love you all, take care

  • scouser47
    scouser47 Member Posts: 963
    edited November 2013

    DAMN STRAIGHT! LIKE MY PAGE, LIKE, TAG AND SHARE ALL PHOTOS!!! <img class=)" src="https://scontent-a-lhr.xx.fbcdn.net/hphotos-prn1/s851x315/994961_559126167500484_1047591407_n.jpg" width="400" height="315" />

    Think a lot of us can relate to this, partners ,relatives and so called friends, what about US ????

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited November 2013
  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    edi.....I hope you post that somewhere at home!!!!!!!!!


    momof2......how did yesterday go for you???


    morwenna....sounds like the dreaded RTW went pretty well! Glad to hear it.


    websister..I totally agree, there is NOTHING like the smell of fresh evergreen...nothing as annoying as stepping on a rogue pine needle 6 months later in your barefeet either.... Maybe there's something in the air at Costco that makes you tired. Airport air does that to me.


    liefie....getting close now....so happy things are falling into place for this long awaited trip.


    benny.....did the carpet come clean?....There's another product that we use...got it at Home Hardware, but I've seen it at other places too. It completely removed a massive red wine spill on a cream coloured carpet, but, we were "on it" as soon as it happened too. It's called Folex.

  • liefie
    liefie Member Posts: 2,440
    edited November 2013


    Morning girls,


    A very busy day ahead tying up all the loose ends here today, but I started packing last night, and will finish tonight. Made me a list of 'to do's', and a list of what to take with, so I'm feeling on top of it. These days I just can't trust myself to remember anything, so lists are my new best friend.


    Will say a proper good bye later. Have good days everyone!

  • momof2doxies
    momof2doxies Member Posts: 342
    edited November 2013


    Hi Ladies,


    Yesterday's fill was 60cc...total 110cc. Taking it very slow and carefully. The side that had rads last year actually looks better than the right side. But that will be worked out as time goes. I am very pleased that the PS has been able to salvage healthy tissue on the left side. I have had zero discomfort so far.


    Now, today I am being a lazy bones...I will meet with my MO tomorrow and find out my "fate". One day at a time


    Liefie...notes are good, only if I can remember to take them with me or where I left them. I am so happy that you are going to go early. Keeping my fingers crossed that DH stays pain free during the trip.


    Edi..love the post. I have felt that way for a long time.


    No word as to how things are going on my "Keiko Cottage". But I am confident that my contractor is doing a wonderful job..he had better, cause he lives behind me!


    Morwenna...hope you continue to ease yourself back into your work. I think that it is wonderful that employers will work with employees when they become ill with a diagnosis such as BC. That is something that does not happen all the time in the USA. At least when I was teaching, many teachers scheduled their chemo for Thursday afternoon and only took off Friday. We even had one secretary that came back to work while she still had her drains in. Granted that was in the late 1990's, hopefully things have changed.


    So tomorrow, I will know my treatment plan. Stay tuned for more whining


    Love to all,


    Jenifer

  • Morwenna
    Morwenna Member Posts: 1,063
    edited November 2013


    Jenifer,


    My sister in law in the UK, was told by her oncologist to "get back to work as soon as possible!". She had some recovery time from her surgeries, but worked all but a few days each cycle through her chemo, and worked daily while on rads, (even though she had about an hour's drive each way).


    I asked my med onc for advice re work, and she said if it were her, she would take the entire duration off, plus recovery time, so probably a year from starting chemo last January! She promptly gave me a letter to that effect, and has completed medical forms on my behalf, at no cost to myself.


    I was rather surprised, and hurt, when my s.i.l. questioned me, in quite a challenging manner, about why I wasn't at work, when I went back to the UK for a visit, just having completing rads!


    However, I do think I am in a far better place, physically, and maybe emotionally, than she is, and as my brother drove me back to the airport, he admitted that he was worried for her, being so exhausted! One has to say "Why??". It's not as if she needs the money, but he reckoned it was her way of dealing with it, to try to keep life as "normal" as possible.


    I am so grateful that I had lots of sick leave "owing", and afterwards, disability pay kicked in at 66%, so although things have been a little tighter, we really have not had to worry, and I have been able to get out to exercise and rehab without any work or financial restrictions! Any medical expenses that Alberta Health did not cover, I have been able to claim back from my health spending account from my work.


    I am also REALLY grateful for the advice, support and advocacy, provided free of charge, from the Breast Cancer Supportive Care Foundation in Calgary.


