October 2013 Chemotherapy

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  • Macy187833
    Macy187833 Member Posts: 182
    edited November 2013


    I'm finding myself envious of some of you who are finishing up chemo now. I will be at it for awhile still...until February. I can't even start reconstruction until after rads are done (April probably) so it is a long haul for me. My team of doctors believes reconstruction should happen after radiation so that there is no damage by rads to the newly-reconstructed tissue. It makes sense but it feels like I've been at this for so long already. Sigh. Sorry, I'll stop whining now.

  • kcat2013
    kcat2013 Member Posts: 391
    edited November 2013


    Macy I'm still in it for the long haul too. If I stay on schedule I'll be finishing up in February also. I don't think I'll be having my exchange surgery until at least May. I get really overwhelmed if I think about doing this for months more. Hugs.

  • Macy187833
    Macy187833 Member Posts: 182
    edited November 2013


    Thanks, kcat! That helps to know I won't be in for the long haul alone. I'm really looking forward to next summer.

  • SuckitBC
    SuckitBC Member Posts: 34
    edited November 2013


    Pam-joining you tomorrow for my last AC, then on to 12 weeks of Taxol. Dreading tomorrow, just thinking of the chemo chair makes me queasy, but at least we are putting the red devil behind us!


    Macy-a lot of us are in for the long haul too, somedays it feels like forever until we are done.


    Anyone having teeth trouble? I was having extreme sensitivity for the last week and was so scared I had a cavity because I know we can't get work done, but x-rays were clear. The dentist reinforced my using non-alcohol mouthwash with Fluoride to keep the enamel strong since chemo (and radiation) break down the enamel. I encourage all of you to use it on the days you can handle it, it's different from using the Biotin for dry mouth.


    Good luck to everyone sitting in the chair this week, fingers crossed for minimal SE's!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited November 2013


    Macy you are allowed to whine!! We are here to listen.


    Not sure when I will have my exchange surgery though I want to lose the 15 lbs I have put on during this time. Yeah I am a stress eater. This is the heaviest I have ever been in my life. Can't wait for this to be over so I can join gym and start working out. The day I was diagnosed I quit smoking and that added to the weight gain as well. I was never a heavy smoker only a few a day but so glad that the terrible habit is behind me. I am ok with the weight gain for now knowing I need to get serious about eating healthy and exercise once AC is over.

  • naiviv
    naiviv Member Posts: 535
    edited November 2013


    Long haul here also...TC until February...H until October .....Don't even have a clue when can do reconstruction other than I have heard at least 2-3 months after chemo if you are feeling well. I believe you can have recon while on H. I think that by Thanksgiving next year I should be done. It seems a world away.


    v

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    I have gained weight too. 25lbs! I have been overeating and between all the nutrients I was eating, bananas, protein shakes, beans for protein etc I look round, plus not that much exercise, feel too tired these days. This is the heaviest for me as well. I started eating different yesterday, also in part because my stomach is doing good in this third round, so I don't have to be eating every two hours, and no carbs.


    My DH is grilling squash, zucchini and eggplant. He also found some veggie sausages at Publix. He grills them and makes spinach wraps with feta cheese. He puts some onions, garlic and bell peppers as well. He has gained weight too during this treatment, lol! I am sure I will be losing the weight fast though, because this is really overeating for me.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited November 2013


    Awh Macy I understand


    I finished 2 months of A&C & today did my first Taxol & Herceptin. Like you I will go into Feb doing that weekly....then I have 9 more months of Herceptin. We haven't discussed radiation schedule yet.


    All we can do is hang in there, day by day.

  • Viji
    Viji Member Posts: 195
    edited November 2013


    70charger, congrats! Please give weekly update on how you are feeling as I am interested to know how long the SEs are going to be around. I finish my fourth and last TC next week. Then on H only for a year.


    Pam thank you for posting wig care. I lost my pamphlet on it and was wondering what to do.


    Wren so happy you are finally going to start treatment soon.


    Hang in there everyone!

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    For those who are done with chemo, the six week PFC mark is usually when you start to see marked improvement in how you feel. Blood counts can take much longer to rebound - some of mine were still wacky at the six month mark.


    For those who are Her2+ and on Herceptin, you can definitely have surgery while on it - usually docs like to have at least 6 weeks after chemo is done before doing any kind of surgery, and also will watch your blood counts before making any decisions.


    For those moving on to rads - most will give you a break in between - 4-6 weeks.

