Starting Chemo February 2013

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  • kkmom
    kkmom Member Posts: 54
    edited September 2013

    Hi Everybody, 

    It looks like we have all been busy with our lives.  I ditched my caps 2 weeks ago and life has been so much better.  I had gotten a part time job, which has been so good.  I was working at my desk and I was burning up, probably due to the arimdex I have been taking.  At that very moment, I thought this is it, this is the last day for wearing this hat.  It has been exactly six months since my hair went south.  I love not not wearing a cap - now granted I do look like a boy, but when I put on enough makeup and earrings, if I do say so myself, I look cute.  

    I noticed in the news this week - prejetta and herceptin has been approved for women with early stage breast cancer - Her2 neu positive.  This is great news for those of us who are triple positive.  I fully believe we will all see cancer eliminated as been "life threatening".  

    I hope all of you are doing well.  I think about our postings and comments daily - the ones that made me laugh and the ones that said just the right thing when I need to hear it and the ones that cheered us all on.  

    I am taking arimedex and I am really having to be careful about the weight coming on.  I lost 32 lbs during my cancer ordeal and I have quickly gained back 8 pounds since being on arimedex.  Otherwise, I am not having any other symptoms on it.  

    Take care all - Pam 

  • Heidi9256
    Heidi9256 Member Posts: 87
    edited September 2013

    Good to know that somebody "approved" Herceptin for early stage breast cancer since I've been on it since February. Things that make you go "hmmmm."

  • Gina925
    Gina925 Member Posts: 35
    edited September 2013

    Hi everyone. It has been quite some time since I last posted anything. I finished radiation in mid August and finished chemo in early June. My hair is coming back in but I am not brave enough to consider going without a wig yet. Eyebrows are completely back and eyelashes are about 70% back.

    The numbness in my toes is slowly easing up but I still have issues with sadness. You just NEVER forget what you have been thru and I guess it will take some time to be able to get thru your days without thinking about a future reoccurance.

    I attend a support group at my local cancer center and reccommend this to everyone. It has been helpful to talk to others who have been thru what you have been thru. (just like here).

    Hope everyone is getting their lives back to a new normal and getting adjusted!

  • kkmom
    kkmom Member Posts: 54
    edited September 2013

    I should have said Herceptin and Prejetta together as treatment has been approved by the FDA for women with early stage breast cancer.  Oops - I should have worded the information better.  

  • melody46
    melody46 Member Posts: 279
    edited September 2013

    Does anyone still have problems with pain in their breast?  I'm 5 months out of chemo 3 radiation and theres still alot of discomfort. Gina I agree about the aftermath of going through this.

  • Shasha10
    Shasha10 Member Posts: 297
    edited September 2013

    Melody46

    I had discomfort after my radiation boost and used the after surgery pillow they gave me for awhile. but it took about 3 weeks. Good Luck

    I have my echo this Monday. Hoping I can go back on Herceptin. Will see

  • LW0919
    LW0919 Member Posts: 196
    edited October 2013

    Life is all but normal now. If I had hair, I could almost forget and go a day without thinking about breast cancer and all that has happened this past year. It's hard to believe its almost been a year since the diagnosis. This year has been a blur...I feel like I just focused on putting one foot in front of the other to get through each day and am ready to live now. To actually enjoy each day and make the most out of them all. I hope everyone is getting along well. This year I hope to really enjoy Christmas. I spent last Christmas wondering what the results would be from my biopsy!

  • Shasha10
    Shasha10 Member Posts: 297
    edited October 2013

    Back on Herceptin. Yey!Laughing

  • melody46
    melody46 Member Posts: 279
    edited October 2013


    I realized today I hadn't been on here in a couple of weeks after practically living on these boards for 6 months. I hope everyone is doing well. I got my first hair cut yesterday (cut off curls on the back and cleaned up around the ears) and I'm leaving for Hawaii in one week WAHOO!

  • McKatherine
    McKatherine Member Posts: 300
    edited October 2013


    Shasha - yay!!


    I've had to trim the hair on my neck/ ears, too. It seems to grow faster than the rest . . .

  • slv58
    slv58 Member Posts: 1,216
    edited October 2013


    Haircut?! Really? I wish mine was long enough. However I did realize that I don't look like a cancer patient anymore, just a woman with a real short haircut! My eyebrows and lashes seem to have taken a big hit with chemo. They have not grown in to their former glory, but at least there is something. Brow pencil and mascara are my best friends! I get excited when I see this thread pop up-we all went through so much together. A very happy Thanksgiving to my Canadian sisters. I am really looking forward to it this year, I have so much to be thankful for! I hope everyone continues to feel well.

  • melody46
    melody46 Member Posts: 279
    edited October 2013


    My eyelashes were very long and I always got compliments on them until chemo. I have been using a lash primer by Mac (its white) and it helps make the lashes pop when you put mascara over it.

  • IamNancy
    IamNancy Member Posts: 1,158
    edited October 2013


    Melody - Hawaaii.. wow-have fun!

  • tangles
    tangles Member Posts: 508
    edited October 2013


    Wow this month has been crazy! I have been going BROKE buying all this fun Breast Cancer stuff this month. Last night was our highschools PINK night! SO cool to see everyone wearing their Pink supporting BC at the football game. Tonight is our hockey teams Pink night. They have died the ice pink and all the lights will be pink. Tomorrow bright and early is our city's BC walk. I have 34 friends walking with me! So Proud!! last year fourteen thousand people attended! It will be crazy! Next week I celebrate my Birthday! Busy and exciting month! Hope you are ALL WELL!!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited October 2013


    tangles - I have been wondering how you have been doing! Sounds like you are really enjoying life and happy.. glad you are enjoying October!

