Calling all TNs

TifJ,

I will never forget the help you gave me. The conversation with you was so useful both emotionally and physically for me. Women like you who had been though all the things we are, living a great life now and still come to the forum are the ones I admire the most. You give us HOPE!

Hugs!

J

Definitely TifJ. There are a lot of nice people offer to help, however, I feel how can they really understand my emotions, fears, ups and downs? Only women who have been through the same thing can truly understand. Thank you for staying on the forum and I am so grateful that I found you, and a couple other ladies who had been there and won the battle.

I wish you all the best life ahead of you, and hoping I can be as strong and lucky so I can join you later!

J

I am thankful for all the gifts God has given me and thankful that today my vacation starts and I will be out of the office until after Veterans day.  Woot Woot!

Ladies I am eternally grateful for the gut splitting laughter my wife and I shared this morning. I don't even know (can't remember) what we were laughing about. I remember it wasn't that long ago (diagnosis and early treatment) that we just weren't laughing. I am grateful that we live in a country where we have such awesome medical technology and expertise...and it's pretty much right outside our door. We don't live in a third world country where to even see a doctor is a rare event. I am grateful that I can communicate with, and learn, from all of you, in order to be informed to best help my wife. Thank you to Almighty God, and to all of you, for all of our blessings. Let's not take even the smallest gifts for granted.l

today as always..........thankful to be here.

I LOVE FALL and today has been my favorite type of day. Overcast and leaves falling. BEAUTIFUL

Jianchi, I am doing neoadjuvant chemo, they haven't mentioned SNB as of right now. I am not sure I want to know if there are any nodes involved right now. I had my power port placed 10-30, and I start DD AC in AM (11-1-2013). I am scared crapless, hoping that the chemo does its job and gets rid of Clyde. When do you start chemo?

Hope all goes well tomorrow Clyde!!

I am grateful hat I was well enough to fly (although the flight down to the South Island was hair raising as Wellington is the capital of NZ and its nearly always windy) with my youngest daughter Mandy for the cake conference and that I haven't got to go back to work until next Tuesday. (back at you again Titan lol). We are getting some sun, then showers of rain and some wind but in my eyes it's a beautiful day.

Titan I have white coat hypertension whenever its time to get my BP done again. Happens every time. Congratulations Aunty Titan. Babies are simply gorgeous until they grow up!!

Clyde thinking of you are hoping all goes well. I just know the chemo will do it job.

Hi everyone,

NavyMom how wise you are. Every now & then we can run amuck.

I am very grateful for my family, especially my grandson. He is just past 4 years old. I want to be here long enough for him to remember his Mimi (my gramma nickname he gave me). I truly appreciate my yoga seniors group. They encourage me to keep going. I appreciate each day I wake to greet the day.

Praying we all have a blessed day!

Jianchi and Clyde. Speaking for my wife, you'll be glad you endured whatever discomfort having the port put in caused you. The amount of discomfort it saves you at each treatment will be well worth it. My wife has been through chemo twice, 16 years apart, and had a port both times. BTW...she swore by the lidocaine ointment they gave her. She globbed it on the port site a couple of hours before treatment, covered it with plastic wrap, and off to treatment. By the time they "stuck" her...no feeling at the port site! So don't forget to ask for lidocaine ointment!

Hi Everyone,

I read this site often, but haven't posted in a long time. I was wondering if any of you could tell me how much you keep in touch with your onc?

Things have not been going well with me and I am quite upset over the poor response I am getting from my Onc and his nurse. I do not call with every ache and pain, but did call this morning about significant joint pain. The response I got was that perhaps I should be addressing this with my primary physician, however she said she would talk to the Onc about the pain meds.

I also had my reconstructive surgery cancelled due to low platelets and wbc's. The nurse tells me the onc knows about this and is not concerned about the low levels (not at a dangerous level) however it is lower than when i was taking my last taxol treatments (in August) So I ask the nurse if this is common, and she says she can't answer that. All I was looking for was an explanation for this.

I don't know, am I expecting too much? I read from someones post that her Doc wants to know about all pain and changes...and furthermore don't I deserve an explanation for the low platelets and wbc's? I am frustated and feel like I am being blown off.

Hi all,

I'm new to this thread. I was diagnosed in late July and am getting neoadjuvant chemo right now. I seem to be doing it backward than most people with TNBC. I'm getting weekly taxol first times 12 (I'm on week 9 right now), then AC. After that, it's onto surgery and radiation. TNBC scares me. I'm glad there is a special thread for us.

I'm doing great with the taxol so far. I even still have my hair, but I'm thinking that will be gone next month when I start AC. I just wanted to connect up with other TNBC gals....thus, the post!

Yes, Lori, let's not inconvenience our MOs! I took a nice list of questions/concerns to my last 3 month check up. He bluntly said each of them were PCP questions. OK, perhaps so, but he could have acknowledged me as a person with concerns. I have the feeling that when a patient is NED, he isn't all that interested. (I came to this MO after all treatments were completed.) Communication by phone is passed both ways by some office person who is not a nurse. My PCP is wonderful in person and by phone. He also has a wonderful email-type of service that we "talk" about my issues. Sorry you have to deal with these frustrations, too.

Annie, I hope you have a wonderful time at your cake convention. Sounds absolutely delightful!

Jan

I just returned from my appointment with my SO. My SNB was on Oct 30, she took 3 nodes and they came all negative!!! I feel so blessed. Thank you all here listening to me when I was so nervous!

ALH I want your wife's MO. It would be so comforting to have someone so in tune with me. I'm going to talk this over with my PCP when I see him in 2 weeks. Best wishes to you and your wife. I admire your continued posting on this thread.

Jianchi Wonderful news! Celebrate........

Joy to all, j