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SpecialK! I was missing you!

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited November 2013


    Hello gals,


    Hope everyone is well with min SE's this week.


    Vintage- let us know what you have heard are the common SE's on Taxol. I am having constipation issues with AC. Think I heard Taxol is opposite?


    Ldg- Happy pre 40TH Bday to you-Make sure to do something extra nice for yourself!!


    Gramo-congrats on last AC that is where I am at as well. Had my Neulasta shot today. I don't think I am going to take my steroid tonight as I would like a good night sleep. What do yo think?


    I too get headaches off and on with the meds. My weight has been pretty steady so far. The week of infusion I don't feel so great. Post fusion I eat much better and taste buds are in check.


    I too am worried about my teeth as I did not get to the dentist. My MO said biotene and biotene toothpaste. Did not know about using non alcohol mouthwash with floride though.


    Think of all you you often ;P

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    headeast - Hi! That is cute!


    For those lamenting weight gain, I am betting some of it is not actual weight. Chemo makes you retain fluid, as do the steroids. To gain a pound of flesh you would have to eat about 3,500 calories and not burn it off. There was no way that I did that during chemo but I did gain about 10 lbs. Most people will lose some weight once chemo is done - and within the first month or two, but I will warn the ER+ ladies - if you start on Tamoxifen or one of the aromatase inhibitors it can be very difficult to take the weight off, and you may gain more. Most oncs want you to start hormonal therapy about a month or six weeks PFC, some will wait until after rads, some won't. Just thought I would put that out there for you all to think about - and yes, I am speaking from experience, lol!

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SpecialK, will only two days of steroids make me gain so much weight? I am/was premenopausal, but the chemo has made me menopausal. Not sure if after chemo will come back or not.


    I have gained 25lbs, from size 4 to 10-12. It shows a lot. I am not working so I am just wearing sweat pants, but when I finish chemo I will go back to work and won't fit in a thing. Not looking forward to spending money in larger clothes.


    Any ideas to lose this weight?

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited November 2013


    Hi,


    I do hope the weight gain is from chemo because I have gained 15lbs and I am not happy! Also I use ACT flouride rinse , with no alcohol for dry mouth in addition to the biotene mouthwash.


    Lgd...Happy birthday, here is to many many more!!!


    Furfriend, I always take the steroids, I have a history of anaphlaxis and I know some people have allergic reactions to chemo. Call your doctor to ask what he thinks.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    headeast - I only had steroids on infusion day in the pre-meds for the first 3 of 6 tx, after that I had the 3-day steroids - and yes, that is enough to cause some gain, but the chemo drugs themselves will make you retain fluid. When you combine eating food we might not otherwise eat - which for me meant pretty carb-heavy foods - plus less exercise because of not feeling all that well, some of the gain is actual weight, but a lot is fluid which comes off the farther out you get from chemo. The kicker is that this is also when us ER+ folks start hormonal therapy. My recommendation is weight training to increase your metabolism, and some cardio as you can manage it. Eat like the South Beach diet, and move as much as you can.

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SpecialK, I will try to go back to my walks. I have been so tired since my chemo this past Wednesday. My dogs are making the weirdest noises, like talking to convince me to take them out. I am changing my foods again now that my stomach is not suffering with this TC, more veggies now and less carbs.


    Thank you! HE

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited November 2013


    I've been wanting to ask everyone if they are having problems with irritated itchy eyes, mine are driving me crazy. I use Refresh tears but it really doesn't seem to help. They seem watery but at the same time seem dry. I try not to rub them but damn it is not easy. I took some Benadryl the other night and it seemed to help some. What do y'all use?

  • SpecialK
    SpecialK Member Posts: 16,486
    edited November 2013


    headeast - exercise is one of those things - hard to get motivated because you are tired, but if you do it consistently you actually have more energy - it is getting over that beginning hump that is difficult.

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SpecialK, I know :( I was walking last week before the chemo. No gym for me for now. PS doesn't want me to lift and no swimming. I can only walk. Will try tomorrow. My dogs will be happy!

  • SyrMom
    SyrMom Member Posts: 862
    edited November 2013

    Headeast ... why no swimming?  Does the clorine interact poorly with the chemo? 

  • Headeast
    Headeast Member Posts: 619
    edited November 2013


    SyrMom, the PS told me not to swim until exchanging TEs. I can get into the pool but just up to my waist, boring. I think he is more worried about the exercise of swimming and the expanders. Not related to chemo. I would say, for chemo though, just to make sure it is a clean pool if you use a public one.

