Calling all TNs

yes Titan not long ago......she had a great attitude

thanks scouser47 thank you. I am glad that your other area was from rads. I too have a second place I am concerned with and when I had my MO check it they laid me down and I did not realize that you can not feel the area I am talking about when laying down so I see my RO next week.

Deb I am sorry to hear about your new primary but I have to tell you THANK YOU-THANK YOU-THANK YOU for posting about being 16 years out. Mine returned in less than two years but I am just trying to look for hope and you have given me some.................thanks again

I am in absolute shock about Naan - this is so terrifying! And yes, she was on here just a few days ago!! My heart goes out to Naan's family - many prayers going their way!!! So, so sad!!

b-17 The following is a list of foods rich in vitamin B17: tried to post the link, are we not allowed to post links?

http://www.janethull.com/newsletter/0606/natures_cancer_prevention_vitamin_b17 (put the php at the end of this ) it would not let me post it

php

- Watercress

-Spinach

-Bamboo sprouts

-Alfalfa sprouts

-Lentil sprouts

-Whole nuts

-Mung bean sprouts

-Ground nuts

-Garbanzo sprouts

-Apple seeds

-Apricot seeds

Dear Stupidboob. Thanks for the response. Yes it is a Mexican thing. No insurance covers cost. It runs about $500 a month. It is involved about 13 pills 3X a day at meals. A diet is also involved. It comes from the website World Without Cancer called B17 Metabolic Therapy. Loved my surgeon and still keep in contact with him frequently. He allows his patients to text him. He is the one after hematologist screwed up so bad that I talk to and since he could access all my records through the same hospital we discussed my options. Came to the conclusion that the chemo could kill me faster than the cancer. Needless to say decision was easy. My pet scan after cancer surgery came back clear. I get labs done every three months and have had them done twice since quit the chemo and they're good so far except for my B12, very low. B 17 is also known as Laetrile. Newsflash for anybody who wants to know, my surgeon told me to avoid all x-rays of any kind at all cost unless I find something specific. He told me they can trigger the start of a dormant cancer.

I do yoga for seniors two times a week I exercise as much as I can because I'm tall and only weigh 112 pounds. Been very hard for me to gain my weight back. Even with only two chemo treatments I wound up with tinnitus - very loud tinnitus. I have just started the B-17 so it is supposed to improve my B12, lower cholesterol, increase my appetite, so will see. I have a great primary physician who monitors all my labs all I have to do is walk in and ask and he does them.

I so wish I had found this website sooner. I still get blue days and the fear every now and then sneaks up on me but I trying to keep it at bay. The diet is the hardest part but I figure it's either that or something not working so needless to say I stick on the diet.

I'm a grandma with one grandson who's four and I need to be around to see him get older. My best closest support besides my husband is my son-in-law. My children have actually put their head in the sand. I do do meditation with my yoga I love my music especially my soothing yoga music. My surgeon thinks my problem is because I have allergies to 95% of all antibiotics. Not fun if I get sick. I normally have to have a consult with a medicine specialist. By the way you can download free if you search for the web site, world without cancer. It is in the UK.

Have been reading back posts & have really received an education. I am so sorry for the great ladies that this board has lost & my condolences to their families. In reading back the courage they had was remarkable. I know 2 other tnbs's that I just met a few days ago in a free yoga class for cancer survivors. I am going to tell them to check out this board, as it truly helps me not feel alone in this battle & has great info. One of my major concerns is it rearing it's ugly head somewhere else. I have learned at at 66 every ache is not recurrance. Even with only 2 treatments before having to stop chemo, I have chemo brain in recent memory recall.. Have taken to writing notes about everything...

Stupidboob, am i understanding that you are having new problems? Bear with me as brain is not as sharp as once was. I also apologize if I misunderstood.

This is my first at any discussion board and am learning the in's & out's of it. I pray for all of us cancer survivors daily.

That we maintain the battle, but know it is God's will in the end. I pray he still has a purpose for me here.

I have a question for anyone that has any imput. I heard that Coconut Oil (Organic, Non Hydrologized) raises Vit. B 12. Anyone has any experience with it? My B 12 is real low (297) & I need a major boost.

God Bless to All

Absolutely ALHusband.

While I no longer post as often as I used to, I read the posts every night and respond to any that I feel I may add some benefit to. Coming on the site this evening, I was so saddened to hear of Naan's passing. I wish for her family the strength to endure this horrid tragedy, and, in time, to be embraced warmly at all times with all the abundant love she left behind for each of them.

Soar high, Julie, free of pain and fear. You fought a very valiant fight.

lookingforw no you are not crazy.............we are human and we all want what we can not have. I tell myself all the time you have to give up sugar.........but do I. NOPE!!! I feel like a failure because I always said if the doctors told me to do something I would.......with that being said I have not been told by a doctor to give it up but I have been told to lose weight and I still have not. I actually gained back what little I did lose. Losing your friend only adds to the thought that it could be you, and that only adds to the pity-party, but hey you lost a friend you have a right to have a little party of your own. I do not think there is one person on here who has not had our own party. You are ahead of it though because you are recognizing that there is a problem and you are going to try to go to yoga.....hats off to you. I am struggling in my thought process right now, but I am trying. Stinkin' Thinkin' I like to say. I just keep telling myself I am still here and I want to be here and I try to go on and then I have days that I am like why bother, I am going to lose in the end. Then I think well it might not even be cancer that takes me. I am trying so hard not to go there but every new little thing that hits me and I am back to OH NO what if it is the cancer coming back. I always feared it but when they found it I was not thinking that I had it again. The only thing that I knew was that something was not right.

Hang in there and you try to get to that yoga class if you can.

Sometimes we just have to let that backbone rest................;)

In trying to catch up with the news about Naan, I came across a post where someone said that "breast cancer isn't really curable".

I disagree with that post. There are countless articles on the internet that said many people, including breast cancer patients have been cured for cancer. While there may not be a specific cure, as in a targeted cure, there are countless articles and literature that reinforce the message that breast cancer is curable, but more often in the earliest stages.

“Approximately 200,000 American women are diagnosed with the disease each year,” says Port, “The majority of these cases are treatable and curable, and much of that treatability and curability depends on early detection.”

The quote is from this article.

To read more: http://www.nydailynews.com/life-style/health/breast-cancer-cases-curable-mammograms-article-1.449003#ixzz2hlTMQ8s8

Obviously in the word 'majority' they are lumping together treatable and curable, but clearly there is documentation that bc can be cured in some individuals, and has been.

Also, I know of someone who was Stage 3 TNBC 11/13 nodes positive and her team has also declared her cured. She was dx'd over 10 years ago.

What each of us chooses to believe is a by-product of several factors, and there is no right or wrong belief, but for me, I do 100% think bc is and will continue to be cured in some individuals. Even though there is not a specific cure able to be administered collectively to the population right now, I don't doubt the merit of some of these findings.

thanks for sharing that info. rachelvk...................interesting...........I think we are all angels......:) : ) I guess Naan is just up there cheering for us all as a real angel now though

Just thought of great book that helps me. I read it often.

Heaven is for real: A Little Boy's Astounding Story of his Trip to Heaven and Back. (A true story)

My sister gave it to me as a friend of hers recommended it as it helped her friend during a cancer battle.

It is up lifting & soothing. Yet a fighting spirit. I have recommended it to some of my yoga friends. Amazon has it in paperback & kindle edition. Has anyone else read this? I think it well worth the $$ even though not really expensive.

May we all have a blessed day!