Don't make rush decision based on doctors urgency

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Ogicam
Ogicam Member Posts: 7
edited June 2014 in Just Diagnosed


After being diagnosed with stage two breast cancer, I had a lumpectomy and during surgery, the doctor also noticed the cancer had spread to my lymph nodes. He immediately urged a rush to chemo followed by radiation. This is of course standard protocol in the USA as the us medical system is under complete control of the major drug companies. Of course, hey also control the FDA and the insurance industry. It's one big happy family. After feeling like I was being shoved into such radical procedures without any options, I decided to take a deep breath and do lots of research. I figured I had lots of time since breast cancer is very slow developing in most cases.


Well, a few weeks after surgery, I decided to give my immune system the first crack at this. Chemo would not give me that opportunity, and with a destroyed immune system, my chance of beating this or minimizing a recurrence would be dramatically reduced. First, and most important, I wanted to understand what was causing the cancer. What did I do to activate the dormant potential cancer cells we all have. Stress, diet, environment all played a role. Then I sought to find out what kills cancer cells outside of poisoning them. The answer was heat and oxygen. I also learned that sugar in all forms feeds cancer growth. Including fruit and most artificial sweeteners.


To make a long story short, I discovered a clinic in Europe that provided Oxygen therapy (Ozone) as well as heat to replace radiation known as localized Hyperhermia. Both of which destroy cancer cells on contact. I learned there were many more options that would not harm the body, yet effectively kill the cancer. Many have been in use for nearly 100 years with great success. But let me also warn, I am not saying these treatments cure cancer. Only the human body can control cancer production and therefore, finding the cause is far more important. Then, by feeding the body what it needs to keep cancer in limbo is the obvious course to follow.


It's a process and since every cancer is different, each person must find what works for them. The one-size-fits-all approach of cut-poison-nuke used in the United States should be the last option considered after giving your body an opportunity to neutralize the cancer cells naturally. Why would anyone choose the draconian methods when hundreds of thousands of people have survived worldwide by simply using alternative techniques to kill the cancer, and then lifestyle changes and diet changes to keep the cancer in a dormant state.


This is what I have done and its been successful. It does not mean I have the only solution. I'm simply stating do not make a rush decision until you have done all the research. Be skeptical of the statistics as I have found numerous fudging of the numbers, and mixing of the data. Also understand who has oversight of those statistic gathering models. I'll leave it at that.


The point is, we are not living in mid-evil times. When you cut your finger, you don't dip it in poison, stick it in the microwave, and then cut it off later as a first course of treatment. Well, why would you put your body through that without first researching alternatives that can create the same results without harming you?

Comments

  • Lily55
    Lily55 Member Posts: 3,534
    edited November 2013


    can you pm me the clinic you went to please? I live in mainland Europe

  • Beesie
    Beesie Member Posts: 12,240
    edited November 2013


    "The one-size-fits-all approach of cut-poison-nuke used in the United States should be the last option considered after giving your body an opportunity to neutralize the cancer cells naturally. Why would anyone choose the draconian methods when hundreds of thousands of people have survived worldwide by simply using alternative techniques to kill the cancer, and then lifestyle changes and diet changes to keep the cancer in a dormant state."


    I'm thinking that this thread is probably more appropriately placed in the Alternative Medicine forum.


  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Wow can you be more insulting to people who choose a different path than you? Can I ask you...if you had an infected appendix about to burst would you use diet to cure it? Or would you use the draconian method of surgery to save your life? Just because I made a decision other than the one you made doesn't mean I'm an idiot who is led like a lamb to the slaughter. Your "I'm superior to you" attitude is disgusting and smug. By the way, many healthy, diet conscious people get cancer too. Stress also doesn't cause cancer or it would be killing out military, police and firefighters in mass. As for the research you did, how do you know the methods you selected work better than others? Studies, statistics, some personal stories? I guess their methods are perfect and without any bias. Also when you cut your finger, you might still need to get it stitched..which also has been done for hundreds of years. Just because something has been done for a long time doesn't mean it isn't the right way. Maybe YOU need to keep an open mind. As for your method being successful for you.. only time will tell. Or maybe you have a way of examining EVERY cell in your body. Also dear, microwaving your finger wouldn't be draconian...you are aware that microwaves were invented that far back?

