2013 Running Thread
Comments
-
alaskamama - you have got to give yourself more time. You are only two weeks out. I had bilateral lumpectomies and couldn't raise my arms over my head comfortably until I was a month out. I only had 3 nodes out; how many did they take (you wrote Axillary Node Dissection, but I wasn't sure if they took all or a lot of them) from you? This is the time to really, REALLY take it easy. You will reap mucho rewards later if you take really good...and slow...care of yourself now. That means tons of rest, nothing that joggles, and stretching. We don't know what is really done on the operating room table, but I can tell you that nerves are cut, stuff is moved all around (I had rib pain for weeks after my BLX...rib pain? Like, why would I have rib pain? Well, I was cut open and cut into. That's got to affect the whole area) and it takes time to heal. Please give yourself that time. I know you have a little one...just spend time with your little guy if you can...the running will be there...you deserve this time to get well so that you can be 100% in a few weeks!!! Gentle Hugs! -
Summergal, you took the words right out of my mouth. Alaskamama, it's early days. You are NOT a failure for having a stiff shoulder!! You did a great thing by getting the PT launched right away. I had PT that was super helpful. When I started it in May, the PT gave me a test. She had me put my hands behind me on the middle of my back, with the palms facing out. Then I was supposed to lift my hands away from the surface of my back and see how far I could get. My right, intact arm could lift about 6" off my back, and my treatment arm not even 1"! But now it's as mobile in that test as the other one, just from what was done in the PT's office. Give it PT and give it time, and give yourself three cheers for all you've done to fight this foe and all you're continuing to do. I say run if you feel like and walk if you don't. Or just rest and tinker with your excellent blog.
FairyDogMother, I love running on a treadmill! It's possible I have an unusually high tolerance for tedium.... I can read while walking, and even while running if the print is on the larger side and the action is busy (my son's Warrior Cats books are perfect). I have an MP3 for tunes--the sound track to Hairspray has a lot of good running music. I just got an iPad and I'm watching 30 Rock episodes from the beginning (through Netflix), which are fast-paced enough to hold my interest while I'm running. I have a headset so I can talk on the phone while walking, and probably running although I haven't tried. I often go a little slower on the treadmill than I do outdoors, but that's part of the "hey, at least I'm running!" mentality that I adopt on the treadmill. Treadmill running is easier on your joints than running outdoors, and no excuses for dark, cold, hot, wet, icy. It might be a soft enough surface that it would hurt your port area a little less. At least I hope so. Of course you won't know how chemo will affect your running until you try. But I think if you can get yourself to at least walk nearly every day (and really, walking is plenty), you'll probably be glad.
Warrior50, congrats on your C25K progress! -
alaskamama, rest as much as you need. At the same time, if you are itching to walk and feel like it, if you just want to get your head into that space, just walk. You will know when you can pick up the pace. Imy PT appointments. That is a good move. My PT is more of a shrink than my shrink is. She empathizes with me but she doesn't let me cheat myself. I am STILL working on range of motion and the trickle-down effects of my surgeries (today: tiny muscles in my neck, as a result of the lean-forward caused by the DIEP ab incision...)