    So much to be grateful for! :)

  • scouser47
    scouser47 Member Posts: 963
    edited November 2013

    Hi Nerdy, Hope you are all well, specs not fixed shop shut !! at least they shouldn't cost much if anything. Lovely gentleman runs it and all the family got to him. Hopefully open later this week.

    Liefie, he is a south african gentleman, speaking of which safe and happy journey for you to your Homeland.
     We will all be in your pockets if only to have a good look at your gown on the day. Sure you will knock them all out.Happy
    Those pics are a must, we won't wait LOL.

    Nihahi, Might tattoo that verse on my forehead so will remind me when I look in the mirror. Thought you might send it to your insensitive friend Winking too.

    Momof, great fill going well.Smile soon be done. Cottage sounds lovely, pics when finished please.

    Morwenna, RTW going well is good, take care of yourself. Thought of you at choir tonight. I LOVE it. Was buzzing when I came out. Didn't feel like going out cold and dark but like you, glad I did. Conductor singled me out for praise Singing I thought she was going to tell me off but it seems I was the only one to sing without looking at the words on one song. She said it was good as I haven't been going there that long. The others all called me teachers pet in the tea break LOL.
    Also I had bad eye twitch last year, think tiredness and stress sets them off. Looked like I was winking at strange men, AS IF, living with one bad enough. ha ha.

    Movie, great Skype yesterday, thanks.

    Defrosted fridge freezer YUK it has been playing up and after oven don't like to say to DH.

    Lo and behold after giving little hole at the back of the fridge a dam good rodding with the little plunger thingy.
    All now seems sorted, EVERYTHING CROSSED , Just had a lovely crumbly piece of cheese which is a nice change from cheese ice cubes.

    Tomorrow Bingo and then " The Butler " Movie, getting great reviews here. Love Oprah after seeing her in " The colour Purple " years ago.

    We have the 50th Anniversary of" Dr Who" this weekend, have any of you seen it ?My DS is such a big fan he can't wait ,we have a whole day of it on TV here Saturday.

    Love to all xx

  • scouser47
    scouser47 Member Posts: 963
    edited November 2013

    Lol x

    Love this LOL.image
    image

  • momof2doxies
    momof2doxies Member Posts: 342
    edited November 2013


    Morwenna,


    The US is so far behind other countries in our healthcare. It saddens me to see people juggling this disease with full time work. My daughter's employer would not give her a Friday or Monday off to come be with me after my surgery. So she found another job, which really caused the corporate managers a predicament. But she holds a Doctorate in Physical Therapy, and she was able to find employment easily. I do hope you can ease back into your work. Be kind to yourself, and I am very grateful that you have the support services in place. Not to mention a an award winning voice!!


    Take care,


    Jenifer

  • adagio
    adagio Member Posts: 982
    edited November 2013


    liefie - have a safe and wonderful trip to Stellenbosch. It should have warmed up quite a bit by now. Hope the wedding goes smoothly and that you have a fabulous time. Relax and enjoy - you deserve it!!


    Edi - sounds like you are a natural chorister - conductors love it when we are out of our music!! Hope then specs get fixed soon.


    Mom of 2 - glad to hear that things at moving along - will be in your pocket tomorrow for your MO visit.


    Websister - sorry to hear about the fatigue - let us know what your doc has to say about it. Rest when you need to - you have been through a lot!


    To everyone else - hope your week is going well.

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited November 2013


    edi such a cute post Outdoor soccer is done for DD indoor doesn't start for a month I am a happy mom, just have DS hockey. He does once in awhile play goalie but mostly just defense. It is costly. The goalie pads u guys saw were 80$ used !!!! Oh well. It's for the kids. They are great kids they have been thru so much it's hard not to spoil them !! Here they come, gotta run.

  • websister
    websister Member Posts: 1,092
    edited November 2013


    momof2 - in your pockets for your MO visit tomorrow, hope it's good news for you


    Edi - you'll have to let us know how the movie was, it's been a very long time since I've gone to see a movie in a theatre. Love the pictures you've been posting


    Dakota - my four boys all play/ed defense, a great position that takes a lot of skill and doesn't get as much recognition as it should. Glad you will only have one sport for a month or so


    Liefie - have a wonderful trip, check in if you can. Very excited for you


    Nihahi - I got caught in a near whiteout while driving today, thinking that Benny may have been out in it also, not fun. It would be nice if it was just Costco, I'd probably save a lot of money if I had to stay away from there ;). The fatigue seems to hit anytime/anywhere - when it does I also seem to have more trouble with the chemo brain and forgetting words/names - not good with my job where I am leading meetings and needing to be on top of my game. Oh well.