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Chemo and radiation is also the standard protocol for treating breast cancer in Europe and Canada. It isn't U.S. based only. You should try to be more informed before making sweeping statements about the medical industry. Below is an article about variations in breast cancer survival in Europe...maybe this can provide people with real data:


    http://www.ncbi.nlm.nih.gov/pmc/articles/PMC138506/


    It's also medieval not mid-evil. Medieval means the middle ages. Mid-evil means the middle of evil.


  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2013


    yes, there are oncs who follow a less individualized course of tx but many, many look at us as individuals and do whatever is in their power to treat us as such. Please don't insult my care team and all others who work so hard to keep our disease at bay. Your agenda is clear and leaves little room for those who think otherwise. While I would love for there to be a "do no harm" tx for my bc, I have not seen reliable evidence based studies on these things yet. I have, however, been NED, for two years on conventional tx.

  • Ogicam
    Ogicam Member Posts: 7
    edited November 2013


    That is very fair. I have not had enough time and was only trying to make a point about not blindly following what a doctor says before doing your own research. The point is, allopathic doctors are only trained to manage disease, not cure it.

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    In a post in another thread she claims her tumor markers prove that her treatment is working. I find it funny that someone using "medically based" blood tests to search for cancer antigens would chastise people who decide to go the medical route for treatment. I'm sure she'd place all the credit if her cancer doesn't come back on the alternative treatments and if it comes back she would blame the convention tx. Even in her message to be more understanding, she still manages to insult. Yep, most cancer patients don't do their own research and our doctors only manage disease they don't care to cure it. Can't she see that when she makes blanket statements like that she's the one that comes across like an ill-informed person.

  • Annie54
    Annie54 Member Posts: 247
    edited November 2013


    Ogicam,


    Check out the video blog of Christine Newman on Youtube. She also went alternative after surgery for breast cancer and blogs about the process. Unfortunately, she had mets within a year or two of dx and only then did she undergo chemo and radiation in an effort to save her life. Her prognosis is grim. Enough said.


    Annie

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited November 2013


    allopathic doctors are only trained to manage disease, not cure it? Disagree! They cure what they know how to cure and manage what they can't. In the mean time, untold numbers of dedicated researchers, using scientific methods, continue to look for cures. Not only did I look for oncs who were dedicated, progressive and compassionate but who treated me like a full partner in my tx team. No cure for stage IV, yet, but my life is quite normal. Really not fair of the op to paint everyone with such a broad, and insulting, brush

  • sandcastle
    sandcastle Member Posts: 587
    edited November 2013


    There is a really good book that someone was talking about on another thread so I ordered it about a month ago from Amazon the title is.....The Emperor of all Maladies....a Biography of Cancer....by Siddhartha Mukherjee....He is a Cancer researcher at Columbia....I have enjoyed this book....Liz

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    I also bought his book..it is the best cancer information book on the market in my opinion. I got to hear a lecture from this intelligent man at the Fall 2013 Living Beyond Breast Cancer conference in Philadelphia. I recommend this book to anyone wanting a history of breast cancer and its treatment.

  • sandcastle
    sandcastle Member Posts: 587
    edited November 2013


    YOU!! Are so right....the BEST information about Cancer....it answers a lot of questions......Liz

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    What I loved most about his book was how thoroughly he researched the content of his book and how he wrote without bias. As he said at the conference, not one person will cure cancer...it will be a multi-person, multi-discipline effort. He also views cancer as a multi-dimensional disease...it can involve genes, environmental factors, viruses or a combination of any of these factors. He was such a dynamic but humble man in person. He also had a large following confirmed by the number of people waiting to get their books autographed.