FairyDogMother, I wish oncologists and surgeons understood what the running does, and then you wouldn't always have to wonder "are they saying not to run because it's really bad for me, or are they just saying don't do it, don't do anything because they don't know?" I was so lucky my surgeon was a runner and I trusted that he did not restrict if he didn't have to. I never had a port so can't talk about that, but the dreadmill was my sole option having DIEP in the middle of a Canadian winter. I couldn't run but walked 1+ hours at a time 4mph. I would have preferred to be outside in the warm but to be honest, I think I needed the structure at that point, holding on to the sides for support because I was all bent over. Those hours were my ME time, my escape. The up-side was it was NCAA and NFL football season. The TV in the treadmill at the gym has no captions, so I don't get anything out of drama, comedy, movies, news -- but I can understand football without captions. Enjoy that 15 minute mile pace. You're moving! You will be faster later. I was prouder of that awful 3:08 half marathon time 6 weeks post DIEP than any of the others, I think. I think having that run on my calendar kept up my motivation. Are you signed up for something to put on the calendar up top? (And I always liked to hide treatments behind runs so I could be looking forward to a run event, not dreading an upcoming diagnostic appointment or surgery.) -
Thank you for the suggestions. I’m looking for some races to put in-between chemo treatments. I might have to do just fun runs or 1K’s but I find having them on the calendar motivates me more. My oncologist is a runner so I was shocked when she told me to not run it. I like the NFL and TV suggestion. This is a great thread. Thank you all for sharing your journey. -
Hi, gorgeous running ladies. I had a very tough time on my first day of rads yesterday - I'm doing the gated breathing method and I'm the first patient at my hospital to try it...so it's been a lot of trial and error...and yesterday was mostly error. I was nervous and freezing and shaking and I just couldn't get my lungs inhaled to the point they needed it...so I was on the table for an hour and a half. I have not run in over a week. Today that changes. I am running this morning to, hopefully, loosen things up a bit and relax so I will do better today. I felt like such a failure yesterday. And, as a result of being on the table so long, and finally nearly passing out and hyperventilating from all of the deep-breathing (probably 75 huge intakes over the course of the session), I couldn't complete the treatment (I am having both breasts radiated concurrently) and now I have to add an extra day on. Which doesn't seem like a lot, except it is. Out I go into the crisp morning air. -
Summergal - I'm sorry yesterday was so challenging. FWIW I did radiation where I would inhale to a certain point, then hold for the radiation, then exhale(they didn't call it 'gated breathing' but I'm thinking that's what it was). I found it easier if I visualized myself swimming in the ocean or a pool and holding my breath in the water. If I thought too much about where I was or what they were doing, I'd catch my breath a little bit and my chest would quiver.
Alaska, Fairydog - am sending positive healing thoughts your way. I'm sorry it's been so rough. Gracers, hope your over the post-radiation hump soon.
Best to all on this thread - you are an inspiration. -
Summergal, I'm sorry you had such a hard day. It was the techs that were failing, not you. I also did breath-hold radiation and I was also the first person at my cancer center to do it. There was one set-up day when I was on the table for an hour, and the hardest part was holding my arm over my head all that time. The tech apparently got in some trouble from the RO over that, which I felt bad about. Once they figured out where they wanted my measurements to be, which was the very next time, it went really fast all the rest of the days. To make the time pass while I was holding my breath, I had two strategies. For the first few weeks, I sang, of course totally in my head, "Hello my honey, hello my baby, hello my ragtime gal!" (and the rest of the chorus)--you know, picturing the goofy Warner Bros. (?) cartoon frog singing it. After I got sort of sick of that, I would just count, 1-1000-2-1000 and so on. That's how I know how long I had to hold my breath--generally about 25 seconds, although we did one 55-second test beam on that set-up day, which was pretty hard. They told me when it had gotten to 15 seconds, and they gave me a handheld doorbell to ring if I was going to have to let my breath out early. They also told me that some people, for whatever reason, just can't hold their breath very long. One of the techs said she can't get over 10 seconds! It will get better for you, I feel sure, or you/they will conclude you're not a good match for this therapy and you'll do it without the special breathing, and that will be OK. -
Hello Summergal and RunFree,
Thank you for sharing your experiences of Breath Hold Radiation.
I am waiting for my first set up appointment with my RO and have been put forward by my oncologist for this type of radiotherapy. Just hoping I can hold my breath for the required time.
Summergal - Sorry to read you had a difficult first session. Sending you a big hug and hope everything improves next time for you. 75 huge intakes of breath in 60 minutes would be a challenge for anyone.
I am going to be nervous when I start my first radiotherapy but am determined to stay positive.
