Significant hair thinning on tamoxifen. Help!!!

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Fourj
Fourj Member Posts: 15


Hi,


I will try this question again with my stageIII sisters. Does any of you lose hair while on tamoxifen? I am on tamoxifen for about 2 years. The hair thining stared about 6 months ago. It is very bad, especially when I am in shower :-(. I dream about being bald. I have started to use the Biotin shampoo and take some vitamins good for hair, but those do not help. What is your experience? Will this thining ever slow down? I am still young (39). Hair is still important to me. Do you think switching to other medicine could help? I had the ovary surgery done and could switch to other hormon blockers from tamoxifen if that helps.


Thanks!


Jen

Comments

  • karen1956
    karen1956 Member Posts: 6,503
    edited November 2013


    My hair grew back nicely on Arimidex....when I switched to Aromasin it thinned and went stick straight....when I went off Aromasin, my hair thickened and got wavy again (normal for my hair)...

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013


    I had no thinning on Arimidex, Tomoxifen, but did significantly on the Aromasin. I found the inidvidual SE's were intolerable on all three and now I'm not taking anything.

  • heartnsoul76
    heartnsoul76 Member Posts: 1,648
    edited November 2013


    My hair started falling out in strands after about 2 1/2 years on Tamoxifen. I started taking biotin (5000 mcg) everyday and after about 4-6 weeks I've noticed all the shedding has dramatically slowed down. I took biotin after chemo, but I was surprised I would have this problem again. I expect I'll have to take it as long as I take Tamoxifen.


    I thought about switching to an AI, but I read that hair-thinning is a side effect with the AI's too, so it doesn't look like we can catch a break either way.

  • Fourj
    Fourj Member Posts: 15
    edited November 2013


    it looks like there are two things I could try. Taking biotin and switching to arimidex. Thank you!

  • LindaF
    LindaF Member Posts: 29
    edited November 2013


    I found my hair came back in nicely after all the chemo but then I noticed that it was becoming sparser after about a year on Arimidex. I have tried several forms of Biotin, some special shampoos, and Rogaine for women. My PCP suggested the Rogaine for Men, but I haven't tried it yet. I appear to be growing mets in my lungs, so hair has suddenly seemed less of a concern for me. All my cancer acquaintances had their hair come back nicely, so maybe some of us are just not so lucky in that area. I know it is very hard to do this, but try to look at the fact you have hair now, and maybe after the Tamoxifen it will come in better? Creative combing has become my way of grooming!! Good luck, and please post if you find something that works for you, so we all can learn from your experiences.


    Best wishes to you, hope the Tamoxifen keeps those little cancer buggers at bay!!

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013

    LindaF:  How many "mets" in your lungs-- did they say?  I'm asking because they watch an area in my right lung which they think is just scarring from rads, but they cannot be 100% sure.  Have you been coughing or wheezing or any outward signs?   Hugs

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013

    Jen, YES the tamoxifen has made my hair and nails weak.  My hair used to be thick and wavy, now it is stick straight, will not hold a curl and is thinning a lot in the crown.  I really hate this -- you can see my scalp no matter which way I try to disguise.  I think as long as I take the tamox, it will always be thin and also the fact that as we age, our hair thins on its own !  If you find something helpful, let me know ---

  • Fourj
    Fourj Member Posts: 15
    edited November 2013


    I am trying the Biotin and Rogaine for man. I will come back to let you know how it goes.

  • mimiof4
    mimiof4 Member Posts: 23
    edited February 2014

    I am thrilled to be alive after breast cancer, chemo, radiation, and everything else involved.  I am ashamed to admit that I am absolutely horrified by my hair.  It actually never grew back right. My once very thick hair has thinned a lot.  First I took Arimidex and now the generic Anastrozole.   I have tried women's Rogaine where my hairline recedes on either sides in front. (I wear bangs so it isn't quite as bad as it sounds).  I have also used the Biotin products.  I have had little success with either product. My hair stylist suggested men's Rogaine, and I wondered if anyone knows if it is safe to use since the instructions say it is not for women.

    I researched a couple of products that can be applied to thin places in your hair.  They don't solve the problem but do make the thin places less obvious.  One product is Toppik which is a dry product that you sprinkle onto the thin places, such as a part, to hide your scalp.  You can buy it online.  Another product is Rita Hazan Root Concealer which you spray onto the thin places. I buy this product at Sephora.  In both cases you match your hair color to a number of color options.

    Thank you for letting me discuss my hair problems.  I thank God for every day he has given me, and I don't talk about this small problem to others.  It is so menial in comparison to what many of you are going through. My prayers are with each one of you.

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