anyone starting chemo in Nov 2005

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  • Rosemary44
    Rosemary44 Member Posts: 2,660
    edited July 2006
    Anna,

    I think I've read every word ever printed about calcium and it keeps changing every 10 mins. anyway... concerning which type to take, that is.

    I like the calcium/magnesium citrate form because it has been said that it will also help to reduce cholesterol a few pts. Why not get a two fold result since we have to take it.

    About dosage: Oprah had Dr. Oz on her show, a Cardiologist, and he said minimun amount would be to take 1200 calcium/800 magnesium in divided doses. Our bodies can only absorb 500-600 mgs at a time and we should give it 5 hours between doses. And vitamin D3, per another researcher, should be at 800 mgs daily if we don't get out in the sun.

    This information is only good for the next 10 minutes.

    Take care

    Rosemary
  • Coltsneck
    Coltsneck Member Posts: 180
    edited July 2006

    Regarding the ability to eat meat - I was out to dinner the other day and my sister ordered a beautiful rack of lamb. I couldn't bear to even touch it and normally I would go through a rack with no problem. I wonder if it's a temporary kind of thing or does the revulsion continue after the chemo is over.

  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Debbie,

    Yes, I too feel very proud of all of us. We are "tough cookies" who don't "crumble". I truly belief God chose us to travel through this BC journey because of our strength and courage. He must have some big plans for us, don’t you think?

    Love and hugs,
    Odalys
  • Margerie
    Margerie Member Posts: 526
    edited July 2006
    That is beautiful Odalys. I definitely feel stronger now going through all of this.

    My gyn recommended 1500mg Ca plus 800 mg vit D per day. She said buy a few different kinds, so you don't get sick of the same pill 3x a day. I got a huge bottle at costco and some of the chews- chocolate and fruit flavors. My bone density tested in the normal range "for my age", but I am taking fosamax anyway since I am on arimidex which is not good for bones.
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Coltsneck,
    I've never been the type to eat red meat but during chemo I couldn't get enough. I think it had to do with the body trying to re-build red blood cells. Today (4 months after chemo), I want to vomit every time I see a steak. For some reason, the thought of eating cows blood grosses me out! Sorry, if this is too graphic.

    Odalys
  • kim825
    kim825 Member Posts: 284
    edited July 2006
    Houston, we have air, LOL!! It was finished yesterday and I don't want to leave my house!!!!

    Debbie, It could be my hair in your dreams. LOL!! Mine is salt and pepper and fuzzy. Not curly though. It is straight and in need of a trim. Yeah!!!

    Hope you all have a great weekend.
  • AnnaM
    AnnaM Member Posts: 1,387
    edited July 2006
    Congratulations on the air, Kim!

    Thank you Rosemary and Margerie for the information on calcium. It sounds like I am not taking enough. I will go hunting for some different types.

    I have heard from numerous women that they are absolutely turned off by whatever it is they craved during chemo. So how come I'm not cured of my incredible desire for English Toffee (almond variety)?

    Anna
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Margerie - I like the idea of rotating the pills. I don't know much about Foxomax. Did you decide to take on your own?

    Kim - Yeah!!!!!!!!!! Crank it up and enjoy!! What a difference A/C makes.

    Anna - I still crave chocolate. Reading your post got me thinking of English toffee, almonds, and chocolate...yummy!

    Love,
    Odalys
  • LAT56
    LAT56 Member Posts: 79
    edited July 2006
    Hello everyone!! I've had company for the last 12 days and have been having a blast!! I'm still having problems with fatigue (especially with hot flashes in this heat!!) but I've been able to schedule naps every day. Everyone's been very understanding - bless their hearts!! Now that all of my visitors have left, I'm really exhausted. I slept over 16 hours yesterday.

    Thanks for the info regarding calcium. Right now I'm taking only 600mg a day but I think I might up that. I am going to ask my gyn. to order a bone density scan when I see him for my "yearly" in a couple of weeks.

    Odalys, Your comment on steak was funny!! I have been on an eating frenzy - especially steak!! I can't seem to get enough!!

    I am going to return to work, part-time next week. I'm nervous about re-learning & retaining information. I still feel at times that I am in the chemo fog. Hopefully the routine of work will help that. And hopefully I'll be able to stay awake! LOL

    Huge hugs to all!!!
    Thank you for sharing & caring!!
    LAT56
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
    Hi everyone,
    Just a quick note to you all...my best friend is coming down for a visit, so I have to scramble and make the house look a little better than it usually does. This is no small feat, I might add.

