October 2013 Chemotherapy

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  • Jaybird26
    Jaybird26 Member Posts: 49
    edited October 2013


    Good luck Pam on Wednesday. Remember that I am one week ahead of you. I was very anxious and scared but felt better after I had the first one done. My side effects weren't bad. I am praying for the same for you. I will be thinking about you on our birthday! Next year will be a better one. For mine I am having a shaving of the head party. Lol Trying to stay positive aboutit. I should be nervous though about letting my son give me a crazy haircut first. :)

  • relocatedtarheel
    relocatedtarheel Member Posts: 159
    edited October 2013


    Hey all! I am beginning chemo on October 24, A/C dense dose x 4, then T dense dose X 4. We attend our mandatory chemo class tomorrow. I am so thankful for this forum and the info. Is anyone taking claritin? I've heard some people recommend it for bone pain.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2013


    relocatedtarheel - Claritin is for bone pain from the Neulasta injection, the antihistamine counteracts the edema in the bone marrow from the excessive production of new white cells - it will not help bone pain from the chemotherapeutic agents themselves. Just wanted to clarify that.

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited October 2013


    Hi all! Well I had my first treatment last Friday (Oct.4). It went really well. My MO initially was going to do Taxol x 12 first but switched it to DD A/C for 4 treatments followed by surgery then Taxol. I literally had no problems with nausea. I got Emend and Dexamethazone IV before, then took Zofran and Compazine thru Sunday. Today I'm tired, took off work today because I wasn't sure how I would feel, but I probably could have gone in today. I hope everyone's treatment goes well. My grandsons came over Saturday and they just keep my mind off all this. They are 3 and 4 years old, so they don't really understand what's going on. I hope my next treatment goes as well, does it usually catch up with you or is the first treatment an indication of how things will be? Good luck to everyone, hope it goes as well as mine did!!!!!

  • TeamKim
    TeamKim Member Posts: 568
    edited October 2013


    To all of you who begin on Wednesday -- good luck, and may the SEs pass you by. I am so thankful for everyone who is posting here -- it helps so much to know that I am not alone in this.


    I have a question for those who are preceding us chemo newbies.......My first infusion is this Thursday afternoon at 3:00. Among all the other instructions, MO and onc nurse never gave me any guidance about what to eat that day. Normally i stop on the way to work for a mocha and a bran muffin -- should I keep to that routine, or forego the caffeine? I don't know whether to splurge on a nice big lunch of all my favorites since I am likely to not have much of an appetite for several days, OR should I stick to a light and bland meal in anticipation of the afternoon "cocktail?" I don't want to make anything worse by eating something that exacerbates any SEs. Thoughts anyone?

  • Pam358
    Pam358 Member Posts: 294
    edited October 2013


    Kim - the nurse told me to eat, but keep it on the lighter side. My appt starts at noon.


    Thanks Wrenn and Jaybird!


    Gram and Jaybird I'm signing up for your SEs - glad it went well.

  • TeamKim
    TeamKim Member Posts: 568
    edited October 2013


    Thanks Pam. I think I will call tomorrow just to confirm what is OK to eat. May just keep it to small meals with fiber to keep things moving. Haha


    Happy birthday on Friday! Here's hoping the SEs don't keep you from enjoying cake! Thanks again for setting up this thread and for the support you give to all of us.

  • sb1999
    sb1999 Member Posts: 9
    edited October 2013


    I'm so glad that this was started! I am starting my TCH chemo treatment on October 9th. SCARED OUT OF MY MIND!


    PAM358 I too wanted to enjoy the holidays and hopefully this timing it will let me. Cannot let this disease get the best of me. My son is 5years old and really doesn't understand what I am going through. He just knows that I am "sick" and that I keep having to go in and out of the hospital. Had a mastectomy (left) done on August 9th, port was placed September 27th. I'm ready and trying to stay as strong/positive as I can. Thank you so much for starting this discussion, its very hard to talk to my family members and friends who have no idea what I am feeling. I appreciate them with all my heart, but it just is not the same as sharing with fellow women who are dealing with the same issues.