    Adagio - my doctor is keeping me back at half day shifts for a while, hopefully that will do the trick. Next two weeks I will do 4 half days with Wednesdays off, then reassess on December 12th; she was non-committal when I suggested I might be ready for full time by the New Year.


    I did get a nice hug from Benny when I was there, she had an appointment also. After that, I got a few cuddles in with my granddaughter.


    Morwenna - I also am so grateful for our healthcare system, insurance benefits and BCSCF


    Take care everyone

  • scouser47
    scouser47 Member Posts: 963
    edited November 2013

    Hi Nerdy,

    Websister, hug and cuddle coming from England too. If any consolation fatigue and forgetfullness same here. You went through much worse than me so be kind to yourself. I feel gradual improvement day by day but think it will be a Loooong trip.
    This time next year we will all be like biddy's on a bit of string ( one of my Mom's sayings.)
    Will report back re Movie. We never went to see many but good deal from Orange on a a Wednesday 2 tkts for price of one !!Even if movie yuk don't feel like money wasted.Smile.Hope work gets easier and energy returns soon. X

    Momof, in your pocket, sipping tea and eating cucumber sandwiches, ( very british )  hope all goes well X

    Dakota, the last pic made me laugh soooo much, my GD's love snitching on their Mom's to me. Being a Nan is like being in a secret society, such fun. Glad sport outings easing for you. You need the rest. XThumbsUp

    Adagio, hope you all recovered from your trip, must learn more words by heart for next week, love that I am getting something right.WinkingX

    Liefie, Crossing everything that wedding day is blissful for ALL concerned. XHappy

    Horrible reading how some of you have been treated by employers. It does happen here too. A friend of mine rang where she worked  to say she had been diagnosed with BC, all they asked was when she would be back on her till in the supermarket. She told them to shove their job where the sun don't shine. Know that isn't an option for most people but a bit of empathy would have helped her so much.

    Slept about four hours last night, think eating cheese late at night NOT a good idea.Sad

    Love to ALL X
    .

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    hey ladies....still dark and early here.


    Just wanted to pop on and say "safe, and happy travels" to liefie. Not sure when you depart today....but I know that you and your family have some wonderful times ahead. ENJOY, MY FRIEND.....We'll all be sending happy thoughts and missing your posts.


    Lunch with wonderful friend and "meh" friend went fine. Superficial, but fine. The connection with the one gal just isn't there anymore. It was like spending time with a casual acquaintance. I think I am past the "anger and hurt"....it is just one of those relationships that likely was more "air" than substance.


    edi....I won't give away the plot, but I've seen the movie "the Butler". Extremely well acted.....for some reason, not the storyline I expected. I'll be interested to hear your review of it.


    websister....whiteouts are NOT fun. Glad you're home safe and sound. Haven't heard from benny but good to hear you had a "hug" moment!


    jenifer....thinking of you today. {{{{{{{{{{{{{{{{{{{X}}}}}}}}}}}}}}}}}}}}}}

  • liefie
    liefie Member Posts: 2,440
    edited November 2013


    Morning girls,


    This will be my last post here for some time to come. This thread is my 'home', and I've come to love all of you dearly. So I wish you all and your families a happy, peaceful Christmas filled with love, joy and laughter. I also wish you all the best re: your health, surgeries and procecures. Don't want to read any bad news on here, okay?


    I'm almost packed and ready. It is such a production for us islanders to get to Vancouver Airport. First an hour's drive to Nanaimo, then a floatplane over to the mainland, then a shuttle to the airport, which is close to the floatplane terminal. Will be flying to London tonight - Edi, look out, I will wave to you about lunch time tomorrow when we fly over Liverpool! I'm in London for 3 1/2 hours, then departing for Cape Town where I arrive at 7 on Friday morning. For the Canadians it will then be 9 o' clock Thursday night. Sister is picking me up, and then the fun begins . . . wedding fever is defo reigning now! Bridal shower on Saturday, and bride doesn't know I will be there too. Hope it's a 'good' surprise for her - LOL! Spoke to her on the phone last night, and she is so excited.


    So good bye, my sisters, and take care. I will try to post when I can, but we will be travelling a lot, and will often not have internet. We have Canadian friends coming with, and will try to show them a little of our home country. I will 'see' you all when we get back on Dec. 29. God bless!

  • momof2doxies
    momof2doxies Member Posts: 342
    edited November 2013


    Liefie....is there still time to stuff me in one of your bags Have the time of you life, my dear, you deserve only the best.