  • cinnamonsmiles
    cinnamonsmiles Member Posts: 779
    edited November 2013


    Your statements could have been written better to be softer, not so judgemental on the most common medical practices to treat cancer. For example, "The one-size-fits-all approach of cut-poison-nuke used in the United States should be the last option considered after giving your body an opportunity to neutralize the cancer cells naturally." YOU may think that, but please don't FORCE your views upon us that choose mainstream medicine to treat OUR cancer.


    I would have had more respect for your views had you not been so judgemental on mainstream medicine.


    You probably would have gotten a more favorable review had you just presented as another option for treatment and for others to investigate to see if it is something they would be interested. Attacking in a post gets you no where.


    You are entitled to your opinion, but if you want respect for YOUR views, you need to be respectful of OTHERS' views.


    Oh, and btw, I read that the U.S. has already been conducting clinical trials on using several types of Hyperthermia to treat cancer (http://www.cancer.gov/cancertopics/factsheet/Therapy/hyperthermia).

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Unfortunately, she feels that the medical professionals in the US are so bias that research, trials, and results are probably tainted. Hopefully, she is now aware that when people's lives are at stake, attacking their form of treatment results in angry reactions. I'm fighting for my life and made the best treatment decisions for me, so someone telling me I'm basically ill-informed and gullible, makes me want to scream. Trust me, I've researched all treatment methods to the extreme. I made my choices based on my interpretations of the data I collected. Respect me and I'll respect you...my motto to live by.

  • dragonfly45
    dragonfly45 Member Posts: 25
    edited November 2013


    I have metaplastic triple negative breast cancer. This is such a fast growing cancer that i would not want to wait to start my treatment. And even after treatment the prognosis is not really great! I am glad your type of BC allowed you to check out alternative treatment, however it is not the case with all types of BC.

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Dragonfly45, her post is a perfect example of someone dx with cancer, does "some research" and is suddenly an expert in all forms of breast cancer after dealing with it for less than 6 months. Doctors, the uncaring and money-grubbing people she portrays them as, have study for years and years to gain the knowledge to be called a professional. I hope she never gets to the place where she'll need to become as close to a breast cancer expert as we have to be. I really feel for you because you have the heaviest load to bear. I couldn't even presume to know what to tell you to do and how you should feel. I will pray that your treatment gives you more time for as long as possible.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    There are certain code phrases that cause me to ignore or discount the credibility of anything else the poster says. This one has them...

  • wenweb
    wenweb Member Posts: 1,107
    edited November 2013


    aaoaao, With all due respect, since there is no way I am able to put myself in your shoes, you have made your point very clear, more than once. Perhaps consider giving the original poster of this thread a break.

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Wenweb, I would if she hadn't treated us like uninformed idiots and attacked not only our treatment decisions but our doctors too. We, as Stage IVers often form very close and CARING relationships with our doctors. She was pretty much as offensive as it gets. Then, instead of realizing how rude she was and offering an apology, she continued to assume that we didn't do the research and that our doctors (our medical field in general) don't have the skills to cure diseases. I'd give her a break if she'd at least acknowledge that she was extremely rude, insensitive and naive (but apparently she doesn't feel that she was). A simple apology would go a long way or at least a statement that would illustrate that she didn't still assume that the path we've chosen isn't the path straight to the morgue...it's apparent that she still doesn't respect our choices but wants us to respect hers. Again, if you ever get in my shoes (and I wish that you never do), you'll probably understand how we feel when someone with a low-stage dx and less than 6 months of dealing with it, arrogantly preaches how our treatments are not only stupid but draconian (her exact words). I'm also very concerned about the mis-information she stated as fact. Instead of asking me to give her a break (if she deserved one I'd give it), you might want to ask her to show REAL understanding of how RUDE and WRONG she was. Our treatment decisions are often a matter of immediate life and death and they're extremely vital to us and our very existence, you just don't rudely knock that and refuse to apologize. So sorry I don't agree with you but that's how I feel. I would politely ask lower stage bc patients to remember that their cancer, more likely than not, is curable. Ours is not, we will most likely die from this disease and will forever be undergoing the treatments that you can't wait to end. I can understand more how you feel because I was once there but you will never fully understand my position unless you get where I'm at. When I post responses to people not Stage IV, I try to give them honest, caring answers without scaring them. All I'm asking for is a little sensitivity back.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    As the granddaughter of a physician and RN I heartily agree with aaoaao.