    I've decided that I am going to shave my head come the sunday after my 1st treatment. Gives me a sense of control...if you call it that. I don't want to be all alone in the shower when clumps start falling out! I would be completely devastated.


    For those of you who have already started...did you lose your eyebrows and eyelashes? I have read other posts who have started treatments earlier and found that each person does vary. Some lost all hair, some kept their eyebrows and eyelashes. I guess I have to wait and see.


    Good luck to all of you wonderful fighters!

  • kittykate78
    kittykate78 Member Posts: 23
    edited October 2013


    Hi TeamKim -


    My onc nurse told me to make sure to eat before coming to chemo. My first tx was around 10:30am and I had eaten breakfast as normal (poached egg on an english muffin with a slice of ham.) I didn't really feel like eating but I choked it down. Well, as it turns out, I had a reaction to the first tx and ended up being there for 7 hours. I hadn't packed any snacks or anything cause I thought Id feel so sick. But, I was starving! Thank goodness they had snacks there for us and my fiancé went and got me a smoothie.


    After that experience, I have since packed some little snacks (pretzels really seems to hit a sweet spot for me) plus I eat a normal breakfast and even have my mocha :) I have to take a Benadryl (plus steroids) at 5am before tx and then they dose me again with pre meds, so the caffeine keeps me level. Plus, who knows how long my yummy mochas will taste yummy? I figure I should enjoy them while I can.




    I also recommend asking your onc for a prescription antacid. My stomach was so acidy and awful feeling after my first tx, but now that i take my little antacid every morning, it feels so much better. My nurse told me that chemo sloughs off the inner lining of your stomach, which is why we have so much indigestion and stomach issues.

    1. Personally, my chemo bag has my iPad (with Kindle books and lots of music), headphones, pretzels, gum, chapstick, a bottle of water, fuzzy socks, a neck pillow, and my port-numbing cream :)
  • travlmom
    travlmom Member Posts: 90
    edited October 2013


    sb1999 - I am sorry that you are joining our group but please know that there are quite a few of us starting on Wednesday as well. I have tried to enjoy a few moms nights out over the last few days. I am nervous too and have tried very hard to be strong for my son and husband. But today had a few low points. Came home from work and my husband say that he has had a hard day - reality hitting him with chemo starting on Wednesday he was visibly upset . Then as I am out the door to go to dinner with friends - hubby runs out a coupon and says that my 14 year old son is concerned with me driving and does not want me to pick him up tomorrow after football. My neck is still a little sore from my port placement and I was more cautious as I made turns today. I have tried so hard to keep as many things normal since being diagnosed and try to be the strong woman we are supposed to be. This sucks! I am hoping that the benedryl will just cause me to pass out on Wednesday and that when I wake up it will be time to go home.


    Lets fight a good fight ladies.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2013


    teamkim - be cautious about fiber - if this is your first tx you do not know which way the GI pendulum will swing - there are many of us that had the Big D throughout chemo! Do not medicate for either possibility on the first tx, or eat a lot of fiber, until you know what is likely to happen. Because I had three drugs, pre-meds, blood work, and an onc appt. every time I was routinely at the center for 7-8 hours. I usually brought coffee with me, and brought trail mix and some juice for a snack. I never felt like eating a big lunch during chemo (I arrived at 8:30 a.m. and usually left by 4 p.m.) but some people ate a normal lunch during infusion. I think it is also a good idea not to bring anything that has a strong smell. I was advised to eat something with protein prior to infusion - it takes longer to digest and you will stay feeling full longer. I would also wait and see on the antacid - unless you already know that you have issues with this, you don't necessarily want to add drugs in if you don't need them. Believe me, you will be taking enough.


    sb1999 - I did not lose my eyebrows completely - I had enough to darken them with colored brow gel and look normal, I lost the bottom lashes about half way through, and the tops ones thinned by 2/3. Eyeliner is your friend - I am not sure anyone could tell that my lashes were gone, I just wore more liner and a bit darker shadow. Also, when your hair is long enough to wear in a very short style darker lipstick and big earrings help too!

