Anybody here had just lumpectomy, no mastectomy?

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Jianchi
Jianchi Member Posts: 352
edited June 2014 in Just Diagnosed


I am at the very beginning of this battle with Breast Cancer. Every time when I read people's diagnoses, most of you begin with a lumpectomy followed by mastectomy. I want to get myself prepared, however, I am trying to see if there is anybody here that finished the treatment without going to have mastectomy.


Thanks for any input.


J

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Comments

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2013

    I had a lumpectomy almost 7 years ago. No problems, no further surgery. Very happy with my choice.

  • Beesie
    Beesie Member Posts: 12,240
    edited October 2013


    You have to keep in mind that this is a board where women come to post when they are having treatments or having problems post-treatment. Lots of women have a lumpectomy + rads and never require any other surgery and never have a recurrence. But most of them leave the board a short time after their treatment is finished and we never hear from them again. ruthrbru is a rare exception... someone who is doing well and who has stuck around.


    Overall I believe that approx. 55%-60% of women in North America who have early stage breast cancer choose and are successful with a lumpectomy + rads.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2013


    Im here...And I just had lumpectomy and rads....over 3 yrs.NED....yay.


    And im still on a lot of the threads...


    I also know lots of sistas who are doing great who did not have a mastectomy.....


    good luck


    Grannydukes

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Thank you so much Ladies, that really took off some heaviness on my heart. I am triple negative, young, so will have the BRCA test. Hopefully I am not positive and can live with just a lumpectomy.

  • Curlylocks
    Curlylocks Member Posts: 1,060
    edited October 2013


    Hi J,


    I am an almost 8 year survivor and one of those that have hung around as well over the years.


    I had a lumpectomy, radiation, chemo and the removal of my ovaries 5 years ago. I was also on Armidex for 5 years. My stats are shown below my post.


    I was 41 at diagnosis and will be 50 in May next year.


    I have not had a reoccurance, however, I am now doing a mascetomy with reconstruction due to now high risk immediate family history of bc. Two other sisters diagnosed in the past 3 years.


    Many women have a lumpectomy and dont need further treatment. Some decide several years out to have a masectomy for reasons such as myself or a new cancer diagnosis in the same or opposite breast.


    Michele

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Ruthbru,


    Thank you for sticking around to help newbies like me. I think it's very important for people who finish treatment to be here and share their valuable experience with people still in treatment.


    J

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Thank you so much Beesie and Grannydukes!

  • ruthbru
    ruthbru Member Posts: 57,235
    edited October 2013

    Any questions, just ask, or send me a private message if you want to :)

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Michele,


    Thank you very much for sharing your experience. Your decision makes sense. Wish you all the best and so glad for you that you are cancer-free now.


    Hugs!


    J

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Ruthbru,


    I am sure I will have questions for you later when my treatment plan comes out clear. Thank you for offering advice.


    Enjoy your weekend!


    J

  • MsPharoah
    MsPharoah Member Posts: 1,034
    edited October 2013


    Hi Jianchi and such big hugs to you, hon! When I was first diagnosed, I just wanted to whack off my breasts and there are plenty of surgeons who would have done so. I was lucky to get a second opinion with a surgeon who educated me about the risks and benefits of mastectomy and when it was appropriate. I felt very happy that I didn't NEED a mastectomy and am happy with my decision to follow my surgeons recommendation for a lumpectomy. I am finishing radiation next week and have done great. And there are lots of ladies like me.


    I wish you all the best.


    MsP

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Hi MsP,


    Thank you for adding your experience. I understand different people has different treatment plans, I am just learning as I go. Hoping for the best but prepare for worse as well.


    Have a good weekend!


    J

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited October 2013


    I asked my surgeon if she could do a lumpectomy and was thrilled when she said "yes"! I was able to keep my breast and nothing further in that area other than radiation. I had a quick recovery too, taking a long walk the very next day. Of course, it took some time to really heal, but was basically just fine.


    One thing to remember is that you can always remove more tissue if necessary, and reconstruction isn't always perfect. I was grateful to be spared that path. Good luck and hopefully, you will need less as opposed to more surgery. - Claire

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Claire,


    Thank you for sharing. It gives me hope definitely.


    Enjoy your weekend!


    J

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2013


    just look at all the sistas who have been on here for quite some time.


    We will always be here for you.


    BCO is on call 24/7...


    You can send a pm to anyone and im sure they will give you great advice OR rell you where to go.


    When I cam on here in 2010 I was sooo scared...the 2010 sistas embraced me with all the info I needed.


    Check around and you will see.


    big hugggg


    Grannydukes

  • sheila888
    sheila888 Member Posts: 25,634
    edited October 2013


    I also survived with just a lumpectomy 8.5 years ago.


    Had all the treatment chemo...radiation....


    good luck to you sister


    Sheila

  • Anonymous
    Anonymous Member Posts: 1,376
    edited October 2013


    I had a lumpectomy 9+ years ago. The mass was 2.7cm., with Ca in 5 lymph nodes, ER+, PR+, Her2+. So I had chemotherapy, radiation, Herceptin & 8+ years on Arimidex.


    Both the breast surgeon & oncologist said the outcomes for lumpectomy+radiation vs. mastectomy would be the same. A lot of times, they don't do radiation with mastectomy (although I'm hearing a bit more of it lately). With having Ca cells in 5 lymph nodes, I'm glad I also had radiation to the entire area to zap all those pesky buggers!


