October 2013 Chemotherapy

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  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    naiviv, good tips on keeping the kitchen and toilet clean to avoid infection during chemo. Thank you for sharing.

  • lonnie713
    lonnie713 Member Posts: 236
    edited October 2013


    naiviv,


    Thanks so much for that information. I will definitely ask my oncologist about juicing. I have an appt with a nutritionist tmrw and will also see what she says, but I know that my oncologist has the final say. Great advice on cleaning -etc. I Wil definitely try that combo to clean fruits/veggies.

  • Headeast
    Headeast Member Posts: 619
    edited October 2013


    Dear Denise,


    We all do have some low days, try to cheer up watching some comedies or listen to music. Maybe trying some make up or going for a nice walk in a mall.


    Vivian, I love the idea to be able to juice again. I will ask my MO tomorrow. I will check on the biotrust and see if i can take that as well. I bought a protein powder but didn't notice it was soy and I am ER+


    I have to ask him about that too.


    Went to the PS and expanded more. Looking mor normal now. I am sleepy and silly with the Oxicodine.


    I love to read all the posts, thank you for sharing all the information you have!


    Headeast

  • LiLi1964
    LiLi1964 Member Posts: 331
    edited October 2013

    naiviv - yes, your TE ports do contain "metal" - it may be more like magnets.  It's needed so the PS staff can locate the ports because they can move around in there.  You might notice, if you've had no expansions yet, that they use this gun-like tool that finds that "metal" on the port so they know where to inject the saline.

    Regarding juicing or fresh vegetables and fruit - I know there is a lot of differing opinions by doctors on this.  Just want to pass along what my MO told me.  I was told - "there are some cancers that we do not want patients eating raw vegetables or raw fruit; but breast cancer is NOT one of them".  She told me to just make sure I wash them well, like I always do, and I'll be just fine.  As always, please check with YOUR MO to find out what they feel is best for YOU (do not rely on what others say either at this thread or at home or work - everyone needs to ask these questions to their doctors).  Just a reminder that we are all different and what one MO says to one patient does not mean it is what is right for you.

    Anyone who might be anemic - I just want to pass along a supplement that has helped me greatly.  I cannot take OTC iron supplements because they cause too much stomach pain; so my PCP did some research and reached out to our Complimentary Care staff and it was suggested for me to try Blood Builder.  It is an all natural product where the iron is derived from vegetables and no stomach upset.  Sounds too good to be true?  Well, it works!  Every time I'm told "you're anemic again" I reach for the Blood Builder and take it for 6 weeks.  They then do another blood draw, test it and sure enough...I'm out of that anemic range.  It works great for me and it is a Godsend because I refuse to take any supplement that hurts my stomach so much I'm nearly bound to my bed, I just won't do it.  Yet it's not good to be anemic for any length of time either so Blood Builder has been in my cupboard for years because it works!  Again, check with your MO first!  Mine asked that I bring the bottle in for her to read and she was specifically looking to make certain there were not too many antioxidants in it as that apparently can interfere w/chemo.  Once she read the bottle, she said "that's perfectly fine" and she now has an alternative to offer other anemic patients who are "difficult" and will not take the OTC iron supplements.  You can find it online; it's made by MegaFood.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Hi ML40,


    Ugh! I feel for you! how are you holding up? Do you have to get a CBC the week after chemo then again on your treatment day? I do and not sure why. Does everyone here have the do this as well?


    I had my 2nd treatment and 6 hours after I felt horrible. Went home ate half cup of soup, took a Benadryl and went to bed at 830PM. I feel better today but still not "normal'. Stomach is queezy just about every day. I have trouble eating the first 3-4 days after chemo then I seem to tolerate food better as the days march on. I am having a little trouble with constipation not too bad but am taking over the counter a couple days after chemo cocktail.


    Seems like more than normal amounts of hair are starting to fall out or is it my imagination? Does it fall out in chunks? Spots? OMG! I have scarves and a hat I bring to work now so I am prepared.


    Thanks for all the support here ladies. You are all like a big hug {{{{Hugs}}}}


    Furfriend

  • Headeast
    Headeast Member Posts: 619
    edited October 2013


    Lili,


    That is good info. Checking it now and taking notes for my MO appointment tomorrow.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Lonnie,


    I heard juicing is good for chemo but need to check on cutting back on citrus fruits, tomatoes, even soy and some different vegetables like mushrooms.


    All the best,

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    furfriend, why is citrus fruit and mushroom a no during chemo? I thought they both improve your immune system. Thanks!

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Waterloogal,


    Hey there, yes I was told about the bone pain as well and am taking Claritin day of Neulasta shot and 2 days after. Seems to help me. My best to you.

  • Waterloogal
    Waterloogal Member Posts: 5
    edited October 2013


    Thanks lo Furfriend2, guess you are going to have yours second soon, I can't do mine, because my blood works shows my liver under stress which caused by the first chemo, I am not sure what I should do, will call my MO again tomorrow. good luck for the rest treatment, hope you have easy one.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Hi Jianchi,


    Not that it is no good just to cut back the week after treatment as the acids from citrus and tomatoes adds to the stomach issues with chemo. That is what I was advised by my nurse since I have been having a constant queezy stomach. Maybe if you have a strong stomach it may not affect one. All the best.

  • Waterloogal
    Waterloogal Member Posts: 5
    edited October 2013


    I had been told no grape fruit juice during the chemo by my MO.

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Vintagegal,


    Love your name by the way as we have something in common!


    I understand the Tylenol/Ib/aspirin debate depends on the chemo cocktail per my MO. I am on the ACT treatment and they advised me against taking IB/aspirin which is what I normally take. So I have been taking Tylenol but not too much.