  • TeamKim
    TeamKim Member Posts: 568
    edited October 2013


    Thanks SpecialK -- I guess I should take a wait and see approach. Ever since surgery in the summer I have been slightly constipated off and on, though this was never an issue for me before. Maybe if I get the opposite result this time things will even up! Lol! Protein seems like a good idea -- maybe I'll have an omelette in the morning. Good call on smells. I was one with a very nauseous pregnancy (18 years ago!) so hoping that doesn't mean I tend to the urps in this instance. My time at infusion is supposed to be 2.5 hrs -- blood work, pre meds, Taxotere, then Cytoxan. Seems kind of quick to me, but that is what I'm told. Onc nurse said if I have any sign of allergy they will slow down and give Benadryl.


    KittyKate, thanks for the tips -- my bag is packed with iPad, headphones, snacks, lip balm, plus I'm taking Popsicles and a smoothie in a cooler to keep my mouth cool and hopefully head off the mouth sores. I have Pepcid at home, but as SpecialK suggests, will probably skip that. Onc RN did suggest I take an Adivan in advance of coming to first treatment.

  • SuckitBC
    SuckitBC Member Posts: 34
    edited October 2013


    Hello all you brave women! This is my first post, but I have been reading these boards since my diagnosis in early August. I thank all of you for your candor, information, and bravery.


    I start the AC part of my chemo on Wed. for 4 rounds, followed by weekly Taxol for 12 weeks. Now that chemo is not that many hours away, the nerves are beginning to creep in. I had my mediport placed last Tues. and have been in pain ever since. My FOOBS were still very uncomfortable when I got the port placement, (I went direct to implants, no expanders,) so maybe that's why my port area hurts so much? I don't know how some people access theirs right away, I hope the numbing cream works for me. Is anyone still feeling a lot of post-surgery discomfort? I am so impressed that most of you have been living somewhat "normal" lives prior to chemo & even during, I have been pretty much stuck in bed/recliner for these 5 weeks post-surgery. I haven't even driven a car since before the surgery either.


    I was going to ask about what foods to eat before & during chemo, but you wonderful ladies already answered that-this site is so helpful! Good luck everyone, I hope you all have a side effect-free Tuesday!

  • wrenn
    wrenn Member Posts: 2,707
    edited October 2013


    hi suckitbc i am still recovering from surgery and had no reconstruction so I'm not surprised you are still feeling effects. Make sure you come check in here often because it has been what saved many of us. I hope your chemo goes well. There are usually lots of people posting during the day. Take care and good luck Wed

  • MsJean63
    MsJean63 Member Posts: 42
    edited March 2014


    Off to the hospital for port placement. Wish they would knock me out for this. This just doesn't get any easier on my nerves. Another day another appointment, I'll make it through just like all the rest.

  • Jaybird26
    Jaybird26 Member Posts: 49
    edited October 2013


    Ms Jean,


    I was nervous also but it was not painful at all. You will do great!


    I hope that everyone has a great day!!!!!!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited October 2013


    tomorrow is a busy day for everyone as their are so many of you starting. I will be thinking of you all and praying for no SEs.


    Today is day 7 post treatment 1 of AC and really feeling great. I had about 5 days of fatigue and slight nauseousness. It could be worse I know so thankful but having anxiety about next treatment.


    I had IV antiemetics and took zofran that night and 3 days post chemo and that def helped me.


    I had eaten oatmeal for breakfast the morning of chemo and drank tons of water throughout. That is one advice that I keep hearing make sure you stay hydrated!


    I haven't lost my hair yet or any hair but my scalp is sensitive. MO said it should start thinning day 14. So I guess I have one more week of hair. My hair does look terrible though wondering if it does that to make it easier once it falls out.


    Hang in there everyone we are here for each other.