    I have been completely NED for more than 9 years -- no problems, no recurrences.

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Thanks to Sheila and Optimistictraveler. I am glad that there are different possibilities toward this journey.

  • Kathy04
    Kathy04 Member Posts: 5
    edited October 2013


    I elected for a lumpectomy (Sept 5, 2013). It is my understanding that survival rates are the same for lumpectomy and mastectomy. Although recurrence rates are higher for lumpectomy. I decided to take my chances because I did not want to go through reconstruction. I am triple negative, did my first round of chemo last 12 days ago. It wasn't too bad. 3 more to go then rads in January.

  • momat927
    momat927 Member Posts: 173
    edited October 2013


    i just had a lumpectomy and then a re-excision. I will have 4-6 weeks radiation. I am meeting oncologist to discuss treatment and if that includes meds and/ or chemo. Did you have an Oncotype done? From my understanding and I am only six weeks in, there are an array of options but go to a doctor you really feel comfortable with and sense you can trust. If i understand my surgeon, I was told a mastectomy would not impact reoccurrence and lump plus radiation has better or certainly equal results. I am stage 2 grade 2 and i know i will have to face my decisions based on my own cancer. It is a scary and overwhelming journey but we are all here too. Let me know what happens

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Hi Kathy,


    I think my BS/oncologist said the same thing about survival rates and recurance for lumpectomy and mastecotomy. However, if my breast MRI shows other suspicious spots or BRAC is positive, then the story will change. Good luck on your treatment!


    J

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Hi Momat,


    Thank you for the reply. I am scheduled a lymph nodes biopsy by the end of the month and a possible re-excision on the lumpectomy I had 12 days ago. Was yours suspected to be noncancerous as well? So far I feel good about my BS/oncologist and the pace of my treatment. I will meet my medical oncologist next week to discuss on my chemo. I hope he is a good one as well.


    Feel free to connect with me and all the best to you.


    J

  • maltomlin
    maltomlin Member Posts: 343
    edited October 2013


    Hi


    I asked my BS 'what would you do if it was your wife?'. It was a lumpectomy, and that's what I had. I've never regretted it. OK, the lump was bigger then they thought, but I still have a boob, a bit mangled, but at least I have something to put into my bra. No-one can tell.


    I'm over 5 years out and doing really well.


    x

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    maltomlin,


    Thank you for adding your experience! I am glad you are 5 yesrs out now. Hope I will be as lucky.


    J

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2013


    When I asked my dr who was doin the rads IF I WAS UR MOTHER WHAT WOULD U TELL HER


    his answer was


    EVERYONE ASKS THE SAME QUESTION.. so here is the best part..he said .HOW DO U NO I LIKE MY MOTHER????we laughed and I did it.No only was he the best but he had non stop comments that cracked me up.When I couldnt wear a bra i wore a half slip..he called me MADONA..it just makes it so much easier when you like and have faith in the dr.


    Good luck..dont forget to keep us posted


    hugggs FireKracker

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Haha, your Dr. Made me laugh as well, grannyduke.


    I will keep you posted. Thank you for your good wish.


    J

  • kika2013
    kika2013 Member Posts: 101
    edited October 2013


    Hi Jianchi,


    I was diagnosed in June, had a lumpectomy in July and have just about a week of radiation left to go now. After that it will be Tamoxifen for me. No chemo. I spent A LOT of time thinking about the lumpectomy vs. mastectomy decision, and even when I had my lumpectomy, was still keeping my option for more surgery later open. In the end, I stuck with a lumpectomy based on a lot of things, including the specifics of my cancer. You will know more details about yours as you move through the process and they will help you decide. Plus, time will also help you decide. I was sure I wanted a double mastectomy at the start, but as things calmed down I was able to think more clearly about my situation, and eventually, the right decision came to me. For many women, mastectomy is the right decision, so I don't mean to say that a lumpectomy is better, just that we each have to make our choice and I think you'll feel your way to the right one with time and information. I remember feeling like I would never figure it out, and then one day, I did and that was it. While I am far from being lucky enough to say what many of these other women have told you about being 5 or 7 or 9 years out, I am confident in my decision even now and have been since I made it. I think the most important thing is not to let fear guide you. Also remember: you can always, always have a lumpectomy and do more surgery later, but you cannot change a mastectomy. This was what the surgeon I ended up going with told me the first time I met her, as well as a breast cancer survivor I met shortly before I made my choice (who had had a double mastectomy). I think it was the best piece of advice I got, as it allowed more time for thinking things through in a less panicked way. It is very hard in the early days to keep track of information and your own feelings as you enter this strange new land, but be assured you'll get through it and feel right again.


    My best to you.

  • Jianchi
    Jianchi Member Posts: 352
    edited October 2013


    Hi Kika,


    Thank you for the nice message you wrote me. I am so confused and so afraid. I am afraid of cancer spreading. When I cough, I am afraid of it spreaded to lung. When my body feels sore, I am afraid of it spreaded to my bone... I really hate this disease! I am glad that your treatment is near end. I wish you all the best!


    J

  • pupmom
    pupmom Member Posts: 5,068
    edited October 2013


    It's kind of an odd question. Most people who have lumpectomies, like myself, don't go on to have mastectomies. Hope you are getting good medical advice.

  • FireKracker
    FireKracker Member Posts: 8,046
    edited October 2013


    Jianchi


    my back is killing me tonite...


    dont think i dont think the worst.


    that is the new normal....

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