October 2013 Chemotherapy
Comments
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Hi furfriend2. Glad you found this thread. It is so helpful to all of us starting out.
Looks like I will be a November starter (if I am still offered chemo). I got a notice that I am tentatively scheduled for Nov. 4th after meeting with onc on Nov. 1st. The home care nurse insists my wound can't be healed by then but I am still hopeful that I will either be in better shape in general or that they give me another week to heal. If not then I will just deal with that and start my wishin and hopin campaign to the gods that I am one of the 75% who don't have a recurrence.
I am going to stick around with this group though since I care how you are doing and cause I like you. xo -
Hi Wrenn,
Thank you for your response. I will wish & hope with you as well Wrenn & all the best for you. {{{Hugs}}} -
Hi Gramo,
I am on the same coctail as you and have constipation and cramps. Trying some laxatives to help combat this. All the best. -
Hi TeamKim, thank you for sharing your updates. That's really helpful. So we are only 1 week or 2 apart. Keep it up!
I got my Oncotype late last week. 24. (intermediate, 19 to 31). Doesn't make a difference much about chemo decision. My dear MO told me she was hoping mine would be low risk, therefore I dont have to go through chemo. It's funny that I actually made up my mind of going through chemo even if the score comes back low. Went on the Oncotype website anyway and read many stories. Different people truly made very different decisions.
Went Farmers' market today. One of my favorite activities the past few weeks. It really cheered me up when we saw so many good choices of fresh (& organic) veggie and fruits! Reasonable prices too! We are really blessed here in the States when good and safe food are accessible. There are many other countries in the world (even advancely developed) where "Organic" is a foreign or "undefined" name.
Jen -
Hello Jensf and TeamKim
Looks like we had the similar onco score mine was30 and yes like you I had made up my mind to go the chemo route even if it came back low just didn't want any regrets or what if's down the road. Had a good day just feeling a little tired are the day goes on so nice to have support and advise from others who truly know what I am going through and have gone through. Great idea about the popsicles and yes drinking lots of water for the plumping works good. Good Luck ladies will be in touch! -
Hi Furfriend,
Looks like we are on the same cocktail although mine doesn't start until Oct 23. Dreading that..... I will be glad when it is over.
Wren that will be good if you don't have to take chemo. -
Gia, I actually want the chemo because it will decrease my odds for having the cancer come back. I'm not looking forward to the side effects of course but am hoping I can be as brave as the women on this forum who are going through it now and can hopefully get through it if I am offered it.
I love it when new people find the forum. It has made my last two months so much easier. -
I had constipation and cramps today. Took laxative, which didn't seem to help. I had a headache too, which was getting worse, so took 2 ibuprofen -- headache and cramps both gone 45 min. later. Hmmmm. -
TeamKim - I was told not to take any ibuprofen as to not mask a fever... I think tonight I might take a pain pill and see if I can also sleep through the restless leg feeling. I have a numbing sensation on my face as well like I am wearing a Lone Ranger Mask... very irritating... I cannot focus on the tv or computer today. -
Travelmom -- Must be a difference in our "cocktails" or our MO's pref. Mine said I could take ibuprofen, but not Tylenol or Vicodin or any other pain med containing acetaminophen. Has to do with whether the chemo drugs are processed by liver or by kidneys, he said.
The Lone Ranger mask sounds very irritating and uncomfortable! A good night's sleep would probably help, so I will keep good thoughts for a peaceful night tonight for all of us! -
Dear all,
This is my first post and we will be all together, strong in this journey. I started my TC chemo on 10/2 having three more to go. No nausea, some fatigue, upset stomach for several days and now fine, taking Omeprazole every day. A small rash close to the area where I was stuck, no port.
In general all is good, doing the same we are all ladies doing, taking one day at a time and killing this cancer for all.
I wanted to ask if any of you have received any information from your doctors on what foods to eat and not to. Many of other blogs mention not to take vitamins, L-Glutamine, others mention exactly the opposite.
They do mention about drinking lots of water or fluids.
Wishing you to kill all of our cancers, HeadEast -
Head east - There seem to be a lot of those items where you hear conflicting stuff -- My MO said L-Glutamine was a good idea, but said no to all vitamins and minerals, except for my daily cranberry pill. I didn't get much guidance on foods except to eat a balanced diet and to avoid soy and mushrooms. I am glad the diet wasn't too prescribed, because different things taste good each day so far.