    SpecialK - that for continued advice and support. Your posts are so informative.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    I am leaving in a few minutes for my second infusion. Blood draw first.


    My first chemo treatment was a breeze, (2 weeks ago) the nurses are fabulous, the cancer center is really nice, the infusion room is set up really well. There is a garden area, they have Reiki, foot massage, a muscian, even pet therapy. I felt totally at ease, no anxiety at all.


    Hope all of you going in do ok.

  • VintageGal1111
    VintageGal1111 Member Posts: 705
    edited October 2013


    Hey Suck It BC (love that name LOL)


    we're almost on the same schedule & course.


    A&C for 2 months then T&H for 12 weeks. (I have to continue Herception for a full year)


    I haven't even looked ahead on my calendar to see what falls where for BD, holidays & chemo. What can ya do? Can't change it so just go with it.


    All the best to you!


    VintageGal

  • denise4603
    denise4603 Member Posts: 132
    edited October 2013


    Welcome SuckitBC and all new posters!


    This is a wonderful,safe place. I log in daily and check on my BC people. I root for everyone, pray for all, and admire the strength of the members. I try to be strong too.


    My first chemo was supposed to be 10/7 but I begged to hold off because my daughter is getting married Saturday 10/12. So they kindly moved it to 10/14. Now after a meeting with MO yesterday they want to wait until 10/24. This is because I am still wearing drains and they want me healed from that. My regimen is 12 weekly Taxol/Herceptin. Continue with Herceptin for a year every 3 weeks.


    I will be checking the boards to see how all of you do and what advice you have to offer. You are all my chemo mentors now!

  • lgkgde13
    lgkgde13 Member Posts: 164
    edited October 2013


    Vintagegal - thinking of you today :) You infusion center sounds wonderful...they should have that at all places....it would be nice to have that available to calm anxieties...love that

  • Bellyboo
    Bellyboo Member Posts: 5
    edited October 2013


    Thank you all for posting. I am so relieved to hear that others are experiencing the same SEs as I am. I started a journal on my first day of treatment, writing down what treatments I was getting, how I felt right after and throughout the day, what medications I took, how often I took nausea medication and all the SE's I had etc. I wrote in the journal everyday after treatment until I felt 100% better. I am a little more prepared now for my next treatment as I should know what to expect and how to feel. I also wrote notes down that I want to discuss with the MO and nurse, so I wouldn't forget. My writing starts again tomorrow.


    I had heard about possible constipation and really wanted to avoid it. I drink a whey protein shake every morning for breakfast, snack on 5-6 prunes mid morning and sometimes have a fiber one brownie before dinner. I also drink lots of water (1/2 my weight). This seems to have worked. I can happily say I am regular!! I just hope I stay that way.


    Question; I get anti-nausea medication on day of treatment. I was told that I could not take Zofran for 48 hours after, but that I could take Compazine and after the 48 hours I could switch it up between the two. Here is where I am confused. I can take the zofran every 8 hours and the compazine every 6. Can I take the compazine before the 8 hours is up on the zofran or can I take them together? Not sure what the nurse meant by switching them up????


    Good luck to everyone getting treatment tomorrow. I will be thinking of you.

  • SpecialK
    SpecialK Member Posts: 16,486
    edited October 2013


    bellyboo - my anti-nausea med instruction was to take a different drug only if the first one tried did not work. Ask the nurse for clarification. My understanding of Zofran and Compazine is that they work by different mechanism so they can be taken on top of each other. I was told to take Zofran first (same evening as my chemo, so not sure why you can do that), and if it did not work to start on the Compazine. If that did not work to try Ativan. Zofran did not stop my nausea and gave me a wicked headache, but Compazine was great. I did not have to try the Ativan.

  • Bellyboo
    Bellyboo Member Posts: 5
    edited October 2013


    SpecialK,


    I think zofran works the same on me. I noticed after taking it that I got headaches and my nausea was still there. I tool x-strengh Tylenol for the headaches and that seemed to do the job. They Compazine did work, but made me extremely tired. After taking it once, I needed to leave work! I am definitely going to ask for a different nausea medication. Hopefully there is something that won't make me drowsy.