Peace and Positivity,
M xxx -
Hi FairyDogMother,
I was diagnosed 4/30/13. I had a lumpectomy and SNB followed by chemo. I just finished radiation. I found that I just had to keep up with what I could and lowered my expectations. I continued to work out but cut way down on my running as that was what was difficult to keep up. Continuing to workout made a huge difference as my overall strength was maintained. I just signed up to do a 10k in December and expect to walk much of it. Please don't be hard on yourself. This all just sucks but does end. You should be proud that you DID a 5k with a port and shortly after surgery. Personally I'm fine with treadmill running. Not ideal and good music helps. Best of luck to you! -
i feel for you Fairydog.. its ok to back off, i did during chemo and had to stop after four and walk instead.. its okk... and it will come fast once you can get going again. personally i think its key that you are enjoying what ever you do. I didnt have a port so dont have advice on that one. Listen to your body.... Treadmill running.. dont really like it but will do it if i cant get out of the roads. I did it during chemo because if i needed to bail out i wasnt stuck in the middle of nowhere etc. -
Hi all. Obligatory race report here. This was my 7th half marathon and I didn't think anything could top the joy of crossing the finish line at the end of my very first one. Until yesterday. Running yesterday's half was a big motivator for me after lumpectomy / re-excision and during and after radiation. Boy, was that a feeling to cross the finish line and check this one off the list! Woop! Woop! indeed.
It poured down rain just before the half, just as most of us were making our way to the corrals at the start. Thankfully it stopped, and while we had some drizzle from time to time, no steady rain or downpours. The warm weather that was supposed to meet us towards the end of the race never transpired - it was cool from start to finish. I took each mile one at a time, and tried to stay focused on that mile and just that mile. In the beginning that meant making sure I was taking it slow, as the miles passed and I picked up the pace, it meant focusing on something to keep me relaxed but also focused. In some cases I used sayings like "Running is something I do, something I do to feel alive." Or "my legs may be tired but my mind is not. I can do this" or "I've done this before I can do this again." I carried this you all on this thread with me during mile 10. You all worked some magic, as I pr'd by just over 2 and a half minutes. Icing on the cake.
The folks in Richmond do it right. It was well organized, the volunteers were fabulous, and there was great crowd support and music along the course (this despite the cold and damp and occasional drizzle). They gave out fleece blankets at the finish line along with race medals. Lots of funny signs. Two that made me laugh were "Channing Tatum is at the finish with puppies" and "Run like someone called you a jogger."
So into the Thanksgiving holiday season I go with a sore tuchus and IT bands you could play the banjo on, but happy and grateful. Best to you all. -
Well done.. lovestorun.. !!!!! Did my long run today which is up to 18km, im rebuilding my endurance base and aiming for a 10miler on boxing day, a half marathon end of feb and a 30km race March 30th.. depending on how i feel at that point I might hang on and keep mileage high and do a spring marathon.. Felt good today.. hip joints stiffened up last k though.. damn chemo.. its couldnt be because im getting older could it lol -
"Channing Tatum is at the finish with puppies" and "Run like someone called you a jogger."
these just registered with me, too funny.. saved in the memory bank for future use.. -
Warrior, summergal, runfree, goldlining.... THANK YOU for the support! It's wierd -- my surgeon seemed to think I got this cording and mobility problem from not stretching enough, but the PT totally disagreed, and thought perhaps I overdid it. It's kind of stunning to me how little is known about axillary cording and how best to recover from surgery. I had 21 lymph nodes removed (7 positive -- after chemo...). I'm encouraged by those of you who said it got better. I have six more PT appointments scheduled, so excited about that!
Thanks for writing about breath holding. I'm meeting my RO for the first time this week and plan to ask about it. Summergal, I hope it goes better for you next time.
Fairydog: I have a secret fondness for the treadmill ... at certain times (like the deep dark of Alaska winter) it's the only thing that keeps me running. My tedium-fighting trick is intervals: warm up (slow jog) for 6 or 8 minutes, then 2 minutes fast, 2 minutes slow for 6 cycles. Then cool down for 5 minutes. Your "fast" can be a slow jog while the "slow" is a walk, and you can change the interval times and number of intervals, but for me the structure -- any structure -- makes the minutes and miles pass a little faster.