Drinking water and other fluids.... A LOT.... Is one consistent bit of advice from all sources. Onc RN said "you want to get it in, and get it flushed out as soon as you can". -
Thank you, TeamKim.
Yes, I see the blogs talking about the fluid intake a lot. i am drinking more than 100oz. a day, I have never drank so much in my life. Whatever it takes to get the cancer out of my body.
I see we are taking the same chemo cocktail, me starting on 10/2. Still have my hair. I read I will lose it on the 13th or 14th and I am ready for it, with wigs, chemo hats and all. -
I don't do well with laxatives so have been drinking Smooth Move tea every couple days. Anyone else use that? I do have a stool softener if needed but for me I can go from one extreme o the other too fast so have to watch it! -
Yesterday was my *debut* without hair....I chose to wear a scarf rather than the wig I have. I had the wig on & my sister came over & I could tell from her reaction (though she said nothing) that it looked way too *wiggy*. LOL So I wore a fleece cap when I went out.
Last evening we had a party (at a function hall) to go to & I wore a scarf, like a gypsy.
I do have a wig coming that I ordered & hope it looks ok (better than the freebie one) because it is cold here through winter & I think I will want to wear one when I go out.
Thankful to have you all here, while we go through this together! -
The taste buds have definitely changed....I thought the hair loss this week would be traumatic but I think facing the fact that food doesn't taste the same is worse! I LOVE to cook & bake , & eat!
Is that affecting you all yet? -
Today is the first day I feel pretty good since Thursday. Friday I spent sleeping and by the evening I was sick to my stomach. I took the Compazine and was okay. I needed it again Saturday morning and, again, spent the day sleeping. I've had very little appetite and have had trouble making myself drink water. It really amazes me how differently the same drugs effect different people. I'm afraid that I'm going to think I'm prepared next time around and it's all going to be different!
I'm so grateful (and sad) that there are so many of us here to share our stories. -
dear VintageGal and Kellee,
I haven't had a problem with the metal taste or losing my appetite yet, no idea what will happen in the next sessions, though. Still three more to go. I have gained 25 lbs. since the surgery. Might be the lack of enough exercise. I still have issues with my arm after the lymph node dissection and still healing from the mastectomy. I used to be very active. I am not worry about the weight now. I will lose it later after all this is past.
I find it hilarious me waking up and finding if my hair is on my head everyday.
Has anybody experienced gaining weight too? -
I gained weight from diagnosis to before chemo but I am a stress eater! I think I gained about 15. Once this is all said and done I will focus on losing but definitely not now.
Vintagegal- I had a bit of the taste change after round 1. Number 2 is on Tuesday for me. I still have hair but I think this week it should start coming out. Thinking of you and hoping your taste buds come back quickly.
Pam - thinking of you and hope you are doing ok. -
I've lost around 40 lbs since diagnosis. I am overweight and lost about 10 before surgery on purpose and then with the surgery (big boobs) and since then have not had an appetite. I still have no appetite but have started stress eating. I used to love steamed vegetables but now have to gag them down. The only thing that appeals to me is sugar and I am trying to avoid that she I eat a lot of fruit and yogurt.
Thanks again to the people who are sharing how it's going with them. -
Kelee-my fellow Wednesday girl, It sounds like we've had the same crappy weekend. I have been struggling since Thursday and today is the first day I feel ok. I was able to keep my nausea at bay with Zofran, but still felt icky the whole time, unable to eat anything but crackers or rye bread, and drinking anything has been a huge struggle. I am also very achy and the discomfort from my BMX came back full force. I will definitely need to talk to my MO about managing pain. I keep reading conflicting info on taking Tylenol vs Motrin, MO did say to stay away from Motrin/Advil because it effects platelets, but I know Tylenol could effect your liver so who knows. I hope we continue to feel better, I was getting depressed as I started to feel worse and I have too long a road ahead to be down now. Even though I wish we felt better, I do find comfort knowing I'm not the only one that felt like crap! Keep sharing ladies! -
I went to 2 chemo classes in different hospitals. General guidelines - Drink 2 to 4 quarts of fluid daily. Combination of soup, juice, milk, ice cream, jello and water. Avoid excessive alcohol and caffeine intake. 2 quarts approx equal to 4 x 500 ml bottle of water. -
Hi Everyone,
I hope that everyone is having a good weekend. Wanted to clue you all in on another side eeffect that I haven't seen posted. Yeast infection!!! As if there isn't enough. Called MO today and she said I can use otc treatment. So just a heads up if anyone is prone to them. -
That is interesting Jaybird. I am recovering from one from all the antibiotics. The drug I took for it (fluconazole) says to use only one pill per treatment. I am wondering if those other treatments like Canesten can be used as well? I worry about systemic yeast if it goes on too long.