  • HappyDay17
    HappyDay17 Member Posts: 8
    edited October 2013


    Hi everyone,


    My mom was diagnosed with triple negative breast cancer in mid-August and is just about to begin chemo in the coming week. It's been a harrowing past few months to say the least. Through this time, a constant source of strength and inspiration has been a blog of one of my friends who is a young mother of 2, fighting stage IV colon cancer and currently in the middle of chemo. Her blog entries are incredibly honest and powerful. It is impossible not to be moved and inspired, and I hope that everyone going through chemo (whether directly or as a caregiver) can check it out and also draw strength from her beautiful writing. Sending good vibes to all!


    http://julieyipwilliams.wordpress.com/about/

  • sebaroni
    sebaroni Member Posts: 59
    edited October 2013


    Good Luck to all of you starting on Wednesday. I will be in surgery tomorrow getting my port removed and my implants adjusted. I, too, had immediate reconstruction and it takes a while to get used to them. I did not really lose my eyelashes and eyebrows until I was near the end and finished with treatment. They hung in there the whole time and now I have about 6 eyelashes on each eye and still losing eyebrow hairs. It is a bit frustrating.


    SpecialK has been giving you all really good advice, so I will be let her continue on the misson. Wishing the best to all you.


    Suzan

  • Pam358
    Pam358 Member Posts: 294
    edited October 2013


    SB1999 - Welcome to the group! There seems to be a large group of us starting tomorrow so you have a lot of company. I agree, my family and friends are very supportive, but there are just parts of this that are difficult to understand unless you are going through it. Plus sometimes we try to protect others. But this is the place to vent and express whatever is going on.


    Kitty - you are right, keep up the mochas as long as they are yummy.


    Denise - sorry you still have those darn drains to deal with but happy to hear that the your chemo has been postponed so you can truly enjoy the wedding. I think if it was the Monday after the wedding you would be more distracted by chemo thoughts. This way you can put it out of your mind and pick it back up later next week :-)


    TravlMom - "this sucks" - well said


    SuckitBC - welcome to the group! I'm still dealing with some post surgery pain/issues as well but I think I've gotten more used to it as being the norm and therefore just push through. But it does get tiring!


    MsJean - hope the port placement went well.


    Sebaroni - good luck with surgery


    BellyBoo - good job staying on top of the bowel issues.


    Hope those who had chemo yesterday and today are doing well!


    OK.....with such a group of us getting ready to be in the chemo chair tomorrow I can't help but get an image in my head of the group of us armed with our chemo bags marching into treatment all together to get our fight on! We got this!!

  • Kellee318
    Kellee318 Member Posts: 20
    edited October 2013


    I just wanted to wish everyone starting chemo tomorrow well. I have to be at the hospital at 7:00 for my port install and my chemo is scheduled to start at 11:00. I wish I could say I had the feeling of calm that a few had said they got in the couple of days leading up to their first infusion...I haven't. I think having the port done the same day is making me really nervous.


    My doctor called in my prescription for Compazine and my husband picked it up for me so I'm ready to go with that!

  • Gramof2boys
    Gramof2boys Member Posts: 194
    edited October 2013


    Just checking in, today is day 5 after my first chemo. I went to work and felt pretty good, kinda tired after lunch. I'm having intestinal issues too, but it's not constipation. I feel crampy and belch sometimes, I had some Tagamet at home and that seems to help some. It's good to see everyone getting on with their treatment, my next one is 10/18, hope I sail through that one too! Good luck ladies tomorrow, you will do great!!!!

  • Jaybird26
    Jaybird26 Member Posts: 49
    edited October 2013


    Good luck everyone who is starting tomorrow. I am one week post first infusion and I am feeling good. I am sending all of you my good vibes!!!!!!! Get rest tonight. Tomorrow you will be closer to the finish line.


    Janet xoxo

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