    Well, the news is here...Oncotype=42 and I am now a member of the triple negative club. Damn how can I manage 2 completely different tumors...I am not feeling the love from this BC. So I have selected CTx4 over the ACx4 plus Tx4...We all know it is a crap shoot anyway, so I do not want a port, and I do not want to be diagnosed with leukemia or heart problems from the "red devil". Let me know if you thing I made a educated choice. Guess I will start sometime next week after everyone stuffs their faces with turkey. Sorry not into the Thanksgiving holiday, read too much history.


    so someone go have a great day...I am going to bed..wish I had an chocolate eclair to eat


    Love,


    Jenifer

  • websister
    websister Member Posts: 1,092
    edited November 2013


    Liefie - have a wonderful time!


    Momof2 - sorry your news wasn't better and that you will be joining the chemo club. It is always hard when the choice is left up to you to decide. Ports are not bad things, honest, so don't decide with that in mind. I would suggest you look at what some of the other triple negatives like Carla, Edi, Morwena and Adagio have had as their chemo regimens to help with any decisions that you make.


    Take good care, hope you found yourself an eclair and that you got crumbs and chocolate all over the bed - sending hugs

  • Dakota212
    Dakota212 Member Posts: 1,153
    edited November 2013


    liefie- have a safe and wonderful trip !!!


    Momof- sorry to hear your news :( my oncotype got me chemo. I had the 4 AC and 4 T. I never felt terrible and was able to work full time during my 16 weeks of treatment. I did not have a port. For me it wasn't bad. Chin up girlfriend we will help u thru it all !!


    Muah

  • nihahi
    nihahi Member Posts: 3,841
    edited November 2013


    momof2....well CRAP.....just CRAP< CRAP<CRAP. Can't and won't offer any advice on the choice of chemo....not in my realm of comfort, but remember that it is different for each of us. You are the one going through it, for sure, no words can change that, but, we are with you in every other possible way. Eat the dang eclair, eat 10 of them, crawl into bed, scream at the universe, pull the covers over your head. Tomorrow, plant those feet on the ground and move forward. You are NOT a statistic, you are your own unique individual, you've caught this early, your nodes are clear.....{{{{{{{{{{{{{{{{X}}}}}}}}}}}}}}}}}}.

  • adagio
    adagio Member Posts: 982
    edited November 2013


    Momof2 - so sorry you have to go the chemo route - triple negative is a beast and the worst part is not even the experts know how to treat it, so you are so right in saying that it is a crap shoot. Good luck with your decision - I was not given a choice as to what chemo drugs I got! Like Dakota said it is tough, but with all the help from people here on this forum, you will get through it one treatment at a time. Life is just not fair!!

  • Morwenna
    Morwenna Member Posts: 1,063
    edited November 2013


    Liefie, Safe travels girlie!! xxx


    Momof .... I echo Nihahi's "CRAPOLA!!!" I don't know really the merits or demerits of the different chemo regimes. One, I guess is that on TC x 4, it's a short, sharp whotsit! I met a lady today who is on DC x 4, so much the same. She said she had severe s.e.'s from her first treatment, but for the second they gave her an elongated course of steroids, so was 100% improvement!


    I just went with what was recommended: AC/T. I didn't do too bad on the AC (except developing blood clots, which was a pain at the time, and potentially very dangerous as they went to my lungs. But I had other factors that contributed to that.) The Taxol was a lower dose, weekly for 12 weeks, which I believe was far easier on my body than 4 x 3-weekly cycles.


    The one thing I might have done differently, with my retrospectoscope, and had it been offered as a viable alternative, and everyone, including me, had not been in such a rush to operate, would have maybe had chemo prior to surgery, and known for sure that my cancer was responding to treatment!


    As it is, I know I had lymphovascular invasion, and those little rogue cells might be anywhere in my body, if the chemo didn't get them. This freaks me out. I have no way of knowing what may or may not be happening unless I develop new symptoms. I am happy I am booked for a CT lung in December, even though I'm not really worried about the nodule we know about. It means they will have another chance to pick up mets before they become symptomatic.


    Sorry, long answer to a short question, and probably not all that helpful! GO BUY SOME CHOCOLATE ECLAIRS :)


    Edi, repeat after me: NO CHEESE BEFORE BEDTIME!! ;)


    Websister, sorry to hear your fatigue stuff doesn't seem to be improving :(


    I'm about to have a look at our coursework for this week.


    Twitching is still in my leg from time to time. Same muscle, right thigh. Trying not to worry, bit if it doesn't pack it in soon, I'm-a going to report that beggar!! :/

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