  • 70charger
    70charger Member Posts: 963
    edited November 2013


    Viji I will do my best .


    For my exercise, I have decided not to put so much pressure on myself with daily goals. I have decided to look at my progress at the end of the week instead. Hopefully good days will balance out bad days & I won't feel like a failure.


    Thanks to all for the congrats. Other than the taste thing, today has been a really good day. I think it is taking some time for it to sink in that it is done. Beginning to feel uplifted.

  • TeamKim
    TeamKim Member Posts: 568
    edited November 2013


    Congrats to all who are done with chemo -- I love the sound of it! Once the SEs are gone, I am sure it will begin to sink in and you will all be doing the dance of joy!!


    I saga with the recurring rashes took me in to see the onc nurse on Monday, and now I will be joining those of you who take the oral steroids day before and couple days after infusion to try to keep it under control. I have already gained about 5 lbs, so I suspect this will accelerate the porking. Thanks for the advice on getting it off, Special K. I have been trying to keep up the walking, and it does seem to help with side effects.


    Today a coworker gave me a tea bag -- the tea is called "Smooth Move," and she swears by it for addressing constipation -- it's a natural senna tea. Thought I would give it a try this time around.

  • SyrMom
    SyrMom Member Posts: 862
    edited November 2013

    Teamkim ... the smooth move tea works VERY well.  I only had to have 1/2 cup, so be careful!  It does take a good 8- 12 hr. to kick in.  When it does, it's very effective.  I also have taken steroid before infusion because my previous chem, Xeloda, cause huge hand/foot syndrome and the current chemo kept irritating what had healed.  It worked well for me.  Just make sure you eat because the steroids are very tough on the stomach.

    Headeast ... thanks for info, I'm sure risk of infection is another reason.  Didn't realize you had expanders.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited November 2013


    TeamK the Smooth Move isn't bad & does what it's suppose to. I was on Miralax & Colace with limited improvement. The tea added seemed to help. Then my PCP suggested I just take Senna pil (generaic is so cheap) & forget the Miralx, Senna was much better for me.


    VintageGal

  • encyclias
    encyclias Member Posts: 302
    edited November 2013


    Gram, I had dry itchy eyes periodically from my A/C chemo last year at this time. I used lubricant eyedrops, I think the name was Systane, and that helped a bit. Since I am at home, I put a steam vaporizer in my computer room to raise the humidity and that helped a lot.


    Carol

  • wrenn
    wrenn Member Posts: 2,707
    edited November 2013


    Regarding constipation I have found since I doubled my Magnesium citrate supplement that I 'move' perfectly each morning and there is no cramping or running. I take 300 mg a day I'm not sure if a doctor should ok it. My magnesium levels were low is why I started it but I am hoping it helps when chemo starts too. I am keeping some other stuff on hand just in case it isn't enough,

  • gavinsgrandma
    gavinsgrandma Member Posts: 407
    edited November 2013


    Pam and suckitbc, congrats on finishing up your A/C, I had my last A/C on October 10th and I was glad to say " Good riddens to the Red Devil"


    Macy, hang in there, my journey started back in May and like you, my surgical team and my Hubbs decided while I was under for my BLM that it was in my best interest to delay recon and get stared with treatment w/o delay's. I will be doing chemo through February and rads into probably April and then I can address recon, I figure I fit in here a little better than my Aug group as a lot of those great ladies are done and/or moving on to rads and my timeline is much longer. There is so much support here on these threads and I always welcome questions on venting and bitching😝


    Well due to insurance I could not get my Neupogen shot yesterday, it is only authorized at my treatment facility which is 3 hours drive one way, so as per my nurse, I am to take it easy and grow WBC today, do labs tomorrow and see if I am a go for 3rd Taxotere Friday. If not I will have to possibly the 6 hour round trip for a "shot" and hope for Tx next week. Keep your fingers crossed that counts are good tomorrow.


    Shary

  • Pam358
    Pam358 Member Posts: 294
    edited November 2013


    Gramof2boys - I have watery eyes as well and they are a bit crusty when I wake up in the morning. I actually haven't tried anything to deal with it.


    Gavinsgrandma - I hope your counts are good tomorrow so you don't have to do the traveling.


    I'm off to my treatment in a few minutes...if SE go as they have the past 3 txs I will see you all in a few days :-)


    Good Luck to everyone else getting chemo this week!

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