  • DiZZyMom
    DiZZyMom Member Posts: 245
    edited October 2013
    Happy Birthday, Tangles! So glad you're doing so well. I have not been on in a long time. Like the rest of you, just living life like a "normal" busy person which is sooooo nice. I'm doing the Komen Race for the Cure in Dallas next week. I ran a lot before my diagnoses, but never did that one because it's so many (30,000) people, but feel like I should this year. I have at least 7 friends running with me and others coming to cheer. It should be fun.

    I hope you are all doing great and enjoying your post treatment lives!!
  • IamNancy
    IamNancy Member Posts: 1,158
    edited October 2013


    DiZZyMom - glad to see you here too.. good luck with the run!

  • Rdrunner
    Rdrunner Member Posts: 309
    edited November 2013


    Good to see people are doing well. I havent been here for a long time either. As someone said its hard to believe a year since dx. I had my surgery Nov 23.. crazy but trying to put it behind me and look forward. My hair came back very curly.. good thing the 80's are making a comeback.. i could stand in for MJ in the thriller video !!!! I feel my body is slowly but surely getting back to normal. I had a preventative right mastectomy in September so flat now and getting used of that.


    We must be all in or around the one year mark now, hugs to all

  • ywheels22
    ywheels22 Member Posts: 230
    edited February 2014

    I have not been on since May, when I finished my last tx. I had my te exchange in August 2013 for a nice c cup. I am a 34 c and I am very happy with how they look. I am well, healthy and feel great!

    I am on a Facebook group called ciao bellas. I think many of you may be on it. I hope you are all well. It seems like a lifetime ago and I am so glad it is done. 

  • McKatherine
    McKatherine Member Posts: 300
    edited February 2014

    ywheels - so glad you're doing well!   :)

    I have my last Herceptin this coming week.   Finally get to ring the bell!   :)

  • IamNancy
    IamNancy Member Posts: 1,158
    edited February 2014

    ywheels - so glad you're doing well!  

    McKatherine - glad you are getting to ring the bell!! woohoo!

  • Rdrunner
    Rdrunner Member Posts: 309
    edited February 2014

    glad all you guys are doing well. i started chemo feb 6 , its hard to believe a year has passed, ran 16 miles today as im training for a 30k race..feeling like my body is getting back to normal slowly but surely.

  • tangles
    tangles Member Posts: 508
    edited February 2014

    I have an apt with the oncologist tomorrow. First time I go in a year where I don't have to put my time in the "chair"! I also have an apt with a new Plastic Surgeon. Radiation did a number on my implant so they are both coming out! Feb 26th I will have a flap surgery to repair damaged skin and get new implants. Its a big surgery, but hope this is the LAST step in my road to recovery! Looking forward to a fun summer with no treatments and my new fun short hairstyle!!! Take care gals!!!!

  • IamNancy
    IamNancy Member Posts: 1,158
    edited February 2014

    tangles - wish your picture was bigger -its hard to see your hair - looks curly...

    hope all goes well with your surgery... and glad to hear from you - I always wonder about everyone that started chemo when we did Smile

  • tangles
    tangles Member Posts: 508
    edited February 2014

    Nancy its curly if I put product on it, straight if I don't. Going through the Major bed head stage! LOL Just grateful to have hair though!

  • melody46
    melody46 Member Posts: 279
    edited February 2014

    glad to hear from everyone and see everyone is well, my hair is CRAZY curly.

  • tangles
    tangles Member Posts: 508
    edited February 2014

    This is a long shot as Im sure most of you ladies do not check this too much anymore. I myself don't get on here too much. Here is my question if any of you see this. How many of you now that we have all reached the year mark are getting any type of scans. I asked my Oncologist and she said no scans needed. That scares the HELL out of me. I seem to hear everyday of women who had breast cancer and it comes back. Gosh please tell me Im not the only one worried about this??

  • IamNancy
    IamNancy Member Posts: 1,158
    edited February 2014

    You aren't the only one worried.. I still check these boards -just can't let go, I guess..I had a diagnostic mammogram at the one year mark and she (my BS) also ordered an ultrasound if the radiologist thought there was a need for it...there wasn't. She also ordered another mammogram to be done in 6 months...I appreciate all these doctors still checking on me, as its in the back of my mind to be careful and watch.... I see the MO every 6 months -the RO at 6 months and the BS after the next mammogram..

  • Heidi9256
    Heidi9256 Member Posts: 87
    edited February 2014

    I just finished my year of Herceptin Jan. 16th so am just now starting my follow up schedule.  I will see the onc every 3 months for a year then every 6 months but no scans unless there is something specific to look for.  My regimen might be a little more aggressive than most because I ended up with a very aggressive form of BC with a higher risk of recurrence.  Scans are a double edged sword -  I would like to get a regular "all clear" but they also give their own dose of radiation which could cause it's own long term problems plus they're stressful.  One of the reasons I chose a double mastectomy was so that I didn't have to deal with mammograms every 6 months.  In some ways it's harder now that treatment is over.  I'm not actively fighting the cancer, just sitting around waiting to see if it's gonna come back.  But things are going well now even if the Arimidex is kicking my butt.

    I love all the pictures of our hair!  And eyebrows... and eyelashes...

  • melody46
    melody46 Member Posts: 279
    edited February 2014

    I had a mammogram in Nov and will have an MRI with contrast end of April. I've been told I will be checked every six months for the first few years alternating mri and mammo.  I think about cancer every day and wonder when and if my brain will slow down with these terrible thoughts.  Although they are constant I still seem to get up everyday and don't seem depressed and I sure enjoy life a lot more.

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