Regret you did not do profyl. mastectomy?

Options
glorianna
glorianna Member Posts: 92

Hi,

It hurts. Like hell. Inside. Do not listen to anyone else but yourself.

1 MRI said all O.K.   2 months later redid MRI abroad, 1 cm lump with vein supply. Even

scattered fibroadenoma, assymetrical in right breast. Even identified later by other tech.

3 months later new MRI, new tech.:

2 cm mass behind nipple. Deep down in breast plaque like linear enhancement. MRI

biopsy. I spent a fortune on  imaging and consults. Leftbreasts, scattered foci. Deep

down, medially 3 mm contrastenhancement, seen on ultrasound. 

3 weeks ago, 10 pictures on ultasound of everything abnormal, missed in England.

Dense breasts? Listen to your heart. I have old bleeding deep in the breast acc to pathology, why - i do not know. surgery in 4 days.

Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited September 2013

    No, I don't regret not having a prophylactic mastectomies.  And I say that as someone who has been diagnosed with BC (and required a single mastectomy as a result), who has had 6 biopsies over the years and more aspirations than I can remember, and who has extremely dense breasts (level 4 of 4).

    Let me repeat here what I just wrote in response to the other thread that you started today:

    Glorianna, you and I exchanged a series of posts a couple of months ago.  You came here desperate to find a surgeon who will perform prophylactic mastectomies on you because you believe that you are high risk.  Through our exchange of notes, it became clear to me that you are terrified of breast cancer - but it appears that you are actually not high risk at all.

    Your mother died of an unrelated cancer (brain, I believe). You had an ovarian tumor (but you have not indicated that it was cancer).  You have hyperplasia in your breast, but not atypical hyperplasia.  You have heterogenously dense breasts, which is normal for your age. 

    Now you have an intraductal papilloma. Hopefully that's all it is - as MelissaDallas said, intraductal papillomas are benign. 

    I appreciate that you are scared, and I certainly appreciate that if this biopsy uncovers breast cancer, then you will feel that your gut was right all along and you should have had the PBMX.  I understand that.

    But please don't try to transfer your fear to other women.  Do what you have to do, but don't use your fears and your situation to scare other women.  That's just wrong. Every woman who comes to this forum and who is high risk has to make her own decisions based on what's right for her.  Please don't try to influence other women's decisions because of your own fears.

    Good luck with the biopsy. I hope that it is benign.  

  • m1970
    m1970 Member Posts: 337
    edited September 2013

    No, not at the time. I was happy not to have more surgeries. After time, and being single, I started to dislike my lumpectomy breast but didn't want surgery. Then I was diagnosed with a new primary on the opposite side breast. I knew by then, 6years later, exactly what procedure i wanted. So hindsight is 20/20.

  • lbrewer
    lbrewer Member Posts: 766
    edited September 2013

    I regret it every day.  I had my left breast done 4 years ago and went thru the anguish of chemp the MRI/Mammo every 6 months.  Last year they found a 7 cm in my right breast and 15 infected nodes.  Surgery, chemo, radiation and more surgery.  And about 50% chance of making it.

    And to top it all off, I passed the HNPCC gene on to my daughter and HER doctor says there is no relationship between the two!   Every other expert disagrees.

  • leaf
    leaf Member Posts: 8,188
    edited September 2013

    This is a very recent study on contralateral prophylactic mastectomies. So this is not your situation.

    This is a study of young women who have already had breast cancer, have no known contralateral breast cancer, and choose to have a mastectomy on the other breast.  

    RESULTS:

    Most women indicated that desires to decrease their risk for contralateral breast cancer (98%) and improve survival (94%) were extremely or very important factors in their decision to have CPM. However, only 18% indicated that women with breast cancer who undergo CPM live longer than those who do not. BRCA1 or BRCA2 mutation carriers more accurately perceived their risk for contralateral breast cancer, whereas women without a known mutation substantially overestimated this risk.

    CONCLUSION:

    Despite knowing that CPM does not clearly improve survival, women who have the procedure do so, in part, to extend their lives. Many women overestimate their actual risk for cancer in the unaffected breast. Interventions aimed at improving risk communication in an effort to promote evidence-based decision making are warranted.

    http://www.ncbi.nlm.nih.gov/pubmed/24042365

Categories