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    Melissadallas, I'm sure your grandparents were indeed concerned and cared very much for their patients. Stage IV cancer patients, not just breast cancer but all, often form very deep and trusting relationships with our doctors. After all, we won't be just seeing them on an occasional basis, we will be in their care for the rest of our lives. Most take our lives in their hands and do their very best to help us achieve the longest, pain-free lives possible. Then they have the horrible task of telling us that our options are running out, after spending years with us and getting to know us and our families. So to see them attacked as puppets and unintelligent really riles me up. The human body, and cancer itself, is very unpredictable and to expect doctors to be able to fix us like a mechanic fixes a car is just stupid. I care very much for my oncologist (heck I see her EVERY week and would be miserable if I didn't), and I do so in an informed, logical way. I did my research and made my decisions not just with my brain but also with my heart.

  • glassdr2
    glassdr2 Member Posts: 4
    edited November 2013


    I don't think you are coming off to strong as some might say. I get where you are coming from . I am at that point too in my treatment too. I question the harsh treatment they want me to do with no guarantees that I wont get cancer again. Some say it's just a breast but it is my breast and I think the doctor get too gun ho on treatments. I had first stage cancer and have decided not to do radiation. With my other health problems the radiation may make them worst and I am not willing to do that. I want to have the fullest live that I can have for as long a God lets me. Hope all works out with you.

  • wyo
    wyo Member Posts: 541
    edited November 2013


    Okay I was just going to read and absorb but its 11pm so here I am jumping in the deep end.


    I have been a nurse for 30 years working guess where??? the operating room. It was just so ironic when my husband said think of all those patients you operated on all through the years and now its you. He is right- I probably scrubbed and circulated a couple of hundred different breast procedures from radical mastectomy to surgical bx- honestly what I knew about BC as a nurse compared to what I know as a patient is an evolving process. Surgery is the tip of the iceberg.


    I just can't stomach the Big Medicine/Big Insurance/Big Pharma stuff that you hear all the time like we are the enemy. You don't see the docs and staff in the OR when the frozen section results come back positive and the lady on the table is 34 years old with 3 kids. My mammo tech cried when I thanked her for taking such a good picture that they found my cancer. If you didn't care about patients and work your a$$ off for their outcomes you would not be able to do it every day it takes too much out of your heart and your soul. I used to tell patients who worried about insurance "we get paid the same regardless of what insurance you do or don't have so you are all VIP to us"


    My friends that are neurosurgeons rarely get to say 'Hey Mrs Jones its just a cyst" so yes- I do get offended at sweeping generalizations about healthcare and docs trained to manage not cure? I suppose that is so we can squeak every last cent out of you right- that is so wrong.


    Oh well jumping off the soapbox now- I encourage everyone to be their own advocate for care and treatment because no one cares more about your treatment than you do. one person's choice is not everyone's choice. I often try to provide info or insight and hope I don't step on toes

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited November 2013


    Bravo wyo!


    I work for an attorney, and as you can probably guess, we get a variation on this insulting theme too.

  • aaoaao
    aaoaao Member Posts: 593
    edited November 2013


    I also get mad when people generalize about doctors and the medical world. Yes, there are some doctors that make mistakes (they're human) and there are some who don't care. However, to say that the all doctors or even the majority of them don't care or are profit mongers is a cruel sterotype. People who do this would claim that they're fair and don't try to peg people based on rumor or an experience with one doctor. Most doctors want to help make their patients well and if they're at risk of dying will do whatever they can to save that patient. Some people might say that they're being too aggressive at times but your life is in their hands and they also feel a sense of responsibility. If you don't like the options your doctor gives you then discuss it with them. They might actually have a very good reason for the treatment they chose. Remember they know the risks and have seen what can happen under various scenarios. I'd like to remind people to give doctors the benefit of the doubt before assuming they don't care, don't know, or just want to get money. Finally, if you still don't trust your doctor and his treatment plans, find another one. Sticking with a doctor you feel like you need to second guess all the time adds additional stress that isn't needed. I hope that all treatment plans work, whatever they may be.