    Speaking of feat, or...feet...how is everyone in the Toe Club? My toe just won't bend like it used to. If it is sort of crooked I can get it to work!

    I'm cracking up about the cravings. I can't seem to get enough of pineapple, red grapes, and HERSHEY KISSES WITH ALMONDS. Oh my goodness, I didn't even like Hershey's pre-chemo!
    Ok, gotta go. I have a lot of posts to catch up! LAT56 it is sooo good to hear from you!
    Love and prayers, Debbie
  • kim825
    kim825 Member Posts: 284
    edited July 2006
    Good to see you LAT56. Hope you get some rest this weekend.
    Hmm cravings. Have tons of them. I love chocolate (not ice cream though) and wasn't a chocolate lover before. Hmm I have a Hersey Kiss in the freezer, gotta go have one.

    Kim
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Speaking of chocolate, I am an absolute chocoholic. Before the BC diagnosis I bought a key chain with a plate that reads: I'd give up chocolate but I am no quitter.

    Love,
    Odalys
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
    Hi ladies!
    My best friend just left two hours ago, and I am just now sitting down to catch up with you. It was SOOOO good to see her-we met our first day at my college (even though I was a transfer and she was a freshman), and since we are both named Debbie and play clarinet we had no choice but to be best friends. She is a tremendous person, and I don't know if I can ever convey that enough to her. We spent the past 24 hours cracking up about college, embarrassing moments, and each other. Oh yeah, she is a nurse, so she is extremely handy to have around when I have questions like, "I have this ache....."

    I wanted to also say how I seem to already have rads fatigue?!?! Gheesh, I only had 2 out of 30 so far. How soon did it take you all to feel so sleepy and darned tired?
    Speaking of tired....time for bed.....
    (today's craving was peanut M&M's...another thing I didn't like before....)
    Love and prayers, Debbie
    PS-Kim, I was sifting through my inbox on Friday (in absolute glee, because I haven't been able to since surgery), and I saw the updates on the crap you had to deal with about the fat necrosis. I'm SO glad that it turned out to be good news, and I am SO sorry I didn't know about that sooner!
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006

    Whoopsie, that turned out a bit huge, but this was to portray my amazing hair growth. I didn't think that it was a dumb idea to snuggle up to hubby for a picture, but now I realize you can't see half of my head! Also, do you think my dh looks exhausted? He is. I guess I am a hard patient to take care of. We've been fighting about stupid things like coupons, stamps, who said what, etc, etc.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
  • Margerie
    Margerie Member Posts: 526
    edited July 2006
    Great picture Deb!! And Daniel is a cutie patootie!

    I didn't know you had braces. You look amamzing. I love short hair- we all look great.

    Hope you all are doing well. We are recovering from the pirate pool party yesterday. It was 110! I think we are heading to the beach to cool off today.
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Debbie - beautiful family picture, love the hair. You look great! Hubby does look a little tired but it's expected with all that you have gone through. I do see a lot of love in his eyes. Oh, baby Daniel is sooo cute, makes me want to give him a big hug and a kiss.

    MaryLou - haven't heard from you in a few days. I hope you are doing good and are enjoying this hot summer.

    Kim - are you still indoors enjoying the A/C?

    Margerie - great weather for a pool party. I know how exhausting kids bd parties can be but they are so much fun too.

    Have a good sunday everyone.
  • AnnaM
    AnnaM Member Posts: 1,387
    edited July 2006
    What a beautiful family!

    Gotta get outside today, only 83! (as opposed to 105 most of week).

    Hugs,

    Anna
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited July 2006
    I found a picture of my old hair. No gray LOL !!!

    image
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited July 2006
    PS. I posted a long post just a bit ago. Don't know what happened to it.

    To late to rewrite it.
  • LAT56
    LAT56 Member Posts: 79
    edited July 2006
    The first thing that popped up when I signed onto the message board this morning was Debbie's family photo! What joy it brought to my heart!! Its BEAUTIFUL!!
    And then the one of Daniel!! How ADORABLE!!
    Debbie - Thanks for posting them.

    Mary Lou - Your currrent photo is so classy!! What a great smile!

    I am going back to work (retail) today on a part-time basis. I haven't worked since my surgery in October. I'm somewhat apprehensive about it as I am still sooooooooo tired. Plus my short term memory is so bad. I've lost huge blocks of time! I'm afraid they'll retrain me this week and by next week, I'll have forgotten everything. But I know deep down, that going back will actually help me in so many ways. Some of my co-workers have been very supportive during the past few months.
    Going back to work also brings up issues in regards to benefits, full-time status, hours worked, disability, etc........Hope it all works out okay!!