I want to second those who wrote that there is no reason not to run through chemo if you feel ok. I encountered a lot of naysaying nurses and docs when I started chemo, and when I pressed them discovered there was NO medical reason that running was contraindicated; they just figured it would be too difficult. Their negativity made me doubt myself, but this discussion board helped counter that. I also found there was a DIRECT positive correlation between running and my white blood counts. The more I ran, they higher they were. Also, after I ran, I could often feel the bone pain characteristic of Neulasta kicking in. I would love to see a clinical study on it, but of course there's no money in it so what pharmaceutical company would be interested in testing it! All this said, my port bothered me for several weeks too. Eventually the discomfort went away.
OK, enough ranting for today. Good luck, all! -
alaskamama - I'm new to this thread and am not what I would call a 'real' runner. I do run, and I run way more than many people my age are able to, but until I'm able to do a 5K again without walking I can't think of myself as a runner. I'm 'starting to do some running' and would love to be able to do our local 5K in February, the summer festival 5K in July and our 8K Turkey Trot in November next year.....what we call the local 'Triple Crown'.
That being said, I too have a fondness for the treadmill, especially when I'm trying to get back on the running wagon. It helps me maintain pace and I'm able to track distance for interval training. I typically walk a brisk half mile warmup to avoid shin splint pain, then run a half mile at 6mph pace. After that it's quarter mile walk, quarter mile run intervals, bumping up my run speed each time by .3 to .5 MPH each time. I also have a fondness for my ipod because without music all I can think of is how miserable and breathless I am! My 23 year old daughter introduced me to my favorite walking song (Casual Sex) and running song (Porn Star Dancing featuring Ludacris). I know, I know.......but the beats are absolutely perfect for me, what can I say!
-
Thanks RunFree. I am back to running post, but sprained my ankle a couple of days ago so am taking a break from running for a few days until the swelling goes down. -
FairyDog--My motto is just keep moving forward, regardless of speed. Moving forward in treatment, in life and in running -- the lines start to blur. Hang in there. -
Hi goldlining, How is the deep massage going? I followed your steps and went to a sports PT person last week. She did an evaluation of my ab/upper leg/knee muscles and explained to me that my deep lower ab muscle is very weak. Possibly being put to sleep during DIEP and got stuck. What she said really made sense to me, so I have book two more sessions to wake up and stretched out those muscles and get them exercised. I think my groin muscle pull and knee pain after running may have been caused by the muscle imbalance. -
Hi, all, happy to report that, after a harrowing radiation session on Friday (not harrowing because of the radiation, but disastrous because I couldn't attain the level of breath hold I had initially established when, in a Herculean effort to overcompensate I breathed in like I was about to swim underwater across an Olympic sized pool), which resulted in me nearly blacking out several times in a row, followed by nausea and vomiting (again, not indicative of what happens in radiation, but rather in my particular gated breathing session) - I went back in, hesitatingly, nervously, for another CT sim at a much lower breath hold yesterday...and succeeded. So, we move forward with the gated breathing modality, but at a more reasonable and sustainable breath hold level. I'm delayed in my treatment now only because we were able to complete just one and a half treaments last week...and with the new CT sim, I am being rescheduled...but all in all, feeling better today. Hoping to get out and run with our dog tonight, but gee whiz, it's cold and windy here in the northeast! -
Great to hear the radiation went so much better today, summergal! I bet it will get routine pretty fast, and then in retrospect the techs will realize they were making things way too complicated. You are so right about the cold! Where I am, it was 32 with a wind chill in the teens, and it just felt frigid. Treadmill for me, if anything. -
Hi TammyT - my massage therapist doesn't work Thursday which was when my last physio was so haven't had the return visit yet. (I was still at Disney on the Monday, the day both work.) So Monday next week, I will be doing more deep ab massage. Looking forward to it. I walked ALL day today at a 500,000 sq ft trade show, and my low back is dying because of my lazy abs. I kept trying to activate them, but it was spotty because I was distracted by all the shiny toys. I'm not sure my lower ab muscle is sleeping but it certainly took a long break while all the other muscles took up the slack. They also suspected there might be scar tissue adhesions preventing free muscle movement. The strength exercises from the physio have been helping, even if I cheat on the amount I practice them at home. Just the carry over from the clinic help.