  • juneping
    juneping Member Posts: 1,594
    edited November 2013


    i think sometimes it's luck of the draw. A friend of mine is a surgeon told me if I ever need surgeon that I need to ask around if friends of friends know the doc and this way it might go better. I was a bit surprised.


    I believe not all doctors are created equal some are more talented than others. Just like everything else. Another friend has a car accident and her ankle was broken. One doc told her will be a limper for the rest of her life and another was very optimistic and actually she can walk without any obvious problem. Not a limper.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited November 2013


    I, too, take offense at the OP's diatribe against modern medicine.


    I was diagnosed with an aggressive Stage III BC (with lymph node involvement) more than 9 years ago. Prior to this, I had known some women who didn't survive more than 3 or 4 years after diagnosis. My own grandmother survived only 5 years after double mx many, many years ago, before chemo & radiation treatments for BC (I'm negative for BRAC1 & 2).


    I feel that the only reason I am here now, still alive, is due to the advances of modern medicine -- and the dedication of my involved, caring treatment team. Every part of my treatment plan was geared to giving me the longest, healthiest lifetime I could have. The difficult times of surgery, chemotherapy & other treatments were just brief moments in my active life, and totally worth it.

  • Kicks
    Kicks Member Posts: 4,131
    edited November 2013

    Ogicam - I did do my research when I was DXd IBC in 2009.  I am not someone who blindly follows someone elses agenda as you seem to think all should just do what you claim is the way for all.  It may or may not be what is/was best for you - only time will tell.  (Or are you just 'hawking' a company?)  

    My immune system had allowed the IBC to develope, so it had let me down and I needed to hit the IBC with everything I could to help it out.  Thankfully - I had wonderful, aggressive Drs who allowed me to have all the modern available TX to fight with.   Was it always a 'walk in the park' - no but I'm 4 yrs out of DX and still NED with a type of BC that the stats say only 1 out of 4 make it to 5 years.  I firmly believe that IF I hadn't done all I did (4 DD A/C neoadjuvant. MRMx,12 weekly Taxol, 25 rads and so far almost 4 yrs of Femara/letrozole), I am possitive I would not still be alive, and loving life, doing everything I want to and greating each new day with joy if I hadn't done EVERYTHING available to me to fight this Monster.

    My immune system was not destroyed by chemo.  I have always been very healthy but did have a lot of severe sinus infections and usually caught any cold that was going around (never really 'sick' just annoying).  In the years since chemo, I have not had a single cold and only 2 MILD sinus infections (usually had 3 - 4 severe a year per Chemo).

    That is great you think you have found your Utopia in this clinic - great FOR YOU but NOT for everyone!   Only time will tell.  There are many 'here' who have done every bit as much research as you claim to have done - we are far from stupid, ignorant or illiterate and have not come to what you have decided is the only right way for everyone.  We are each so unique and there is no 'one size fits all'.  It would be pure folly for me to try to tell anyone that they should follow my TX plan,  just as it is folly for you to try tell all that your plan is the perfect one for all because you think it is.   We can all think for ourselves and do our own research.

  • ziggypop
    ziggypop Member Posts: 1,071
    edited November 2013


    "He immediately urged a rush to chemo followed by radiation. This is of course standard protocol in the USA as the us medical system is under complete control of the major drug companies. Of course, hey also control the FDA and the insurance industry. It's one big happy family."


    Funny how you state these things as fact. First, did he urge a rush to chemo? It seems like he was not recommending chemo until he discovered that you cancer was more advanced than he could tell prior to surgery. I don't know why the docs wouldn't ALWAYS recommend chemo if they were actually "under complete control of the major drug companies'. As far as I can tell, diabetes doctors 'prescribe' a balanced low carb diet and exercise, as the first line defense for diabetes. My PT uses manual lymph drainage for my lymphedemea and no drugs whatsoever are prescribed for it.

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