    Prayers for all!!
    Hope everyone has a great week,
    LAT56
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Debbie,
    RADS fatigue really kicked in for me around the second week. It was very difficult to stay awake and to concentrate. By the third week, I was sooooooooo tired and sleepy I had to take time off from work because I could not keep my eyes open. Every time I received treatment I was ready for a nap afterwards.

    I can understand you feeling tired considering your body is working extra to heal from recent surgery. My advise would be to take as many naps as you can. The energy level does improve after you finish with treatment. Hang in there my friend. Time goes by very fast and RADS will soon be over.

    Love and hugs,
    Odalys
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Lat56,
    Glad to read you are going back to work, a sign life is starting to go back to normal. Chemo fog is hard but I found co-workers can be very understanding. Working through this entire journey has helped me stay focused on other things besides bc. I thank God every day for allowing me to do so.

    Take care,
    Odalys
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Debbie - I forgot to mention earlier, I applied Aloe twice a day starting with the first treatment and it really helped preventing skin breakdown/burn. Around the third week skin started to itch and RAD Onc perscribed Biofene (sp?) and skin held up ok. Do you know if you can apply Aloe? Don't hesitate to PM me if any questions.
    Love and hugs,
    Odalys
  • Anonymous
    Anonymous Member Posts: 1,376
    edited July 2006
    Odalys, I have a partial tube of the Biafine someone sent to me. I have used it once a day, and am wondering constantly if I should do more. I am just so paranoid about the marks washing off. I just HATE applying lotion to that area, since I have such weird sensation there, and I don't like the way it is so lumpy/bumpy.

    Otherwise, I'm hanging in there. 3 down, 27 to go!

    ML-I'm so happy to see you here. We've missed you lots. I love the picture-you can obviously pose for shots and look really good. If I pose, I look ridiculous!

    Took a new med for neuropothy-Lyrica? I told him that my MS is acting up a bit, so he thinks it will help better. Less side effects!
    Love and prayers, Debbie
  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Hi ladies,
    I posted the message below in another thread but wanted to post it here too in case you haven't seen it. Debbie saw it and enjoyed it so I thought the rest of my sisters will enjoy it as well. Here it goes....


    This weekend I had an opportunity to attend commencement ceremonies at our university. The guest speaker was Astronaut Captain Winston Scott, you may remember him a few years back as the Astronaut who performed a space-walk and captured a 3,000 pound, multi-million dollar satellite that had gone astray in space. There were many headlines about the “lost satellite”. Anyway, he delivered such a beautiful message to the graduating class that I thought was also very appropriate for us BC warriors and I just wanted to share it with you.

    Captain Scott told the story of how he and his crew were blind sighted by this massive satellite that became dislodged and was floating around in space. He described the challenges they faced in trying to “regain control” and how they wondered what to do, after all this was the first time they had come across a wayward 3,000 pound satellite floating in space. How could they get a “grip” on it? They could not just forget about it and let it become junk in space. It was worth over $10,000,000 (try explaining that to President and country he said). Finally, he decided to step out into orbit with another astronaut, who by the way had never been in space before and spoke little English, to retrieve the satellite. As he floated in space, he realized the satellite’s “complex rotation patterns” and “sharp edges” and he became disoriented and out of focus. Then, as he started to feel “out of control” he remembered a lesson he learned in flight school about what to do when feeling out of control: “just focus on the instruments”. So he did. He focused on the instruments and on the satellite and reached out and grabed it safely.

    As I reflect on Captain Scott’s comments, I see the similarity to this BC journey. Remember, when the world around you gets to spinning a bit too fast, you’re becoming disoriented, and feel out of control, just focus on your “instruments” (one treatment at a time) and on the “satellite” (this journey) and “reach out and grab it safely” (recovery and dancing with NED).


    Well, what do you think? Hugs to all.
    Odalys
  • Margerie
    Margerie Member Posts: 526
    edited July 2006

    Love it Odalys. It is interesting at this stage for me. I am a big fan of the show "Starting Over" and I wonder if I am starting over or continuing on with my life. I feel fine, have lots to be appreciative of, but hate that little bit of fear that will follow me for the rest of my days- dangnabbit!!!!!!!!!!!!!!

  • Odalys
    Odalys Member Posts: 2,103
    edited July 2006
    Yes, I know what you mean. It feels like a new beginning for me. Hey, maybe this is a good opportunity to re-invent ourselves.
  • Mary-Lou
    Mary-Lou Member Posts: 2,230
    edited July 2006

    Grrrrrrr , I lost the "LONG" post again. I have to go get cat food. I'll be back later.

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