    All the best Vintage

  • Furfriend2
    Furfriend2 Member Posts: 299
    edited October 2013


    Denise,


    I wish you well on your treatments and no SE!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Thanks jianchi


    Infusion went well as it always does! I feel good. Lots of energy. After 3 hours of treatment we went down to Savers, I had to shop for my sister, she needs office clothes. Hit Trader Joe's, ate at Chipotles did some more running around. Finally got home at 5. I LOVE chemo day LOL, up up up!

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Hi FurFriend2


    My MO told me today I could take a small amount of Advil (ibu) if I really needed it for the aches etc on my bad SE days. I mentioned Aleve (naproxen sodium) but she didn't address that.


    Thanks

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Thanks Pam


    yep my MO said just when absolutely needed & limit the amount. Which is what I do anyway with Ibu.


    She looked at my mouth sores but didn't feel they warranted an RX. They are lessening. We will just wait & see how it goes for SEs from today's treatment.


    Hope your treatment goes well tomorrow!


    Thanks

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Furfriend, thank you for explaining the reason to me. I am learning so much from people here.


    Take care!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited October 2013


    thinking of everyone heading to chair this week. Pam- thinking of you tomorrow


    Vintagegal- yeah! 3 down for you, right?


    I have still been getting used to my shaved head. I hate it but oh well. I went for bloodwork today one week post 2nd treatment and WBCs were 2.3 (without neulasta) better than after treatment 1 which was 1.1 and that was after Neulasta. I find that so interesting. I guess the Neulasta really didn't agree with me :) so... I can stay on dose dense for now!!


    7 days post treatment 2 and still bouts of fatigue but at least no other major SEs.

  • JenSF
    JenSF Member Posts: 45
    edited October 2013


    hi Jianchi, I did ask nutritionists and my oncologist about reishi mushroom. As they have very good reputation for health up keeping and cancer patients. My oncologist was open and okay for it. Just not during chemo. I have not decided on a good brand that I trust yet. So I guess we will leave that for now......Jen

  • naiviv
    naiviv Member Posts: 535
    edited October 2013


    Lili thanks for info on blood builder


    Headeast Biotrust has no soy no sugars.


    Jianchi my MO approved all fruits except grapefuit, it is not allowed with my chemo regimen. Acidic fruit may cause isuues if your mouth is sore or your tummy is upset.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited October 2013


    @lgkgde13- my wbcs one week post 1st treatment were 5.9 without neupogen but the next week before tx#2 they were 2.9 and they told me I flunked and couldn't have my treatment. I did Neupogen over the weekend and my count was OK for chemo this Friday. I will have another CBC before my treatment again, ugh!! I also have to do a complete metabolic panel before each treatment, if your not anemic they sure try to make you anemic with all the blood draws.


    Good luck everyone who is doing treatments this week, hope we all stay strong and get through one more week!


    I washed my hair this morning before work and OMG lots of hair in my hands! Maybe one or two more days then it will be gone, wig time. Also they have these sisters who have a website called chemo beanies. They are so cute, they sell them at quite a few stores. I think it's chemobeanies.biz or Google Chemo beanies.

  • smrlvr
    smrlvr Member Posts: 422
    edited October 2013


    Denise,


    My BS will not clear me for chemo for another 2 to 3 weeks because I am not completely healed, even though drains came out. So we will probably both be starting chemo in November. We could start our own November group but I really like this group; everyone is so knowledgable and helpful! Huey are a few weeks ahead of us and I am learning so much. I know how you feel about missing the outside world. Once the drains are out you will feel like going out more but i still prefer to be home now in my "safe place."


    Smrlvr

  • SchoolCounselor
    SchoolCounselor Member Posts: 452
    edited October 2013


    I should be starting chemo next week, but if I don't I'm not leaving! So there! :-)

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Jen,


    Seems like your oncologist and mine are on the same page regarding Reishi mushroom and other supplements. I will respect that. Thank you for sharing your side of information.


    J

  • TeamKim
    TeamKim Member Posts: 568
    edited October 2013


    Good luck to the "Wednesday girls" heading into treatment tomorrow -- may the SEs be minimal!


    My head started to tingle and hair started to fall today -- no chunks yet, but shedding slightly and constantly...... Sigh......

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Teamkim,


    Be strong. It's easy said than done, and I haven't had chemo yet, however, this is how I comfort myself: hair can grow back, we want those cancer cells gone...forever!


    Take care.


    J

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited October 2013


    J- you are so right, we want those cancer cells gone!!!!!

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    HUGS to you, Gramof2boys! So hate this disease!

  • TeamKim
    TeamKim Member Posts: 568
    edited October 2013


    Thanks J! Gram, looks like we are twins once again with the hair falling! With work, I won't have time to go for a buzz until Saturday morning! and at this rate. Am wondering if there will be anything left to buzz. Have my wig and hats and scarves ready to go.....I think I am ready... Maybe.....


    Quick update on my low WBC -- One shot of Neupogen Friday (day 8 of my 1st round) and a 7 day course of antibiotics started the same day. My "diaper rash" is almost cleared up and blood levels yesterday were on the way up (WBC up to 3 -- was 1 on Friday). The rash, I decided on Saturday, was not a yeast infection. I had given the prescription cream from the GYN coupled with Vagisil 5 days to work and things were about the same. So I switched (as suggested by someone on this board or on the TC board) to Desitin. Improvement has been steady. I stopped in the supermarket baby aisle today to stock up, and will use that constantly for round 2 to see if I can prevent the itching and pain. People in the MO office were looking at me like I was nuts when I suggested that maybe my behind was just burnt from the exiting of these chemicals. Once again, practical advice from these boards to my rescue! Just thought I would share, in case anyone else is dealing with that particular pain in the behind!


    Have restful nights, Oct. sisters!

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