anyone else try milk thistle for liver mets and chemo

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debsing
debsing Member Posts: 89

Since starting kadcyla, I've been taking milk thistle because the oncologist told me kadcyla can beat the liver up a little.. I also have mets there.. anyone else try this?

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  • Lauriesh
    Lauriesh Member Posts: 692
    edited September 2013

    I have been taking milk thistle for over 3 years now. I started taking it after I was diagnosed with liver mets.





    Laurie

  • debsing
    debsing Member Posts: 89
    edited September 2013

    Laurie,

    Thank you for your input. Does it seem to be helping in your opinion?

  • Lauriesh
    Lauriesh Member Posts: 692
    edited September 2013

    It's hard to say. I take a lot of supplements. I have been Ned for 2 1/2 years and honestly, I am afraid to stop any of them just in case they are helping. I did take a break from herceptin this spring and summer for 5 months and wasn't on any treatment, other than my supplements. My tumor markers stayed the same and scans at the end of the 5 months were still clear. So, who knows, maybe they are helping.





    Laurie

  • dbla
    dbla Member Posts: 706
    edited September 2013

    I was taking it but then I read somewhere that it can somehow be converted into estrogen. Wasn't going to take that chance, however small.

  • stagefree
    stagefree Member Posts: 2,780
    edited September 2013

    Debsing, I neither have formally dx'ed liver mets nor have used milk this supplement myself, but did have lots of research on it since I thought it could help my Dh in his health problems ( not cancer & not actively on any meds).

    I do know it is processed in the liver. Well, if your current dx is probably activated in the liver ( as does some of the other newer drugs), you taking any supplement with it may interfere with the procedure. That's why grapefruit ( which has some ingredient activated in liver) is a no-no with many chemo. Btw I was told by a top notch oncology-nutritionist pomnigarade is a no for that reason as well. She also explained not to seek extras in my treatment & let the chemo do it's job properly, without any interferences...



    Lauriesh, I am very happy for your ned, guess you are not actively on chemo??



    Well the supplement in topic is some serious stuff, I suggest you consult with an oncology-nutritionist as well as your MO& maybe the drug company producing your chemo, if it's OK to take it along with your chemo that's fairly new in the cancer market.



    Meanwhile I do suggest you include artichokes in your diet, eat it as much as you can, the heart of it, not throwing away the leaves. Boil them and suck the thick ends. You can drink the water you boil the stuff in. That, my friend, is a harmless supplement to your diet as this veggie is the liver's formal best friend.

    Btw, I am not an alternative therapy type, but sadly have lots of cancer experience in the family which led to lots of info on best diet along with therapy.
    Another btw, just one fact: this supplement is suggested widely to alchoholics to clean their liver of the harmful residue of their over consumption of alchohol. We would not want to clean the liver of the chemo we are depending our lives on, before it can finish it's job in there, would we??

    Hugs,

    Ebru

  • debsing
    debsing Member Posts: 89
    edited September 2013

    Artichokes it is! :)

  • Lauriesh
    Lauriesh Member Posts: 692
    edited September 2013

    I did take my supplements during chemo, but did get them ok'd by the nutritionist at my oncology office. There were a couple that she reccomended I not take while I was doing chemo, but she was ok with the milk thistle.

    I had excellent results while on chemo, 11 cm liver tumor shrunk down to 3 1/2 in in 5 months. and the smaller 3 cm was gone in 3 months.  If I have to go back on chemo, I would continue to take the supplements that the nutritionist lets me take.

    Laurie

  • justjudie
    justjudie Member Posts: 3,397
    edited September 2013

    Very interesting about the artichoke! I did not know it was good for the liver! I even like them a lot so it will not be at all difficult to eat. I would give the milk thistle a try but my onc is really down on any sort of supplements and has urged me not to take them. He insists you really cannot know for sure what is in them as there is no regulation by anyone. And the strength could also be very different from one time to the next. I think he is just very old school about them, but as he is my doc, I do what he thinks is best. The milk thistle is intriguing though.

  • redwolf8812
    redwolf8812 Member Posts: 2,463
    edited September 2013

    My oncologist told me no to the milk thistle for the same reason Ebru stated.  But seeing Laurie's great response, I wonder?

    - Penny

  • stagefree
    stagefree Member Posts: 2,780
    edited September 2013

    I just remembered DH quit taking this supplement regularly, saying his stomach ulcer was worsened... just so the ones with already worn-out stomachs know..

    hugs

    Ebru

  • cmhartley
    cmhartley Member Posts: 1,091
    edited October 2013

    Yes!  I have diffuse liver mets and associated cirrhosis.  I started taking Milk Thistle regularly about 2-3mos ago and maybe coincidental but my liver values are back to normal.  I used Milk Thistle in a lot of dogs with liver disease and saw tremendous results so I believe it has some value.  Oh, and I had several oncologists including 1 at mDA that said it was okay.  

    Best wishes!  I've had diffuse mets now for about 4 yrs and still going strong.

    katie

  • mamawells
    mamawells Member Posts: 8
    edited October 2013

    What is milk thistle and where can I get it?  How do you take it?  What chemo have you had.  I'm starting chemo Thursday for bone and liver mets just discovered today

  • debsing
    debsing Member Posts: 89
    edited October 2013

    So I have bone and liver mets too, and have taken herceptin/perjeta/taxotere, herceptin/perjeta/navelbine and now am on kadcyla. I had, and may still have alcoholic fatty liver disease even though I've quit drinking. I'm so afraid of going into liver failure with chemo... milk thistle is a supplement that is used for liver disease and is taken up to 4x daily.. I take one caplet twice a day

  • cheery
    cheery Member Posts: 311
    edited October 2013

    I don't wish to be a party pooper but my intention is to allay the anxieties of those ladies who feel overburdened with pill popping daily.  

    I have liver met since 2008. Due to long-term Herceptin (year 6), I've been on a daily nail supplement since last year. It has milk thistle in it but that did not stop my liver enzymes from spiking up.  Doctor believes it's the on-going chemo and Traditional Chinese Medicine that I was taking simultaneously. 

    At my doctor's advice, I stopped all supplements and TCM and my liver enzyme finally came down 3 months later naturally. I had a similar experience in 2009 and the liver enzymes also went back to normal after about 3 months. 

    Just like chemo, it may be different for different folks but milk thistle certainly didn't work for me. 

    Hope this helps. 

  • MShelto143
    MShelto143 Member Posts: 1
    edited October 2013

    Hi just found out have liver mets going for bio on Monday then discuss treatment thinking of a chemo pill twice a day then check met in 3 months interested in this milk thistle should I try taking it before bio also I am still on armidex for 8 yrs not sure which way to turn any info would be helpful thanks

  • Chickadee
    Chickadee Member Posts: 4,467
    edited October 2013

    I think any supplement that doesn't interfere with the therapeutic effects of your treatment and helps in some way is worth doing. The difficulty is finding someone knowledgeable enough to figure out the chemistry and guide you.

  • MelZ
    MelZ Member Posts: 9
    edited October 2017

    Laurie,

    What brand of milk whistle do you take and how much? I hope you are doing well. I was diagnosed with liver mets this week...

    Thanks - Melissa

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