Great to read all the victories large and small from everyone. Keep it up! I bought some new shoes on my trip and did 3km around the hotel parking lot to enjoy them (it was too dark to go outside the gate.) Also bought some very pretty compression tights. I did not need another full length pair but they had colour stitching and they followed me home. -
Hi goldlining, fitbit keeps me walking/jogging in and around my house in circles for the past month and half. There were only two days that I did not make my 10000 steps. I am not getting to the outside trail, because it's cold and dark after work . I was at my second sports PT this morning. She did some kind of electric current thingy on my lower ab muscles (I had to move my legs when it grabs), then heat, then deep massage, then laser to loosen up the middle of the ab-incision area. Then she had me do lower ab-muscle strengthening exercise. You are right goldlining, the lower ab muscle lazy and weak. I will try my best with the strengthening exercise and hope to report back with much improvement next week. Happy running everyone! -
Tammi, I just love the fitbit. I've only had mine for about a month, but I too find myself walking circles in and around my house to get my steps to 10K. I try to get to the gym to do treadmill intervals 3 times a week. Hope the ab muscle exercises help you. -
Alaskamama - I have to agree with you about the running through chemo. So far I think it has helped me keep my counts up and I even think it helps with the neuropathy. MO looked sceptical, but if they use antideppresants to treat nueropathy and running raises my seratonin levels, why couldn't is help? It seems the more I run, the less problems I have with it. I am on week 7 of C25K. -
FC I will be running the Pittsburgh YMCA Turkey Trot.
My son will be running as well, but I am too slow for him. He has been recording his runs with a phone App and comes to show me so he can gloat over his fast times. According to the app he has been running 7+to 8+ minute miles. I am pretty proud of him for his increased interest in running since he has come home. I know once he does his first race he may get bitten by the bug, which is awesome. Keeps a young guy out of trouble.
Nice to see all of the updates. I can barely keep up these days.
Still getting my son settled and myself too after not having him live here for 3 years.
My ankle is healing and I have been able to run 2-3 miles. I am alternating with walking.
Tammi, interesting find. Who are you seeing for the ab physio?
Pardon me for not addressing everyone individually.
xoxoxoxoxo to all.
Piper -
Piper, I loved your post. Seems we have much in common. My son has been bitten by the running bug and it's such a bonding experience, signing up for races, comparing workouts, etc. We don't often run together - I like early morning, he likes evening, not to mention at 27 yrs old he's WAAAAAY too fast for me. I still use my stopwatch to gauge my pace and distance, he has it all on his phone app. And he too likes to gloat about his fast times. Like you said, keeps him out of trouble.
Getting cold here in New England. Put in 8 miles this morning in 20 degree, windy weather. We all know, once you warm up it's ok. It's that first mile and the wind that's killer. -
feel like i earned some strips today. 22km in -9, -15 with windchill.. it was cold, my water was starting to freeze and my honey stinger jellies. Felt good and strong. Had a big nap this afternoon so feel really nicely relaxed, Im going to stretch before bed and hopefull sleep well. -
WOW Rdrunner, you're tough! It was about 17 here today, 3 with windchill. (Are your temperatures Celsius?) Too cold and too windy for me, settled for treadmill. Now that I have an iPad, I can watch episodes of 30 Rock to help the time pass. Works pretty well. -
yes celsius. Im training for a 30km race the end of March and if all goes well im going to keep going mileage wise and run a spring marathon, just researching which one. Doing a 10 miler boxing day and planning a half marathon the end of february. -
Rdrunner we need to get your upcoming runs on the calendar at the top! Sounds ambitious!
I was out today in those temps but not running. Too cold. My run last week was in Orlando - more to my liking! I will have to go to the Y or something. But I also have another quick trip south in a couple of weeks to run outside. Last week after my short run, I worked up to 20 hours a day, much of it walking and climbing stairs, very little sitting, so I don't feel totally delinquent. I'm just not improving my pace.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team