Listening to drug commercials on TV some of the side effects they warn us about sound deadlier than our chemo drugs sometimes. :-) -
I read that your fluid intake is: your weight in lbs divided by 2 = the number of ounces your are suppose to drink as a minimum. For example: if your weight is 160lbs, you divide it by 2 which is 80 and that is the number of ounces you need to drink as a minimum.
And yes, like JenSF mentions, any fluid is good, preferably water and to avoid caffeine and definitely no alcohol to not to make your liver work even harder than it is now with all the chemo medicine we have in us.
The other thing I read is for the ones that suffer from diarrhea during these days of chemo, not to drink or eat lactose products. I am one of those so I am drinking rice milk and it is helping tremendously. -
is anyone starting Oct 24? I'm drinking a lot of water now but worry about being able to later. When my boys were little and would be sick and it was hard to get them to drink, my pediatrician told me to feed them potato chips and olives, things they both liked because the salt in them would make the boys thirsty and they'd drink. I'm going to try to see if I can eat salty things that will make me want to drink. -
I am starting chemo on Oct 23. I was told to take acidopholus capsules for yeast infection. I don't know if it works though because I have not started yet.
It is so nice to talk to people who have been through this. -
Compared with you gals on ATC, I feel like I have had an easy time of it. Saturday was the worst day -- no energy, headache, a lot of abdominal cramping and the big C -- I have been able to get out for a walk everyday, which seems to help tremendously. I just put on my headphones and go for about 20 minutes. Today I have more energy and better appetite, but feel achy all over -- Saturday nothing sounded good and had to make myself keep drinking my water and ginger iced tea. No nausea so far, but the lower GI cramps were like really bad gas pains. Watermelon has been my mainstay -- tastes really good to me.
Hang in there, Wednesday girls! You are turning the corner and the first tx can be crossed off the calendar. -
Hello all -welcome to those who have joined the group in the past few days. My first AC treatment on Wednesday was a great infusion day and then it just knocked me on my butt. Still not out of the woods but at least weaning off some meds. I do have to say that I have a proclivity toward nausea so I'm sure that is part of my issue. I went back to the MOs office/infusion center Thu and Fri for more IV Zofran, Dexamethasone and fluids. Have been able to eat a little and I keep drinking. Luckily they are already planning on doing some things different for next time. I did also get my Neulasta shot on Thursday. No problem with it at all and my MO asked me not to take the Claritin and I didn't. I've only made it through a few posts so I'll have to go back and catch up at some point but I did see some mention of weight - Ironically I spent the first part of the summer detoxing from sugar and processed foods and lost 30 lbs, then wham the whole BC diagnosis. I've managed to keep the weight off but not stay away from everything else - I'll get back to it as I felt better, but for now treatment is more important to focus on. -
Jaybird - I read your post and my sympathy to you on the yeast infection!
I had a long BMX recovery w/drains for 6 weeks - which meant 6 weeks of antibiotics. Yes, a yeast infection finally caught me (grrr).
Can I suggest something? I will be getting my first chemo 10/17 (been postponed 2x). I'm prone to yeast infections when I take antibiotics and had read that chemo does in fact bring on yeast infections in some women. Well, I found this product a few years ago and I swear by it - and I asked MO if I could use it as a preventative because who wants to deal with THAT on top of everything else.
It's called Azo Yeast. MO said it is perfectly fine to take daily while on chemo. It can be found at most drug stores or online. I take one pill a day and am hoping once chemo starts it keeps me from getting a yeast infection.
Also, if anyone is interested, Azo also makes a Urinary Tract Health pill that my MO also approved to take as preventative while on chemo. Only had 1 UTI in my life but I don't want to take any chances because I read chemo can bring that on as well. Or, any supplement that is basically an equivalent to cranberry juice (that's basically all the pill is) will work.
Anyone interested, of course check with YOUR MO first. We are all different and just because my MO ok'd it for me does not mean it is safe for everybody. But there are the products out there to use as preventatives and I just wanted to let you gals know.
Best of luck to all you w/your next chemo!
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